TRIPLE POSITIVE GROUP
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Ashla , moving story thanks for sharing
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((((((Beth)))))))
Nicky0 -
goutlaw, my oncologist told me that even after our ovaries no longer produce estrogen (menopause), there is still estrogen being produced in our bodies (even in our fat!). Arimedex works to lower the amount of estrogen our bodies produce. She also said it helps if we lose some of our fat!!!
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BethCon1 Your news angers me. I'm sure not as much as it angered you. I really hate this disease… but I'm with goutlaw on this one. Seems the Herceptin might have worked and maybe that's why you are no longer HER2+. Don't listen to that bull about being only hormone positive is worse prognosis. I would think just the opposite but I'm no onc.
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Beautiful article - thanks ashla.
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Hugs to you Beth!!
Haven't updated on here in a while, but when I went in for re-imaging after they drained my right TE, I found out the RO wanted to do IMRT (instead of traditional rads) for my left side + supraclavical nodes. So, it will be the 16th (ish) before I start rads. Still debating if I'll get a prosthesis to use until I get re-expanded, or just keep sticking a push-up pad in my sports bra . . .
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goutlaw - Tamoxifen and the aromatase inhibitors have the same end goal, the mechanism is different though. Tamoxifen blocks the hormone receptors on the breast cells, while leaving circulating estrogen alone to provide benefits to other body functions, like heart and bones, in pre-menopausal women. Depriving younger women of estrogen causes other issues like high cholesterol and osteoporosis. Aromatase inhibitors (Arimidex, Aromasin and Femara) are used for firmly post-menopausal women, who are no longer producing estrogen, to suppress the conversion of androgens to estrogen by eliminating the enzyme aromatase which facilitates that conversion. Both Tamoxifen and the aromatase inhibitor drugs prevent a recurrence of breast cancer, they just do it in differing ways.
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Anyone hear of doing the blood type diet? Makes sense cause we all different. But types A and B higher chance of cancer.....I'm A
My sister is o
I feel so cheated0 -
goutlaw - Blood types A and O represent 87% of the populaton in the United States. You can attribute the prevalence of differing types of cancer to blood type to a certain degree, but it is overgeneralizing to say that type A and B have a higher chance of cancer.
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Goutlaw, if it makes you feel better, I am type O! LOL
McKatherine, since I've been in the midst of reconstruction for almost 22 months, I use an Amoena camisol. It has two soft fluffy Foobs that you make as thick or thin as you want. It works great when I had one side half expanded and one removed. I got them from my Dr - insurance paid. I am still using them now when. I am half expanded. On. Both sides.0 -
Hi, Ladies
would like to ask how long do you see your doctor after treatments are done I'm at every 3 months now when do they go to every 6 months or every year?
ALSO need help on info what kind of stuff to ask my doctor about some estrogen for sex I know ( TMI) even though we are positive. I need help in that department and over the counter anything is NOT helping...
Any info would be so great...
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Ang, the timing is up to your MO. Depending on your tx, and how you are going. I am a year PFC, but had some issues, so I am on three months yet. Others are on six months by now.
I can't link on my phone but there is a thread about that. Try searching for The solution to painful intercourse, Yippee. (Or if anyone here knows the link, could you post it? Thx) this is in stage 4 forum, but it is one thread that they won't get upset if you go there. Lots of info there, just be aware the original poster is an angel.
Much love.0 -
Ang, I had my last herceptin in February 2013. I am scheduled to see my MO every 6 months. Saw her for the first time post herceptin on August 28,2013. Had blood work and breast exam. All blood work was normal breast exam was normal so I will not see her again until March 2014. I am getting a mammogram once a year. Have one scheduled for Nov 2013.. Sometime I wonder why I don't have as much follow up as others,but I trust my doctors decisions..
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ang - I see the BS annually, saw the MO every 3 months for the first year post treatment, now go every 6 months with blood work at each appt, and an annual PET. See the PS on average every 6 months but that is because I have had continued recon issues. Ask your onc about scream cream - here is a link discussing, look on page 7, the Dec. 31st post at 6:19 p.m. has the ingredient list. It has to be made by a compounding pharmacy.
http://community.breastcancer.org/topic_post?forum_id=8&id=776318&page=7
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Yea moon that makes me feel better lol...Just that is said A and B were more supsible to cancer..The nutritionist counselor. Did that and raw juicing..and says it works on cancer, she personally experienced cancer and her Aunt. Just very hard not to do things you have done...
I don't know what to do...I'm a hog and love food.
I got UA back is normal ugh....could of had chemo Wed but instead took another UA.
I went and did one hour on treadmill today and jumped rope front and back. I'm so tired now..since 1pm....I'm going to sleep the rest of the night lol0 -
Special K yea they did....Now got results and said its normal
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Ang the first year after surgury it was every 3 months. Then moved to every 6 months. After 5 years it will be once a year.
Also check out the "I want my mojo back" thread. They talk about everything.
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Beth, you hold that chin up and keep fighting. Things are so different now for us Her2+ women! I know some stage IV women with mets who just keep on ticking and have for years and years (one good friend of my mom's was diagnosed about 15 yrs ago with stage IV her2+ and she is looking good!). In the meantime, you are in my prayers.
I love this board. Everyone on here is so knowledgeable! I was just on another one reading about breast pain after radiation because I'm dealing with that at ~3 months post and wanted to see if anyone had ideas about how to soothe. (My RO told me it would be normal for a long while to feel aches and pains, but some days are just bad). So this one woman posts and says she is ER/PR + and she just turned down tamox because she decided to take bioidentical hormones instead. She didn't want to take synthetic hormones...
WHAT??? Doh.
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Thank you Ladies ((((hugs))) to all you . I don't know what I would do with out this board or you guy's. thank you so much!!!
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My wife was Dx with IDC on 8/2/13. MRI, lymph node biopsy, pet scan all show localized to left breast. Due to size, largest being 2cm, neoadjuvtant chemo was recommended. She was ER/PR + HER2-.
However, after first taxol, oncologist advised further testing of tumor showed it was HER2+.
So that's why I'm here. Not sure what this means.
She will do taxol next week and then will discuss adding herceptin at her 3rd tx.
Any advice or insight is appreciated.0 -
That's right lago....Help though with breast cancer behind you! Pay if forward to ppl who helped u like the cancer society and all!
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Art123, Sounds like she's getting great care. That's one of the normal chemos for triple positive, AC and T plus herceptin with T. They will probably stop herceptin during the AC part to avoid heart toxicity, and then start up herceptin again to get a full year with herceptin. They should get a baseline echo-cardiogram or Muga to see what her left ejection fraction is to start with and then she'll get another echo or muga every 3 months to see if it's affecting her heart.
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Art123,
Welcome Art ! Your wife is so very fortunate to have a husband like you researching on her behalf.
I too had cancer in my left breast and did neo adjuvant chemo. Many of us here in the forum did. I had TCH x 6 every 3 weeks then another 11 herceptin every 3 weeks for a total of 17 H. Was her first chemo taxol alone?
The dx of her2 pos carries both bad news and good news. As you have likely read...it is considered a more aggressive cancer and if it recurs it is usually in the first few years. But the very,very, very good news is that we have herceptin. The her 2 pos dx has gone from one of the worst to one of the best in prognosis! Additionally many of the newest treatment discoveries are her2pos and herceptin related .
Each of us handles chemo differently. I had what was a relatively uncomplicated journey. Others not so much. The herceptin is generally relatively well tolerated and has few side effects but one is a loss of heart function. They usually test us every few months by
MUGA or echo and check ejection fraction.
Just pop in and ask your questions.
Is your wife hormone positive?0 -
Here is some of that good news for her2 pos ...from the MotleyFool
Perjeta
On Thursday, Roche (NASDAQOTH: RHHBY ) shareholders can look forward to an FDA panel meeting of their own. Already approved to treat metastatic HER2-positive breast cancer in combination with Herceptin and docetaxel for patients that haven't received any prior chemotherapy, Roche is hoping to add an additional indication (known as a supplemental biologics license application, or sBLA) for Perjeta to be used as a neoadjuvant treatment (i.e., before surgery) in for patients with early stage HER2-positive breast cancer.
In the company's Neosphere study which involved 417 people who had recently been diagnosed with early stage HER2-positive breast cancer, the combination of Perjeta, Herceptin, and docetaxel induced a pathological complete response (pCR) in 45.8% of patients which was 58% higher than the next closest therapy option of the combination of Herceptin and docetaxel which delivered a pCR of 29%. In its Tryphaena study, the combination of drugs proved favorable in turning in no more serious adverse events than the current standard of treatment.
Since Perjeta was already approved by the FDA as a late-stage treatment for HER2-positive breast cancer in June 2012, and its safety and efficacy data in the aforementioned trials handily met its goals, I don't see why Perjeta shouldn't get a round of positive opinions from the FDA's panel this week."0 -
@momx2
My wife was recently diagnosed and is being treated at Columbia Presbyterian. She underwent 1st taxol last week, we just found out further tests show she is her2+, will add herceptin in 2 weeks. She is getting neoadjuvant chemo for 20 weeks then surgery. All other tests show localized to left breast.
PM me, curious as to who your onc is & what u think of Columbia so far.
Good luck & be well0 -
@ Ashla & grandma:
My wife is hormone positive as well. Her first Rx was taxol alone, next week is same. Looks like will add herceptin 3rd week.
She had echo prior to chemo. EF was 55-60%.
Her 2 ratio was 3.83, not sure what that means.
Everyone is so knowledgable here. I really appreciate it.0 -
Art123 Just to let you know I too had a large left tumor, triple positive. I have been NED (no evidence of disease) for 3 years as of last weekend. Your wife's tumor was smaller than mine which gives her an even better prognosis. There are many ways to treat this type of cancer. You wife is getting one of those protocols.
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Art123
Good news about Er pos...or when I asked my BS if it was good he said " I'll say! It sure is!" ER pos means more weapons in the arsenal. She'll likely be put on anti estrogen therapy at some point after the other treatments are done...either tamoxifen or an aromatase inhibitor like arimedex or femara .0 -
That sounds like great news, Ashla!
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