TRIPLE POSITIVE GROUP

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  • DiZZyMom
    DiZZyMom Posts: 96

    Thanks, Lago. That is my plan! Take care.

  • cypher
    cypher Posts: 447

    Dizzy, tonlee, who started this thread, has had a lot of discussions about that issue on this thread. You can probably do a search, or if that doesn't answer your questions, look at private messaging her.she used to be very active on this th but I guess she is doing so well that she doesn't need to check in!

  • soriya123
    soriya123 Posts: 383

    lago my family and i lived in refugee camp in Thailang from early 80 to 85.  My family and I left the country in late 1979.   wehad no idea  that we ended up in refugee camp.  i was only 6 yrs old when migrate from my country.  stay in philippine for 8 months.  yes i cook a lot of cambodian food.  Thai n cambodia used the same ingredients in cooking but we have our own recipes n different way of coooking.  i have lemon grass, galanga,kaffir leaves in my backyard.  fish sauce is must for cooking especaly for cambodian n Thi. lolzz

  • lago
    lago Posts: 11,653

    soriya123 you're going to have to PM me some recipes. I may not be able to grow that in my backyard ( live in a highrise in Chicago and in spite of it being 54 out yesterday we might get up to 9" of snow tonight). Living in a big city with lots of cultures getting ingredients are easy to find. Will need to pick up galanga.

  • soriya123
    soriya123 Posts: 383

    lago will do.  thank you ladies for allowing me to post on this thread.  i apologize if i post too many unrelated topic.  thank you!

  • dancetrancer
    dancetrancer Posts: 2,461

    Dizzy, my onc approved me to use Estrace as long as I was on Tamoxifen.  Since Tamox blocks estrogen from entering cells, he said it was ok - but to only use the smallest amount I needed.  Fortunately for me I only needed to use it a few times a week for about a month and then things improved for me.  I only used an amount probably no bigger than the size of dime.  And I only used it externally, too, as my issue was more chronic urinary tract inflammation (no infection) due to low estrogen.  I did not use anywhere near what is the normal prescribed dose.  Maybe ask your onc if you should try to use as little as possible at first to see what the minimum dose is that you need? 

  • Tomboy
    Tomboy Posts: 2,700

    soriya, i am glad you are here! i think we should go pick lago up, and we can all be in your kitchen, and my kitchen, and we can make some food!  where did you find the lemon grass plants or the kaffir lime tree? and galanga? i thought that galanga grew in water like a lotus. i dont know, though, but i would like all those. i have never seen them in a nursury, though. i would love to get some! sound like you have a great back yard! i have almost all container plants, its hard to squeeze things in, in the small areas i have of ground. but i do! i love galanga in that coconut soup. 

    diZZymom, my mo finally prescribed estrace for me. just did the first dose, so i dont know. i dont even know if i want to pay for it, at 175 a pop, and that is for one month! it cannot be that expensive to produce. its only 1 % solution. and a year after i asked him. after his nurse said no. and when gyno onc said yes, no one told me. hope it helps, and let us know.

  • lago
    lago Posts: 11,653

    kathec I'm sure there are Asian markets in LA that cater to Thai, Vietnamese and Cambodian shoppers. I find this stuff in Chicago up north in the "Little Vietnam" neighborhood. I find that there are Japanese, Korean and Chinese ingredients there too. Granted we do have a Chinatown and there are a few Korean shops left. Many of the Koreans and Japanese actually moved to the burbs years ago. I have also frozen fresh lime leaves. I find it's better than dried. Ideally it's best to freeze them in water like an icecube tray. They don't seem to get freezer burned that way. 

    wouldn't it be fun if we could just fly anywhere and cook together for a day!

  • soriya123
    soriya123 Posts: 383

    Kathec, if you go Thai market you can find all those ingredients.  I live in orange county so many Asian markets here.  Galanga grow just like ginger not like lotus =) 

    Lago and Kethec, let me know if you can find any, if not let me know, I would love to send you some. :) 

    I love to cook and my in law love my cooking.  :D...didn't mean to brag....hahahahahehe

  • Tomboy
    Tomboy Posts: 2,700

    i have found all that stuff, but would just love to grow it. i have lots of great shopping, but the more i can have at home, the better i like it! ok, you guys are making me hungry! manfriend will like that, when i put stuff on a plate, sometimes i think its the only reason he keeps me! that, and more than a little scheherazade, when my imagination comes out of my mouth....

  • ang7894
    ang7894 Posts: 427

    U.S. could face shortage of cancer doctors


    TUESDAY, March 11, 2014 (HealthDay News) -- People fighting cancer might have to wait longer to see a cancer specialist in the coming decades, as demand for treatment outpaces the number of oncologists entering the workforce, a new report released Tuesday warns.

    Demand for cancer treatments is expected to grow by 42 percent or more by 2025, while the supply of oncologists will only increase by 28 percent, experts found.

    The mismatch between supply and demand could result in a shortage of nearly 1,500 oncologists by 2025, according to the American Society of Clinical Oncology (ASCO) report.

    People living in rural areas will be hardest hit by the shortage, the report predicted. Currently, only 3 percent of oncologists are based in rural areas, even though that's where 20 percent of Americans live.

    "We never want to have a cancer patient have to wait to get in to see a cancer physician," said Dr. Richard Schilsky, ASCO's chief medical officer. "Since we're aware of the issue, we are beginning to think about how to mitigate it."

    Schilsky said he believes oncologists will need to rely on primary-care physicians, nurse practitioners and physician assistants to handle basic cancer treatment and follow-up care as demand for services grows. "That will leave the oncologists time to deal with the more complex cancer patients," he explained.

    Certain factors will likely combine to increase the number of patients seeking cancer treatment in coming years, Schilsky said, including:

    The aging of the baby boomer generation. "They are now all in their 60s, and that's the age at the highest risk for getting cancer," he said.

    Improved cancer treatment. A record 13.7 million cancer survivors now live in the United States, Schilsky said, and many want to maintain a relationship with their oncologist even though they are cancer-free.

    Health care reform. "There are going to be millions of people who didn't previously have health insurance and [who] will be seeking care for cancer," Schilsky said.

    The total annual cost of cancer care in the United States is projected to reach $175 billion by 2020, an increase of 40 percent from 2010, according to the report.

    The ASCO report predicted that there won't be enough cancer doctors on hand to meet this demand.

    One expert not involved with the report agreed that a large gap in specialists is looming.

    "I personally think it's a topic we know is going on in the oncology community, but when you're talking about the big picture of health care these things can get overlooked," said Dr. Janna Andrews, an attending physician in the department of radiation medicine at the North Shore-LIJ Cancer Institute in Lake Success, N.Y.

    Andrews said people in rural areas already are feeling the effects of a shortfall. "You probably see that now in the more rural areas, where you are diagnosed with cancer and then you find the closest center to treat you is over two hours away," she said.

    Another issue is that the field has its own aging workforce, the ASCO report noted.

    "About 20 percent of currently practicing oncologists are now approaching the retirement age of 65," Schilsky said. The number of oncologists older than 64 exceeded those under 40 for the first time in 2008, and the gap is expected to widen.

    Dr. Steven Paulson, an oncologist and hematologist at Texas Oncology, a US Oncology Network affiliate in Tyler, Texas, said some oncology practices are struggling.

    "The challenges facing practicing medical oncologists are making it very difficult for small and even medium-sized oncology practices to survive," Paulson said. "Many older physicians will simply retire, worsening the shortages already projected."

    And the supply of new graduates is not likely to keep pace with demand, according to ASCO. As pressure builds, many cancer doctors are likely to burn out and either reduce their clinical hours or leave the field altogether, the report suggested.

    "Oncology is a very, very demanding specialty where you have to be available 24/7," Schilsky said. "You are dealing with people who face life-threatening illnesses, many of whom will succumb to that illness. There's this work-life balance we have to figure out how to deal with."

    Oncologists might be able to help the situation by shifting some of their simpler cancer treatments to highly trained nurse practitioners or physician assistants. "Once they are properly trained, they have the skills to handle uncomplicated cancer patients," Schilsky said.

    Primary-care physicians also can play a role, by taking over the care of cancer survivors. Oncologists can provide a "survivorship care plan" that will note the potential long-term side effects of a patient's cancer treatment, as well as their future cancer risk.

    "By leveraging all of the resources in the health care system, we think we can mitigate a lot of this," Schilsky said.

    The federal government also can help by steering more money toward training new oncologists.

    Most new doctors require two to three years in an oncology fellowship before they are ready to practice, and Medicare pays for the first year of this training in virtually all cancer teaching programs, Schilsky said.

    But Medicare funding for medical training has been ratcheting down, he said, and that has constrained the number of doctors who can seek out an oncology fellowship.

    "It's limiting the availability of fellowship slots, even for people who are interested in getting that training," Schilsky said.


  • Tomboy
    Tomboy Posts: 2,700

    ...thats a great idea, to freeze them that way,lago- for sure i will try that. and it will give me something fun to do this week, to visit my AAmarket, the one close to me on sunset. nice walk for me on saturday, not to far from the saturday open air market, and there is also a community garden, and this cool homemade gift shop, bagel shop, and 99cent store, all in one long block! yay! plans for sat! now i will see if my friend would come too

  • soriya123
    soriya123 Posts: 383

    kathec i will check out at the market if they have small galanga plant on a small pot.  mine look dead cus i had it for years. lolzzz yes you can freeze them. i freeze a lot of my galanga, thai chillis n kaffir lime leave cus i have so many of them.  

  • cypher
    cypher Posts: 447

    Kathec, there is a guy at the Culver City Farmers Market his cell is it from time to time. I have lemon grass growing in my yard from one of his seedlings. I would also love the recipes, I love Southeast Asian food.  K, if you think you would want to go to West LA to pick up the plants from me, I am happy to pick it up for you next time I see it. It would be about a dollar.  

  • dancetrancer
    dancetrancer Posts: 2,461

    I love to cook thai food.  I make a mean curry.   I grow my own thai basil in the summer.  You can find thai basil plants at Home Depot.  Super duper easy to grow.  I purchase lime leaves, thai chilis, galangala, etc. at my local asian grocery store and store them in the freezer as well.  In the winter I buy fresh thai basil from them since I can't grow it in the winter here.  

  • ang7894
    ang7894 Posts: 427

    I officially see my oncologist every 6 months after today!! Things went well so I don't see her until Sept now.

    I'm thrilled but scared at the same time the farther I get away is a good thingHappy But less you see your doctor so it's kind of a catch 22 that is an old saying.   

  • lago
    lago Posts: 11,653

    ang7894 that article seems to neglect the fact that there is going to be a shortage in primary care doctors. Looks like we'll all be seeing NP and PA in the future. Don't worry about going to every 6 months. If you have any issues you can always contact your MO or your PCP.

    Ha ha looks we may have to start an Asian recipe thread.

  • Tomboy
    Tomboy Posts: 2,700

    yum! cypher, what part of west la, maybe you told me? i live in silverlake 

    ang7894, that is so great! i am on 3 months, for at least one more time. every 6 mos sounds fantastic! i was sorta surprised you had to DO chemo.. with your stage and grade, and no nodes? altho i heard herceptin works best w/it, was that the reason?

  • princessrn
    princessrn Posts: 270

    Ang7894...great and informative article.  Yes, the healthcare changes are coming.  I currently work at a hospital and we are constantly making procedural changes in care management.

    Kathec...I am the same as Ang7894 and am doing chemo. Though I am TCH.  I was node negative too but was told that because I Her2+, the determining factor was tumor size even if node neg.  I was at the clinical line for treatment and I could have declined but I wanted to do all I could and my oncologist believed that it was the right course related to my age and vitality.  So here I am ... Smile

  • cypher
    cypher Posts: 447

    dance, I would watch out about buying plants you're eating from Home Depot. As I understand it, their stuff is GMO and the pesticides are often embedded in the plant itself so you can't wash it off. I think I bought some plans at Home Depot lasfall before I read that and I've noticed a definite drop in the number of bees and butterflies I'm getting.

    Kathec I will pm u

  • DiZZyMom
    DiZZyMom Posts: 96

    Wow, that's expensive (Estrace). The vagifem is a tablet that is inserted with an applicator kind of like a tampon applicator and it's already pre-loaded so I don't think I can monkey with the dose. Thanks for your feedback...........and yes you are all making me crave Thai foodWinking

  • cypher,  

    You might think about MRI for your back. No radiation (I think). I finally had an MRI after suffering radiating sciatic pain for 4 months  (and yes, I was worried about the possibility of mets). Turned out I had 3 herniated discs  L2-L5. I think I did it lifting some boxes while clearing out my Mom's apartment after she died - but never having had this kind of pain, I didn't know. I wish I had pushed my PCP more strongly to get that MRI earlier! He only ordered basic x-rays which didn't show anything, so I was left with just taking more Motrin & a couple of Medrol dose-packs (prednisone). Since the correct diagnosis, PT, exercises, spinal injections plus time now have me pain-free (no surgery!).

    I know that mets always come to mind when a new bad pain arises, but often it's something else. Good luck to you on finding out what is going on with your back & getting treatment.

  • cypher
    cypher Posts: 447

    thanks optimist. Would the MRI show if there were any mets? I know that I have some back issues but that doesn't necessarily mean that's the reason. Hopefully it is though!

  • NickyJ
    NickyJ Posts: 372

    good morning everyone. 

    I'm just checking in to let you all know I'm still here. I've spent nearly 3 weeks in the hospital with no wifi so no way of logging in but I'm home now. The operation on my back wasn't a great success and I was sent home in a morphine drip. I'm waiting for the date to go back - there'll have to be another operation. 

    The drip is very strong, so looking at a screen isn't the easiest thing to do; the words keep jumping! I'll be back as soon as I get sorted out, but I just wanted to let you all know I'm still here!! Speak to you all soon and take care,

    Nicky

  • moonflwr912
    moonflwr912 Posts: 5,945

    Hugs Nicky! It's hard being in the hospital long enough to eat everything on the menu twice over! LOL.  I'm sorry you didn't get the relief you needed. That sucks. You're in my prayers for a new operation asap! Heal up enough to get it. Much live. 

  • soriya123
    soriya123 Posts: 383

    we all miss you nicky.  take care!

  • cypher
    cypher Posts: 447

    Nicki, thanks for checking in, I know we were all wondering where you've been. I'm sorry you don't have better news to report.  

  • dancetrancer
    dancetrancer Posts: 2,461

    cypher, thanks, but that stinks.  I can grow them by seed, but I really prefer to have some plants like peppers, tomatoes, and basil already ready to transplant.  Makes my life easier.  I may still buy them.  I don't use pesticides on my own plants, so hopefully that cuts down on the negative impact to some degree.  I don't have time to start them all as seedlings! 

  • bren58
    bren58 Posts: 688

    (((hugs))) nicky

  • lago
    lago Posts: 11,653

    Nicky! I was just wondering where you were just yesterday. Damn... I really wish they got this right the first time. Hope they fix this soon. I too hate these drips to make you feel better.

    cypher I do believe that MRIs will show mets if one has them as well as maybe false positives. It's very sensitive.