INSOMNIACS place to talk in the wee hours
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Mags - you haven't drive in so long or for any distance, could the tremor be from gripping the steering wheel or just the effort of keeping your arms up? I'd bet on something simple like that. Rest, recuperate, reflect. I think even with myself I'd find 3 hours driving (not riding) hard. Heck to be honest 3 hours riding and you'd have to pry me out of the seat. Furthest I've been in years is the just about 2 hours to Lake Murray (Ardmore) or to Allen (North of Dallas). I think I might have driven the Allen thing one time cause DH wanted to doze but I think that was b4 BC.
Confidence builder!!!
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LMG, No not suggesting you stop. Talk it over with your doc as to what is best for you. Please, read the links on Retsky's study and Forget's. Retsky believes this is a leap forward. A heretofore unrecognized way to kill circulating cancer cells during surgery or sleeping metastatic cells b/c of the interference with the cascade that occur when tissue is cut. All NSAIDS don't work the same way.
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Susan, When's the surgery?
Tang
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Mags--sounds like you had a great time! I agree that the tremor could be driving.
Goats--I paid $4.07 yesterday at Wally World for organic cafe free eggs. Crazy prices since California passed a law on chicken farming that limits the number of chickens per square foot. I was already buying organic cage free at $2.50 but then the price jumped after the law passed even though it didn't effect them. I guess they figured that if regular eggs are $3 a dozen, they have to jack up the prices on the special ones. I'd get a couple of chickens but if the dogs didn't eat them outright, they'd probably constantly chase them all over yard and the poor things would be so traumatized that they'd never lay an egg!
Loverly--congrats on the Junior Olympics.
Sas--I know, too many hours. When I was younger, I could work six 15-hour days in a row and not be the least bit tired. Working my regular 12 hour day for three days plus my bi-weekly 8 hour day just about kills me. I'm not subject to mandated overtime right now because of my BC treatment but I volunteered to stay 2 hours Tuesday night to cover sick leave and that extra two hours kicked me in the behind! Lesson learned--won't be doing that again. And good to know on the hair ball!
Hi, Susan! I can't remember if I mentioned it, but also check with your local Area Agency on Aging for resources for you and your mom. My sister is the director of the one in Riverside County and sits on the federal board so I know thatthey have lots of programs. One thing I do know is that Medi-Cal pays for respite care for your mom if you need to go out of town or just need a break. Good luck!
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thanks marlanab, my brother lives with her. He never moved out. But he is a teacher, starts back soon. My mom won't move in with me. She has a very slight version of agoraphobia . Can only tolerate being out of the house for so long. Got things to figure out, but we will get there, or I will make peace with not getting there.
Going in to see doc soon. Not sure when the surgery will be yet. Does explain a lot o things I been feeling down there. Weird pressure and bloating thT won't go away and stuff. Kind of happy the cervix popped it's little head out. Now I can move forward
Hope all is well !
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ahh Junior Olympics. Now I get it.
I'd get some chickens too but I have bad creatures that come in the yard - possums, raccoons, hawks. DH would have to build a chicken coop like Fort Knox and I don't see that happening.
First time for this to happen. Answered door and it was real estate lady card in hand and well known agency, cold calling for potential customers. Not us, sorry. Neighbor trying to sell, 2nd time for this. Need to move into town, too much land to keep up. She says market out here is flat. Not per this real estate lady, market hot. I think neighbor is closer to the truth. The cattle land just across the road is back on the market. Was slated for development. Not sure what fell thru - financing, platting, wrong timing.
Ha Sassy. No doc even comments on the Advil and it's on for sure my PCP group stuff. MO doesn't look at most anything. Have yet to hear from that Prolia chick at his office. Like I said I think I will stick with my Fosamax until next April and next bone density. Hopefully I won't have another surgery to cascade tumor cells. No clue what I had for LX. Fentanyl? I have no records from actual surgery, only path report, so I'll never know.
Yay Susan for prolapsed uterus. Odd thing to be saying but by golly in the scheme of BC something positive.
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Queenie! When you said your cats have their own glasses for years.... I thought but I didn't even know cats needed glasses! I mean WE are going Tuesday for an eye check-up, but cats? I could just picture them for a second there!
And so NEXT time, you have to expound a little more, before I believe everything you say!
Here's the mess I am working on.....
I know it still looks a mess, but if I just do a little at a time, I can still move the next day.... I have everything I need to finish it now... So I will take a picture when I am finished.
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Chevy: (laughs) Original poster NOT to be held responsible for how readers msinterpret her posts. But you'd think an editor would know better! Dangling modifiers, ambiguous terms, doesn't matter. I've fixed it. But all I"m gong to say is that MY cats don't get anything to correct their vision until they start reading my books and discussing them with me.
Their own DRINKING glasses, that's another matter. There's always a bowl of fresh water down by their kibble. And yet....whatever's in the humans' beverage containers is far more appealing. At least until they realize it's wine or coffee or peppermint tea, and back away making the Mr. Yuk face. And then give me a "Oh, shut up, you b****h. This so isn't funny!" glare when I snicker at them. We found it easier to just have a glass of water on my bedside table for them, and a can of seltzer for me.
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Mags- I am glad you went to the casino and had some fun. I am sorry about the fatigue and the tremor. It really does take a long time to feel better from all this. I think you finished treatment this past spring, correct?
A doctor friend of mine (not on my medical team) told me that I would not really feel better until a year after I finished treatment. That turned out to be very true for me. But you have to venture out and take these little day trips, overnight adventures, etc. to figure out your new normal. Maybe that was too much for right now, maybe it will be better when you try again. I don't think it is your new hell, I just think your body is still healing.
I have talked to many women here who have said "when am I finally going to feel better from all this crap?" It does get better one day/week/month at a time. Things slowly return, or get better. SEs ease up, or we adapt to what remains. We have to figure out what our bodies can and will do in the new normal. There are things I cannot do anymore, don't want to do either.
Give yourself a big ole pat on the back for doing this! Proud of you for venturing out!
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No house cleaning tommorrow for me. I'm done for the week.
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Mommy-that sounds good to me. Time to par-tay!
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About the tremor, it started quite a while ago and has just gotten worse and worse. I actually didn't use my arm much on the trip as I was on the turnpike the whole time and kept a pillow under my elbow the whole time, I don't think it's worse, it's just gotten to the point where it's really bugging me. I have to tuck my hand under something all the time especially if I'm trying to sleep. In addition to the shake, it also jerks from time to time, and my fingers will spasm and lock in place. Ortho says it's not trigger finger, no idea what causes it. I have a pic of that somewhere.
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egg prices are supposed to skyrocket because of bird flu. They had to destroy thousands of chickens and will take time to recover. Bakery prices are supposed to go up too.
Mags,try an ortho again. I've been having weird things happen at night, pcp says its cervical nerve damage. I've had 4 fused not wanting to do this again.
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Sassy- you asked me what kind of practical jokes I do. This could be one type!
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Heheh
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Mags, what's your plan? 'Developed' indicates first experience? First experience, PCP in am. Not something to put off. Any increase or worsening change in symptoms go to Er or call EMS. Don't drive. Laundry list of possibles. .
not fair to you to do an exam this way. calling
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Sassy--my dad's a practical joker and usually got us kids in on it as his minions. Best one we ever did was when I was a around 14. Dad brought a weather balloon home from work and we reversed the hose on the vacuum to inflate it in the entry hallway of the house. Mom came home from a long day at the mental hospital and couldn't get the door open--every time she tried to push it open, the balloon pushed it back. It took her 4 or 5 tries before she figured something was up (not sure if she could hear us snickering on the other side of the balloon) but the jig was up when she yelled "Wayne, get this G@% d#%? door open!" Dad released the clip holding in the air which deflated the balloon pretty fast so that when mom walked in we were all still bent over with laughter. She didn't say a word to any of us for an hour and banged every pot and pan on the stove while she made dinner. But it was still hysterically funny.
Queenie--I had a dog that was always drinking my beer out the glass or my coffee out of a mug. I have a coffee table that sits in the corner created by my sofa and love seat and if I left the room, I'd return to find him standing on the couch, slurping away at my drink. The coffee didn't bother me as much asthe beer because I so rarely drink beer that it will usually take me six months to go through a 6-pack. Every once in a while, I'd get a craving for a beer and it seemed as if the fur beast would only strike when I was down to my last beer.
Chevy--the beer drinking dog went blind at the end of his life from an autoimmune disease that caused his corneas to turn cloudy. If I could have gotten him glasses, I would have. See, he never figured out that he was blind and still ran around full speed. I can't even count the number of times that he ran into something and knocked himself silly but he cost me a total of $1000 for suturesfrom twice splitting his head open! Not to mention the cost of the large terra cotta pot that he cracked with his noggin.
The parkway looks good. Muffin princess' wild flowers really are just tall weeds.
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Well I had 4 liters of fluid removed from my gut July 1st. Then I felt uncomfortably full and had 1 1/2 liters taken off my abdomen July 7th. Since that visit my abdomen went down and then started to blow up again getting tight, ribs hurt and making me nauseous and miserable. So I went for a paracentesis today and the ultrasound showed that there is little fluid it's all tissue and solid. Since the fluid they took out before was all filled with cancer in 16 days the cancer filled me solid? Wow. That's incredible. So with no relief coming, and I signed up for hospice and palliative care. It will be a mercifully short hospice stay couple of weeks at this rate.
Good thing i didn't open the Ibrance it's still factory sealed in its baggy. I will send it back to specialty pharamacy if they promise not to throw it out. If they say they will pitch it in the trash then I will find somebody here who I can mail it too. I have an unopened bottle of aromasin my DH picked up at the pharmacy still sealed, when they switched me to femara which obviously isn't doing anything at all.
Very disappointing day. Still miserable and uncomfortable and will stay that way. Hospice here we come! Hey Blondie!
Looks like the cabin sale will go through maybe we both close at the same time. Wouldn't that be ironic! Sorry to have no good news to share but there wasn't any good news to be had.
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rosie I'm soory, sucks
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Rose, Sorry for the bad news. I hope hospice is able to get you comfortable. They put QOL first. Quite a change from the doctors who don't listen to your pain. Hugs.
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Hey peeps, loving fla,yes kiddies r gone..wanta stay longer mayb i will
Welcome bk kath
Love reading all u say
Pattyy now stay home, no more hospitals 4 u
Hey sass n sppok, queenie, chevy, jazzy, good news, i know i missed some sorry
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Rose- I am so sorry to hear about the news. I hope the support from Hospice can make you comfortable. Hugs sister.
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Oh Rose, such sad and bad news...wish there was something I could do beside inteceding for you. The pharmacy won't be able to take the Ibrance back. Feeling nauseous here too. I am very sorry.
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Rose,
Arrggg, I am angry you did not get the Ibrance when you first requested it. Did they suggest, or advise you to still give it a try? Sorry, I am being nosy, but so unfair....the bs runaround. Hoping you flunk hospice & they kick you out.
More important, I hope you have pain free days, or more comfortable days. Hugs to you & your family....
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Hi Blondie, glad you got to stay......relax & enjoy yourself.
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I figured that would be the case. Now I need to find someone to take 10k worth of unopened meds. What a waste. I left the house at 1030am get there at 12, get labs wait until 2pm and then they do the ultrasound and it's solid -all this firm massive bloating is solid? I mean a week ago I felt doable and in such a short time I got filled up solid- scary. No relief, an entire day spent and not one thing to show for it.. not a molecule of relief. That's when I went upstairs and switched to hospice... done. I saw the light, total clarity.
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Hi Ms. BLONDIE. Hope you get to stay as long as you wish. Hug
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I wonder if you are able to donate it to charity programs outside the States, perhaps Doctors Without Borders. Not sure if Sumeritan's Purse will take them. I don't understand...how could it grow that fast in 3 wks?
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Roses--I don't know what to say. I'm sorry for you and your family, angry that the dikters didn't get off their asses soon enough and a whole other gamut of emotions. I hope that hospice will give you comfort. A lady on one of the other topics wrote that she didn't fear death, but that she wishes she would have a little more time. I've also read an article where the author wrote that no one with cancer ever loses their battle but they transcend it which I thought was a beautiful way to put it. So I wish you a peaceful and pain free transcendence.
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