TRIPLE POSITIVE GROUP

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  • NickyJ
    NickyJ Posts: 372

    well, I'm back from seeing the surgeon. He's decided that there's 2 areas he's most concerned about; T2 and C1

    He says that he can use cement on T2, but that that's not possible on C1, so it'll have to be pinned. His secretary is going to send me out the appointments, but it'll be sorted soon!

    Nicky

  • bren58
    bren58 Posts: 688

    Nicky, so glad they are offering you something that will give you relief!

    moon, great poem. Definitely some talented women here!

  • vettegirl
    vettegirl Posts: 136

    That jewelry is beautiful Moon.

    Question-I am on TCH plus perjeta-is anyone else experiencing eye Twiching?  I am getting it on my left eye but pretty frequently-was wondering if I should be concerned?  Thanks :)

  • Pbrain
    Pbrain Posts: 773

    Moon!  Gorgeous jewelry!!  Get a better camera and get on Etsy!!!

    Vette, I'm the queen of eye twitching.  I've always been told it is stress and deep exhaustion.  When I had to do my qualifying exams for grad school, I twitched for months.  During my oral exam it looked like I was winking at my professors...Snooze

    Q for everyone.  My Mom has to have a stereotactic biopsy for calcifications behind the nipple.  Anyone have one and do they hurt?

    Now I get to find out what they went through with worry about me...sucks....

  • specialk
    specialk Posts: 9,299

    vette - I had wicked eye twitching, and often my eyes twitched at different rates which made me feel slightly crazy, but it did go away after chemo - took a couple of months.  It is a typical SE.

  • vettegirl
    vettegirl Posts: 136

    Okay thank you-I just wanted o make sure it was normal and not some sign of brain mets or something.

    I am one week out of my second chemo treatment.  Finally starting to feel more human.  Lots of nausea and D this time, but have meds this time so was able to remedy quickly.  Hope to have a good second and third week like on last cycle.  Had the pepper taste in mouth all week again, mouth feels burnt.  Living off of chicken noodle soup and crackers, bananas, and ice cream.  I keep losing weight the first week-probably due to D but also do not feel hungry.  I seem to balance it back out though after the first week.  Lost all my hair now on head, but still have brows and eye lashes-have thinned but not gone, thank goodness-doctor said they may not disappear completely.  Nose is a mess-been bleeding some too-using vaseline on a Q tip at night.

  • PatinMN
    PatinMN Posts: 784

    Pbrain - I had a stereotactic biopsy, although it wasn't behind the nipple.  It was pretty uncomfortable, mainly due to the constant mammogram pressure.  Then there's a sharp but short pain when they shoot the instrument in to collect the samples - which they did several times.  Once they finished it was a big relief to have the boob released and get up from the face-down position.  Then the incision wouldn't stop bleeding, but that's another story...

  • vette ~ I also had the eye twitching and then also some twitching in other muscle groups. It went away when chemo was over. Like you, my mind jumped right to the "worst case scenario". Glad you have medicines in order for your side effects and are starting to feel more "normal". Hang in there, YOU ARE DOING THIS!!!!

    Jane ~ Sorry to hear that your mama has to endure what is likely to be a not so fun procedure. I will say a prayer for her right now, that it's nothing to actually worry about and for you that you can have peace and not worry until there is a real reason for it. Take care.

  • Pbrain
    Pbrain Posts: 773

    Thanks Twinmama.  It is so funny to be on the other side.  When it was me, I just stayed calm and went through whatever I had to without looking too far into the future.  But when it's my Mom, then I get all whacked out and worried.  Patin, that sounds seriously unpleasant.  I wish I could convince my Mom to take a xanax before she goes, but she's worried she'll end up like Michael Jackson or something...

  • Hi my BC sisters :)  I have a question for all of you who have gone through treatment.  I just finished chemo and will be having BMX surgery on January 29th.  You can see my initial diagnoses and treatment thus far below.  I have recently had a consult with a RO who has said that there is no clear cut definitive reason why I should or shouldn't have chemo, however she would recommend it because my tumor was Grade 3, I am under 45 years etc.  I later met with 2 surgeons who disagree with radiation for me.  Now they want to discuss me ...again....at tumor board.  I think I am throwing everyone for a loop with the whole neoadjuvant chemo route.  One thing that the surgeons said that makes sense, is to not make a decision until after surgery to see the final path report.  How was it decided for others on this board to have rads?   

  • specialk
    specialk Posts: 9,299

    girlstrong - criteria for rads can include narrow margins, proximity to skin or chest wall, micromets in nodes with/without axillary clearance surgery, tumor size, percentage of pCR, hormonal receptor status, positive intramammary nodes.  I'm sure others may chime in with other reasons.  I had a slightly larger than 2cm mass, a micromet in the SLN and a 6mm positive node further up, had BMX with good margins and axillary clearance and both my BS and MO indicated (twice each) that I did not need radiation.

  • Girlstrong ~ I was kind of in your situation, except I had 2 known nodes prior to surgery {and ultimately after surgery}. If I were 50, with my same post-neo-chemo/ post-surgery stats, I would not be getting radiation, but because I am 35 ~ I am starting rads next week. The recommendation for older women is usually more than 3 positive nodes = rads, but for some reason, no matter the stage/ grade/ etc women under 40 have a higher local recurrence rate when they don't get rads. I really really wish I didn't have to get rads, but I suppose I will feel a bit better with that extra layer of insurance. I did NOT have close margins or anything like that, so for me, this recommendation is based mostly on my age.


  • hi ladies and thanks for the responses.  I will do what I have to do....rads is a little scary.  I feel like I have put my future health at risk with all this chemo and now I may have to layer in the effects of rads!!???  I just would like to get healthy and stay that way. We all would.  right??  I have done a lot of research on radiation post mastectomy and it looks like the thinking is changing to inlcude rads to that patient population..especially with grade 3 tumors, axillary involvement (pre or post chemo) etc.  The only time I am seeing that rads may be deferred after mastectomy is if a patient achieved a complete pathological response to chemo.  More to come I am sure.... 

  • camillegal
    camillegal Posts: 15,710

    Girlstrong it sounds like u'r question got covered--se how much everyone knows, cuz I couldn't help u, they explained it so well too.

    PBrain, u'r right watching u'r mom go thru any of this is worse on us, I think-cuz when we go thru it we just keep on going--but that's u'r mom.

  • PatinMN
    PatinMN Posts: 784

    Pbrain, do keep working on your mom to take a xanax - I think it would help.  Or maybe an alcoholic beverage of her choice to relax her...  Looking back on it, I think it would have helped me to know more about what they were going to do, but at that point I was too stupid to ask, and the radiologist wasn't very good about explaining.  I'm hoping for good results for your mom!

  • Tomboy
    Tomboy Posts: 2,700

    pbrain, i did one last year, actually nine! right behind the nipple last july, but i was already on a pain med, and i did also take a small (1/2) a 0.5 klonopin, next to nothing, i know, but did seem to help. i think i was experiencing more anxiety than anything. i barely did bruise, and i just tried hard to think of other things, and breathed deeply and slowly. sorry your mother has to experience this, though, hopefully it is benign microcalcifications, will keep my fingers and eyes crossed for you and her.

      moonflower,i love that you wrote that poem for camillegal. she is just wonderful in my book, too, so happy you did that! i dabble in poetry, and jewelry, too, and am trying to get back to it. adieu!

  • honeybair
    honeybair Posts: 234

    PBrain, I had a stereotactic biopsy about 4 years ago and mine was from a sitting position.  I remember while undergoing it breaking down and crying.  One of the technicians in the room kept her arms around me from that point on and distracted me by asking me questions about my life and my children.  I will never forget her kindness.  Nothing was found from this test, so I had a few years of relief.  The tranquilizer would most likely help.  It is noisy and sounds like a sewing machine and a clicking noise and your breast is the fabric.  I don't recall any terrific pain at all.  I hope your mother's test will be negative.

  • Pbrain
    Pbrain Posts: 773

    Thanks everyone.  It is funny that I'm so freaked and my Mom isn't.  She gets a shot of Avastin in her eye every month for macular degeneration so she's a tough one.  She loves telling people that and seeing them squirm.

    Her recent mammo shows no change in the calcifications when compared to her mammo 6 months ago.  I honestly think they might be being cautious because of me (primary family member with a hx of BC).  Her radiologist told her she didn't have to do the biopsy, but that he would like her to.  I am hoping my sister in law or sister go with her since they live in Philly and can easily be there.  And maybe they can slip the xanax into her coffee?  I'm one of those people that tucks a 0.5 mg into my purse on the mammogram days.  It helps me stay calm when I want to spontaneously combust with fear and anxiety!!

  • Tomboy
    Tomboy Posts: 2,700

    ......pbrain, YOU might want to consider a xanax for yourself that day!!! just kidding. you know i love you. i am glad she wont have to go alone,thouugh, unless she likes it that way. i really have a feeling everything will be fine. ok, i hafta admit, i squirmed about the needle in the eye thing, tho.  Eeeew.

  • moonflwr912
    moonflwr912 Posts: 5,945

    Ok Pbrain. I too admit to squirming! LOL.  Kathe we really are a lot a like!  LOL.  Show us the some pics of your jewlery. 

    Pbrain I had the stereotypical biopsy. They took 4 samples out of me and my first inkling that this was going to be an issue when the surgeon was upset he didn't get all the DCIS during the biopsy. It wasn't too bad, but have whoever is with your Mom make sure they take the time to let the anesthetic WORK!!!! WHEN THEY TOOK THE FIRST PUNCH I REALLY FELT IT. BUT I DID NOT FEEL THE OTHER 3. Also the hardest part was lying down with the boob in the hole in the table and NOT moving. Make sure they pad the bony parts for her. IE: her hip, shoulder, rib cage, etc. They used towels for me.  You are kind of contorted on the table to get the boob far enough in the hole. My calcifications were about an inch above the nip and 1 inch towards the center of my body. So she may not have it as bad. But the scary part is in the mind. Ask your Mom is she remember her Lamaze breathing! Hey, it was 26 years since I needed it but I still use it when needed! LOL. I hope for good news for her though!

    Vette, yeah twitching eyes are one of those SEs. But it didn't bother me as much as the big D. Hope you feel better soon. 

    Much love to all. 

  • Jane. I had a stereotactic biopsy. Actually two. Positioning was uncomfortable-but not unbearable. The initial biopsy stick was uncomfortable-but not unbearable. Both were after I had 9 punch biopsies on day 2 after initial DX. I was probably in total denial and a fog 

    Twitches. Have had one for years. I actually name him. Yes him. Depends on which student/admin/issue is top of the twitch list. Got worse during the horrid chemo. Now back to my regular twitch. 

    Will admit. During that time. Lorazapam and good scotch were my best friends. 

  • camillegal
    camillegal Posts: 15,710

    Susan like u'r meds. hahaha

    Pbrain I think we all squirmed with the needle in the eye--to me that needle sounds the worse. My dad use to get those because (as he put it, he was serious) he had guacamole and my Mom and I took him I'd be shaking the whole time and he was fine but the thought of it is horrible. So I'm sure u;r mom will be fine, she sounds like she's very strong. And if she can get a needle in her eye, believe me she'll be fine.

  • LeeA
    LeeA Posts: 1,092

    LOL at guacamole.  My dad was always renaming things as well.  

    Good luck to your mom, Pbrain.  It sounds like they just want to be very careful considering, as you said, it might now run in the family.  

    Needles in the eyes.  Wow.  There are some tough parents who spawned some tough kids around here. 

    ---

    Re: radiation decisions as discussed on the previous page. 

    I was in a grey area and my radiologist kind of made the decision for me because she understood that I'm OCD and she felt like I would obsess over not doing it more than I would obsess over doing it.  In her words:  "everything you've done in treating this has been aggressive so why would you stop now?"  I had a .5 micromet in one sentinel node and a clear node in the axilla.  The other sentinel node was clear.  Had it not been for that one nasty little micromet I would have foregone radiation completely.  Overall, it wasn't too bad and one of the only side effects I've seen so far is a healing issue I'm having right now following my exchange.  It might be a spitting stitch - I'm not sure.  

  • bren58
    bren58 Posts: 688

    Jane, I hope everything turns out ok for your mom. It's true that it is easier to go through it ourselves that seeing a loved one go through it. I agree, maybe you need that xanax the day of your mom's biopsy :)

    I had my 3D tattoos yesterday. This is the third time in 14 years and hopefully the last! The first two times were done with cosmetic tattoo ink which fades. (I did not know that at the time) This time I made sure it was done with real tattoo ink, so hopefully they will still  be looking good when I am 80!

  • ChickaD
    ChickaD Posts: 971

    Hi ladies...I've been absent for awhile....too much going on and boring to post.  Just wanted to say hello!

  • camillegal
    camillegal Posts: 15,710

    Hi Chickie I hope at least things are going well.

  • ChickaD
    ChickaD Posts: 971

    Hi Miss Cam.....mostly dealing with terrible neuropathy pain...just terrible and getting worse.  Also my feet and ankles are swelling bad and heart doc believes I have congestive heart failure....looking at tests next week.

  • moonflwr912
    moonflwr912 Posts: 5,945

    ChickaD, sorry to hear that. Hope they can help. Much love. 

  • camillegal
    camillegal Posts: 15,710

    Chickie WTF---we all have selling maybe it won't be that. oH more problems, like u don't have enough.

  • Pbrain
    Pbrain Posts: 773

    Chick, take all the vitamin B6 you can!  It worked for me with the taxol neuropathy.  I feel your pain, but stay positive.  It will resolve :-)  Did your doctor order a BNP or proBNP test?