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Exchange City

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Comments

  • tinat
    tinat Posts: 2,235
    edited September 2013

    AnnaCanada - Please don't ever beat yourself up for being emotional about all of this.  Let's face it - it sucks and it's hard!  Even the strongest women here have had their down days and have shed tears.  I think we have no choice but to keep pushing through one day at a time.

    The exchange surgery is usually much easier physically than the MX surgery.  There are, of course, still emotions all tied up with it as we get accustomed to our "new" bodies and try to find a new normal.

    Give yourself permission to shed some tears if you need to, it's OK!

  • sweetandspecial
    sweetandspecial Posts: 1,669
    edited September 2013

    Chinneymae - my DH loves mine too, and probably will even more once I have a nip-tuck to remove the mud-flaps so that extra side flab doesn't spoil the look Wink

    Sandra - I'm with you. It's a terrible and amazing experience and for all that what I've gone through wasn't what anyone could call easy, I do realize I've had a much smoother journey than many.  My hat is off to those (Tina, etc) with chemo or rads or necrosis or infections and still have the strength to keep going and be positive. God bless you ladies Kiss.

    Jesslyn - My wait was four months and surgery was a piece of cake. No real pain, great mobility, 2 weeks off work with no driving and no targeted upper body work for another 4 weeks, no side effects except some melancholy (Work stress got to me, plus it's actually pretty common to feel the blues after exchange surgery for some reason) but my friend Ativan helps me through those unexpected weepy moments.

    AnnaCanada - try not to be so anxious (easier said than done, I know), this surgery truly is nothing like the BMX ordeal.  And don't be afraid to ask for a little pharmaceutical help for the blues.  I've always kind of pooh-poohed the need for anxiety meds but now that I've had the need I will never again hesitate to call my doctor.  Ativan is a wonder.  Even my kids, who are well-adjusted young adults, have anxiety issues and have for years.  So much pressure on young people today with student debt, relationship issues, job hunts....it seems so much harder than when I was their age.   Less than a week and you'll be on the squishy side saying OMG that wasn't nearly as bad as I thought it would be!

  • patriciahurtado
    patriciahurtado Posts: 85
    edited September 2013

    Tinat .... I know right it sucks but I'm hanging on..... You know my PS didn't give me any options he just said we have to wait to see how my skin heals.... I'm still getting second opinion. I know few ladies requested fat grafting first to help the dead cells from radiation before placing another TE.....will see in a month how my skin is healing.... I don't really want other type of surgery .... I'm sick of it...



    Ummm I wonder which other options will I have??



    Michelle13 so happy surgery went great





    Annacanada... It's ok to vent ... Cry ... Only you know how hard it is but you also know how strong you are ....Warriors also cry.....



    😍😍



    I hope everyone is feeling great and enjoy your weekend!!!

  • Chinneymae
    Chinneymae Posts: 173
    edited September 2013

    Sweet: my mudflaps were removed during my exchange and it looks so much better!! Now all I have left is the "tittoos" after they settle. Maybe a nip or two if it needs it. :) I'm glad you are happy.



    I hope everyone has very happy end results. Like sweet, I feel very blessed that I didn't have to have Chemo and rads and I am inspired by all of you ladies that have endured those treatments. You are very strong women and an encouragement to many. Hugs to you all.

  • violet_1
    violet_1 Posts: 335
    edited September 2013

    Jess,

    TE fills just sucketh. They just DO. Hang in there...the Exchange is waaaaay easier all the way around!



    Violet

  • Lucky777
    Lucky777 Posts: 13
    edited September 2013

    I don't want to bring anybody down, but I had my bilateral TE exchange to gummy bear implants on 9/5/13. Because the TE were put in too low and too far apart, I needed a breast lift on both sides and "extensive pocket work" on the noncancerous side. This surgery hurt way more than my mastectomy and I am not a pansy. It was an out patient procedure too. The nurse gave me a warning about the pain on my last phone call. The results look great so far. I have also been very lucky in so many ways.

    It still sucks, but when I get feeling sorry for myself I just start listing all the luck that has come my way. Loving Husband, two insurance co, haven't had to pay a dime, lots of sick leave, support from coworkers, my sons are grown so I don't have to take care of anyone but me, NO Chemo, NO Rads, Oncotype Score of 9, Best friends in all the world. Extra screening because of high family risk, this saved me.

    I feel guilty about saying anything about pain when I have had so little in comparison.I do admire all of you who have much harder times than I have. I guess that I wanted people to know that the Exchange surgery can sometimes be very painful. I would ask the PS before surgery. When I found out it would be painful I asked to get my prescriptions for pain and antibiotic ahead of time. My surgery had been scheduled for later in the day and I didn't want to be without pain meds overnight.

  • Chinneymae
    Chinneymae Posts: 173
    edited September 2013

    Lucky777: I'm sorry you had to go through all that pain, but you are absolutely right, you are very blessed. I sometimes tend to get down and when I read your post it just reminded me how blessed I am as well. I have all those things you do as well, except my Onco score was 30. I do feel guilty complaining about trivial things when there are so many that are dealing with much more. These ladies are an inspiration to me and I pray for them every day. Thanks for the reminder. I needed it.

  • sweetandspecial
    sweetandspecial Posts: 1,669
    edited September 2013

    Lucky777 - So sorry for the pain you have with the exchange.  Mine was a simple swap with just a tiny bit of pocket work.  PS freed up just a little more muscle beneath lefty so she'd be even with righty.  The only 'pain' I had was feeling like I had a little internal bruising or something similar.  I hope your pain resolves quickly....way to think ahead on the pain meds!

  • Katlebbie
    Katlebbie Posts: 722
    edited September 2013

    @ Lucky777 I hope you woke up today feeling so much better! Laughing One day at a time! Hang in there many ((((HUGS)))) coming you way! These are cyber so they won't hurt!!!!

    Kat

  • KarolineH
    KarolineH Posts: 24
    edited September 2013

    Lucky777- I hope you are feeling better today. My exchange was on 9/3 and I have a little pain but I think it's due to the drains or bruising. Sweetandspecial is right about feeling down sometimes; I find this stage to be the hardest part for myself. I too, am so blessed and feel awful posting because of all the amazing women that are on this board that have and are going through so much more. They are often the ones who respond first and offer valuable information and kind words. I admire you all and hope I will be able to do the same for others on some level.



    AnnaCanada- wishing you all the best with your upcoming surgery. I took a Xanax the night before and the morning of my surgery.



    Jess- I am very lucky; I had my exchange 4 weeks after my last fill ( 550cc's) which was on 9/3. I had to stay overnight due to bleeding (had a hematoma during MX) and they wanted to keep on eye on me. I did have pocket work but I am not in nearly as much pain compared to the MX. My PS said I would be out of work for 2 weeks and six weeks of limited upper body movement. Just waiting to get these drains out and bandages off so I can see my new self:)



    Have a great night ladies.

    Karoline

  • sandra4611
    sandra4611 Posts: 1,750
    edited September 2013

    Lmimp64,

    Although I'm so sorry you've had such bad complications, I'm glad to have found someone who is surviving anyway. Gives me hope! I got out of hospital today. Plastic surgeon thinks it will be 3 weeks before area is healed. Then he will begin to fill the TE a little at a time. Not sure how remaining tissue will respond. He stops when tissue tells him to, then puts in whatever implant I can accept and removes implant on the other side, replacing it with a match to the smaller one.

  • peanutsgal
    peanutsgal Posts: 64
    edited September 2013

    Hello, everyone! I will be having revision surgery with fat grafting on September 23rd. The PS said that he is basically starting over. He will replace the alloderm with strattice and will make the pockets smaller. I really like the size I am (could even be smaller and would be fine with it!), but my implants fall into my armpits when I lay down and they really pull at my pec muscles. It has been a long year and I hope I am facing my last major surgery for my foobs. Two weeks to go!!!! Really ready to get this over with! I will say, however, that the squishies are soooooo much better than those torture devices called tissue expanders! They feel like me except when I flex my pecs. That sensation takes some getting used to.😳

  • sherry67
    sherry67 Posts: 370
    edited September 2013

    Peanutsgal,

    I had the Strattice as well for my revision I had on July 9th much better support..good luck I even went with a bigger implant than I had I like the new ones better ..

  • Katlebbie
    Katlebbie Posts: 722
    edited September 2013

    @ Peanutgal it sounds like we are having the same procedure, mine is on the 20th. On the pec flexing I don't think you ever get used to it. After 19 years I still notice it when I flex and especially when I do weights and push ups. I asked my PS if she could do anything about it this time and she said no. :( Oh well....... Good luck let me know how you do.

    Kat

  • Katlebbie
    Katlebbie Posts: 722
    edited September 2013

    Sherry67 I heard about  Strattice I need to find out if my PS in going to replace mine. So happy to hear that all went well with you surgery and that you are happy with the bigger size. Smile 

    Kat

  • di2012
    di2012 Posts: 871
    edited September 2013

    Hi PeanutsGal!!!!

    You are the one with 2 bostons....right?   We had our implants placed on the same day.

    I am the one with 6 bostons....I had one revision surgery in July and will have fat grafting, nips, and maybe more revision but not until Oct....need to see my PS one more time and then a date will be set.

    Di

  • Mgster
    Mgster Posts: 80
    edited September 2013

    I am having my exchange surgery on October 2.

  • peanutsgal
    peanutsgal Posts: 64
    edited September 2013

    Katlbbie,

    You'll have to let me know how you do! Dr said it would take about 2 to 2 1/2 hours for this surgery. My exchange was 45 mins tops. This will be my 4th major surgery this year. I'll have to have one other non-breast related surgery before the year is done. My insurance company is about ready to boot me off their rolls! And, yes, you are right, I don't think I'll ever get used to how it feels when I flex my pecs.



    Di2012,

    Hey to you! Yes I have the two Boston's. As if I'm not stressed enough, my male is 12 1/2 years old and is having trouble walking. Had to take him to the vet today and was told that if the steroids and tramadol didn't help, that we might need to consider putting him down. He hurt his back a few years ago chasing a goose and in typical boston clown fashion, he tumbled down the hill into a tree and has had a bulging disc since then. Breaks my heart to see him suffer, though!



    Sherry67,
    When I saw my BS last month, he looked at me and said, "well, you can always go with a bigger implant!" I feel huge as it is with my 450cc implants. I Had to get rid of a few shirts and dresses that no longer fit after my exchange. Don't think my husband would be too keen on purchasing a new wardrobe. Haha. I just hope all my new bras still fit after revision.



  • sherry67
    sherry67 Posts: 370
    edited September 2013

    Peanutsgal,

    The only problem I have found was finding a comfortable bra...

  • Lmimp64
    Lmimp64 Posts: 88
    edited September 2013

    Sandra,

    I haven't had a fill in 6 weeks. They are really watching the skin. I'm with you - small is fine after all this. Glad you are out of hospital.



    Glad everyone is doing ok. It's amazing how many of us will have had four or more surgeries to get to the end of this road.

  • Katlebbie
    Katlebbie Posts: 722
    edited September 2013

    AnnaCanada Thinking and praying for you today that went well with your exchange surgery!

  • goldie4040
    goldie4040 Posts: 404
    edited September 2013

    Questions guys.  Is strattice better than alloderm?  Right now I have alloderm with my expanders.

  • peanutsgal
    peanutsgal Posts: 64
    edited September 2013

    Goldie,

    Alloderm is usually the first choice of PS. It is more pliable and stretchy and usually has really good results. Strattice is being used for me because I need a little extra support for tightening up my pockets. It is also to help with the ripples from my thin skin. I have absolutely no fat on my upper chest so every ripple shows.

  • goldie4040
    goldie4040 Posts: 404
    edited September 2013

    Peanut, have you talked about fat grafting? From what my PS has told me, he will pretty much cover most of my implant with fat.

  • sandra4611
    sandra4611 Posts: 1,750
    edited September 2013

    What does pocket work mean? I want to understand what you all are talking about but as a newbie, I'm not familiar with all the terms and abbreviations. I read about sizes in cc's but have no frame of reference. Also read gummies, jellies...it would be great if someone would post a FAQ. People saw tissue expanders are bad and fills are bad. Why? What should I expect?

  • sweetandspecial
    sweetandspecial Posts: 1,669
    edited September 2013

    sandra4611 - First, let me say I'm so sorry you had to find this site and second, you've come to the right place!

    The 'pocket' is the space that's created by the tissue expander (TE) that will be the eventual home of your implant(s).  'Pocket work' refers to anything your PS has to do to alter that pocket in some way to accomodate your implant(s) for the best results.  For example, I had very minimal pocket work with my exchange.  My PS released just a bit more pec muscle at the bottom of my left pocket because the left TE was riding slightly higher than the right TE.  By releasing just that little bit of muscle it allowed the left implant to be more symmetrical with the right. 

    Some folks have a lot of trouble and pain with TEs and some don't.  I had initial pain and discomfort but my TEs got more comfortable the fuller they got.  Some ladies here have serious pain the entire time they have the TEs. TEs are MUCH firmer than the final implant(s) and that firmness can be uncomfortable.  You'll see references to the 'iron bra' feeling.  It feels kind of like you have an underwire bra on underneath your skin.  In my case I got pretty well used to it and it didn't bother me after the first few months.  That's not always the case.

    Keep in mind that many, many women don't have problems, at least not serious enough that they come looking for help and find these discussion boards.  They're out there living life. 

    My implants are 750cc which if I remember right is the equivalent of a little more than 3 cups of liquid.  50cc = 1.7 ounces.

    The above is just my perspective. Other BC sisters will chime in with their perspectives too.

  • pTXunique
    pTXunique Posts: 4
    edited September 2013

    Hi, I haven't posted here before...just a reader. I have my exchange surgery next Thursday 9/19. Can anyone tell me what to expect...I have a 6 yo and 8yo that will be at school during surgery. I am wondering how long you were at the hospital from start to finish so I can plan for child care. My husband will be out of town 24 hours after surgery. Do I need a helper the day after surgery since hubby won't be there or will I be uncomfortable but able to function? I'm pretty sure all the pain I had after my bmx was from the expanders so I'm figuring this will be better...just trying to figure out if I need my mom to come for the weekend. My mom never learned to drive (NYC) can I drive ok...again my pain seemed to stem from the expanders when I was turning the steering wheel. Any opinions?

    Thanks!

  • tinat
    tinat Posts: 2,235
    edited September 2013

    pTXunique - While the exchange is typically easier than MX it is still surgery.  You can't predict how sore you're going to be, how you'll feel after anesthesia or whatever drugs you'll receive, and you will have restrictions regarding driving, lifting, etc.  Each PS is different so please contact your PS office and ask what your aftercare instructions are going to be so you can plan accordingly.  I would say definitely YES, you should arrange for help, especially with two children to care for and your husband unavailable!  If your mother doesn't drive then perhaps you should arrange with a friend or neighbor to stand by with additional help if driving is involved.

    Best wishes! 

  • peanutsgal
    peanutsgal Posts: 64
    edited September 2013

    Goldie,

    Yes I'll be having fat grafting, but it will be mostly to correct divots and help with the step off. I was told he could only inject a certain amount of fat at one time and that I may have to have repeated injections. He is hoping once the pockets are tightened the ripples will be better.



    pTXunique,

    I was not able to drive until my one week follow-up appointment. Like TinaT said...it is still surgery and you really don't want to push it too soon. I would definitely have someone available to drive. My surgery was a 6 am arrive time. The actual surgery lasted 45 minutes I was back home by 12:30. I live about 30 mins from the surgery center. Good luck Thursday on your exchange. Only a week left to go!

  • sweetandspecial
    sweetandspecial Posts: 1,669
    edited September 2013

    pTXunique - my PS required 2 weeks off work (desk job) and also 2 weeks no driving (I didn't follow that one quite to the letter).  Weight restrictions because the pectorals were cut again and need to heal before you do much with them, so my mom did my housework and hubby did the lawn mowing.  My arrival time was 8am with surgery at about 9:30 or so, and my surgery was about 3 hours. Got home about 3:30pm.  That surprised me because I didn't have much pocket work done, I figured it would be a quick swap.  I assume it took that long because my PS is such a perfectionist and is very deliberate in his approach to everything.

    TinaT was absolutely correct when she said everyone is different, both us patients and our PSs, and you can't predict just how you're going to feel after surgery.  Some of us come home and sleep the rest of the day.  I was still wide awake at midnight that night - go figure!   Do call your PS office as Tina T advised.  That's your best bet to know what you PS expectations and instructions are.

    And yay for you!  Only a week to go!  The 19th is my 6-week post-op visit day.....I'm five weeks past exchange yesterday and I realized the other day that I think my implants have softened up quite a bit in five weeks.  They're still firmer than my aging, somewhat pendulous natural breasts were, but they're MUCH, MUCH softer than the TEs.  Best of luck for a successful surgery and relatively pain-free recovery Kiss.