INSOMNIACS place to talk in the wee hours
Comments
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Blondie, Sounds less like a pity party than a statement of fact. I would be more than annoyed if I slept those hours and needed help for everything. Is your walk-around oxygen a concentrator? You might check with the company to see if it can be charged by a car battery while driving. Lots of things can be now. A woman at the senior center and in my art class has a concentrator and a very very long extension cord.
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My news, saw the new ps, she was very nice. Said to wait six months so my weight settles then see if I still want something done. She could use the Aladerm but no guarantee that would help. I have very stretchy skin so I bought two bras at Norhstrom. I got away for over a year without wearing a bra! She even suggested a night bra to help. Probably not. The pain she thinks is caused from the bmx and the nerves that were cut. She seems to be willing if I want to do it. So I'll be good and wait patiently. This way I'll get to finish my swimming classes, and maybe my next birthday in February I'll have new boobs again.
Nettie & sass, why don't you two exchange email addresses? Nettie can send hers to you by pm. Then you guys won't have to worry. Sass could still post things she thinks we all might need. c&P is easy.
Cami or Chevy, can't remember which, the hair is all mine, a little past my shoulders and I color it, from eSalon on the internet. My daughter puts in on for me. I think the color is probably close to what I had. Don't want to go gray yet!
Tang and Susan, hope your day went well, I think Tand had an appointment? How'd that go?
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Good Dog Chevy, I grew up in the Catholic school system. You can't begin to understand what it was like b/c I was a pain in the ass then--from the beginning You know how we have memories--they can be visual, auditory, etc. First grade--nun refuses to let a girl go to the bathroom and she couldn't hold it. She stood on the runners and pee'ed. The Nun yelled at her. I stood up and said stop, it's your fault. All hell had to be paid for that one. Life never got easier. LOL F*&%#'em.
Edit: never regretted telling the nun to stop. But over the years thought when the memory came back, the trauma to that kids mind of peeing in front of the whole class, and how it affected her life, or was it so traumatic that she blocked it out
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Sas, that's odd. When I was in second grade, that happened to me. Teacher wouldn't let me go, so I told her I would pee right there, she didn't believe me, but I did exactly that. Never really bothered me after the fact. But I never was told no again. Lol. And I did get to call for change of clothes.
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Sorry Spookie--Ds interrupted our call, ordinarily would have been a quick click, BUT DBF has an new a legal problem. The last legal problem that DS begged off on b/c of no legal knowledge, ended in a financial mud for me and DBF. Should have just said Bye. Talk soon chickie L&H's sassy
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Nettie maybe I was more traumatized than the girl....standing up to a Nun as a 6 y/o. But the rest of life was similar to that------
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Yes, I don't think I could have stood up to a nun!!! Not in grade schools anyway. You were brave and protective as you are now.
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Sweet Fierce Blue Bird's obituary is on her angel thread.
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Nettie -it had to do with Polio. We each took on different roles... I became the protector---Don't mess with my brother. Sister and I weren't left with visible defects, he was.. Didn't mean there wasn't a lifelong problem for sister and I.
Parents were told if I didn't make a turn by morning, I'd be put in a lung machine. I was a few hours away from being put in those horrible lung machines. Doc's told M& D , I was the worst of the three. Why we all came out the way we did-----------???????
Post Polio Syndrome / Sequelae .wasn't identified till many years later. !980 with Halstead.
Nettie, that's why I'm protective of you now. My scenario had no explanation of why I'm here the way I am.. Please, follow up on my suggestions. Yes, I'm way protectrve- my life role. But unless you follow through, what is my attempt at protection worth?
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Smarrty, I hear what you are saying, but a life lesson for me, one persons problem, seemingly disconnected from ours, may have only a couple words that we connect with, that solves a problem for another. I feel, I get latitude here b/c I started the thread. Not a highway , my way thing---just a truly comfortable place to be. All that are here connect with someone. Upside, downside inside, outside.
Nice that you feel a connection with new PS ..Yay. BTW the Bra thing I have thought in the last days. I was ill advised about not wearing a bra. Since I've been doing it routinely going out. The foobs haven't been falling in the pits. You're in the first year, try seeking the thoughts of the gals on the bra thread. They have stuck with the thread as an advisory group for several years now. They use Deborah(Whippetmom) as a resource. Delihah is the source---spelling looks wrong............. ohhh I'll go find it
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MostlyMom so glad to see you, a sad but beautiful pic.
Smarrty to tired to find. Bed is a calling.
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thanks sass, I'll find it tomorrow. I'm tired too. Good to bed, sweety.
The new ps said that anything bigger than 400cc should wear a bra. My ps said it was my choice to wear one or not.
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Sassypants: the update to that sweet picture that mostlymom just posted is that all three of those precious little girls are now in full remission from their cancers.
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Thank you Littlegoats.... I sent her a message!
You guys and your memories...... One time in grade school, I was swinging on the play-ground, and another little girl ran in front of me, just when I was going "up" and my foot kicked her in the eye! MY GOD I thought she was going to die!!!!!!!!! She screamed and cried, and I was never so scared in my life! So I didn't know what else to do, so I just walked home. I just left school! I thought I would be ...... I don't know what, but I KNEW I would surely be in 10 kinds of trouble!
But my Mom finally came home from work, and I sobbed and told her what I did, and she walked me back up there, and I didn't get killed!
That little brat, sported her black eye like some sort of hero! I didn't MEAN to....Her name was Virginia Wefing... Can't believe I remembered that...
And that is one of the few memories I have of school!
BLESSINGS~ WHAT are YOU doing up? I'm glad those little girls are okay now.... 3 little miracles!
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blondiex, I hope you get some answers about oxygen machine. Don't know anything about them..but I know my hubby's uncle can't b without his and he flies or drives back and forth to Vegas from illinois. He personally doesn't drive...but u know what I mean. Hugs and prayers your way for a good day.
Morning ladies
Another beautiful day here.
Well..I have returned to ( I am gonna say it again) "normal". (That will get Chevy going). And best best best ever.......daughter surprised me early. Was coming in for wedding this weekend, but showed up at front door yesterday. I have such peace in my heart and my soul when we r together....have her here the whole week. What a beautiful beautiful week for me
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good morning ladies.
Hugs to all that need em today
Hootie hoo
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Good Morning,
DH will have another surgery late this afternoon, they need to irrigate & put his knee back together again. They put a pic line in yesterday for 6 weeks of antibiotics. He is weak & in a lot of pain.
It's going to be a long haul. We/I had so many plans for Aug. & Sept. Last year I was in chemo.
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Susan I love to hear things like that, wonderful,
That picture is inspiring.
I missed so much here, I think I've been here then when I read I see I haven't. And then I don't understand what I'm reading most of the time, then I get more confused and when I get t the bottom I forget whst I wanted to talk about with all of u, mentioning what I did understand. Chit. So I'm sending HUGS TO ALL OF U.
Well I feel more like myself after my wild partying, which means I'm still a b*tch, just more awake. It's gotten so cool here (nice) I'm waering a sweater, I've basically done nothing for these days. except I did write my boos with a new set of rules---one is that they can not criticize my spelling unless they really can't understand what I'm saying and I get to ma Ike ll the mistakes I wsnt and if it bothers them they must lovingly tell me. That was just one rule. And my emails are private, cuz at the party I was told by different cousins how much fun my emails were cuz my boss (cousin) reads them to others. and I had more rules of all the mistakes that I make and I don't want to hear bout it---even tho they never get mad anyway, I want to make sure I've backed myself up. Oh I have a party Sunday with all of my GF's so that means I have to rest before and after so I'll be loopy again next week. Oh and the week after too. I'm trying my hardest not to miss things like I always do so I push myself and have a great time just knocks the hell out of me.
Chevy u'r story was kind of sad, but yet funny and u still remember her name--LOL And u just left school, Holy chit I never would have thought of that hahaha I remember a girl calling me a name and I said just cuz u look like a banana doesn't mean u'r one of the bunch---and she laughed and we became friends after that. That was my extent of doing anything , cuz we didn't have swing sets where we lived..
I hope u all feel better today and if u need t rest just do that, don't worry about doing stuff around the house, right now that's not concern for u.
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hey Chevy
Do you know this guy?
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lol spookie too funny
SASS Look what I just saw on another tread
Four new genes have been added to the growing list of those known to cause increased breast cancer risk when mutated through the efforts of researchers at Huntsman Cancer Institute (HCI) at the University of Utah, who lead an international consortium working to find more gene mutations that cause inherited breast cancer susceptibilities.
"BRCA1 and BRCA2 aren't the whole story when it comes to inherited breast cancerrisk. We've known for a long time that more genes had to be responsible and several have since been discovered, by us and by others," according to Sean Tavtigian, Ph.D., an HCI investigator, professor in the Department of Oncological Sciences at the University of Utah (U of U), and one of three joint-principal investigators on the study. "Originally, the gene we are currently studying, called RINT1, was not considered a human cancer susceptibility gene. But then we discovered there was a two- to three-fold increase in risk for breast cancer in families that carry a mutation in that gene." The RINT1 findings were published this month in the journal Cancer Discovery.
Surprisingly, RINT1 was also found to increase risk for a broad spectrum of gastrointestinal and gynecological cancers in these families. "Many genes responsible for a strong increase in cancer risk at one or two sites in the body are also connected with lesser increases in risk at other sites," said David Goldgar, Ph.D., professor in the Department of Dermatology at the U of U, an HCI investigator, and another of the study's joint-principal investigators. "However, with RINT1 mutations, the increased risk for other cancers is about equal to that for breast cancer."
In another study led by Tavtigian, mutations in three other genes—MRE11A, RAD50, and NBN—were also confirmed to increase breast cancer risk, as reported in the journal Breast Cancer Research June 3. "The proteins encoded by these three genes form a tight complex that is involved in DNA repair, and the three genes had been considered likely candidates.
Interestingly, RINT1's name is an abbreviation for 'RAD50 Interactor 1,' and it's just one step downstream from the MRE11A, RAD50, NBN complex in a biochemical sense," said Tavtigian. "But we don't know yet if that biochemical connection explains RINT1's cancer susceptibility role."
Now almost 50% of the familial risk for breast cancer can be explained by the ensemble of rare mutations in known breast cancer susceptibility genes and more common genetic variation in about 75 areas of the genome each of which is associated with only a small increased risk of breast cancer according to Goldgar, compared to about 30% only five years ago. The consortium's ongoing efforts continue to enlarge the panel of genes known to account for increased occurrence of breast cancer within families with a history of the disease.
Wow I am glad they are finding more answer, hope they find ways to stop it
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Ok, ladies, I'm going to whine again!! Sas, I'm really trying to read through everything and process it! But today, once again, my "issue" has somewhat changed! I got no sleep last night, brain would NOT shut off! However, this morning when sitting, standing, walking, any normal movement, I have absolutely NO pain, however, with the slightest stretch of my right arm or the slightest movement to squeeze my shoulder's together in back, the pain in the center to right of my upper back/shoulder is crazy and now I have pain under my arm in the pit area as well as a little to the front, but only with certain movements!MammaRay, welcome! Sorry if I'm repeating myself, I just have been in a "funk" lately, but I'm bringing myself around!
This thread moves so fast, there is no way I can catch up!
I know I was hear a little while yesterday, but I'm still way behind, so I'm just going to go forward from here!
Thanks for the ears!! (or should I say eyes, lol)!
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morning ladies!
Someone was asking about the bra thread. Is this what you mean?
https://community.breastcancer.org/forum/44/topic/...
Enerva, thanks for the info about the genes. Had appts with PS and MO yesterday. Would have loved to discuss that info with MO. Have been having horrendous hot flashes at times, so I'm going to try taking something for them; anyone on Megace? Exchange sx was over a year ago (April 2013), revision to remove mudflaps a year ago leaving me with a total of 27" suture lines. Still a lot of tightness, much more than I'd expect so far out and pains I've been having, there was a lot of scar tissue, probably where drain was. Compared to the pain some of you have, it's probably nothing but I've been concerned (you all know where the mind goes when pain doesn't go away). Was suggested by threads I may have PMPS. PS said she never heard of that term, but assured me it's sometimes the case that it takes a couple years for pain to go away (she's suggested more PT, heat/cold and massage).
Was planning to come home and relax (what's that) and get caught up on the threads. However, was blessed to get a wonderful 2-1/2 hour phone call. I'll catch up later.
Have a great day everyone!
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Thanks littlelovelygoats. You were right about the ironic melting tires. And sometimes I make stuff up.
I made it to Houston yesterday evening around 6:30pm. It was a great trip until I hit Katy, TX on Hwy 290. From there it was a traffic nightmare. I had more stress in that 1.5 hours than in the whole trip combined. I'm so glad that I don't have to deal with it on a daily basis any more. And thanks for the picture of the gas well. Yes, they have really torn up the prairies in OK for gas and oil. LOTS of giant pick up tricks with LOTS of men in them. It was too hard to catch one of those trucks though, so I didn't get a man. That's what hapens when you get old and slow.For those of you with broken husbands, I'm so sorry! For those of you in active treatment, I will join you soon.
My oncologist appointment tomorrow is to discuss the clinical trial. I'm very anxious about it for some reason....when really I should be happy. I guess the anxiety is because I don't know the exact treatments or how many I will get. Hmmmm I think I will take my neuropathically numb feet and get on the treadmill. Now there's a challenge but it might work off some of the stress.
Love you ladies - Phyllo-dendron
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Susan..... yes sweet one, I know the feeling....
It's whenever I 'see" my Daughter that lives her also.... We are just so close,
and I think she is beautiful, and so sweet...We just got back from seeing my 90 year old
Theresa at the Assisted Living place.... WOW! Those rooms are beautiful, and
they take such good care of them.... She is still feisty too! My DH was 2
rooms down, and he came back up to tell her "Eddie said You are supposed to go
down to lunch now!"She went over to that door, and yelled down the
hall "I ain't going this early, YOU go.... I'll be down when I'm ready!"
Period! I just sat there laughing.... They did this at home all the
time....She said they all sit in the room across from the
dining room, and do trivia questions, and none of them can hear anyway, and I'll
go when they start eating!Then we stopped by our Daughter's house, took her
a few goodies, and went to Walmart.... And had a Hamburger! It really WAS a
fun day!Oh MAN HIO! Guess that keeps him off the pole for
awhile? I'm so sorry for the pain he is in! My Doc just emailed me and said I
am supposed to get scheduled for that bone density test? Because I broke my
hip! Maybe because I am older also? WTH???? So I said "Okay, okay..... just
schedule it somewhere, and let me know.....I figure if you fall THAT hard on ANYthing cement,
you are sure as hell going to break whatever hit it first! I don't think my
bones are thin.... I know the rest of me isn't.Cammi honey..... it's BOSS..... not boos..... Or
is it? Yes, I just was so scared, I couldn't go back in.... I could only
think to go home.... we only lived a block away....Ha, ha! That's a good one.... The banana bunch
one....Oh Chit.... another Tornado warning.... It's
getting black out....Spookie! Yes.... Only his hair is longer, than
what I remember! Did you guys ever go to a Chippendales show? Or where the
guys are scantily clad? Or to a party?I haven't done none of those things yet.... Not
yet anyway.... I Did watch Magic Mike though.... My Daughter loaned me the
movie.... But I REALLY want to go see " 50 Shades of Gray"..... maybe not with
her.... maybe I'll have to buy it, and watch it alone.... Hah!Good JOB Enerva.... THAT will keep Sassy busy for
awhile!And Phylliwhoisfinallysafe... Let us know miss
PhylloPie, and Chicken Gumbo! xoxoxoxoxo0 -
This post is mostly a reminder to myself,. but thought maybe some of you would enjoy::
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Nettie that was good. U have an odd assortment of pain--One of my PT excercises is the one when u put u'r arms so u'r shoulders pushed back to stretch u'r "angel wings" so they are as close as can be, once in a while it's fine, sometimes the pain goes right to my eyeballs, if thar's the one u mean? I still try every day, I don't even know what it's for but I was told to do it.
AAAAH genes----I knew this along time ago, I had Brca2 and I do remember (not exactly what she said_ but something like there are more genes involved so u'r is not a good read. So they must have known things before too, just didn't know which ones. Every so often I did listen to a sentence or 2, as long as it wasn't bad,
Chevy I'm glad u had such a full day and got to see Teresa and that sounds like a nice place, but the best part is seeing u'r DD. Oh and of course Walmart. Who could not get excited over that.
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Cami - You wrote:
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Chevy I love family pics. Thanks for sharing.
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I just wanted to let you know that I GOT IT!!!!
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Blessings I didn't think any one would, I should have known u would, cuz Chevy didn't say a thing. LOL
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You guys, I didn't "get" what you were talking about! WHAT family pictures? What family? What Pictures? Where am I?
Okay, I'm going to jump in the shower.... maybe by the time I get out, you two will 'splain yourselves.....
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