TRIPLE POSITIVE GROUP
Comments
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you can add me to the allergy club. I am allergic to vancomycin and all the mycins preceding like ethromycin. Pennicillin and all the illins. Would you believe tetracycline and cyclines? And dont forget Bactrim which is a sulfa. Not to mention codien. Which leaves me with ciproflaxin, daptomycin( newest in the mycin line and about 700$ a Syringe for iv use) and cephlexin. Another reason ortho doesnt like me.
Since I end up in huge hives that take cortisone shots to clear up and hurt thats not good. So Fluff I understand! Specialk, my family will send me with you to that bubble!0 -
wow, interesting to see how many of us are allergic to various things!
Arlene, the sample cream he gave me is ApexiCon. It is pretty strong and he said if it becomes a chronic condition he would prescribe something that was a little milder.0 -
I started using sulfate-free shampoo and conditioner about six months before I was diagnosed and it seemed to help my skin as well. I've always had acne/skin problems. I have a patch of eczema between the forefinger and middle finger of my left hand (my left side seems to typically be my problem side/problem child). I wish chemo would have knocked that out for good.
I'm also allergic to penicillin and told them numerous times before surgery. What did they do? Gave me penicillin in the IV during surgery. I didn't have a reaction so perhaps I had outgrown the allergy (I broke out in large hives while on it in high school).0 -
I was never allergic to penicillin when I was younger, had it a million times for tonsillitis. When I was about 35 I developed an allergy to it. Right after chemo I developed a UTI and when they cultured it they discovered that the drug they initially gave me would not work, and aside from some IV drugs, the only candidate was a penicillin cross-reaction drug. They gave it to me and I was fine but as soon as the pharmacist said she had never seen anyone with a penicillin allergy react to it in the 17 years she has been a pharmacist, I thought, you haven't met me ..... I was so glad I didn't have a problem since I was already puffy, bald, couldn't walk very fast and was peeing every 10 minutes. I really did not want to add giant hives all over to that list!
Sounds like a party in the bubble! Welcome fellow allergic bubble people!0 -
Hi all! I'll join you in the bubble (if it is not plastic)! Allergic to the chemos, Herceptin, most antibiotics (Levaquin left), latex, peanuts, wheat, bee and wasp venom, adhesives, plastics, and the environment! Everything my doc has tested for has been positive, and have had numerous anaphylactic reactions. My immunologist calls me a 'supper reactor'; glad to know I exceed in something! lol This year I was forced to get a flu shot for the first time in my life. This started a cascade of reactions leading to L renal failure, for which I have a nephrostomy tube now (hopefully out in a couple weeks). He said I could never have another one. Hmmmm....my job requires it or wear a 'scarlet letter' and jump through hoops. We'll see.
Update on my sister....... primary tumor was never found. She opted for an ALND and whole breast rads, chemo and tamox. Fortunately, only the two prior identified nodes were positive. Unfortunately, they took 31. She already has arm swelling. Hopefully, it will resolve some. No distant mets found, thankfully. Still waiting for the oncotype dx results.
Hope everyone has a good day, don't post much but follow you all. You are all in my thoughts!0 -
moni - I have never had a flu shot as I am allergic to albumin, which is where most of the formulation are grown. I have also never had the flu, so ... I have the insect allergies, and was allergic to milk as a baby, and so many pollen allergies that even the allergist said, wow! Glad to have you in the bubble with us! Glad you sister has answers, but sorry about the removal of so many nodes and the swelling - hope it resolves.0 -
Hi Special K, I did cover that base with the shot that is albumin free, although I have not had a problem with eggs, but what the heck, safe than sorry, right? yeah. I did have the flu about 25 years ago, real reportable flu, not what most people call the flu! Figured I had some immunity as I never got it again and I hang around with sick people, haha. But our hospital made it mandatory last year or you have to wear a 'flag' on your name tag and a mask everywhere except the breakroom! So much for not making people feel ostracized and labeled. When the nurse came around giving shots, I declined, but was questioned why. I explained that I was reactive to everything, and she literally laughed that 'people almost never react to the flu shot!'. Nonetheless, told them I'd see my doc first. He was wary, but went ahead. Now I am not so sure I can 'sell' the vaccine to my patients. Quite a conumdrum. I was also allergic to milk as an infant, and remain lactose intolerant. Wonder if this is a precursor for allergy prediction?0 -
wow, the bubble is getting crowded0 -
probably not milk. I dont have that. Moni, isnt having to wear a flag because of your medical condition a violation of HIPPA ? At least I'd present it that way!
So far I dont have a reaction to wasp bites except a cherry red dot where I was bitten on my shoulder over 20 years ago and once on my forearm over 15 years ago. Little cherry dots mark the spot. Im thinking thats not real good and avoid them as much as possible. LOL0 -
OMG U poor ladies, I was never allergic to anything, until the last few yrs. and I really thought wow to have u'r whole life like this must be terrible. U ladies should have lived in OZ no allergies there and pretty bricks. Really what a time u have getting meds--especially when there is so many things we get stuck taking.My GF always got and get Sinus infections never got one before , now I get them and I call her each time and say how did u live like this-they're horrible. My sister too never had any problems til after she got cancer.0 -
Cami like everything else you do it one day at a time. My theory is that something in the binder ingredients is actually causing my problem becsuse I havnt had a reaction to the iv abx. But I am hoping to never find out! LOL!!!!0 -
This is kinda long...it was Johns Hopkins........
Johns Hopkins Update This is an extremely good article. Everyone should read it.
AFTER YEARS OF TELLING PEOPLE CHEMOTHERAPY IS THE ONLY WAY TO TRY ('TRY', BEING THE KEY WORD) TO ELIMINATE CANCER, JOHNS HOPKINS IS FINALLY STARTING TO TELL YOU THERE IS AN ALTERNATIVE WAY . Cancer Update from Johns Hopkins: 1. Every person has cancer cells in the body. These cancercells do not show up in the standard tests until they havemultiplied to a few billion. When doctors tell cancer patientsthat there are no more cancer cells in their bodies aftertreatment, it just means the tests are unable to detect thecancer cells because they have not reached the detectablesize. 2. Cancer cells occur between 6 to more than 10 times in aperson's lifetime. 3. When the person's immune system is strong the cancercells will be destroyed and prevented from multiplying andforming tumors. 4. When a person has cancer it indicates the person hasnutritional deficiencies. These could be due to genetic,but also to environmental, food and lifestyle factors. 5. To overcome the multiple nutritional deficiencies, changingdiet to eat more adequately and healthy, 4-5 times/day and by including supplements will strengthen the immune system. 6. Chemotherapy involves poisoning the rapidly-growingcancer cells and also destroys rapidly-growing healthy cellsin the bone marrow, gastrointestinal tract etc., and cancause organ damage, like liver, kidneys, heart, lungs etc. 7. Radiation while destroying cancer cells also burns, scarsand damages healthy cells, tissues and organs. 8.. Initial treatment with chemotherapy and radiation will oftenreduce tumor size.However prolonged use of chemotherapy and radiation do not result in more tumor destruction. 9. When the body has too much toxic burden fromchemotherapy and radiation the immune system is eithercompromised or destroyed, hence the person can succumbto various kinds of infections and complications. 10. Chemotherapy and radiation can cause cancer cells tomutate and become resistant and difficult to destroy.Surgery can also cause cancer cells to spread to other sites.11. An effective way to battle cancer is to starve the cancercells by not feeding it with the foods it needs to multiply.*CANCER CELLS FEED ON:a. Sugar substitutes like NutraSweet, Equal, Spoonful, etc. are madewith Aspartame and it is harmful. A better natural substitutewould be Manuka honey or molasses, but only in very smallamounts. Table salt has a chemical added to make it white incolor Better alternative is Bragg's aminos or sea salt. b. Milk causes the body to produce mucus, especially in thegastro-intestinal tract. Cancer feeds on mucus. By cutting off milk and substituting with unsweetened soy milk cancer cells are being starved. c. Cancer cells thrive in an acid environment. A meat-baseddiet is acidic and it is best to eat fish, and a little other meat, like chicken. Meat also contains livestock antibiotics, growth hormones and parasites, which are all harmful, especially to people with cancer. d. A diet made of 80% fresh vegetables and juice, wholegrains, seeds, nuts and a little fruits help put the body intoan alkaline environment. About 20% can be from cookedfood including beans. Fresh vegetable juices provide liveenzymes that are easily absorbed and reach down tocellular levels within 15 minutes to nourish and enhancegrowth of healthy cells. To obtain live enzymes for buildinghealthy cells try and drink fresh vegetable juice (mostvegetables including bean sprouts) and eat some rawvegetables 2 or 3 times a day. Enzymes are destroyed attemperatures of 104 degrees F (40 degrees C).. e. Avoid coffee, tea, and chocolate, which have highcaffeine Green tea is a better alternative and has cancerfighting properties. Water-best to drink purified water, orfiltered, to avoid known toxins and heavy metals in tapwater. Distilled water is acidic, avoid it.12. Meat protein is difficult to digest and requires a lot ofdigestive enzymes. Undigested meat remaining in theintestines becomes putrefied and leads to more toxic buildup. 13. Cancer cell walls have a tough protein covering. Byrefraining from or eating less meat it frees more enzymesto attack the protein walls of cancer cells and allows thebody's killer cells to destroy the cancer cells. 14. Some supplements build up the immune system(IP6, Flor-ssence, Essiac, anti-oxidants, vitamins, minerals,EFAs etc.) to enable the bodies own killer cells to destroycancer cells.. Other supplements like vitamin E are knownto cause apoptosis, or programmed cell death, the body'snormal method of disposing of damaged, unwanted, orunneeded cells. 15. Cancer is a disease of the mind, body, and spirit.A proactive and positive spirit will help the cancer warriorbe a survivor. Anger, un-forgiveness and bitterness putthe body into a stressful and acidic environment. Learn tohave a loving and forgiving spirit. Learn to relax and enjoy life.16. Cancer cells cannot thrive in an oxygenatedenvironment. Exercising daily, and deep breathing help toget more oxygen down to the cellular level. Oxygen therapy is another means employed to destroy cancer cells. 1. No plastic containers in micro. 2. No water bottles in freezer. 3. No plastic wrap in microwave.. Johns Hopkins has recently sent this out in its newsletters. This information is being circulated at Walter Reed Army Medical Center as well. Dioxin chemicals cause cancer, especially breast cancer. Dioxins are highly poisonous to the cells of our bodies. Don't freeze your plastic bottles with water in them as this releases dioxins from the plastic. Recently, Dr Edward Fujimoto, Wellness Program Manager at Castle Hospital , was on a TV program to explain this health hazard. He talked about dioxins and how bad they are for us. He said that we should not be heating our food in the microwave using plastic containers. This especially applies to foods that contain fat. He said that the combination of fat, high heat, and plastics releases dioxin into the food and ultimately into the cells of the body. Instead, he recommends using glass, such as Corning Ware, Pyrex or ceramic containers for heating food. You get the same results, only without the dioxin. So such things as TV dinners, instant ramen and soups, etc., should be removed from the container and heated in something else. Paper isn't bad but you don't know what is in the paper. It's just safer to use tempered glass, Corning Ware, etc. He reminded us that a while ago some of the fast food restaurants moved away from the foam containers to paper The dioxin problem is one of the reasons. Please share this with your whole email list.........................Also, he pointed out that plastic wrap, such as Saran, is just as dangerous when placed over foods to be cooked in the microwave. As the food is nuked, the high heat causes poisonous toxins to actually melt out of the plastic wrap and drip into the food. Cover food with a paper towel instead. This is an article that should be sent to anyone important in your life...
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ChickaD- I read this quite a few years ago and did indeed stop using styrofoam and plastic to nuke things in. Obviously, I'm still here. And indeed, microwaves have not been long in my life. But I wonder, I know enough about biology to know that there is always a battle between the body's immune system and rogue cells, however, for the people like us that have hyper-immune systems, why do we end up here? I have asked this question of several of my doc's and no one could say. My IGE level is over 350 (<104 norm). Shouldn't I have fought off the cancer cells? Surely, exposure to all these synthetic materials cannot be good for us. hmmmm...... I find all this very interesting.
Cami- I agree with you! Sinus infections are the worst. Used to get them all the time. Now, knock on wood, haven't had one in years!
-Moni0 -
well I agree we need to watch our exposure to things that contain toxins. But the part about feeding on fake sugars leaves me bewildered. And i am in no way fond of the fake stuff. I know cells feed off glucose. no matter the way it enters the body it is converted to that form. So bread, cake, carrots, and a spoon of sugar feed the cells in your body in the same time way. So I take all these things with a grain of salt even if I am watching my sodium.... LOL0 -
Any know about pre or post menapause hormone therapy...my RO did blood work to tell if I'm pre or post...from what the two blood tests..it looks like I'm post ...so how will they determine if I get Tamox or an AI ?
Kinda cool because I never had any menopause symptoms until "chemo-pause"...lol
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The Johns Hopkins e-mails have been circulating for years and here's what they have to say about it:0 -
SpecialK: Who ordered the testing and how was it done? Blood work or like allergy testing with the pricks? I've never heard of it.
Interesting stuff!0 -
Arlene - I had standard allergy testing when I was in high school because I had terrible pollen allergies. I took allergy shots weekly for about 10 years. After my husband and I got married we started moving for his military assignments and I had to stop the shots because they are based on your environment - right when I would build immunity we would move and I would have to start over. I now have hay fever/seasonal allergies that are roughly like most other people - nowhere as severe as when I was younger. The drug and cosmetic panel was ordered by my dermatologist when I was seen at the Nat'l. Naval Med Ctr. at Bethesda and the actual testing was done at Walter Reed. The testing took a week - I had to go Mon and have the substances put on my back under disks and my whole back taped. Wed. I went back and they checked for initial reactions, then went back on Fri and they recorded the results. I would guess that a large allergy practice, or one attached to a medical school - like UF at Shands - does this kind of testing.0 -
greetings from under the enormous bubble! Naiviv, all the charts have it in there and I have several of those wrist things that say no sulfa in big letters, lol. And no bp/IV on my left arm. Knowing me, I would probably trip over the path leading to the bubble.0 -
http://simplethrift.files.wordpress.com/2013/10/img_20131010_190556728.jpg
I am so making these!0 -
omg, Fluff where is the recipe. These are hilarious and delicious looking.
cheers0 -
LOL. I saw those they look like pink marshmallow and decorating gel. But looks like you could use a choc chip or a bit of dried cherry. I think they may have used white choc inside but you could change it to choc without any trouble. Its just a smore after all.
Fluff I be right behind you tripping on my way to the bubble. LOL.
ChickD I think they might start you on Tamox. But I really dont know.
Another magnesium infusion today. So have to up my slo mag tablets to 4. Same amount of tablets I took before we started this try. But no D! So ill gladly take the slo mag.
Much love to all.0 -
I thought these were cute!
To make about a dozen, depending on, uh, cup size:
Potato Candy:
2 medium potatoes
1 stick (1/2 cup) butter, chopped
2 16 ounce boxes powdered sugar
1 teaspoon vanilla extract (or almond, actually, if you really wanted faux-marzipan)
2-3 tablespoons peanut butter
1-2 tablespoons cocoa powder
Other Mammo-Graham materials:
6 regular graham cracker rectangles, each broken into 2 squares (I personally now go with these gluten-free grahams from Kinnickinnick)
6 chocolate graham cracker rectangles, each broken into 2 squares
about 1/4 cup milk chocolate chips
about a dozen pink M&Ms, preferably both plain and peanut
Boil the potatoes just until soft. Drain, mash, and measure 1/2 cup out into a mixing bowl. Make a small snack of the excess with some sour cream and chives, I say. Add butter into mixing bowl, mix in thoroughly, and let cool completely(very important). Add sugar and vanilla/almond extract, knead until smooth.
Roll some of the dough into various ball sizes. Then add the peanut butter and knead thoroughly again – you may want to make a few different ‘complexions’, so you can add it in in increments, make a couple more balls, and repeat. Follow the same process with the cocoa, adding incrementally to represent different complexions!
Now gently squeeze each ball between a pair of graham crackers. Melt the chocolate chips (either in a microwave in 30 second increments or in a double boiler). Transfer to a ziploc bag, cut off the corner (as small as you can manage) and pipe some nice zigzaggy flourishes on top of each sandwich. Finally, complete each mammary with its own M&M nipple, using shades of pink and tan and brown as you please.0 -
oh those are not the ones I saw. But I love the recipe for potato candy. My Busia (polish Grandmother) used to make that candy.0 -
Oh my Fluff!
Thanks SpecialK - I'm thinking I won't find that type of testing in little old Melbourne but I'll Shands isn't too far way. Maybe someone in Orlando does this! I'm on it now! Thanks!0 -
good luck Arlene.0 -
Those treats are so cute never had potato candy, but am goint to try and make them.
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fluff, those are hilarious!
Moon, sorry you have to go back on the Slo Mag, but glad that you poo situation is much improved.0 -
The mammo-grahams are hysterical!!!0 -
Hi! I just found this group, and was hoping for some advise/insight. I just had a lumpectomy, am ER+ (99%)/PR+ (97%), Her2+, and my ki67 was 21%. I don't have the biopsy result back on the lymph node they took out on Tuesday, but the surgeon said it looked/felt clear...we shall see. The tumor was 7mm. MRI showed nothing else. I'm 48 and haven't started menopause.
I meet with the surgeon on Monday and then an Oncologist on Thursday. I've called another provider in the area (Seattle) to make sure I get a second opinion on the treatment plan from here out. Assuming that my lymph nodes are clear, is there a 'standard' of treatment you're seeing? I read about Chemo w/ Herceptin to begin with. I just want to go into these appointments with some information, or at least smart questions to ask.
Thank you! And I LOVE the mammo-grahams. I posted that on facebook the other day and I think a few friends thought I had a strange sense of humor (which I can at times lol), considering the situation I'm in!
Mandy0
