Can we have a forum for "older" people with bc?
Comments
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Sweet Costco story. I was at Costco and saw a man putting case after case of hand warmers in his cart. I asked if he was a boy scout leader or something trying to outfit the whole camp. He said no, he was a policeman. They give them out to homeless people on the street.
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Oh Sandra, I was so shocked to learn of Mike's diagnosis. My nephew was a donor last summer and was thrilled to do it. Praying for a perfect donor to be found soon!Keep warm.......extremely cold here today, but should get to freezing tomorrow. Wow.
Ohio
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Not surprised to find myself in the dark blue area of MBean's weather map. At least it was sunny here today.
Had a very exciting day today. Our NDSU Bison won their 4th consecutive Nat'l football championship this afternoon by 2 points, it was a real nail biter, was afraid I might pull out what little hair I've managed to grow!
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I Am One With Spirit and All Creation -
I give thanks for the unity of all creation
and for everything that has brought me to this moment.
I release my entire being to the gentle nurture of Spirit.
- Jonathan Lockwood Huie0 -
Morning,
Enjoyed sun yesterday, but today is gray and we will get out truly yucky weather -- not that the previous has been wonderful in the least. Even in sun we were having winds that sent the cold directly into your bones where it wished to stay. Today is actually slightly warmer but it will bring sleet and snow making ice for the roads. I need to go to work for a very short while today but it could be cancelled depending on when the "weather" starts. We will have cold for another few days as well. Yikes.
I'm buoyed by the fact that this won't last forever. So far though, the winter has been not one that I've been able to enjoy as I have a number of them in the past.
Oh Puff -- be careful of that hair, eh !!! My first real joy after chemo was over was the return of my hair. Can't begin to tell you how short the time was ( after yearning for hair from the day I lost it ) when I started being annoyed by bad hair days again. It annoys me still but a great part of the time I do laugh. Sometimes perception is really everything.
See you all later.
Blessings,
Jackie
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Gray day here this morning. Slept late. Dh made chili after he got up. We'll take it out to my mother's house for Sunday dinner. Dh like to cook one-pot meals. I'm happy to vacate the kitchen and let him go!
Yesterday I baked a chocolate angel food cake for dessert today. I sampled it and it's very good. Wish I could share it with all of you!
Hugs for Sandra and Mike and Blondie.
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Sad news this morning. A gentleman I worked with 15 years ago for a short time his wife passed away
last night from Breast Cancer Mets. I did not personally know her but another friend that I worked with had told him about me and he had his wife contact me. Her biggest gift to me was that she told me to
get a small notebook and keep it in my purse and write down every apt. and every number of every Dr. I saw. and any questions I may have. I would guess she was in her 50's
To get up to 59 here today, glad to see it.
Hugs
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So sorry to learn of another life lost to this disease. Sort of reminds that we are not in charge of the outcome of anything and just have to keep putting one foot in front of the other and doing the best we can.
Our rain has begun -- haven't seen sleet, but that may come during the cool down a bit later. Still going to work as far as I know but it is still early enough to do a call-off should it work out that way. It is gray out and no matter what else happens that is not giving me a fine hour.
See you all later -- and enjoy that lovely 59 mommarch.
Jackie
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Scared me to hear the words Blondie and sad news in the same sentence. Fortunately it's not breast cancer related but she fell and is in the hospital with a broken ankle I believe.
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PUFFIN2014: I included you in my last post but called you Muffin......My mistake! Anyhow wanted you to know that I'm very familiar with were you live as my family hails from Barnesville, Mn. My parents were born and raised there before heading wesn 1943. I spent many, many fun Christmas and Summer vacations with our large extended family who still live in Barnesville and Fargo!Cold and misty day here in Oregon so DH and I are cozy inside watching the NFL playoffs. Hope everyone is enjoying a laid back Sunday. Thinking about Blondie' s mishap, hoping your ankle isn't causing too much pain and Sandra' s Mike is still feeling better after his infusion.
5
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I know.... I posted on the Hermit's..... She has been having so many problems anyway, and now THIS! Thanks Teka! I'll keep looking on the Hermit's to see how she is doing.
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Anyone who might go and see Blondie hope you will tell her we are all thinking of her and wishing her really well.
Jackie
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Oh I am so sorry to hear about Blondie's mishap. I need to check out the Hermits Club thread.
Thinking about you....Sandra and Mike! (())
I wish I could bundle up some of this wonderful weather and send it to you gals in the north and northeast. We boated on the Canals today and the temp was 80. Then we cooked out burgers and sat on the lanai with friends of ours from Bloomington who are also wintering in the general area.
Yesterday I was really excited. I went to the library and discovered that for $15 I could purchase a library card for 3 months. What a bargain for somebody who loves to read. We have full access to the movies and all things in the library. The Cape Coral library is gorgeous and I left with 6 books! Tomorow Dave is going fishing at Captiva with a friend and I have the day to get things caught up around here and to sit by the pool and read. I'm going to fix us chicken and noodles in the crockpot for dinner. I have never done this with the gluten free noodles so hope it turns out well.
We joined the country club which also had a seasonal rate so Wednesday we're playing golf. I am hoping that we meet some nice people there. We have unlimited golf so I imagine that we will spend alot of time on the course.
I still haven't heard anything about my tests. It has been 9 days so I'm hoping that is good news. I will feel better when I actually know.
Well, I am going to grab one of those new books and dig in! In the meantime, you gals in the cooler climates, stay warm and travel safely if you get sleet or snow and have to get!
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Hi, skipped pages, but wanted to join in to say hi to everyone here.
I had a week back at work after traveling (too much) and of course got a weird sick thing - still congested No fever or flu tough.
DD came this week end with the girls and we had fun..tea parties, mini pancakes, and watched a 3D movie. They asked me to come to live with them at their house (5 hours away). As much as I love them, I have 2 problems....DH doesn't want to live alone (yet) and I have a job that gives me benefits that I'd lose if I retired....but it I tempting! They are all hurting because of the pending separation.
So, didn't mean to ramble....just wanted to check in. Hope everyone's warm
I am working this week, have a MO appt., and a trip to CT scheduled to teach my granddaughter's 3rd class about rocks and minerals.
A little panicked -- classes start next Tuesday.
Wishing you all well....
Joan0 -
Joan.. The grand daughters sound so cute.. and tea parties are so much fun.😃. I'm sure they really do wish you could live with them.. Especially with the separation happening... Maybe they will actually feel a bit happier after it does happen, and they see that life will still go on happily for them...Your grand-daughter is going to feel so proud when you are at her class teaching !!
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Joan, I'm so jealous that you are close enough to your granddaughters to be able to be an active role model in their lives. I really miss sharing those moments and activities with my grandsons. I'm sure you will do just fine on the rocks and minerals class. You could always make a conglomerate rock using pebbles and Elmer's glue! We made them in the individual cardboard milk cartons and then peeled away the cardboard when the glue was dry to reveal the pebbles all cemented together into one rock.
It is cloudy here today but the sun is supposed to come out later. I have some things I need to do inside so that works for me. Already have the fixing for chicken and noodles in the crockpot for dinner tonight.
I hope everyone had a good weekend.
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Rita, so glad that your weather is great and you and dh are enjoying your summer (whoops! winter) getaway in FL. How nice that you have unlimited golf. I haven't played in a couple of weeks.
Really sorry to hear about Blondie's accident. Hugs to her.
Joan, I know you will do great teaching your class. It's wonderful that you enjoy your grandchildren so much. Wonderful for them as well as you. Sad that parents get divorced but it seems so common.
Thinking of Mike and Sandra.
Hi to everyone and happy Monday.
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What we are talking about is learning how to live in the present moment, in the now. When you aren’t distracted by your own negative thinking, when you don’t allow yourself to get lost in moments that are gone or yet to come, you are left with this moment. This moment—now—truly is the only moment you have. It is beautiful and special. Life is simply a series of such moments to be experienced one right after another. If you attend to the moment you are in and stay connected to your soul and remain happy, you will find that your heart is filled with positive feelings.
Sydney Banks0 -
Nothing going on weather-wise here right now. The dreaded "ice" didn't come yesterday -- but the temps are down and so what isn't frozen right now will be this afternoon they say. Of course, we are all a wee bit jealous, Rita -- but, you do learn to put your best foot forward and plow through whatever Mother Nature tends to let befall.
That is exciting that you get to ( for what seems quite fair pricing ) partake of the amenities of a full time Fla. resident. You know, it actually makes sense since there are Snow Birds there so much -- but not actually something I'd have easily thought of beforehand. Sounds like you are going to definitely have the best of all worlds pretty much no matter where you happen to be. Right now -- the most impressive for most of us south and east of you is the gorgeous, scrumptious weather.
Joan I was just thinking about you and wondering how you were. I too, hope your family adjusts with the separation that is going to take place. I think maybe it is causing some un-ease that may end up being all right once they see that they really can be successful about it. It is not easy and is another commitment -- just like marriage, to do your level best to make things go right -- for everyone. As you do have very valid reasons to continue with the path you are on -- I'd likely give them a chance to get into handling life with how it will be for them -- just as they are. They might surprise themselves. So hard to say -- but there are I think high numbers of 'separated' or 'divorced' families who learn to traverse the distances ok. Hoping for you that it goes all right.
Teaching the rock class sounds like a something that will satisfy you ( once the format is fixed ) and be great for the youngsters. For some reason my sensation is that you will make something somewhat 'mundane' come alive for the kids just as rocks and minerals are.
Blondie -- can you feel the hugs !!!!!
Thinking of each and everyone of you today.....
Blessings
Jackie
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LuvMaui: I figured out that Muffin = Puffin. I've gone birding in the Barnesville area so am somewhat familiar with it.
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Luvmaui, dh and I went to Barnesville two summers ago to the Potato Festival. We spend the summer near Park Rapids.
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Carole, it is truly a small world isn't it? Barnesville has a population of around 1500 so I'm always surprised when I find someone familiar with it. My family is always very involved with Potato Days but I've never been there during that time.
Rita, I am sooo jealous! Do you rent or own a home or condo in Florida? Sounds like a wonderful way to spend the winter. It's for sure not golfing or sunbathing weather here.
We're watching the College football Natl. Championship game tonight and should be rooting for the University of Oregon but we're avid Oregon State fans so I'm having a difficult time doing that, lol.
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The greatest thing a man can do in this world is to make the most
possible out of the stuff that has been given him. This is success, and there
is no other. ~~~~~~ Orison Swett Marden0 -
Things are becoming more "real." We spent half a day at the hospital today, visiting the Bone Marrow Transplant Unit and meeting some of the staff, asking a thousand questions there, then had a long appointment in the Interventional Radiology Clinic. We met the doc who will place Mike's special port next week, learned how it all works, signed all the consent forms, had a medical exam, got a boat load of lab tests scheduled for Thursday and picked up all the forms for a Living Will, Medical Power of Attorney, and Advance Directive. I've had those since my brain stem stroke 2 years ago but Mike was never sick or hospitalized until just before Christmas, so he does not have what he needs.
We learned that he should be in the hospital for at least 30 days after the transplant until he shows signs that his body is beginning to accept the donation, then will have 100 days of virtual isolation at home except for daily, then bi-weekly hospital visits. He can't have animals around him, no plants or flowers, no dust, no dirt, no chance of mold, can't be outside if a neighbor is mowing his grass, can't go in our swimming pool or hot tub, must be covered completely when outside of the house to protect against UV rays that can trigger rejection (!! who knew??) and a hundred other restrictions.
I'm reading Robin Robert's book and am struck by the fact that she was diagnosed in April, found a match two weeks later, but didn't have her transplant until late in September. The docs told us there is no time to waste and this should be done within three months. Puzzled.
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So difficult for you both but glad you are making progress. Fingers crossed! All good wishes.
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The value of all service lies in the spirit in which you serve and not in the importance or magnitude of the service. Even the lowliest task or deed is made holy, joyous, and prosperous when it is filled with love.
Charles Fillmore0 -
Sandra, as you say, who knew!!!! What a list of CANNOTS tied to this procedure as well as long periods of time. Still, have to do whatever it takes to ensure life. So much knowledge to take in to get this accomplished. Why your Dr.'s seem in a bit of a rush, who knows??? Perhaps they will share their viewpoint on this with you. I would certainly ask. They seem to have been fairly candid all this time.
It is cold here but is due to warm up. Thank goodness for that since our furnace is once again not behaving. A part should arrive on Friday and Dh will put it in. Seems minor and though the house is not as toasty as we might like -- we do have a couple of I-heaters that can keep us fairly much ok -- 68 to 71 which is not bad at all. Seems so minor to complain about after reading Sandra's post.
Doing some early things today -- so will be back later in the afternoon.
Blessings
Jackie
p.s. thinking about you Blondie with hugs.
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Oh Sandra, it appears you are moving ahead quickly and will be very busy in the days to come. At least when you are doing something, it makes you feel as you have a little more control of the situation. It sounds as if Mike is going to have excellent care and I wish him the very best. In the meantime, take care of yourself, too, as we certainly don't need you getting down also. Hugs and prayers are being sent your way.
Lovemaui, we rent a three-bedroom house on Cape Coral. We have two cats that travel with us for the three months. The house is pet friendly and VERY nice. It has a gorgeous lanai and and nice pool and is very nicely decorated. We always think about buying something every year when we come down but I am not ready to give up my Illiinois friends and my home for a "year-round" home in Florida and I don't want the headaches of having two places to maintain so this works well for us. We love to golf so we joined a golf club on the Cape. They had a three-month rate that suited our budget and the time that we will be in the Cape. We figured that would be a good way to meet more people here. Eventually we may relocate to the area, but for now, the renting works well.
Glad to hear that Blondie is doing better! YAY! Thank you Teka for keeping us updated about her.
I hope everyone has a good day.
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Sandra, I know a woman in St. Louis who had the transplant twice. So I have some 2nd hand knowledge. After the procedure, she was in isolation because her immune system was down and she was completely vulnerable.
Robin Roberts' donor was her sister, Sally Ann, who is an anchor on the CBS morning news show in New Orleans.
Rita, the house sounds ideal. I had hoped it would be warm enough for golf today, but it isn't. The women's golf at our club was cancelled but the luncheon afterwards wasn't cancelled.
Happy Wed.
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Sandra - i was thinking about you just this morning & so glad to see an update on Mike. Sounds like you will have your hands full but I agree w/Rita - having something to do may give you a feeling of control over the situation. How are Mike's spirits? Maybe some of the timing depends on the docs & hospital? Will he be at Brooke? I'm keeping you in my thoughts.
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