TRIPLE POSITIVE GROUP

formydaughter I do have my days but exercise is the best release for me when it comes to stress. I mostly powerwalk although will be getting back to strength training. In the gym I only do elliptical and treadmill but do not run on  the treadmill. My powerwalk pace on the treadmill was 4.6mph but I worked up to that. I'm faster on the elliptical. 

I like to powerwalk through the park but right now too icy and snowing. I've been doing these videos. Minimum for me is 3 miles a day but prefer 4. Sometimes I do 5. I'll be cuting back a bit once I add the strength training.  I just use hand weights. Usually  7lb and 10lb but I've been off for a while so I'll start with the 5lb 

linky to video.

angel-loved the cartoons! I always wonder why, when my foobs feel cool to the touch, they can't just help with the flashes, lol. 

For my daughter, my onc (an Indian guy), studied yoga extensively when he was in India several years ago. He does a class twice a week that is a combo, I call it yogacize. It isn't particularly challenging but he spends a lot of time on breathing, pranayama, and the mantras. I do think it is helpful....that is when I'm not breathing and running a to do list in my head at the same time!

& if I got breast Cancer What is chances to get ovarian better for me just to b Safe!

goutlaw, I have no opinion as to whether or not that is the way to go, but I do know that it's a big decision that will have a lot of health impacts down the road.  So if I were you, I would get a second opinion just to make sure that you are as informed as possible on the subject.  Good luck with whatever you decide.

Hi Smile On,

I am concerned about Tamoxifen as it relates to Her 2 as well. When I brought that Tamox only works on 25% of Her 2 she acknowledged this is true. I hadn't heard about it causing resistance. Is this resistance to chemo agents or to Herceptin? I'm leaning towards skipping it, as the risk doesn't seem to outweigh potential benefits in my mind. Or, I may take it during the four chemo months and then stop. 

Keep us posted as to what you find and I'll do the same.

Hope9

Editing. Here is what I've found:

http://jnci.oxfordjournals.org/content/96/12/926.full

lago - have you discussed switching to Tamoxifen in hopes that it will rebuild some bone, since you are post-meno?  I don't want to stay on my AI past the 5-year mark, and have briefly discussed with my MO making the switch to Tamoxifen.  He also said I may come off the bone-building injections at that point depending on what my bone density scan shows.

Tamoxifen has blood clot issues. My mom has had blot clots. My NP had mentioned it but I want to see what my onc says. If in 2 years the studies don't support staying on the AI I'm pretty sure she's going to take me off. Otherwise it will depend. I do have a big tumor but no nodes. She might feel I don't need the extra 5 years. That discussion is still 2 years away.

Hi everyone

I read here regularly, but don't post too often.  I've just been dx with Celiac disease. I've been having just about every test known lately as I've been having pain in the lower right abdomen. I had both IDC and ILC so everyone was concerned it could be the ILC spreading.  My colonoscopy and endoscopy was a few weeks ago, but the biopsies have come back with me being positive for Celiac.  I also have mild diverticulosis.  I've been trying to work out how I become a Celiac at this stage of my life.  I've always been able to tolerate gluten pretty well.

Only in the past two years or so have I started to have the symptoms that gluten hasn't really agreed with me.  Apparently there's a few factors that bring on Celiac disease, and one of them is genes.  No-one in my family that I know of has or had Celiac disease. But one of the factors can be a "stressor" to the body, and chemo has been suggested as being one of those "stressors".

I'm now emabarking on a life without gluten. Not too hard, as I had been slowly lowering it, but I'm going to miss a few things.  Lucky for me, here in Canberra Australia we have a gluten free bakery which isn't too far from me, and they have the most beautiful breads and cakes.

We are hoping that it is either the Celiac or diverticulosis or the combination of these that is causing the pain. If it's still there after being gluten free for three months I'll have to have a laparoscopy to see what's going on inside.

It's ironic, isn't it, that when you have unexplained pain you hope for a dx of something that would be quite upsetting in other circumstances, but so long as the dx isn't mets, then we are happy.
Trish

Lago, I'm far behind on reading, but caution on starting the injectable bisphosphonates.  Some women develop a lot of bone pain on them, so it is best to do a few months of the 1-month dose and see if you are ok.  And yes, you are totally correct that GERD can make you less of a candidate for the oral therapies.  They are soap, after all.

Cypher, your calcium levels should stay normal even with bone loss.  That is the due to the magical wonder of parathyroid hormone.  So while all hell is breaking loose in your bones, your PTH is robbing the bank and keeping the blood levels normal, which is has to do to keep us alive...but it makes calcium testing very dicey for osteoporosis.

Just a note - Prolia (denosumab) is not a bisphosphonate, it is an injectable (sub-cutaneous) monoclonal antibody.

fluff - not sure about the screw, but they usually stop the scan at the knees, don't know if that matters.  I had PET scans done with TE in place and also my port, which I think both have metal?  I think the presence of metal can skew the results in that location so as long as they are not looking for anything where the metal is located I think it is OK.

I was supposed to have an MRI before I started treatment.  I was walking down for my MRI and remembered I had a tiny piece of metal in my ears from a stapedectomy.  When I stopped and asked them they were incredibly glad that I told them.  Something bad happens but I don't know.  Maybe someone here knows.

The bad thing that happens is the metal piece can be ripped out. That's all..... LOL.  Really the strength of an MRI is tremendous. Magnetic Resonance!  There are pics you can find like the chair that was ripped from someone's arms out in the hallway and plastered itself in the machine. Etc. There are warnings in the hallway to the machine. I just read About a little boy who was killed when a oxygen tank hit him in the head. So sad. 

Did anyone get a hystectomy while being on Herceptin? That might affect the heart more? Yes I have alot of pain anymore, might need bone scan too! I dont know if its from the Lupron or tje Tamoifen of both since my estrogen is decreased& now got acne

Removal of the ovaries can impact the heart function as it uses estrogen somehow in its functioning. If it were me, I would get a second opinion on the hysterectomy unless I were BRCA+. Complete removal of estrogen production can lead to very serious complications in young women.