TRIPLE POSITIVE GROUP

Momx2 quick hi. From what I've been told Adrymicin is the toughest chemo out of what we might get for BC treatment. I have a feeling you will find Taxol a bit easier especially if you are not do 6tx every 3 weeks!

Fell down steps now feels like my spine is broke....Hurts bad...dont know if this is from taxol or the steps....hurts real bad.....Need vicodin to knock me out

Goutlaw watch the pain, don't mask it yet with pain meds, u might need to check it out????

momx2 You're still getting smaller doses than the 3 week dose. A friend of mine had an allergic reaction to taxotere. She said before she even could say "I can't" (breathe) the nurses had already stopped the taxotere, upped the benadryl and she was breathing normally. It's rare but they know what to do. That's why they watch you so closely the first time. I believe they infused her slower and more bendryl after that. This was the friend that had almost no other SE other than hair loss and a few taste changes after her final tx (6 in total).

Go outlaw. I'm not sure how weekly taxol could take more time. Either way, it would be three months.



Regarding weekly herceptin, I am one that had side effects with herceptin after getting it weekely during chemo, when I was getting it every three weeks in 30 minutes. Not horrendous, but felt crummy, tired, the big D. Very flu like. I felt worse than chemo. Onc said we could try it over 90 minutes, or I could get it weekly or every two weeks. Didn't matter the timing, just making sure I got it. I tried the 90 minutes every three weeks fist and that helped hugely so I stuck with it, rather than go in weekly for a year.



Moni-I have to say that all sounds strange and a backward process to me.



Lago and other creative folks....I have a growing group that just signed up for a bra crawl in October on a Saturday afternoon. Sounded like fun and we can watch the college games. We wear bras outside our shirts....can decorate them however we want. I need ideas for the guys. Not sure I can get them all in t shirts, but maybe bra or clever sayings on a shirt. I found "fill our mugs to save the jugs." I thought of fill up the cups. The girls will decorate bras, and theming that will be a lot easier.



Any ideas?

Morning Ladies...can you tell me "when" you started hormone therapy.....is it during or after RADS..had my last TCH yesterday...now just H for the next year and RADS starting end of this month...but I forgot to ask when I start the Tamoxifen?

ChickaD - hooray for last TCH! I started tamoxifen on April 1, after finishing rads on February 22.

Fluff,

Fecal transplants are very much in the scientific arena in many areas..

Who knows?

"There’s a fascinating and tragic story coming to its conclusion at UC Davis, which points at the fine line between clinical innovation and experimental treatment. Two neurosurgeons just resigned, following the resignation of the med school’s dean last year. The neurosurgeons, going off anecdotal evidence that some patients with deadly glioblastomas lived significantly longer when they accidentally acquired post-surgery infections, had deliberately infected three patients with live Enterobacter aerogenes, a bowel bacterium, and withheld antibiotics"



http://blogs.law.harvard.edu/billofhealth/2013/08/27/experiment-vs-innovative-treatment-in-bacterial-transplants/

Fluff... The lede on the first story I read on fecal transplants was something like" imagine if you're not good enough to donate this" .... Guess what?

Hello everyone , hope you're all doing as well as can be .

Goutlaw , are okay ?

Lago , thanks the nurses at columbia are really great , they keep close watch . Im taking comfort in that

Ashly hi , curious where did you go for txs?

dancetrance , good luck

health to you all !

There's a breast cancer symposium in San Franciso starting Sept 9. Just saw a stock statement on this matter @ Puma pharma....the boss is presenting on Wednesday...

Let us hope that there is a new treatment!

"The Company is initially focused on the development of PB272 (oral neratinib), a potent irreversible tyrosine kinase inhibitor, for the treatment of patients with HER2-positive metastatic breast cancer and patients with non-small cell lung cancer, breast cancer and other solid tumors that have a HER2 mutation. "

Ashla u keep everyone so informed, it's wonderful.

Dance I didn't know u had C-diff I truly hope the Florester? works well for u.

New news out of Mayo clinic (but I don't know if this is true for Chemo) No one needs 8 glasses of water a day --it's a myth--4-6 would be more than enough???

U all know I have something to say about the "cure" for C-diff but out of respect for all who are faint of heart I'm holding my hands back in reluctance to say ll I want to say. But I have said it to Drs. of course.

Ashla LOL--but my sense of weird humor isn't always taken the way I mean it so, sometimes I have o shut down--very seldem but sometimes.

Hi linnyhopp!

Hello all!

I was one of the unlucky people who contracted c-diff during chemo, fortunately never came down to the 'poop transplant' level, but the alternative is worse. Just saying.....

Well my sister saw the MO today and she was a little confused as to why she was there saying 'this is backwards. I see patients after they have surgery'. My sister asked if she would qualify for neo chemo or begin Tamox now as these tests are taking forever. She was not even open to that, and summarily dismissed it. Saying they only do neo chemo if the tumor cannot be operated on in a timely manner, too big etc.  She also reinterated the need for an ALND. She said the pattern would be surgery, chemo and then Tamox and I got the impression that they don't deviate. She did say they would send for Oncotype dx after surgery as there was not enough tissue for that through the biopsy. I don't know, just feel like she is hitting all these walls and no one is listening to her, and no real reason given except that that was the way it is done. And she said that they have an "aggressive plastic surgeon that does immediate reconstruction after mastectomy". I bit my tongue but wanted to say "on what planet is that being aggressive, this is common place elsewhere??!!!"  About the only choice the MO could offer was if the Oncotype dx came back in the middle range, she could decide not to do chemo or to go ahead. Some choice. Still awaiting the MRI next week, PET etc.

Hope everyone had a good day. Moni