INSOMNIACS place to talk in the wee hours
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I think it will be around $100. That would be with the hand part. She wanted to fit me today, but DH was home & we were still trying to figure out what went wrong. The screw up cost him 24 hours of antibiotics.
I hope I did not scare you into staying home. Not my intent, I have been concerned about lymphdema, do not need another thing to go wrong.
My nurses & MO have been very relaxed about needing a sleeve or worrying about flying. I would rather spend the $ then tempt fate.
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Hole-you didn't scare me, it is something that I need to consider. I started a thread about it and am already getting mixed info. I think I'd rather be safe than sorry as well. I've had enough go wrong that is for sure.I really hope dh gets all of this straightened out!
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Thanks, Sas, I am going to see the counselor again next week. Stephanie
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3rd
. I still see my counselor, but not near as frequent. It's 5 years last month. I have him scheduled until Jan. 2015. I do block scheduling b/c he's so hard to get into. Each must determine their own need and length. You likely don't know it, but My Dh was dx with lymphoma 3 months after my BC dx. The next 16 months were hell. Then he passed. Then I had a brain tumor that decided to not behave and grew. Then a crainotomy. Then life stuff. Then the thyroid cancer earlier this year. I keep him as my safety net. LOL... Great guy. The above hx is real short, but it is why I believe strongly that a counselor is involved as soon after the dx of any life threatening occurrence. It didn't hit me until 6 months after my dx. I was reading a book called "For the Love of a Dog". Reading the chapter on happiness, I sat straight up in bed and said "OH SHIT" we're both depressed. I was lucky I already had a great referral name and #, that I had obtained for a neighbor.
Not a single health practioner involved in that time explored or suggested counseling as a useful tool. Sad, but true.
It is a gift you give yourself. Hugs.
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Good Lord, you all are quiet tonight. I just talked with Phyllyinhouston. She sees the RO tomorrow about treatment plan.
I literally poured her a glass of wine and clinked glasses a couple of times
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Don't tell her I drank her wine when we hung up SHush.........
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HI1 why am I writing this---1. I missed the insurance post thingy sorry. 2 OH found it! The card. I so believe in the "Thiness" The Celts that are most associated with the Irish. Believed in the Thiness----between this world and the spiritual world. When St. Patrick went to Ireland to spread Christianty, one of the posited reasons that the Irish accepted the religion was b/c of the idea that Saints and God, Mary, Jesus, and Joseph WERE accessible by prayer and thought. I know people thought I was crazy when I talked about the birds flying around in the topic box. But when I put Chevy's quote in there and hit submit. FBB's bird jumped on top of the other owl. The message for me was, Chevy's quote was just right and this part I didn't say before, that bird which btw will never leave the box, was looking me directly in the eye and saying "Don't you forget that". To me it was just like your thoughts finding the card. She's here.
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sas..have a glass for me too?.lol
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I won't tell phyllithewineless a thing about how her glass came to be empty.0
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Keep an eye on your glass at all times, Susan. Sas is on a roll.
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at least one of of is..I'm jealous !!!!!!
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in memory of FBB...I started painting it after I heard FBB died. I felt sad and everywhere I looked I noticed the color blue. So my new yard art that will hold a small amount of birdseed will always remind me of her.
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Very nice, Pawprint!
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pawprint,,can I buy one from you .
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No Sas, I had no idea what you have been through, I am so sorry to hear this and I appreciate your support so much. I agree it's time for me to face facts, I have too much stress in my life, not nearly what you have been through. Mom and MIL with dementia, sister with frontal lobe dementia and a special needs grandson that we help care for along with the 3 cancer diagnoses , and fibromyalgia, I need help in dealing with it. Thanks for the wake up call. You are a strong women, hugs back to you. Stephanie
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beautiful Paw and I wish I could sleep also, 2 of my grandchildren are here 2 and 8 year old, daughter working tomorrow and Michael wants to go to Pizza hut tomorrow for lunch, who knows...walmart for food...I am doing ok cept for the sleeping thing went to bed last night at 430 and slept off and on until 215.....just took clonadine...it should work in a while.....0 -
I'm up, but it's only 9:30 here. Was up at 4 last night, didn't really get back to sleep. Tired already. Still haven't gotten to sew and my new PC is still in the box. Ugg!
Don't know what I'll get done tomorrow. Then I'm heading out of town for a few days. Get some sleep you guys!
Oh yeah, anybody else having a problem with having to log in every time you come back here?
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hey there Smaarty! Don't have that problem, having probs with Search though.
I am so far behind, hoping the rest of the country is sleeping so I can get caught up.
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Ladies, I have a question. Those of you that have had mastectomies, do you have pain in your sternum area all the time? LIke, if you press on it at all? Sometimes I find that it is really sharp pain. Very strange.
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nope, never in the sternum. Boobs still ache off and on, but it's only been 6 mos with the implants.
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hey SAS thanks for the info re nausea. I have bookmarked it. Will have to reread it later. Eyes very heavy. Close to sleep time - I hope.
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Smarrty, yes, I also have to log in every time....
Sas, thanks for reading & picking up on my comments about the card, it's strange cause even though its in my junk drawer, I have no memory of buying it, or getting it. The message sounds like the hokey pokey, that's what's it's all about, but it is very true, about being happy in your own skin.
It will be in my thoughts, & on my refrigerator for a long time. I really think of her as a gift, to appreciate time, nature, each other.
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opps, forgot on the last post...
Pawprint, your bluebird is awesome.....I love it !
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hi all! Reading back a couple pages so I'll try to catch up.
Before I go too far, want to apologize about going on and on about mom and dad. The whole situation seems to be consuming me lately and I have no one else to discuss it with. I do have a friend who also has cancer (not BC, but thyroid, skin and something else), alcoholism in a family member and dementia/Alzheimer's (her DH) in her life too, but she's in denial about the Alz and she doesn't like to discuss it. So sorry to burden you all, especially those of you who are going thru a more difficult life than I am. I don't want to continue adding stress to stress.
Nettie, so sorry I missed your birthday. Happy belated wishes! Have to keep reading to find out more.
iOoooo, Nettie, your family treated you like a queen! Lucky you! Those earrings are stunning!
Tang, about the oily face situation: my face was always oily and prone to breakouts. Chemo was the first time since I was a teen that it cleared up. So much so, some lady commented how pretty my skin looked then (I didn't wear makeup). Went thru menopause, adult acne came back. Starting tamoxifen also brought it back. Sassy will probably say it has to do with hormones, or lack of. Mention it at your next appt. not life-shattering but annoying and adds to the stress level. Hang in there. So sorry about your step-mother's mother going into hospice, getting to that point is very difficult. I'm afraid as fast as the disease is progressing, we'll have to start thinking about that soon. Big dilemma with the work function, need to keep reading to see how it turns out......
Chevy, love the post about creating a password. So true.
LMG, didn't remember about Chatsworth, my DH was raised near there (I was an OC girl, back before it was known as the OC). Lucky we didn't have mudslides, but they weren't too far away. About fireworks: very illegal in most areas, especially where I am. There have been a couple major fires in the areas, so fireworks are no-no's. However, can't stop people from going to cities that sell them for the 4th, then they save them for the rest of the year. Also, Mexico, (Tijuana) is only a couple hours a way so they get them there. We have so much dry brush in our area, they're really stupid to light them off.
PattyP, hope you're feeling better and well enough for school clothes shopping. I always used to enjoy that and buying school supplies. Miss that.
Chevy, from what I've learned, long term care is for nursing home not assisted living and assisted living is very expensive. Doesn't seem fair: can't care for them but can't afford the care, so what to do?
3rd, good for you getting so far on the rads, looks like not much longer? Hoping that goes quickly with few SE's.
Hi1, so glad you got some time for you, I'm sure it helped to charge your batteries especially since you've been under so much stress. DH is lucky to have you!
Cami, envy you on the weather issue. It's so stinking hot here, been more humid than usual. Now I feel for the rest of the country.
Not sure who was having problems with LE. Before I could get insurance to pay for compression sleeves, I would wrap my affected arm loosely with ace bandages, again, not tight. Worked pretty well and not too expensive. Careful with it though. The term I have learned to use is DME (durable medical equipment), for some reason that opens more doors.
Enerva, you always post the prettiest pictures! Thank you for sharing and putting a smile on my face!
Sassy, thanks for all the wise words! I understand the progression of Alz. DM's mother went thru this back in the 70's before Alz care. She got to the point you mentioned, infant level, restrained in bed. Difficult to see. We have been told mom's case is "bad" meaning very rapid regression. Saw Mom today, bruise it turning the lovely shade of yellow. Was told she hasn't been eating and I spent an hour and a half putting a small bite on her fork, handing her the fork, saying nothing or very little, she was taking small bites (put my behavior mod skills at work). Also helped that I asked for a second plate, took half the food off the plate so it wasn't overwhelming. In all that time she needed a diaper change but because she said no, they didn't take her. That didn't make me happy, I'll deal with that issue tomorrow. Will discuss skin protection creams, thanks for the advice. Had a long (and nice) talk to head nurse: she wasn't there when the "incident" occurred and records weren't adequate. Apparently mom threw herself on the floor, kicking, screaming and cursing and seems she hit her head on the floor. She's on Coumadin, need I say more? Informed that it wasn't acceptable we weren't notified as it totally freaked out Dad.
LMG, you're right, those records are non-existant, they didn't even ask about how much fluid consumed (she liked the juice today, wouldn't drink water, so had the cup filled with juice). Most people there aren't as bad off as mom. Will also find out about podiatry care (they have, it's an extra charge). Spoke with Dad weeks ago about this (moms toe nails are horrendous, I'll spare details), he was there the day Mom moved it, wanted her seen, Dad objected because they have Kaiser (which cuts her nails because of Coumadin). Staff got one foot done as it hurt for her to put on shoes,probably wouldn't let them do other foot.
Paw, beautiful job! You do great work. I miss FBB too, such a nice way to remember her. How are you feeling? Energy level any better?
My brother and nephew were supposed to come out to Dad's today. Trip got cancelled at last minute. Sad story.
My wasp sting is really bad now, lots of swelling under both eyes and eyelids. I think I look a lot like the character in Mask (with Cher). Would have gone to urgent care but Dad needed me. Been putting aloe and a gel pack on it, too close to my eyes for anything. Taking anti-his times but they don't seem to help. I'd post a photo but it would scare the pants off all of you!
Okay, caught up for now, getting really tired so I'll post for now. Dad is asleep and there are things I want to get done before he wakes up.
Hugs all around! Know that if I didn't mention you here by name, you're all in my thoughts.,
Happy Hump Day!
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Jwoo I do, I have the pain in the sternum too and yes I asked before and no body seam to know what I meant, very sharp but comes and goes for me, I haven't ask my onco cuz my exchange surgery is at the end of the month and I don't want anything to stop me from having it lol after that if this continues I ll bring it up at my next appointment. I have no idea what it is. But again I have all kind of pain in the chest area from the mx and rad.
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Oh Damn I hate when I get this far behind--I do remember things (sme) but don't remember who The bird was beautiful as well as the picture. Isn't it funny how u notice more when something happens. I still cn't get over FBB really.
And the itchiness can drive me wild, I get so itchy but even scratching u'r numb there so u can't feel the scratch but can feel the itch. I actually have scratch marks on me cuz I scratch so hard.
If u can buy a fitted arm sleeve with a hand for 100. buy it--mine was redicockulously expensive and my ins. cover only 150.00, which was awful, I went much cheaper for my legs and they help too, But when it's hot it's a little uncomfortable. I know I got mine after chemo and rads and all of a sudden there was all kinds of swelling like I need more skin on me. That 's why I say fly with caution.
Blondie u'r going to be busy, but just take it easy and enjoy.
Today just flew by--I was so busy with my personal papers and work before I knew it the day flied by and I was hardly on the computer except to work on something. My eyes then but and back hurts so I have to stay off for a while. Now I woke up and I'm not so tired meaning I will be sleeping most of the day, and I hate that really. At least I have my comedies on TV
Kids seem to be starting school so early this year, just a few more weeks--I'm so selfish I love having Joey home. Oh well..
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Jwoo, I have pain my sternum pretty much all the time. I have had 2 bone scans since treatment ended and nothing lights up. The last scan was in the eve of March.
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Surely some of you can relate to this!! Hope it doesn't offend anyone!
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haha nettie....seeems that way sometimes doesn't it?I just spoke to my manager and told her I wouldn't be able to attend the dinner. I don't feel good about it, but she was understanding.
I've got a busy day or 2 ahead of me. Rads today and tomorrow rads and going to see ID doctor. I am still having pain in my left side and last couple of nights running a temp of 99.3-99.6, I know these aren't high temps but I can tell that something is off. I will get very cold and wrap up in a blanket for about an hour...then it breaks. Also the chest area looks pink-red again. *sigh* Why????
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