Can we have a forum for "older" people with bc?
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Good news ! I think we will start warming up here tomorrow. A slow climb and almost or maybe 50ish by the week-end. Oh, summer for sure after what we have been having. sure hope the weather man is correct. I love how pretty the snow is but the Artic temps. we have gone through is not at all fun.
Thank goodness I'm not doing chemo. One of my se's seem to be feeling extremely cold all the time. We had a couple days like this back then, but no consistency as has been the case now.
Hope your weather gets better where you are. Cam, sure hope yours does too.....your part of the state is generally worse then ours here.....so thinking of you a lot. Hold on, Spring will be coming soon. Hope it is really a nice one, don't you ? See you all later.
Blessings,
Jackie
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Sandra, There's no room left in my brain because it's all full of 50's commercials. I can sing them all.
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Sandra, I agree ... way more stuff to remember than when I was a young adult ... way more than when I was a middle aged adult too! ... but technology makes it so easy to search for answers these days.
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Oh so funny---I might have said this before??? How ironic--But my sister read some kind of study that said exaxtly that--because our brains have so many things stored, it does take longer to remember current things now, and it's very common for all of us the older we are the more that is stored. So says my sister.--who's older than me.
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Wren - how about "brusha, brusha, brusha....." I was in a school play one time dressed as a tube of Ipana toothpaste & carrying an overlarge toothbrush. Can't remember if there was a Bucky Beaver, but if so it was probably a boy.
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Oh, just can't wait for the warm-up that is coming, can you Cammie!! Another VERY frosty feeling morning out and some extra chores to keep me outside way longer than I had hoped. Of course, the warmth will bring rain but I know we will have pushed up piles of snow in the parking lots for weeks here. The rain does a great job of melting snow if there is not tooo, tooo, much.
I definitely have too much in my brain, but don't know where else to leave it......so I think I will have to struggle along.
Hoping you all have a wonderful day and I'm thinking about you.
Blessings
Jackie
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So many of you have snow piled up...won't the mid-west have floods this spring?
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Sandra if it melts to fast we will.
Jackie u'r getting more of a arm-up than we are-it will be warmer but sme snow will come with it--but u usually have warmer weather than we do. Especially in spring and fall, we tend to get the winds more and a little colder. So we'll see. I just hope this weekend is decent--my SIL's sister is getting married so it would be nice for all of them I'll be home taking care of our lovely pets. I'm happy aout that.
I'll be doing a little shopping tomorrow for some things I need so I'll get out a little.
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Evening all,
Sittin here waiting for the snow storm and wondering how much we will actually get! Every station has a different guess. Shud be anywhere from 6 inches to 18!
Did you all see the Canadian study on mammos, that a 25 year study shows that long term BC survival rates are the same whether it was discovered on a mammo or otherwise. What do you think? MIne was a mammo, and was very early. I have felt, because the statistics are based on 5 year survivals and we are discovering it earlier , it appears more women survive longer. Only problem is women like my daughter , who passed at 6.5 years aren't counted in the stats. Spoke with Musa Mayer once and she seemed to agree with me. Shud we continue to get yearly mammos?
Food for thought and discussion.
Hope we don't get buried in snow, just have to wait and look out the window!
Jean
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Bonnets, that is a good question. I had mammo's and at a certain point in time they started doing US's each time too, but only on one breast. I hate to admit ( big time denial probably ) that I should have known they were watching "something" an it wasn't anything pleasant.
Anyway, ultimately, I pulled a heavy carton out of the back of my car and gave myself a bruise on that same breast and when the bruise was still there after 6 weeks with very little change......I knew that I was going to have to DO something no matter how much I wanted to pretend that nothing could possibly be wrong.
Turns out in the meantime from last mammo to bruise, I had lost my insurance. The V.A. took over and discovered what my PCP likely had been keeping any eye on for some time. A papillary ( slow-growing, indolent tumor ) was in that breast.
So......it was something that needed to be known....so having the mammo to find out was good. The kicker was that during the surgery to remove what little was left of this papillary cancer, a second aggressive ductal tumor was discovered.....and this one never showed up on the mamo's. It was not too far away from the other.
I would now for sure want to have yearly mamo's and what I'm thinking is......that somehow, the slow-growing cancer was somehow hiding??? the more aggressive one --- so I guess it is an individual thing. Then again since the cancer is turning up with women who are a lot younger.....I think I'd like to see that addressed. I mean....I'd like to think that no matter what age or how it is found that the younger women have an opportunity to have any cancer found and handled VERY early.
I also think that a lot of times the longer ( older ) you are when cancer is found, the better your chances for getting it to NED. Though it didn't seem to be exactly true for me, I read where older women often tolerate the chemo better.
I guess I would also like to know the ages of these "survivors". I do know a lady older than me who is surviving and doing fine with a marvelous attitude, but she has had three bouts of cancer. First in a breast.....and long enough ago that they, I think, routinely just took the whole breast off. Then 10 years after that......a little spot of ?bladder cancer, and then 10 years after that....the other breast. I've spent a good deal of time with this lady off and on and it has never concerned or upset her nor made her ever feel her days were numbered. I do think there are or could be questions about HOW a cancer is found......since the one that most likely could have done me in was never found until the operation. It was actually under the breast bruise.....but I think had to have been there for a good spot of time......... and as well, how old the survivors are ---- if there are a lot of already older women.......who I think seem to do a bit better just due to age.....then I'm wondering does that give better survival rates or not. Hmm, always more questions at times them answers. I'm not sure I was real clear on this.......so. But its here for what it is worth.
Blessings
Jackie
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Jackie,
I know , when I spoke at our senior group, encouraging women to get their mammos, one man was quite upset. His wife had her mammo and her cancer was not found! She had passed away this year from BC. I cud only say yes some are not found, but others are and hopefully earlier. But if the survival is actually the same, is it worthwhile?
I would also like to see the stats changed , to at least 10 year survival! I have known women with recurrences at 15 and 20 years! And I said those who pass at 6+ years don't count in the statistics. Jean
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I agree about changing the stats to at least 10 years. With treatments, many woman live longer with late stage disease. Jackie, I had the same experience. Mammo found the smaller Grade 1. The larger Grade 2 was a complete surprise to all concerned. Thank goodness my margins were too close and BS took a big scoop when she went back. That's when I decided on the mastectomy. I have a mammo scheduled Friday and wonder if it will see anything if it's there.
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I do not think any one really knows for sure, not even the best of the medical community. Some cancers are faster growing then others. My best friends brother died of prostate cancer at 61 and it was not even a year before he was gone.
It is a horrible disease and all we have is each other and our dear loved ones.
We had a call this morning from my husbands grandaughter from his oldest daughter from his first marriage. She and our DD are only 2 weeks apart. Her Daughter had came up missing as of Monday. The Des Moines , Iowa Police found her today. The DGD has alot of problems. I hope they can get her the help she needs. I told DGD that if she starts in on her tonight to call the police and have her taken to Juvie.
We also helped raise DGD and she told her DGF tonight that she wished she had never left our house.
Guess that is a pretty good testimony.
DD is having a hard time adjusting to the program. I hope and pray that she can do it.
Is Carole still in Aussie Land?
Hugs
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A routine mammo found cancer in the right breast. Nothing showed in the other breast even in the diagnostic mammo a week later OR in the pre-op MRI with contrast. That was done to make sure they hadn't missed anything. Well they did. The other side had it too. If I hadn't insisted on a bilateral mastectomy, I'd be sitting here right now thinking I was fine. The oncologist told me this happens more frequently than we know.
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Yes....just in these few answers it seems just as much is missed as it found. I think we have to use whatever TOOLS we have -- no matter what the statistics are or what way they swing. It seems that some will be missed and that is horrid --- families are left alone, children, husbands, sisters, etc. But if not for the mammograms....maybe even more would be "lost". We have to do what we can --- even if imprecise till we have something better.
I don't know if I mentioned it, but this time when I went for my yearly mammo they did not only digital which they have done since I started going there in 2007, but now they also do it with 3 -D. The tech indicated that if there is anything there.......with 3-D digital it would be easily seen. Well, I don't know.......about that for sure, but I would certainly assume that they get a much better image. So innovations are coming. I do think it sounds like it would be very expensive equipment and it makes me wonder if all the facilities that do mammograms will be able to have this sort of equipment fairly soon. I also wonder Wren and Sandra --- would the second problems we had, have been in evidence had all facilities had the 3 D capability.
Back to feeling.....if a mammogram can save a life.....then its worth it. Maybe newer and better machines will start "finding" tumors otherwise missed. I too think 10 years is a better figure to use. Many of us are taking suppression-type drugs for five years.....though I do know that many recurrences do happen anyway within a three to five yr. period. I do think there are people that are working on many aspects ( like more reliable equipment ) and different medication combinations and hopefully detection methods that can screen people who are not at a stage yet perhaps where it would show by mammo's...................so I think maybe we just have to hang on and hope that we can make strides that provide better answers while we wait for a cure.
Blessings
Jackie
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Mommarch....you and your Dh must be wonderful souls......to have cared so for your family. I hope this latest incident gets handled ok. It is hard for teenagers today I think. What pressures we might put on them, they seemed to get doubled by their peers. Too many young ones having emotional upsets and them poor choices to FIX it.
Saying prayers for your DD that she can hang on and get through --- I don't recall its been long and I'm sure the first couple of weeks must be very hard.....so lots of prayers for her will and strength.
Blessings,
Jackie
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I had my first Mammo early at 35 years old because of fibrocystic disease. My 2nd (1st as baseline) was apx 5 years later, at apx 40 years old. It was that 2nd Memmo my BC was diagnosed early. When "their" newest statistics would be released, the notion that Mammo's weren't effective in diagnosing BC, was to me complete insanity. But who am I? If only a small percentage are diagnosed from Mammo's then isn't it worth it?
If someone had asked me, "If you had BC where would it be"? I would have told them exactly where they found it. The area on my breast had always felt "funny". But no lump was found by touch examination both by myself and my Dr. only few weeks before the Mammo. It was meant to be as I had been putting off the Mammo, until I had the time off of work. I had just been laid off and subsequently had the Mammo.
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I just wonder how many of these docs would tell their wives and daughters not to get mammograms, or that they don't need any treatment because it's "just" DCIS, or that they're old and will die soon anyway. I think this is all about money.
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Dwill and Wren,
I was having a very painful nipple for two months after my lumpectomy and it was just so raw. I complained every week and finally the RO said he would give me some medication as long as I was sure it wasn't an itchiness. I never thought anything more about it until I just read your post. Please check with your doctor about that itchiness.
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Mommarch, sending positive thoughts and prayers for your DD. It was never meant to be easy. And only she can work the program and sustain her health. I am sorry to hear about the expenses on DH's car...and now for your DGD, I hope she does get that help. Your home sounds both welcoming and healing. It must be very hard to watch these young loved ones.
Jean are you getting a lot of snow? I know it's a coastal and just a bit north type of storm. The flakes just started falling here.
Now, going back a few pages...
Cami,you made me LOL with that slapping business....why didn’t I think of that?? Too funny!!!
I would never stay awake for that procedure.Or any, for that matter.
Rabbit, you are right – I remember they put in a plastic disc right as they delivered the happy juice...i did not like that mouth pluggie one bit. I think maybe it wasn’t in right.
Sandra, I have thought about the 2 kitty scenario.One of the reasons we didn’t adopt is are not home much and it would be too lonely for one.Jean, love your avatar!My kitties too have always been my idea butthey LOVE DH.He loves it.I get jealous.
Work is not canceled yet. Alarm goes off 6 AM...I check my phone for any storm messages; then I take my time getting to work.
Stay warm and be safe!0 -
Joan,
Yup, finally started to snow about 2 hrs. ago. We are supposed to get between 6-18 inches, depending on which channel you are watching!Time will tell.
Interesting to get everyones input on the mammo study. What we need though is a CURE! Early detection is good, but a CURE is better.
Back to snow watching, stay warm. Jean
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Happy Snow Day!! but DH woke me early when he left for work. I had big plans for sleeping in.
Snow's coming down at least an inch/hour. Sleet and rain next.
Cable just went out....I hope internet is still onJean looks like you are getting all snow -- BIG snow. Be careful! We are changing over to mix/rain about now...then back to snow later. Our local schools are open - kind of crazy.
Big flakes
Fed the birds under the patio table and rigged a box over the open feeder0 -
Hello to everyone! I've been reading and reading to catch up on the posts. We did not have good, easy access to internet in AUS and NZ, which was probably my only dissatisfaction with the trip. Most of the hotels provided 30 min. of free internet per 24 hours. Any additional was usually pricey. DH had bought a notebook, some other brand besides the popular one whose name I can't pull up, and we weren't familiar with using it. So I wrote very few e-mails to family and friends and didn't once check in at bc.org. I missed all of you!
The trip was fast-paced and really a lot of fun. We visited key places in AUS, travelling by plane from one to another. And, no, you do not see kangaroos hopping around! The only kangaroos we saw were in wild-life preserves or zoos. We did see quite a few wallabies in the wild. And hardly anybody sees the elusive and nocturnal kiwi bird in NZ. We saw two in in captivity and saw them in darkness as we passed through an unlighted passage way. The two kiwi birds were behind a glass wall in a natural setting for them. They're quite large and have feathers that are like hair.
In Tasmania, which is a very beautiful island, we saw Tasmanian devils, also in captivity. They're an endangered species because of a disease. They're feisty little critters that reminded of a small black pig. The reason for their whirling dervish reputation is that it takes two of them to tear apart the raw meat that is their preferred food. When they're feeding, it looks like two devils are fighting over the raw meat as they dash around and pull and tug, but they're actually helping each other tear the meat into pieces.
The kaola bears were also in a wild life sanctuary but we saw them quite close up. They sleep about 20 hours and wake up at intervals to feed on the eucalyptus leaves that provide them with poor nutrition. They have very little energy. Evolution has taken them down a questionable road for survival.
After I get our pictures organized, I'll post a few.
It's good to be back. I didn't miss any golf because it was cold and rainy while we were gone. And the cold continues. Today is gorgeous, bright and sunny and in the 50's.
While I was gone, my niece with the 3 kids was in FL at another rehab hospital. While there she did a turnabout and is back home with her kids. For the moment she is "clean." She'll be 32 on Sat. I don't know how long this healthy phase will last but I will help her as much as I can.
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Carole, glad you are back in the states, welcome home.
Yesterday I went to the broom shop and sewed brooms, last night I awoke with the pain in my arm. DH
got up and rubbed me down with Mineral Ice, for some reason it relieves it.
I did not go to the shop today. He is working on an order, if I do OK tonight I will help him tomorrow. Have a follow up with my Dr. tomorrow for the Cymbalta.
Have an orange pound cake in the oven. I am going to make Penn. Dutch ham and noodles for dinner, a dear friend and neighbor is alone with his FIL who has dementia, so we will take them dinner tonight. His wife is in Canada visiting an old friend who has cancer and there is nothing more they can do.
Its warm here today 75, suppose to be 87 by Sunday.
Have a great day
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Carole, welcome home. I am looking forward to seeing pictures.
Mommarch, orange pound cake sounds delicious. I bet the whole house smells wonderful. Sending good wishes for arm healing and a good doctor's appointment.
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We can only be said to be truly alive in those moments
when our hearts are
conscious of our treasures.
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Carole u'r home---can't wait for some pics. U sound like u had a wonderful time and I'm so glad and it seemed like u were gone so long to me but I'm sure not to you. And I'm glad to hear about u'r niece, praying all goes well.
And Mommarch how nice of u to take care of u'r neighbor in his hard times.
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A minute ago, edited a few seconds ago by sas-schatzi
STOP THE PRESSES NEWS FLASH: 9:44pm EST---8:44pm Colorado time(?)
Our dear fearless leader Chevy has a broken left hip. She crossed the road to avoid ice, she stated in the interview and this rock got under left foot. She turned her ankle and fell. This was early today 2/13/14. She's been in the hospital all day. She's on Morphine, but she has her wits about her. Her humor intact. Doesn't sound loopy at all. Her DD is at her side, as is DH.
Surgery is scheduled for tomorrow at 2 pm, 2/14/14. ORIF --Open reduction internal fixation(long rod and screws). She expects to be in the hospital for two days after surgery. Rehab in hospital for two days after surgery. May go to rehab facility. That will be decided later for sure.
She can't post here because the hospital keyboard is too complicated (shut-up Cami).
She wasn't happy that this stupid injury interfered with her planned casino trip.
She asks that Cami do the AM post reviews in the morning on each of her threads.(Thanks Cami).
Thinking of everyone and sends XOXO's
Will keep you updated---sassy
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