INSOMNIACS place to talk in the wee hours
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dailymed.nlm.gov
Neurospsychiatric: Confusion (1-11%), headache (4-8%), insomnia (2-7%); and rarely, euphoria, excitement, depression, hallucinations, paresthesia, muscle pain, tinnitus, slurred speech, coordination disorder, tremor, rigidity, dystonia, ataxia, blurred vision, nystagmus, strabismus, miosis, mydriasis, diplopia, dysarthria, epileptic seizure.
Went back and looked-----improved on the muscle spasms, tinnitus, muscle pain, nystagmus
Insomnia Duh........euphoria, yeah............speeding......leg(s) jumping like I'm beating a cockroach.
What's odd is it says it's metabolized by deamination (sic).
Well, it's the last of the drug. But it would have been nice to get rid of the spasms. Chit. I have some weird cytochrome450 abnormalities. Maybe more than what has been dx'd. Oh well............
My genelex drug checker based on known genetics 3A4 intermediate (5% of population) and 3A5 Rapid metabolizer(7% of the population) Not known is percent of the population that have both abnormalities.. LOL I'm rare. But this drug isn't metabolized by either route supposedly.
But my left leg dancing under the table tells me sumpin ain't right.
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WOw sass. U need a vacation or a job or what, show down.
Thanks rosie didn't know last chemo was july 20-2014,!! Still here feeling ok. I agree u are one amazing woman x, ur kids r so lucky.
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Sassy- Yep I can tell you aren't right. That sucks. They didn't sneak in steroids did they? Hopefully this soon will pass. No Ibrance.
I am so bummed! I had this little red case I put decorative roses and thread, braid and needles and I must have had it in my lap, got out of the car and dropped it. It is no where to be found. Ugh... chit. Off tomorrow to get needles and all ... at least most of the dress is done. I will try and take a picture.
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Rosie,,,,,,,,,,,oh chit hand made stuff... total bummer...chit.. I think the drug is starting to wear off the legs aren't dancing as much. Almost midnight. No steroids in the drug. But povidine is, and I've had allergic skin reactions to betadine. Total bummer b/c baclofen is the total drug of choice. When I saw povidine in the monograph it was????? why would povidine be put in a drug. They're is something I don't know. The left leg has stopped hopping. The spasms are starting too return. Always something.
Blondie Hugs it was a drug ...a drug and it was a learning experience.......chit drugs suck..............
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Blondie, There was an article that said that people with terminal illness lived longer when on oxygen...............it was early this year . It was months before we met.
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What pissed me off, when I read the article which was in standard news, was if that was true--- Why not offer oxygen to those that want it to prolong life. By the time something enters standard news, it's old in medical news by an undetermined amount of time.
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wow sas..hope you sleep a very restful peaceful sleep when it finally happens
Queenie, can't wait to see a picture. Sorry it's everywhere...but happy you have passed expectations. Hope you are feeling best you can, I know that's so important to many of us.
I am 2 years passed what they thought I would do. Only God knows. And I am ok with that
It's almost 3 here. I don't want to do a sas.......please let me sleep
. I don't work tomorrow so it really doesn't matter when I fall asleep I guess. Of course it might matter to my dog if I sleep in to late. To bad they can't let themselves out. Lol0 -
Good morning ladies- Stage IV sisters are the bravest women I know. Rosie is amazing, Blondie too. You all inspire me, entertain me too.
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You guys, we need an intervention here with SASS! I mean she is saying all these words, and I don't think they belong in that sequence.... either that or we all have to take and do all the stuff SHE is doing, so we can understand all this.
I'm thinkin' she is hyperactive, and drinking tons of Red Bulls, and drinking an over-load of Starbucks, and running around the block repeatedly! And she won't stop till the neighbors call the cops on this poor woman! Sass, you need supervision.... I'm going to come out there and throw a blanket over you, and hug you until you slow down a tad!
I'm sure that all you said makes sense, but Lord only knows, I am just boggled! Spook! YOU are closer, YOU go see what you can do.... Take her some milk-toast. That's what my Mom used to give us when we were feeling puny.....
She will probably CRASH.... and we won't hear from her for WEEKS! I'm crossing my fingers on this one.... Love you Sass
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Too late Chevy. I saw a UFO go by last night, looked like SAS.
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Hahaa! A blond retired nurse circling the moon in search of internet and better med explanations for all! I have an image to get my mind around. Spookie that's hilarious.. it is a problem being that wired and unable to come down. Hope Sassy gets it figured out and gets some zzzz's.
Well I had Xrays yesterday and got the results this morning...before 9am?? I am in a dream, since when does anything get done that fast? Yay. Well the shoulder pain is bone mets (humerus) and I will see a radiation oncologist and hopefully get it zapped! Have some relief! I was worried it would be bursitis or inflammation and I can't take steroids because of the Pleurx catheter that drains the ascites. (Increase risk of peritonitis, infection.) Also the tumor marker is holding steady 627 for 3 months.. so that's why I am still here. Femara is just doing a little and maybe the herceptin will hold it..for a while. Amazing. Increasing the prilosec too, cause the ascites build up increased GERD and 20mg doesn't cut the heartburn, 40mg might. So it pays to tell somebody what is bugging you.
Off to the fabric store to replace my sewing needles and thimble and lace... ugh. I will finsh this dress today because DD1 has an ARC Halloween dance Saturday! Be well! Susan take care of yourself, Queenie too! Hugs to any of you that need one- (((((Hugs)))))
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Rose: (makes sympathetic noise halfway between sob and laughter) What a rabbit hole we've all fallen down, that someone can be glad (for certain values of glad!) that it's bone mets rather than bursitis. Yes, I'm doing better emotionally and physically--thank you for asking. Hugs all 'round on a daily basis might not be such a bad idea.
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Oh Rosie.... I'm just going to pretend I didn't read your last post.... and we will go on as if nothing has changed.... just that you have to do something ELSE to get you back on your feet! Just go on sewing.... that makes you happy...
And Queenly! Yes, we all need to just circle the wagons, go camping, sit by the camp-fire, and toast marshmallows.... And sing! Just big hugs for everyone....xoxoxo
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group hugs for Susan, rose, Patty (where are youuuuuu), queen i.e., and any body else that feels the need.
Or if your in a mood, maybe this kind.?!
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Chevy- I have seen that video before. Also saw someone here play one recently too.
I hope to be going to Cuba for a week next spring. I expect there will be steel drums everywhere!
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Queenie/Chevy remember I have had wide spread bone mets since 2012 - probably 2010 had anyone bothered to look. I have never gotten the bone mets to go to sleep entirely and they have raised their heads several times. I am not upset or surprised. There are many folks on the bone mets thread who have had them for years, decades even. Just depends what the little cancer bas*ards do! Oh and how much you are willing to tolerate the meds.. there is that. So those of you on the non-mets side (stay there - that's an order) don't fret and scare yourself half to pieces if you get bone mets. Not the end of the world.
Just found out an older couple we have known and kept in close contact with for 15 years, the woman has had a serious anneurysm. I just love this woman and admire her life style, principles, faith, social work- in short she and her husband are the best of the best. The world is truly a brighter better place because they have been in it. I am sad that this has happened. I am hoping for a recovery and that she gets reunited with her DH. She always cheers me on telling me how stong and up beat I am... even when I am wilty and anything but.. They live a simple life on a small farm, bring us organic vegies and fruit, email as to our welfare and just to say "Hi", have holiday get togethers for everyone they know. They are my role models of how to live in the present, be loving and be spiritually connected to everything. Sigh, life is hard. Bad things happen to good people and I suppose that is the existential question we all face. Why is that? Just like that poster about "what ever doesn't kill you makes you stronger.... I should be able to bench press a Buick!" I want to make a poster to cheer her on as she recovers in the hospital. Soon as I finish the dress.
Group Hugs are a good idea.
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Lol I hope sass got some rest .
I don't know what can we do to help sass slow down ha ha ha
Mission impossible
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Rose: I hope this comes out sounding right (not offensive, not that ghastly saccharine shmaltzy chit) but a) I will do my best to not cross over into mets, or why I was at least reasonably happy with my decision to be 'aggressive' with straight DCIS....but I promise to live life to the fullest I can, now and as long as I can and b) (shyly) reading of the ladies (and more than a few gentlemen) who are carrying on with life after they developed mets have served as a bit of hope for me that I can do same, should mets happen to me.
Hoping Sass is snoozing soundly!
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just sitting here watching/listening to Mets game with dh......is that ironic or is it just me?
Anyway, sass needs to simmer down!! I agree with Chevy, too much red Bull and coffee. Sheesh!
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Well, I think she has crashed.
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Rose, I can't wait to see the dress. I have asked the same existential question, but I am often reminded that we live in a fallen world. Even "good" people are not immune to pain and suffering. I am sorry about your friend and hope that she recovers completely.
Ms. Sas, I hope by the time you read this, it will be morning time. I read an interesting research report regarding baclofen. Will post it tomorrow morning when I find it. Stupid me forgot to save it. It is late. I better go to sleep or I will become an insomniac.
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Smarty! How did I miss THAT one? Hah! And you guys, don't go pretending that you don't know what I am talking about........... I could be right in the middle of that "scrum"....Hah! Is that what it is, when that team of guys all try and get the ball at once? I watched them practice once...
I just want you all to know, that I feel honored to be a part of your lives! One time I posted on a Stage lV thread.... just offering some kind of support to one of the gals I knew.... And one of the other gals, who thought she owned the thread, sent me a PM telling me that since I was not stage lV I should not post there.... That it was for Stage lV ONLY......
I'll never forget that.... It's like if someone becomes Stage lV they automatically have to go to another thread.... exclusive to them! So MAN did I feel bad... I'm just honored to be a part of this community, no matter what stage we are... we don't have to be separate. So I'm glad you gals with a different stage are with us here.... We can all fight this....
It's good to have "different" threads, but no-one should be excluded.... that is of course unless you are REALLY weird or something.......... I don't even have Insomnia... Yet here I am! And I ain't moving to another thread!
I could start one for Women who have had BC, Broken Hip, Appendicitis, God only knows HOW many problems with her skin, Back surgery, hearing loss, and warts! That should about cover everything.
And Rosie, I'm sorry about your friends.... Man, I was just holding my breath about Theresa, our older friend... She got a blood transfusion the other day, and NOW she is doing a lot better! I'm so happy! I asked her if she had been leaking blood all over the place, and she didn't THINK so, but they told her she had Anemia.... So now she gets iron...etc, plus the blood. I'm going to take over an iron-skillet for her to nibble on.
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Why do bad things happen to good people? I read the Harold Kushner book many years ago about "When Bad Things Happen to Good People" trying to make sense of my brother's illness and death. Well, I cannot say I ever did, but what I have figured out is that eventually, everyone will have a big problem of some sort or another. Maybe even more than one big problem. Even the rotten people will too (but I call that one karma).
That being said, I do feel some families have way more tough times than others. That has certainly been true of my family. But I also learned along the way there is so much we just don't have control over in this life. You play the cards you have been dealt as best you can. Doesn't mean we are always happy either, it means we do the best with the circumstance of our life. That we do have control over.
Living well in the time we do have on this earth is the best thing any of us can do!
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CHEVY.......your "friend", Vinnie the nipple man, was just on the Today Show with Joan Lunden.
Morning all....
HOOTIE hoo to you know who! You are missed.
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where is everybody this morning. Been really quiet
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It's quiet because Ms. Sas is still sleeping!!
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