TRIPLE POSITIVE GROUP

runningcello the further you are away from menopause the more likely your periods will return. I've seen many women, older than you have it come back. It's way too soon.

runningcello - you are so young, there is a very good chance they will come back.  I am so sorry you were dealt this hand before you could start your family.   Are they telling you its ok to try after a 5 year course of tamox?  you will still be young enough to start a family at that point but im am not well versed in the risks associated with that.  I am assuming because of your age they have done genetic testing?  This

@rozem I did do genetic testing, first for BRCA1/2 and they came back negative. I just completed another blood draw for further testing. I know it's very strange to get it at such a young age, the surgeon is convinced it's a mutation that either has or has not been discovered yet.

@mommato3 thank you for the information! i will certainly get on that discussion board. my MO told me it is still possible to have a family after 5 years as the risks for recurrence go down - basically the more time you wait without recurrence, hopefully the greater the chance it won't come back. i think the risk though, is still really great for me. being hormone positive no matter how many years i wait is still scary - i think pregnancy is the single most thing that results in a radical amount of hormones being released.

Momwriter - SOFT stated that results pointed to tamoxifen plus OS or the AI used plus OS, particularly for HER2+ women. I had previously understood that OS was definitely recommended if you are BRCA +, but had not heard that it was for HER2. My BRCA- status was a factor in my MOs rec not to go for OS. Yet it seems that most premenopausal women in this triple positive group have had OS , even before the SOFT study results. I'm wondering if I'm being under treated here.

Tomboy, the way I understand it, you get either TCH or ACTH. I don't think you can get the A with the Herceptin because of the affect it has on the heart. So they split the two chemos up.

pbrain - thanks for including me with my vegetables!  Lol!  You will laugh - tonight I had carrot pasta!

pbrain - it is actually Barilla - and it was delicious!  Ease into a higher dose of the Melatonin - it can cause very vivid dreams in higher doses, so go slow.

http://www.barilla.com/content/product/veggie-spaghetti

Debiann, KOP mall is only about 40 minutes for me. I don't the drive at all, all turnpike. I'll pm you both.

Hi ladies. I had a gentle nudge from Tomboy/Kath today. Thanks so much for checking on me. I told her I hated to post since my winding road continues. And I complain. A lot.

I went back a few pages to try to catch up. Congratulations to those finishing chemo and celebrating cancer free years. And welcome-which is a bad thing to say-to the new people.

Pbrain. Well, I am with you sister. Depression, disengagement, don't give a crap. And fear of the future. All tied into one. I see a therapist-have since the beginning. Take Effexor ER 150mg/day. Helps with the hot flashes and maybe with the depression. Not really sure. I have trouble going to sleep and hit snooze until I am dreadfully short of time. I was just about to start some house things-and then (more below) had a hitch in the get along. My initial thought was-don't start a project now. The scans mght be bad. Instead of a normal person-and jumping in. While I may have always had a slight touch of pessimistic and proud--this is falling.

i used to love decorating for holidays. I decorated because it was Tuesday almost. This year--nothing. My kids will not be here at all. And I just did not have the energy to put everything up and take it down again. And, really do not give a rats ass.

Saw my MO last week. We had a talk about no scans-just because. Talked about new drugs and protocols. The he wanted to talk labs and my continuing to fall red counts and associated counts. Reminded him I am not a carnivore--only occasionally eat red meat. And no one can eat a room full of kale every day. He glared. Increased my Fe sulfate to 3 times a day. And my B12 was almost gone. I pointed out it did not just go away-B12 stores take a bit of time to bottom. He did not care. Increased it and wanted me to have the upper and lower testing. Told him-again--the 'rhhoids remain. And I will wait and see thank you very much. Then he showed me my alkaline phos level. It had been up, then slightly dropped, and now climbing again. My liver panel is fine. So---this could indicate bone issues. Next. The exam. And he started hitting hot spots in my ribs and back. Some may remember he once said fibro and he almost lost the ability to father more children. This time--he reversed his no scan agreement I will have a bone scan this coming week. My belly is awful. I look pregnant.

Ex-husband from hell. Yes indeedy he remains. My therapist says the guy has an almost pathological attachment to me. In his opinion because I told him to essentially eat shit and die. He was forcing his admin assistant (who is a friend) to text me with updates on his life. She has told him never again. That I do not care. So again. Beware. If you see a tall skinny male-who was morbidly obese- with a penile implant--run fast. He kind of looks like a praying mantis except not green. The property settlement is STILL going on. But-he has to continue to pay for things so it is ok. He keeps telling people he is getting married in Paris over the holidays. But, this far, no one has agreed to marry him. Probably because he is a bottom feeder.

I did go to dinner with an adult male a couple months ago-pressured by a friend. I hated it. First, I had to stay in clothes after work instead of immediately putting on old flannel pjs and a baggy sweat shirt (my costume of choice 12 months a year). Then, I had to spiff up a bit. Then I drove to the place we met for dinner. Then. Get this. I would have been almost has horrified even if i did not have BC. He is an exec with Monsanto. (excuse my typos. My 18 year old cat is helping and I am tired of trying to redo). I grew up in Iowa. The M word is almost worse than "shut up" in the land of corn. He talked about the super corn and soybeans. The taking over farm land. I. Well, I egged him on a bit. Then told him about my dad and uncles family farm. And having breast cancer. And the underplowing of soy into the black dirt. And on and on a bit. As I sipped my 18 year old single malt scotch. Twice. Yes. Everyone has to make a living. But what a bad match. My friends response----well at least it got you out of the house.

My work life is crazy. Would actually leave there if I could. But the insurance is a keeper. Covers chemo and rads 100%. My oldest daughter had a breast reduction--went from DDs to a normal size for a normal size person. Her back has hurt forever. My son continues to do whatever he does for the border patrol. He doesn't and can't talk much. My third and her husband have produced the most remarkable child. Cora is 8 months and amazing. And my last is finishing her first semester of law school this week. I wish I could afford to live in Boulder--what a wonderful environment.

i am trying to be more tolerant of people. But I am not doing well. Chipper people--just want to smack them. The people @ the convenience store buying lottery tickets when clearly they should be buying real food for their children. Want to smack them. The complainers--over their bad hair day or their chipped nail polish or their whatever. Want to smack them upside the head.

I wish we could all meet someplace with hot and cold running maid service. And cabana boys. I am old. And very shallow. Not one thing wrong with a nice looking cabana boy. Still want a wife, a gay best friend, and a pirate. No luck on any.

Off to bed to stare at the ceiling. And the walls.

Much love to each.

~susan

Hang in there Susan. Thanks for checking in. Sounds like you have great kids.

Woohoo, Cassiecat. Congrats on finishing chemo!

CassieCat

Congrats ! There's a lot of stuff going on in your body... Chemo agents , hormones, steroids..... it's a roller coaster of emotions. Cut yourself some slack & do something fun to celebrate

Way to go. You did it!!!

good for you Cassiecat!! You did it. Now your body can start to heal.

Tomboy there are several cocktails. You got one of them. I know plenty of stage III that got what we got.

2 yrs cancer free on Dec. 7th! S