INSOMNIACS place to talk in the wee hours

def more chatty. Feeling so much better. No official MRI report yet but mo looked at it and said he hasn't compared them to past scans yet but very certain progression in spine only. Talking about tx change depending on MRI results. If not definite will do a pet scan tomorrow to make sure. I am not even going there til we are 100% sure. I certainly don't want to leave femara it has been easy. But looks like there are many many more options before chemo. Oh yeah he said also more compression fractures but no spinal cord compression and that's really good.

So good to hear you are feeling much better. Are you able to eat ok and keep your food down? Any gourmet food at your hospital haha? Hoping and praying that your MO will find a regimen that not only will halt progression but also give you a decent QOL. Did they find any kidney stones?

Hi Everyone!

Thanks for the welcome! You are all impressive people! In awe of your humor & knowledge. Just getting my toes wet. Hope it's ok to just read for now. Still reeling from diagnosis & beginning treatment/journey. Learning so much but I'm playing catch up. Please point me in any direction that helped any of you. And feel free to change my name, especially if you can make it funny. Humor is my biggest weapon in life. If you can laugh at anything, you rob it of its' power. And I do believe in the joyful power of companion creatures in all forms from 2 to 4 to millipede legged!

Really appreciate we are from different parts of country/world & share different viewpoints. Hope I can contribute something of interest. I will post my introduction in newbie section-yes? And may I respectfully add my prayers for everyone, wherever and whenever they are in this journey.

Hear2day- welcome to the thread. Sorry you find yourself here, but there are a lot of nice ladies on Insomniacs and we try to support one another. We have others here newly diagnosed like yourself, those in treatment, several down the road a pike, others living with cancer.

There are lots of threads here to help you while you go through surgery, chemo, rads, deal with the AIs, etc. You have to just move around and see what is going on and what you like. Specific threads for single women, older women, women living with more advanced cancer, etc. We all belong to multiple threads, but think many women here belong to a few. If something does not click or you don't like the conversations, just remove from your Favorites and move on. It is trial and error in the beginning. I found there were threads that were good for a time, others that are better for me now the pike a bit (almost 3 years from dx).

We hope to be a resource for you as you go through this. It is all quite shocking and scary, but we have all been there and can help you along the way. BCO was a beacon in the fog for me during treatment and a good place to be since.

Patty- I am glad you are feeling a bit better. I hope the progression is limited and you can be home soon. I got a PM from Blondie late last week (maybe Thursday?) so she is around. I think she has a few more days in FL before she heads home. I hope she is having a blast.

Loveroflife, I downloaded the photo from Google. I cannot take credit for that. I live about 3 hours from the lake, do not go often enough. I wanted to share the beauty of the Sawtooth Mts. With you all.

Jazzy, perfect sign.....

Hear2day, hope you are here to stay. Hey, I can rhyme...

Hole!! You fooled me there. Lovely picture still. This is a picture I took(not downloaded) when we were in Lake Tahoe last Monday with friends from Nepal. Amazing blue lake, but couldn't capture it with my outdated phone.

Thanks Jazzy. Doing okay--still look a little Uncle Fester-ish with the circles under the eyes but hanging in there. And as for lightning, it is very rare but when we would go to Pennsylvania in the summers when I was a kid, we would sit on the front porch and watch the storms. When I was there in the summer of 2013, I was driving north from the airport in DC and it was crashing right on top of me on the highway...."One...boom." Never even got the to "One thousand one".

On Saturday, my crazy dogs were on top of me--the 100 pound guy in my lap and the 75 pound guy on my feet. When one strike shook the house, the little guy crawled under the coffee table and wouldn't come out. Some guard dog!

Patty -- glad you're feeling better. Fingers crossed for minimal progression. I chew ice during my chemo iv's and I've had almost zero mouth issues. The first round, I did otter pops and still got a little chemo mouth where everything tasted like the bottom of a bucket but I've done straight crushed ice and haven't had any issues on rounds 2 and 3.

Spookie - even though I'm not having chemo mouth since round one, I don't salt any communal food since I don't trust myself even though everything tastes normal.

Sas--It was me with the with the tinnitus. Technically, I have secondary endolymphatic hydrops caused by labyrinthitis in Jan 2014 but it's easier to just use the term "Meniere's" which is primary endolymphatic hydrops. I'm not sure if the CoQ10 is helping keep the tinnitus to a minimum since I was taking it prior but I usually only have the tinnitus before a vertigo attack which is rare since I also take a Maxzide every day to keep my fluids balanced.

Loverly--so far so good on staying awake! I'm working a 12 hour day today so I still have 4 hours to go.

Chevy--I think the crocs visual worked but it was the "go bake a muffin" that had me laughing. And then you had to post the photo of being able to tell when Muffin was in heat so I had to laugh again...hopefully your neighbor isn't baking the cat.

As for the neighbor's ditch -- rock salt may be a good solution. It kills the vegetation and keeps it from coming back for a while....like how the Roman's salted the earth of their enemy's land <insert evil laugh>.

Patty sorry to worry u i am fine.worried bout u tho.

It took about 3 hours to catch up to u busy people.

Wjsh i could comment buy dont have the energy.

Tomorrow they r going to a minor league game n tuesday to an amusement park. Leavin her at 4 on wednesday, plane doesnt leave til 730ish 

Didnt take alot of pix cause didnt do nothing

See, this could be her....

With Crocs and

does she look like this ?

Or 6 chickens on her feet?

That wouldn't surprise me at all.... She has a picture posted of her and holding one of her chickens... Ha!

She sent me an email, sort of answering the one I sent her 2 days ago.... I told her I was going to take care of MY half, and take down all the weeds...to help it look better....

I DIDN'T say, I was pulling, then raking, then getting out the nitro-fueled weed cutter, and blasting the blazes out of any remaing weeds, then putting on rock-salt, Round-up, and anything else I can find! THEN I will cover it with barrier, pin it down, and put those 2 bags of pretty mulch on top. I will buy some stepping stones, so people can THEN get out of their car, and have something to step on, without 4 foot tall weeds hitting you in the face.

Then I don't care what she does.... I think that other neighbor is going to report her, because she just doesn't care about what it looks like, nor the weeds and flowers hanging over the curb and growing there...

So she said "Thanks Jeannette".... and I thought "okey-dokie little air-head".......go make mud-pies for the chickens.

OMD!!! It that a snake hanging in his hair?????

For a minute I thought that picture of the guy was a Hassidic Jew with a chicken.. then I cracked up laughing at my mistake... thanks Chevy.. laugh for the mornin! Blondie take pictures even if you are doing nothing. Take pictures so Andrew has them. Patty that MRI results is doable. DD2 is visiting and isn't up yet, so for 3 days I will be busy. hugs. Hi all.

On to the next stage for me: radiation. Specifically, the "Canadian Protocol", so only ONLY!? eighteen treatments rather than the full thirty-five. But I still refuse to use the term "lucky" in connection with any part of this process! It's merely less bleeped. (Don't worry: I am gradually returning to my usual grumpiness though I'm still wrestling with accepting treatment emotionally) Thank you all though I'm not planning to go anywhere in the near future! I'm just far less likely to melt down into a puddle of hysterical self pity.