TRIPLE POSITIVE GROUP
Comments
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hello and welcome Amyd!
Congratulations on finishing tx. Presume you're still taking tamoxifen?
I'm going to let someone else answer your question, cos these women know much more than I do, but can you just let us know; what information are you looking for exactly?
Nicky0 -
hi Nicky & Camille,
Hello Amyd 1515
Welcome & hurrah for finishing . Any particular questions ?0 -
Hi Amy...congrats on weathering the stom!0 -
Hi AmyD. If youre talking recurrance or Survival stats I am sure some one will send you in the right direction. As it is so individual I just dont pay attention to those.0 -
SpecialK-I've been looking around, and from something I found on an article published in January, interim results for the GP2 vaccine are not yet available. I kept looking but havent seen much of an update,mother than the e75 stuff, which appears similar.
I'm going to ask when I go back in a couple weeks.0 -
fluff - thanks! I would ask my nurse coordinator but she is doing three people's jobs right now so I don't want to bother her! I don't go back for a booster until the beginning of December.0 -
Thank you everyone! Yes I am taking tamoxifen...my biggest issue has been my chemo brain. I had a 4.0 gpa 3 years of college & now i cant remember how to spell & get confused easily. I HATE that!
Yes I was hoping to find some statistics on recurrance & maybe something with statistics...numbers always make me feel better lol0 -
I am gaining so much weight on these steroids 20 pounds already! Im ready to have weight loss surgery on top of all these. Wait until I see him Friday! I couldnt get perjeta! I wonder how lucily this is to spread while doing chemo? Sees like i am short of breath just by walking up stairs?0 -
amyd - here are some calculators, but the cancermath one does not include factoring for Herceptin, but PREDICT does.
http://www.lifemath.net/cancer/breastcancer/therapy/index.php
http://www.predict.nhs.uk/predict.shtml
goutlaw - you are probably short of breath due to reduced hemoglobin. That will improve when you are done with chemo - takes about 6 weeks.0 -
Thank you, Special K.
It was good to see the numbers associated with different treatments. I know they are just overall stats.
V0 -
Welcome Amy I hope u got some help with the data u are looking for.
Nicky I didn't make my app't with my Dr. my ride got all screwed up==oh well. I'm doing OK tho. Thanks for asking. I haven't been on here much cuz I never really have anything to contribute, except some will come along and I'm sure they'll answer u'r questions. LOL0 -
Cami we missed your smiling face! Cant get through WIthout a pun or joke from you. So you better keep checkin in! LOL
to all, Much love.0 -
Camille, Sorry to hear you didnt make your appointment. I can't drive much either, so I have to rely on lifts too. I hate it!! Were you able to reschedule? As for not having the answers - I'm the same! I love reading the answers though!
Don't for one second think you've nothin to add - I'm always looking out for posts from you 😊
Nicky0 -
Moon u'r funny---my face is never anyplace--I'm very careful about that==I've always hated my pictures and now it's worse so my smiles are hidden. LOL but yea I do laugh a lot even to myself=which can be considered a little strange
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ChickaD--It's funny how different everyone's experience is. No one has said the word "mapping" around here. They call the first visit with the CT tech "sim" for simulation (when she did three tattoos on my chest below the boobies) and the second visit "iso" for I don't know what (when she drew some Xs on the boobies and covered them with clear dots). Next day I went to the radiation room for X-rays from the radiation machine to confirm the placement of the marks. Then the next day started rads and asked to have dots tattooed for the Xs. So actually, only two people have touched the boobies (besides the doc, who does occasionally)-- the two girls who tattooed the dots! I think I have a pretty simple radiation plan, though, because I only have two fields (beams from two directions--one from the right aiming downward and left, and one from the left--aiming upward from below the boobie and toward the right. My tumor was just about mid boob and very near the outer side, so not near anything. The scar, however, is along the edge of the areola so I will get "focused" radiation (what the tech called "coned down") in two areas, the tumor bed and the scar for 5 days, then "boost" to the scar for 5 days. At least that's what I think they said! Sometimes the words just rattle around in my head, and I leave wondering what exactly they said! Guess I'll figure it out when the time comes. Just three weeks left!0 -
Also, none of the predictors include estimation for recurrence due to any treatment or to use of support drugs used for treatment.A.A.
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I have an odd question of everyone and a research point of sorts. Wonder if any of you have or had issues with psoriasis or eczema? Just curious.
Cami: Sorry you didn't make your appointment and hope it gets rescheduled soon.0 -
Arlene, funny you should ask. I was just at the dermatologist yesterday because of a rash at the back of my armpit. (BC/surgery side) Turns out it is inverse psoriasis. Fortunately he gave me some samples of a cream that is supposed to clear it up in a few days. I also get a patch of exzema on my left hand every winter.0 -
Thanks KayB. Mine went away after chemo (we all know it kills everything and for me that was a good thing) but it's back now and I was just curious.0 -
Thanks Bren.0 -
Probably not Kay but they don't always look at obscure connections so who knows. Thanks!0 -
kay, I have no idea! But this is what I got off of WebMD:
Inverse psoriasis is a type of psoriasis that is more common in overweight people or those with deep skin folds. Lesions are usually smooth, shiny, and red with well-defined borders. These lesions can cause cracks (called fissures) to develop in the skin creases, which may bleed. It is usually found in the armpits, under the breasts and in the groin.
I am neither overweight nor have deep folds under my arms. But he checked it out under the microscope and ruled out a bunch of other things. I was concerned because it is the side I had all the lymph nodes taken out and did not want it to break the skin and become infected. So far the cream seems to be working to clear it up.0 -
Bren: What cream did he give you. I think I've tried most of them out there. I'm not overweight either but mine is usually on my scalp and typically around the base of the hairline. One dermatologist told me if I was bald, I would not have it and my hair is very thick so he thinks it can't breath. I rarely get it on my skin.0 -
I had a spot of "mild" psoriasis on my scalp prior to cancer. At least that is how the dermatologist referred to it. I also would get something called pityriasis alba every winter. It all cleared up during chemo and has not returned.0 -
Just wanted to throw this in - I had a psoriasis-like rash at the hairline on the back of my neck. Also a small rash behind one ear and underneath one eye. Big bad rash across the entire chest, so the derm biopsied it because he was afraid it was plaque-like and thought it might be lupus - turned out to be an allergic reaction. He sent me to drug and cosmetic skin testing - turns out I am allergic to several things - one was epoxy resin, so I was allergic to the plastic frames of my glasses, (this also accounts for my adhesive allergy) but the big surprise was an allergy to cocamidopropyl betaine - it is the surfactant in all things that lather - shampoo, laundry soap, bar soap, dish soap, etc. That is why I had the rash at the hairline. The biggest annoyance is that this is a coconut product and it is in everything - even organic stuff, health food store stuff, because it is natural. I have to use olive oil soap and shampoo, and the laundry detergent that has no dyes and perfumes. Shampoo formulated for damaged hair, and some dandruff formulas, do not seem to have this ingredient, or at least a lot less of it. Might be worth a try?0 -
When I had that one massive rash after one of my surgeries, my PS prescribed dexamethasone (I think) because he is allergic to a bunch of stuff and that wasn't one. Didn't work and when I saw the dermatologist, he prescribed clobetasol, and said to tell the PS to quit prescribing the wussy stuff. That did work thank heavens, as they were worried that I was having an allergic reaction to my second expanders. PS had to wear gloves when anywhere near me for a couple weeks while I used it.0 -
I also had serious issues after BMX because even though they asked me what I was allergic to, and I had an armband stating that I was allergic to Neomycin (which I also knew courtesy of the drug and cosmetic testing) they irrigated the chest with Bacitracin irrigant - hellooo????? I am allergic to it - needless to say I was a mess - also allergic to the Levaquin given by IV for infection prevention. Had a nasty, weeping rash and they discharged me from the hospital. PS wouldn't prescribe anything but BS yanked my drains and put me on Prednisone. I had necrosis that didn't heal - I am positive that the steroids ended up being responsible for the non-healing issues that caused the subsequent surgeries and loss of the left TE. Live and learn, right? PS thought I might be allergic to the Betadine scrub - but at exchange we used it but I asked that he not use the Bacitracin irrigant, just sterile water - no allergic reaction. Yay!0 -
It is crazy, right? As a result of all the sulfa based antibiotics I was on during infection times, (two at once one time-iv and oral) I apparently now have a sulfa allergy. Broke out in humongous hives. They don't know if I really have an allergy or it was the fact that I was on two at the same time and the mega dose did it, but no one seems to want to find out. Said I could potentially go into anaphylactic shock and they don't want to test it to find out.
Glad that all appears to be behind me right now.0 -
fluff - my family jokes that I need to live in one of those bubble things! You can live in there with me, lol!0 -
Hello Fluff,
Once you have a reaction to Sulfa or anything else, you really should tell them to avoid using it. I'm sensitive/allergic to Sulfa. I had a reaction ( turned red, hot and itchy within minutes of taking it) to Bacitracin given for a UTI years ago. I asked about testing and was told not necessary and I was told don't ever take again. Reactions may stay mild or they may get worse the second or another time around. And if you are in a surgical situation like SpecialK, it can wreak havoc on your wound/body.
Please talk to your Doctors and tell them your concerns( make them write it on your charts), you don't want to be in a situation that because of chemo you need to be treated for an infection and the antibiotics make you sicker.
Take care,
Vivian0
