TRIPLE POSITIVE GROUP

NED YAY Elaine

Yay Elaine. By the way 70 certainly isn't that old. I was 72 last April and just limped through a senior Zumba class this morning. Getting old is not for wimps. Thank you God for your strength. Go seniors! Love Jean

I also agree that 70 yrs old is not that old.  Sorry if it came across wrong thru my post.  I was just trying to state some facts.  Anyways, brief update.  The oncologist agreed to repeat her blood work in a month to see if the trend of the numbers is still going down.  She is not going to get a catscan at this time.  I think it is a good compromise.  I really wish her oncologist didn't even do the blood markers. It causes way too much anxiety.  I did ask about why they wanted to start do scans when her marker is at 49, eventhough he had said they don't start looking for cancer until the number reaches 80.  The nurse stated that was the protocol a couple of years ago and unfortunately they have seen cancer recurrences at lower number ranges now.

Oh Well, not going to harp about it any longer.  Everyone have a nice long Labor day weekend!

Keep on dancing that dance with NED! Yippee ElaineThere!

yay Elaine great news and I would also get a dcan done if the dr suggests it to me I don't think there's over screening with this terrible disease

Lago-BIG congratulations! You have been one of my hero's since I joined.

Ashla,

I relate to your statement of breaking everything else. I have gone through the EBD and all the ESDs with the same and increased crappy SEs that get progressively worse. My belly looks like I am about 24 months pregnant with a medium size elephant. Joints and bones hurt. Bottom of feet throb. Hair thinning. The Big D. Alternating with the Big C. That may be IBS but I am now blaming the ESD.

Had labs again today to check my iron levels and more. Have been dropping again. Interviewed a GI doc but he is moving and he was rude. Would not answer my questions. Told me it was "a waste of his time to talk about a treatment I would not understand". Had he taken a minute to read my name on my lab coat... See my new MO in a month and my internal medicine doc about the same time.

I really thought I would feel so much better by now. Probably because I still do not have a pirate.

Susan

Except for the D & C , I have pretty much all the same S/E's & more. My cholesterol numbers have totally reversed! ????? If I wasn't so averse to more meds I would be on sleeping pills, anti depressants, pain killers, muscle relaxants etc

Don't think I'd be able to work anymore. I know you love your new job but it must be physically challenging with the SE's. And with the added stress of your domestic life....well ..you are one amazing lady to get through it able to laugh and even make others laugh

My hands & lower back bother me the most. I started art classes and yoga after the Hercetin year . They have both helped my physical & emotional recovery enormously. And now I'm struggling to do each of them because of the arthralgic side effects!

I made the decision to stop the med but my doctor is pushing me gently. I am so grateful that I have such a compassionate, caring MO! This is so important..I'm not a healthcare professional like you but he always takes the time to explain complex matters( like the way the various hormonal therapies work) to me . Never rushes me.

Would be wonderful if we could get together one day...and have some FUN! All you working girls would have to set the agenda because of your schedules. I can meet you guys pretty much whenever, wherever.

I'm in Florida( no cabana boys tho) during the winter & NY the rest. Have room for about 4( comfortably) in each place.

You are invited....

Elaine great news!!

Nope, my lump disappeared but I ended up doing all of my chemo. An ultrasound is fine, but PET scans and MRIs are more sensitive. Furthermore, a pathological complete response can only be verified by a pathological report AFTER surgery. Hope you have one!

Musosgirl I had surgery before chemo so no tumor shrinkage. I still did all 6 tx of TCH. Chemo is not just for the local tumor but also to zap any defectors that might have moved to other parts of the body.

Muso, I did all 6 cycles. Yes, the tumor shrank after the first round, and by three rounds could not be felt or detected on ultrasound, but I still did all 6 cycles. As lago says, it's good to have all of the treatment, in the hopes of killing every single last errant cell.

I haven't been posting for awhile on this thread but lurk regularly. Congrats to all the folks finishing treatment and having exciting cancerversaries! Thank you to Lago and SpecialK and all the others who stick around to encourage and inspire us! I'll finish Herceptin in November and look forward to that milestone and especially the port removal that comes with it! It's also hard to be hitting a year from Dx this month and still be in treatment and struggling with AI side effects. Makes it so hard to move on to "new normal". I don't want a new normal where I feel 20 years older than I am!

TTfan I've always hated "New Normal". IMO we all change every day regardless of cancer, cancer treatment or not. It will take at least 2-3 years to realize you do feel like you. Sure some changes but we all have changes. I do not feel nor look 20 years older. Most people still think I'm in my 40's.

Hi. Just wanted to congratulate Lago on 5 years NED. Lago, I am a 'fan' of yours as well. I am currently in the middle of AC & TH. I would like to thank, You, Toni Lee and Special K for your informative and positive posts. Please keep them coming. I am following from New Zealand and find this forum very useful.