TRIPLE POSITIVE GROUP
Comments
-
TonLee - Just wondering if your pain has resolved or lessened. Using you as a role model to return to my previous activity level!
0 -
pretty tough right now,, had neulista shot on Friday, and pain breaking thro today. Trying the benedry to help me sleep, so the pain goes, but of course it is going to rain for the next 2 days, so don't think that's helping. Nite all
0 -
Minivan - great news that the massage therapy helped! Amazing what these therapists can do. Not sure why more MOs don't address supportive care services like PT, massage therapy, pain management docs, etc. Even if they just provided patients with a list of possible resources.
Jerseygirl927 - Sorry you are experiencing pain and hope it is improving today
0 -
JersyGirl, are you taking claratin for the Neulasta shot? My chemo was on Wed, shot on Thursday. I couldn't remember the 'regime' for taking claratin, so I took it starting Sunday before and ending Sunday after (8 days) I don't think I ever had 'bad' pains. Some horrible stabs here and there, but nothing constant.
0 -
I took the claritin the day of and the day after neulasta. not the claritin D, just the regular kind. Man, the first time i didnt know about it, and it DOES hurt. i wasnt warned at all, so besides hurting i was scared. it really helped the second time, and it wasnt my treatment place that told me, it was a neighbor who was stage 4 and had been through it. she was freshly stage 4, when i was found to have bc, and i miss her dreadfully.
0 -
yes the clariton is for the neulista, and even today, I needed it, he ache is there, so. I may continue a day or two, cause I do have allergies too,
Glad there is some foamy pee, was getting worried, the runny nose is tapering off, and the runny eyes are less, so we shall see how the weeks progress. So. As soon as the aches are gone, I am out walking to catch up on stamina and mood. Cause this definitely brings me down each week.
Hang in there girls .
0 -
Why are u glad there is foamy pee? Doesn't that mean there is excess protein in yur urine? Kan meen a kidnee prob.
0 -
not glad about the foam, but no one seemed to mention it before. When telling dr, he didn't seem to know about it either? Now I have heard from others, that they too have foam, dr did urine analysis, so I guess all is good? I am trying to get good protein besides, he said to eat good foods, lots of fruits and veggies, eggs, turkey, lean beef. I guess it's gonna be there for the whole chemo deal, did not have foamy pee before chemo. Hydrate gals.
0 -
I am glad that some mentioned the foam in urine, I also notice that it starts after my chemo, I did have urine analysis and the protein is fine, however I do have extra WBC in urine indicating slight infection. My MO perscrives antibiotic and the foam is still there after finish the whole bottle. I guess that it is due to chemo drug, If I don't drink a lot of water, I can feel irratated bladder
0 -
Sorry I've been busy.
Jerseygirl927 The first Nuelasta is the worst. I still had discomfort for a few days but nothing like the first one.
0 -
ache are just subsiding from neulista, talk to my nurse navigator and she said it's ok to keep taking the clariton, so next time doing it day before, day of, and for how many days this takes. I am upset because I have a new chemo schedule, they extended it by 2 more chemo treatments, into July. I asked the chemo nurse and she said this can happen, NOT happy,, but will talk to nurse to see if they are making it smaller dose, ? Which, I am thinking, but wanted this done done done. I am noticing a slight numbing in my two fingers now, on right side which goes with the 3 toes on right foot, very slight but it's there. Mentioned to Dr and he noted but said in the grand scheme of things, will watch for numbing of those area or worse. Hello it's my body.....
Bad stomach issues with hercepton yesterday, and heart rate rising, Guess I have to rest more?
Anyone doing the share the journey trials ? I am, lots to complain about sleep, fatigue, exercise, which is NIL.
Ok gals hubby having surgery today for foot, say an extra prayer please, God know no time! Thanks
0 -
jersey, I'm doing the journey thing, but I must say, I'm not too faithful. I get busy and forget to fill it out. If you are on taxol, that numbing isn't too unusual. It had some in my fingertips, plus my fingers and toes were completely ice cold all then time. I had heating pads and hot water he bottles in my bed every night.
With herceptin- I had heart palpitations off and on. Didn't seem to make a difference if I was working out or sitting down. It would just happen . That too went away after it was over.
Haven't heard anything about foamy pee, but pretty sure I didn't have it
0 -
are you sure stomach issues are from herceptin and not perjeta? Just checking because perjeta tends to have GI effects.. I'm currently taking herceptin alone and it's pretty symptom free minus heart impacts
0 -
had cramping issues again today after dinner, small bowl of mild chili, not spicy but had beans, corn, burger meat , crushed tomatoes, cant seem to get thru a day without some kind of stomach issues,
Glad to hear the numbing is temporary?.??? I do not take perjeta, so it's not coming from that drug. The only other issue is the huffing and puffing if i do to much, weather it be rushing or trying to lift something a bit heavier. Probably been to sedentary lately.
Want to say I had a day of pampering yesterday, one of the local breast cancer support groups gave the recent members a day of love. We had speakers on nutrition, a breast surgeon, a lymphadema PT therapist, chair massage, lunch, makeover, Zumba for those willing, chair yoga, and lots of gifts from some of the sponsors, it was pretty amazing. I hope one day all of you get some pampering too. Hugs to all
0 -
Hello All you +++'s,
Thanks for sharing all your info and insight. I was wondering for those of you still within child bearing years, after doing chemo (TCH), did your reproductive system recover and were you able to become pregnant or did you need help? I have done alot of research since being diagnosed in January, my first freak out was about losing my hair (how silly right!?) then I realized there was something way more important at stake which was having kids because I have waited to find my perfect partner and thus it's set me back in the plan of life that we all dream of as kids. I'm 38 and a little late to the dance but it's still part of our dream that we were working on when I was Dx. I have some Tx decisions to make to ensure that can happen one way or another. Thoughts
0 -
Jerseygirl - Are you on Herceptin? I was only able to have 7 rounds of Herceptin before it damaged my heart. I was so out of breath that I couldn't walk and talk at the same time.0 -
oh yes about herceptin, th chemical name is taxoter, and yes that is. Side effect, that is why they do a base line echo cardio gram that measures different things about your heart, so they can re measure to see if there is any damage to be measured. It can also cause congestive heart failure. That is a big concern, so I slow down or stop doing when I get winded. But some of the other side effects make me crazy and I'll. today was a good day. Thank you God...
0 -
Jerseygirl, Herceptin and Taxotere are two different drugs. Taxotere is a chemotherapy agent, and its generic name is docetaxel. Herceptin is a targeted treatment for those of us with cancers that are overexpressing the HER2 protein, and its generic name is trastuzumab.
Lefty, I had my last period just before starting chemo and it hasn't returned yet. I was nowhere near menopause or even perimenopause before all of this started. My MO says it's too soon to tell yet if it will come back or not.
0 -
I also ended up with heart failure (although mild) when I had started Herceptin, of course because I was "symptomatic" my Herceptin was stopped altogether. So, I only received 4 doses of it and being a triple positive HER2 cancer, stage 2, grade 3.... it's freaking me out. I have had a double mastectomy but am so scared of finding cancer again somewhere on me! Anyone know what the odds are if only got 4 doses of Herceptin versus the full 14 doses I was told I would get? Would appreciate any information on this subject. thanks
0 -
Cassiecat, don't bother. we have tried to explain, many times.
0 -
Hi Everyone, I am just joining this group. Is anyone here on the TDM1 trial? I am newly diagnosed. Lumpectomy 2 weeks ago, starting chemo in 2 weeks. Either Herceptin/Taxol vs the TDM1 trial. Wondering if anyone here has been faced with the same option and decision?I am interested in the trial if I can avoid the Taxol, but also want to receive the "tried and true" for HER2+... very torn with this decision.
Thank you and hope you are all having a good day.
0 -
Hi all!
Thank you all for your welcomes and suggestions a few months back when I posted - I honestly forgot I posted in this thread, and just found it again. Yay chemo brain!
I'm halfway through chemo - going in on Monday for round #4. SE's haven't been too bad - broke out in a bad rash after first found that presented like acne. MO put me on doxycycline and clindamycin, and it went away after about two weeks, but I'm still dealing with residual scars from the pustules. One more thing to deal with.
I'm definitely having lots of diarrhea. Trying to stay hydrated, and a nutritionist recommended staying away from high-fiber foods. Not a problem there since all i'm craving is junk food.
Someone suggested I have the genetic testing done due to my age (27) - I did have it done, and it all came back clear. Which was frustrating. No answer to the "why me?" question. Instead I just have to accept it.
I'm not looking forward to going to my next infusion. I'm so tired and want this to be over.
0 -
Hi Ladies:What are your thoughts on tomosynthesis versus the standard mammogram.
0 -
Arlene
I have dense breasts so I've opted for tomosynthesis (3d mammograms). My breast surgeon ,MO & the radiologist feel it's a good choice:)
Until they decide it's a bad choice;)
Have to pay $75 out of pocket.
0 -
I would like a 3D mammogram but it's not offered here. Instead I had to get an ultrasound today because my breast tissue is extremely dense. My gyn didn't want to take any chances with my history.
0 -
my acne acting up, going for herceptin Thursday,
We had a dr of radiology talk about the tomo graphic X-ray that is the wave if the future till the mammo with dye comes next. The pictures are better with those of us who had dense breasts, able to see tumours better.
Some swelling of ankles myself, could be the heart issue , they check my ankles at chemo. Mention it for sure. Part of the chf issue.
0 -
Thanks Ashla. Just started being offered here. I too have dense breasts so I'll deal with the fee.
0 -
I have very dense breasts. Unfortunately, the 3D mammo doesn't work on me- it missed things that a thorough breast ultrasound picked up (luckily benign). But one interesting possibility- The breast center I go to is part of a study investigating using 3D mammo with contrast dye once a year vs. Mammo + MRI alternating every 6 months.
0 -
I actually have both 3D mammo & ultrasound every 6 mos because I have developed 3 tiny cysts along the scarline. Together, they seem to provide a good look. So far. I hope.
Think MRI is most accurate but cost is prohibitive.
0 -
Thanks for the feedback everyone. I'll see what my onco says.
0
