TRIPLE POSITIVE GROUP

When I had my first herceptin (alone--after chemo ended) they tried a 30 minute drip. Didn't feel quite right and the next time it was run for an hour. Looking back, I should have had the 90 minute drip as I think Special K did. Had I done this, I don't think I would have been as tired. So my take-away would be to have them run at least an hour drip the first time. Don't worry if the nurse looks at you funny...just be sure you get the 1 hr.

husban1234 you are not the first husband to post here. You wife must tell her oncologist. They will either reduce her dose or choose a different chemo. One of my friends was allergic to Taxotere. She was given a different chemo. She's doing fine too.

tizzylish I was told to take zofran before you feel sick by my chemo nurses I take zofran for the first 3 days around the clock to keep me from feeling sick works good..I had reactions to taxotere just an itchy throat Ithas to be run slower and I have several drugs added to my regimen to help me through I wiill finish up August 6 can't wait to be done

thank you originally it was July 30 but due to my port becoming infected and me becoming septic a couple weeks ago they pushed it back it's been a real pain I now have a picc line and give myself infusions of antibiotics every 8 hrs for 4 weeks I feel like I have been through enough these last 3 months hopefully surgery goes smoothly!

husband do have her talk to her MO a sap. I wanted to quit first day and almost did, mostly cause hubby was pushing me to go walk or get up and stop laying there. The dr told hubby to back off, she is being poisoned to kill the cancer, her body will fight it, push fluids so she can hydrate and do what dr says...it got a bit better each time but for about 4-8 of those days she will just not have the energy to function, it does come back slowly, so do as they tell you, hydrate her, and let her just rest... I finished my chemo in May and already past the bad stuff. Tell her to hang in.

I just want to share my experience. I was initially diagnosed triple+ from the biopsy. I had a bilateral mastectomy. I then asked to have the oncotype test done to confirm what my chance of reoccurrence was. I know that they do not usually do the oncotype test if you are HER2+. That test came back that I was not HER2+. I had this check again with another lab to verify this information. It also can back HER2-. Please be aware of medical misdiagnosis. It happens! This has changed my entire treatment plan and I am now wondering if the surgery was excessive. Looking for a malpractice attorney now.

Am posting here because so many of you have followed my dealings with ex-husband from #$^%@%!# and his own version of bat-shit crazy. So, as aware, divorce is final but property settlement continues. And continues. And continues.

Today was One. Of. Those. Days. Rushed from a facility where I am contracting to do psych education to the university for a graduation ceremony. Still rushing opened my car door and my phone fell less than 12" to the ground. With a heavy duty shock-guard case. And shattered the face plate and the underneath of the phone. After the ceremony rush to A.T. & T to do something, anything. @*%^&^(@)@ is supposed to cover my cell because he wanted to keep me on some tax deal as "medical consultant". I agreed to that as long as I did not have to talk to him or see him. He can lie on his taxes all he wants (remember-he is a fake CPA). So into A.T.&T. Guess what. He took my name off the account. Thus, I cannot keep my long time cell number. The only way I could keep it is to contact him and have him call A.T.&T and give permission! Can you spell not in this lifetime or the next! What a crock. I did learn that unless I notify him I have opened a separate account he will continue to be billed and will have a payment due monthly. Hmmm. Lets vote shall we? While there the sales rep talked me into the promo-a baby iPad for a very reduced rate. I will park it next to my grown-up iPad and they can look like a single parent and a child. I was tired and hungry and frustrated. She probably could have sold me a snake by that time.

Ports. Being deported-love the term. I had my port removed after almost 20 months. It was getting sluggish and I never intended to need it again. Fast forward a year. Second port inserted due to the need for IV iron. I cannot have IVs in either arm-23 nodes removed in 1 pit and 8 or 18 removed in the other. Next option is my foot. As a nurse I knew I was not going to have IV iron weekly in my foot. I will keep my port forever. My oncologist, general surgeon, and chemo nurses have all said--do not remove. Had it flushed today. Have labs next week and the week after and one of my chemo nurses will use my port for lab draws.

The new folk with nausea. I took some magic tablet-which i have forgotten the name starting before chemo. High priced-like almost $500 for 4 tabs but my pharmacist found coupons for $50. I also used Zofran until I devleoped the rare and unusual Zofran "it is probably brain mets" headache. Then added compazine, some steroids. Always left with my port accessed so I could do fluids that night at home and at work the next couple days.

I am having insomnia. Thank you Femara.

Much love.

tonlee - good to see you, sorry about the surgery but glad it worked and you're feeling better

MMay,

TTfan on these boards who has almost the same tumor profile as I do, suggested having them do the herceptin over 90 minutes which is what I asked for and what they do. At first my MO was puzzled why I just wouldn't want to get out of there in 30 but I insisted on 90 and have had no ill effects. You might try 90 minutes if they agree to let you have the chair time.

I will definately ask my mo about the 90 minutes. I did ask about getting fluids after my TCH infusions and the nurse navigator told me they don't do scheduled fluid infusions. They want your body to do the work it needs to or something along that line. My mo is not to warm and fuzzy either. Last time I was in I was a crying mess and he was not liking that much. Basically snapped at me and said that he knew I was frustrated but these are the cards I was dealt and suggested something for mood. I wanted to ask for me or for him. I think I'm entitled to a bad day. Anyway thanks Suladog and TTfan I am going to ask about the longer herceptin time

Thanks debiann your kindness and support is so helpful!

Your welcome MMay. Wishing you few se's in your future rounds.

Good morning everyone. Hope y'all had a good weekend. Hubby and I rode the 4 wheeler to river yesterday after church. We had a good time. I bought a bicycle over the weekend and rode it for one mile and have discovered new muscles! Oh my how out of shape I am but it's fun! After reading the posts, I will be asking at my Hereceptin infusion Wednesday, that they keep my infusion time to at least 90 minutes. Last time it was for one hour. I noticed I had mild headaches for a day or two. Thanks to everyone sharing and advice given! I am learning so much and it's so helpful!! Have a great day

linda505 - sorry about the headaches, I tend to get them too but I was a headachy person prior to breast cancer. I have been on both Femara and Arimidex and not noticed a difference but hope that the switch works for you.