INSOMNIACS place to talk in the wee hours

19329339359379381462

Comments

  • Holeinone
    Holeinone Posts: 1,418

    Zills, thanks for the tip. I have not heard of that before. Could of used it during the dark days of the red devil.

    All this xmas tree talk....wooo, the holidays are fun to think about, but the time it gets here, I am so done with it.

    Spookie, I have gotten several 3 footers, lights attached at Home Depot for $10.00. Cute, comes in a decorative pot. Even has some pine cones. We always get a fresh tree. Last year we skipped it. I had my little fake ones, the clean up from the fresh ones....oy! Takes 6 months to get all those needles cleaned up

  • m0mmyof3
    m0mmyof3 Posts: 10,061

    I'd love to have a real tree too, but with my pets and then having to water the sucker on a regular basis, it's too much fuss. Love the fake on I have the bottom branches fold out and then the top is just plopped on. I shape the tree after its all put together and before it gets decorated. Got 8' ceilings, so I can fit a 7' tree easily even with the star.


  • This is like what we've had the past 3 years. He won't do it anymore. I'll do a fake tree MY wayimage

  • glennie19
    glennie19 Posts: 4,832

    What's wrong with that tree? It looks nice.

  • jazzygirl
    jazzygirl Posts: 12,047

    I have not seen Patty on any threads either. I know the last update on her did not sound good. If there is anyone here who has heard anything anywhere? Thinking of all the Stage IV sisters here today.

    I would like to find a tree I can put up on my table and put up some of my fav ornaments. My mother had one years ago, held about 10 or so ornaments and like a wire thing that had spaces to hang things. I like this one!

    http://www.ornamenttrees.com/Metal-Christmas-Ornam...


  • (shyly) What is the etiquette about sending IRL cards to people? I haven't been on long enough to really know any of the....what? high grade patients? recurring ladies?

  • It's not so much the tree as it is getting the boxes from the attic, the fact that he can't spend Christmas with his family. Me, DD and her family don't count. Never have. I won't go north for a lot of reasons anymore, never tried to stop him. I wish he would. Gas is cheap, he has a good car, but it's easier to blame me for all of this.

    But I'm planning on DD to help me, then put the stuff *I* want under my bed so next year won't be like this.

    DD is planning to go up sometime during winter break. She will tell him in advance, we'll see if he goes. I will stay home with the dogs. That's what he did when I took my moms ashes up to bury.

    It's complicated, I hate it. I'm stuck.

  • I am sorry Ms. Spookie. That's what you meant by life dumping on you? Wish I lived close by. I would swing by and take you to lunch. Very stressful when we have conflicts in a relationship

  • Thanks Loverly, I meant Z. She is getting dumped on big time, let's send her a group hug

    ((((HUGS)))))

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Queenie, can you translate that, even upside down I couldn't figure it out.

    On Patty, Chit dummy me, I have her address stored in my PM's b/c I sent her the brownies. Thanks to Mamma showing me West Point , I just remembered. I will locate it and then start sending it to everyone by PM. Do you think I should get permission from her.

    5:26 I'll try her phone

  • glennie19
    glennie19 Posts: 4,832

    Sorry about the boxes, Spooks, you have a good plan in place, though.


    (((Z))))

  • Hiho, have fun on your trip. It will be ok. If I made it out in one piece on a small old Indonesian aircraft (that I was so afraid one of the propellers would fall off during our trip), you will too.

    Jazzy, that Christmas tree reminds me of Charlie Brown's. I like it. Simple!

    MamaRay, I kind of understand what you meant by getting emotional during radiation therapy. Had a Mammogram this morning on the "spared" breast. It hit me right after I stood in front of the cold looking machine....and it's not even radiation tx!!! Good thing the room was not bright. I don't think the technician saw the tears escaped my eyes.

    Ms. Sas, you are right on about driving when you have piriformis--it hurts. SO, I guess no Walmart trip for you Ms. Chevy until you are better.

    Z, I tried out the arms crossing, hands under the armpit while I was waiting for my Gyn to see me this afternoon. It was interesting. I found myself thinking about random things and then the next thing I knew I was imagining myself on a cruise ship!! Hah! I told myself I need to snap out of the position as soon as I hear or see the door knob moving. Didn't want my Doc to freak out seeing me in the straitjacket position with my head tilting down. Sure don't need another referral

  • Sas: would, say, Rosevalley or PeppermintPatty, or whomever is going through a crap time just now, take it amiss if a comparative noob sent them an IRL 'thinking of you' card? I expect it varies from person to person, but I can see a goodly number being jumpy about someone they perceive as being a stranger knew their street address.

    Or perhaps just a PM through BCO, if the person expresses a willingness to be so communicated with.

    (My instinct is "No to the mailed card, unless there's been a personal communication of some sort already through BCO." but I thought I'd ask.)

  • Hi everyone!

    Just jumping in to say hello and hugs :)

    I see some mention of patty....no news? I'm worried too....and I'd love to participate in a card send off.

    Hope everyone has a relaxing weekend and are free from pain and se's.

    I'm joining a woman's mentoring thing at our church and we have our first meet up Sunday. I don't know if anyone remembers me mentioning several months back a woman sitting in front of me at church. She turned around during service and smiled and I noticed she had really short grey/brown hair like me. She stopped me after service and said hello, as it turned out she had also recently gone thru tx for BC. She gave me her number and I was unsure about reaching out to her.

    Patty urged me to call her :) She was right....this lady's name is Lynn and she is part of the woman's mentoring and asked me to join. Anyway, I just wanted to share that and that I'm thinking of Patty and all of the rest here often.

    ((hugs))

  • Chevyboy
    Chevyboy Posts: 10,258

    Mom2.....WHAT????? I mean are you still going to school? Ah man, I could hardly make it through the first time, much less continuing some education AFTER! And make a report? Let ME do it for you.... I'll give you a great report, as how I see it.... We could even ask Phylloneveratalossforwords to help us out! She would get you flunked.... in no time... her vocabulary is somewhat lacking.... like mine is.

    Sass, I saw a video on piriformis.... But it is the sciatica now that is wreaking havoc on my whole back-side.... going down my leg, and it IS like a tooth-ache. Making my lower leg numb.... I have had sciatica before.... it's not the same as piriformis........ I had x-rays....... and being the numbness down my leg, they are pretty sure it is

    http://www.news-medical.net/health/What-is-Arthralgia.aspx

    When the Primary care Doc examined me, she is the one that said it is probably piriformis.... but at THAT time, my leg was not numb, and I could lift my leg.... The ER Doc said, after the x-rays that it is Arthralgia.... the sciatica is what it is now...... And the pain WAS in my butt.... Not as much now... It is in the front, in the groin, like it was in 1985....

    ANYway, I just took 2 Aleve.... I'll take the oxycodone before I go to bed. We walked around Walmart today, and Sprouts.... They said to walk... but not over-do it.

    I took a class years ago... the "Well-back" class.... And I have a whole note-book on those stretches to help sciatica.... I just can't do them yet.... I always brace myself when getting up.... Yes it's the same side as the broken leg.... I can't Do some of those normal exercises for sciatica...I'm lucky to lift my leg into the car now!

    No, I don't twist.... except on the pole....

    Yes, when I was in the hospital, getting physical therapy, you go UP with the good side, and down with the bad leg.... same thing.... up to heaven, and down to hell.... I do stairs the same way.... one at a time....

    So that's all I know.... It will get better.... I just have to THINK about stuff from now on, and not think I can be my own contractor...Ha!

    http://www.boltonphysiotherapy.co.uk/?page_id=127

    image

  • Should call her first Ms. Sas.

    Got it Ms. Spookie. Yes, Z has more than her fair share of troubles.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Hi, I left a message on patty's recorder. I can't remember if she has a house phone or just uses cell. She has called me in the past on her cell from the hospital. Anyways. The message is definitely on her phone. The last message I left was a generic phone answering voice message, so I must have misdialed. Her address was 16 pages back in my PM's. Kind of crazy, getting sidetracked.

    I also, looked for Marlanab, she's been missing since Aug 15 or 16. Sent a message to Mods to ask them to contact her,

    Then realized we haven't heard from EEyore either.

    BBL have to fetch DBF.


  • Did some digging and I think I found Marly's address. I feel like Penelope in Criminal Minds. Actually, I feel like a stalker I scare myself. Will try to send her a card and see what will happen. Hopefully, I won't scare her away.

    Ummm Mods, I didn't hack into your system. Please don't red flag or ban me. I need my sisters

  • jazzygirl
    jazzygirl Posts: 12,047

    Sassy- please let us know how Patty is and if we an help her? Cards, calls, texts, etc.

    I need take out.

  • Enerva
    Enerva Posts: 2,985

    hi everybody. I just wanted to say I am not mad at anybody lol I am just dealing with a lot of crap. At work and also personal. The other day I try to post here and then my post ended up in another tread.

    Anyway sass I ll love it if you give me your opinion on these blood results.

    image

    I had to do a repeat cuz my potassium was 6.00 last week and now look at how low my red count is :(

  • Enerva
    Enerva Posts: 2,985

    image

    image

    image

    image

  • Take out and dessert!

  • blondiex46
    blondiex46 Posts: 2,726

    I will give u what i got off the to of my head. I spoke with my cm and she told me that Harrisbugh have not looked at anything yet. April i applied.

    Ok sassie




  • blondiex46
    blondiex46 Posts: 2,726

    Thanks sassie

  • Hey Ms. Blondie, I am sure Ms. Sas will roar like a lioness ( or is it lion)?

    image

    We had takeout and dessert tonight too.

    image

    Shrimp Ultimo Burrito and Mochi waffle with ice cream.

    I think I gain 10 lbs.

  • I did just looking! Yum!

  • Walking off my dinner as I am typing (strolling along the river bank not very far from where we live).The sky is beautiful. I can hear chorus of insects chirping and frogs croaking.

    image

    image

  • Enerva
    Enerva Posts: 2,985

    wow beautiful night pictures

    Thanks loverof life :)

  • sas-schatzi
    sas-schatzi Posts: 15,889

    LOL Loverly, I know you have tinnitus. You hear the chorus all the time. Me too. What's nice about being in an area where the real chorus is going on, it's nice to think we're normal. The few moments in time that the chorus has stopped over time for me, I was in awe-----------silence

    Enerva, Hi sweetie, since we talked by PM , It won't seem strange that I go on and on about how wonderful it is to see you here. :) Labs: slight abnormality on the red blood cell(RBC). The HGB -hemoglobin is normal. Hgb is attached to the RBC. Basically, the small decrease in the red blood cell count would be considered insignificant. None of the other parameters are outside normal. Red blood cells live for three months. If you are concerned you could have a recheck in 3 1/4 months. The HBA1c is 5.7 in the USA that is considered borderline at risk for diabetes, but according to your lab report 6.0 is normal. Did a relook it says the same as ours. Checked your bio, I'm guessing you are on tamox? Any hows you should talk with your doc about a plan to monitor your HBA1c on an agreed plan. All the drugs(many) mess with glucose metabolism and glucose resistance. Another gift of BC. I invite you to a thread I've been working on re: weight. In the learning process I discovered the Microbiome. It's very interesting. Lot's of current research. Allot of stuff related to glucose metabolism and glucose resistance. I'll link to it.

    Your comment that you had to do a repeat lab b/c your Potassium(K+) was 6.0 which now is 5.1. The kidney is very efficient at maintaining sodium /potassium levels. A 6.0 K is unusual. Have a chat with your doc about reasons why this may have occurred. A plan to watch this for awhile is reasonable. Perhaps every 3 months for a year would be reasonable. Also, ask if you should be evaluated by a Nephrologist. The are the kidney guru's. Me I'd go for the Guru. Canada is weird on sending patients to specialist. My approach is let the specialist do the evaluation and establish the plan that the PCP monitors. A 6.0 potassium is unusal. Okay---being bitchy---fight for the nephrologist referral. Use the HBA1c in risk range and elevated potassium as cause.

    What's your BP? Suggest getting a BP monitor and keep a record. Monitor at rest at awakening after voiding if bladder full. Consumer Report has done evaluations for many years. Omron is the best, but Walmart has their store brand Reli-On that has Omron technology at half the price. I have one of each. I wouldn't hesitate at all in buying the Walmart brand Reli-On.

    The reason I'm talking about blood pressure is the elevated potassium, that seriously has to be monitored. Blood pressure is effected by the kidney. It's a whole loop mechanism>>blood chemistry>>brain>>. etc.

    Okay about now you are getting anxious. Deal with the present. Work out the plan. You are in monitoring phase and getting the right doc evaluations.

    Hugs sweetie

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Blondie, totally sucks. Fill in the blanks on the Pm thingy and I'll start on it on Monday when the people are at work.

    On the DBF scene, he may have crossed a line.................still thinking about it............what a schmuck.

    On the DB Charlie scene, I'm pissed. His hemoglobin is moving up 9.8. That's good. His Platelets are now about 595,000( 150,000 t 450,000).

    Platelet count 150-450 billion/L
    (150,000 to 450,000/mcL**)

    That's seriously bad---clot time>>stroke etc. He had several drug interactions. I work out a plan on Genelex that reduces them to basically zero. Instructed him to call his doc. about Platelets and drugs with the reasons Today I call, he hadn't called. Yelled at me that if the doc thought something was wrong with his bloodwork taken by the HH nurse, they would have called him. Which also, told me he didn't think the drug interactions were a problem. They mostly were kidney related. He just lost half of one kidney. May end up a total loss. He expresses to everyone he wants to protect the kidney's since our dad was a dialysis patient. Go figure.