INSOMNIACS place to talk in the wee hours
Comments
-
Nettie.... I forgot to answer you ! "LittleHoney" is/was Phylliwiththebighouseissue! SHE was feeling awful, and having tests, and Lord only knows WHAT all! So we have to keep her in our prayers.... along with that little Cammi with the phone-job.... SHE is one big accident waiting to happen... Sort of like ME. She has to stay in bed, where she belongs.... with Joey and Katie-Kat. Then she will get better!
Cammi, wasn't it today that you were going to the Docs for a sit-down? Okay..... spill-it! What did he/they say! We promise we won't say a word.... xoxoxoxo
0 -
Chevy I think chia seeds are just fine. Flax isn't for those of us who are highly ER+. I was just sounding off cuz of my dimwit EX-naturopath.
0 -
Pawprint I am 95% estrogen + so no flaxseed??? Omg I am such a nuts case I take flaxseed bread, pills u name it I take it I am seriously crazy I never care to read about estrogen + in terms of what to avoid
0 -
Peppermint, I thought I was the only one who woke up between 2-3 am! Can almost set a clock! Not a hot flash, don't need to pee, Spookie isn't walking on me. What's up with this? So I get up, we go out, have a cig, then sleep. I sleep more than I'm awake most days.
0 -
not feeling it tonight. Going to try to sleep.
0 -
Hi ladies!
while looking for info on phytoestrogens to avoid myself, I found this:
0 -
Morning gals.... Okay, I'm going out on a limb here.... no wait..... I mean a rock...
I'm thinking that anything we eat, in moderation is going to be alright... I also did a lot of reading about what we should or shouldn't eat and drink, by reading the alternative forums.... And I found this from BC.ORG...
http://www.breastcancer.org/tips/menopausal/ask_expert/2004_07/queston_04
And from looking on the Internet, you will find so much "information" it will make your brain go into re-hab.... So my own determination is that since I HAD breast cancer, (going on 5 years now) AND and post-menopause, my chances of getting breast-cancer again are about nothing to worry about. Just WALKING is hard enough for ME, Ha, ha!
I mean at MY age, I almost get a free-pass! Not really, but with MY luck, I had better just enjoy myself, eat all the things I like, but not over-due on anything... and stay out of the alley.... and off that pole!
I eat Flax-seeds occasionally, same with Chia seeds, when I make a smoothie.... or I add the Flax to oatmeal... Same with Yogurt, and soy products... I haven't had any sort of tests of anything to see what is running around inside here, but if I FEEL good, and don't really eat those products everyday, then I am on the right track.
That article says you shouldn't smoke much weed.... if I understand that right... Now THAT is funny! But it is good for pain issues?
I once saw an article about sugar-substitutes and breast cancer... Those people SWORE that is what caused breast cancer...
I just think that sometimes when we eat or drink certain foods or supplements, that MAYbe they react on certain pre-determined conditions already in our body, and MAY cause "changes".... maybe for the better or for the worse. But I think that has a lot to do with each individual persons make-up.
Same with Tamoxifen maybe causing my deafness... because of a "stroke" near the 8th cranial nerve in my brain stem... Tamoxifen DOES warn of strokes... but it would not have happened maybe, if I did not HAVE this "gene" that would make that possible.
So we are all different...
What you might take from all this, is just go light up a joint, drink maybe ONE Chocolate Coke, and enjoy a bowl of Oatmeal with flax-seeds.
It is just so HARD here, trying to be serious... hope you guys appreciate my attempt to sound doctorly and semi-intelligent...
0 -
Oh my, I was sure that after signing off early last night, that I would be way behind, but it seems everyone took the night off! Hopefully that means everyone got some rest!And Chevy, I'm so proud of how serious you remained in all of that about eating and flax and weed and chia and chocolate coke! And I too believe exactly as you do! I'm not going to live a miserable life, I'm going to live the life I have as full as I can but also understand that moderation is needed in things that could be bad for us! I used to eat flax in my cereal as it was supposed to help with the joint issues, this was prior to the dx! Haven't had any sense, not because I knew better, just haven't! But guess now I'll try to avoid!
Now for a little more seriousness from me....again, I'm back to having hip and back issues! And yes, I've been to the doctor, once again, they say, no need to scan, so I'm left with the wonder! So, I would just like to know if any of you have had sciatic pain, but only at night, this is what scares me, because they say if it's the "c", it would tend to flare more at night! Once I get up, even in the middle of the night and move, or even just stand still, the pain immediately goes away! But as soon as I lay back down, there it is again! Now I haven't tried lying down in the day, if I nap in the day, it's in my recliner, so maybe today, if I need to nap, I'll try it lying down and see if the pain flares.
Anyway, just wondering if once again, I'm the odd ball out!
Still thinking about those of you having tests and so on... hope things get better.
0 -
Nettie, I have a lot of lower back pain at night. Doesn't shoot around to my hips or down my legs. I take a pain pill around 3/4 o' clock, and then I don't have that pain anymore. But my joints all flare up and start aching at that point to. I get scanned all the time, and I have no cancer in my lower back, or hip. I think I would have to go with your bed, it ties in with your pain. Cancer doesn't have a timetable, it always hurts when it's in your bones.......that the news from doc Susan this morning...lol
Chevy I agree....for me......we are all different. As a hairdresser, I have met sooo many people with all different cancers. Many have died from their cancer. So many of them were totally obsessed with food and supplements and and and....personally I think whatever path you choose is ok . You have to be happy with your choices at the end of the day and it is a very very personal journey. However, I do feel for those who become obsessed with controlling the cancer, they seem to forget to live and the fun is zapped out of their life. Having said that, obsession about anything will eat you up. I don't mean to be morbid....but in the end we all die, we can't control that, so in the meantime I am going to have fun fun fun, and live and love fully.......accept when I am having my pity pary, or a huge anxiety attack, or just plain anger....lol. Other than that, I am determined to see people and laugh a lot and realize how precious life is.
You know how people say....well....I could die before you, and they have given you 5 years......so tired of hearing that......well.......someone I know, her husband has multiple myeloma , and his sister is a perfect match for stem cell transplant. She was killed in a car accident a couple of days ago, before the transplant. Very sad for the family.....but that put things yet again into perspective for me...I won't ever get mad when people say they can die before me...because we certainly never know the day we are exiting.....
Look what you started Chevy....a serious talk....wow.....ok, I am climbing down off my soap box now, and going to get ready for work.
Have a great Thursday everyone. Hope everybody is doing ok.
Cami, how were the doc appts.
And I forget who was in the hospital on antibiotics cause of the thing that popped and oozed out. Sorry I forget......remind me......and how r you doing?? To far to scroll back. I think I need to keep a written journal so I sound smarter...ha
Ta ta
0 -
Geez, I just re-read what I wrote, and it didn't even SOUND like me.... Ha! Glad you guys know I'm not advocating anything, just talking from my own personal experiences.
EVERYone has their own idea of what caused their cancer.... but no-one knows for sure! Just changes in cells... and sometimes we can't control that. We inherit certain characteristics and genes, and our chemistry is just different from anyone else...
Susan, I started a note-book also, when I was new to this.... And I'm always researching stuff on the Internet, and save it on my computer, or print it out.
If you listened to everyone on TV, like Suzanne Sommers, or people who advocate alternative ideas they have for "curing" cancer, then you will go nuts. They are entitled to their own opinions, and they can do whatever they want.... but most of us can't afford to do, what they say they are doing.... and I would never tell anyone to stop what they are doing, and do it THIS way....
I know this woman who had her breast surgery.... not clean margins, and her nodes were involved. Instead of the recommended chemo and radiation, she and her DH deciced to go see "John of God" or someone in Brazil? to be prayed over and cured. So a year later, her cancer had advanced, and metastecized to everywhere, and she passed away... She thought she was doing the best thing for her.... but you have to LISTEN to your body, and the experts that know more than we do....
Unless they are smoking Pot, and a pack of cigs a day, and drinking a 2 litre of Jack a day. THEN still, it's their business what they do.... just don't try and get me to try it too!
0 -
Good morning all.....wow, you gals can talk some serious chit
) I agree with you Susan, we're all dying, we never know when for sure, so have fun and live life. And Chevy, everything in moderation, what causes cancer is individual, I so agree with you on that. Enerva, my oncologist told me no flax seed but you'll have to research it or ask your oncologist. I think it mimics estrogen in the body and for us gals with estrogen positive cancers, we certainly don't want to feed any pesky stray cancer cells that may be in hiding. Although, estrogen is hard to eliminate. It lives in our fat cells. But flax seed occasionally probably won't do us much harm. Nettie I hope your back feels better soon. Cami, you ok? What did the doc say? Off to work for me. Have a great day owlettes........0 -
Nettie. I have mets to bone from my skull base to my tailbone, hips and a couple tiny spots on rib. My back pain is constant. Although it is worse when I lay or sit still, walk or stand. I have read it's worse at night but not because they were lying down just because they stayed still to long and got stiff. My pain doesn't radiate down my leg or anywhere else but that's just my story. Everyone is different. Hope this makes you feel a little more at ease. Maybe it's your bed? That being said, we know our bodies better than anyone else so if it don't feel right keep getting it checked out Til you feel comfortable with the answer. :-).
0 -
Haven't read any of above, gotta go walk.
0 -
Nettie, I agree with checking out your bed. Have you gone to physical therapy? Sciatica is awful. I had it during my last 2 months of pregnancy. My back pain is a muscle spasm which comes and goes. Unfortunately we have not figured out the trigger or been able to totally eliminate it.
0 -
Hi everyone--it's me remember me Camille---
I'm so sorry I've been not going at mu usual rate of posting, I can't belive how busy I've become in the last couple of weeks--I actually have to start thinking on this job, not good for me.
Susan I so agree about how different we are and our way of taking care of ourselves is different and I honestly think there is no right or wrong, it's just our bodies that go the way they re going. In a perfect work there would be so many less people getting BC how they exercise and eat and sleep, but the world isn't perfect that's for sure.
Nettie I went to PT for my back and LE and I do the excercises but they don't help a lot it just gets worse and it's not mets, it's the discs and vertebrae that just couldn't take all this crap and that's why I always sleep half sitting up, altho my back does spasm now (it did't use to) that's when my eyeballs hurt too. And I have to wait to move til the spasm lessens so try not to worry, this seems to screw with our backs for a lot of people????
Ah the Dr. same ole sameole She aks me questions, I answer and she laughs???? But she does want to talk to my Onc and when I'm done with all the urology stuff she's like to see certain tests done for cancer purposes cuz see my Onc. soon too.??? And and of course I'm low on all kinds of things so I have to take more scripts for whatever , even tho I know I'm a PITA for her (and of course I told her) she did say if she gave away suckers I would get one. She said I'm one of her favs--I bet I am her favorite--oh yea right, but I do laugh when she feels my intestines and she now feels my side too, to see how there doing. She's a sweetheart.
So see there's nothing new to report except I still feel like chit but she knows it and tells me to take my pain meds to be more comfortable---see she's the pusher not me. Oh and she did say my insides are all screwed up but that hasn't changed. LOL
And when I read Chevy's first post, I think someone else wrote it, it didn't sound like her, way to serious,
0 -
I'm back. Read all of above. My girlfriend just had a scare yesterday, had a call back from her mammogram taken on Wednesday. So went in for more pinpoint mammograms and everything is ok. Wow. I told her one person in a group of friends is enough. So nobody else gets to get this crap.
Sorry you guys with back issues are having such trouble, wish there was an easy way to fix it. Dam BC shit!
Got to take sister to airport. BBL (know how long it took me to figure that out?? I'm dense!)
0 -
chit, just lost my whole rant about my bloodwork!
So I'm going to try again! Why did they tell me it was normal when the following is true?
WBC - low 3.6 on a scale of 4.1 - 10.9
MONO% - high 14.3 on a scale of 4.7 - 12.5
RBC - low 3.98 on a scale of 4.2 - 6.3
MCV - high 100.3 on a scale of 80 - 97
MCH - high 33.9 on a scale of 26 - 32
Ok, so is it because I'm close to the normal range that I'm still considered normal! I do NOT understand at all! Very upset about this right now, but maybe I shouldn't be! And do they take these into account with the other stuff and then consider it normal! I'm no medical person by far, but I sure would like to know how this is considered normal and if I have anything to worry about!
Someone please help me out here!!
0 -
Cammi, thanks for the input about my back! I have the weirdest crap! Right this moment, as I sit and type, nothing hurts, I mean nothing! But if I try to stretch and push my shoulder blades together I get this stabbing pain, right in the center of my back! And it's this same pain that sometimes comes on all by itself! As for the hip, it only hurts when I lay down, and I don't think it's the mattress, because it happens wherever I lay down! I've doing physical therapy, I'm seeing a chiro and a massage therapist! Just don't know what else to do! Just pray that one day it will just be gone!0 -
Nettie , can u look back at your records and see what they have been before?? I have access to all my records from 12 years ago at the start of all of this. So I can compare. They don't seem to freak out unless they see a pattern of steady rising or falling. Fluctuating a little bit doesn't seem to count.
I don't think you are on any meds anymore, cause those can alter counts...that just means you are taking your meds, either oral chemo, or having infusions.....
Here again.....we need are sas !
Hope that makes you feel a little better. Sorry you have to worry
here's a little rainbow for you 
0 -
Amen to focusing on the bed. Another possible culprit could be your couch.
0 -
Nettie, I forgot to comment on your back issues....
I HAD sciatica a long time ago.... way before BC. I had twisted my back, while making my bed..... and I was on the bed, on one knee, throwing the covers up, and I was on the phone at the same time....
I really hurt it! I slid off the bed, in a crumpled heap. Could hardly move. Had to see the Doc. I ruptured a disk.... but "sometimes" with rest, it will heal itself. Okay, that sounded good... But I hurt it again, somehow.... had physical therapy.... and it helped. But a year after, I HAD to have it done.... I was on constant Ibuprofen....
But standing all day, with my job, didn't help. THEN the pain started down my leg into my foot. That was "Sciatica." A CT scan and a "mylogram" showed all this... I had surgery.... A doubel-laminectomy.... to repair the damage.
Your back problems could be anything from a simple injury to like the other gals said, your bed, or maybe degenerative osteo-arthritis! Try heat, or cold, whichever feels best.... I liked the heat best....
If your Doc's are telling you, it is nothing to worry about, give it a couple more weeks, and if it is getting worse, THEN go and raise hell....
My back is just fine now... mostly.... Just at my age, everything that hurts is just understandable!
I can see why you are afraid it is more cancer.... but I wouldn't worry..... Just wait a couple weeks, and go yell at your Doctor if it is worse.
I don't know anything about your "numbers".... But if the Doc says, you are within normal range, just be happy with that.
0 -
0 -
I've never gotten copies of labs...But I did call for a copy of the one just prior to this but if course they didn't send it today...so I wait and wonder till tomorrow.
0 -
Wow..I feel like this thread has been deserted. Either that or my internet use messed up because I'm showing no post for 6 hours.
0 -
hello hello. Is there anybody out there. Lol. I usually just lurk but with nobody posting. I guess I should think of something to say. Hmmm
Anybody seen that new show tues about the lady newly dx wanting to live life fully ? I missed it but wondered what others thought.
Hope everyone is feeling so well they are out having fun.
0 -
I have mostly lurking lately. I have just been so busy and so tired.
Patty, I didn't see the show. I do think I remember seeing it advertised.
0 -
patty we can all be cast in it...didn't see it but a little bummed no one knocked on my door and asked me for a true life reading....come on...we can do this. We have pole dancers, paintballers, tea parties, brownies, some weird looking mushrooms, prob enough drugs together to hold the show together for a year, we definitely have attitude to bring, so many cool pics, and a lot of love.
What's wrong with them...ha. Ha
0 -
well, I'll post my good news. I'm half way through the weight lost program, week 10 and I've lost 21.5 lbs. Half way there. I thought it would get easier to ignore food as we went along, but sometimes I want a salad soooo bad I'd eat it without dressing! Oh well, food starts back at the end of July. I'm not going to blow it now.
0 -
Susan, you're up late! It's only 9:30 here. Our heat wave let up yesterday because the wind started up. Nice weather but the wind is scary in some places where the fire danger is high. It's going to be a long hot summer.
0 -
Well, I'm here, and I have all sorts of witty things to say, except that I'm posting on my iPad and it's such a PIA to type on! And I have a stylus!!!!
Susan - AWESOME pic!
Nettie - I'm currently dealing with a whole slew of back problems. MRI last week showed even more damage than we thought. I'm in a back brace and on Norco and Valium. But not once did I ever think it might be mets. To be polite, my awesome Pain Management doc says they are "degenerative issues"... In other words, at the ripe old age of 63, I have an old lady's back! But there is much more that is good than is bad with my back, so I am grateful. I am going to do whatever it takes to get healthy again!
Smaarty - you ROCK!!!! Halfway there - do you have more energy these days? That was the part I loved. How are the rest of the people in your cohort doing?
All for now.... This hunt and peck with the stylus is just painful - especially with my trigger finger... But that, too, shall pass. At least it did when I got off the Arimidex.
xoxoxo
0
