TRIPLE POSITIVE GROUP
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I make the paste myself.
Recipe:
Organic Tumeric Powder
Water
Unrefined, Organic, Cold Pressed Coconut Oil
Black Pepper Fresh Ground
Take 1/2 Cup Tumeric and 1 cup of water in a pan - place on low heat and simmer only.
Simmer for 7-10 minutes stirring in more water if mixture seems dry
Remove from heat. Stir in the coconut oil (or olive oil if you don't like the coconut (but organic, cold pressed) and FRESHLY ground black pepper (1.5 teaspoons)
Mix well and allow to cool. Store in a glass container. Keep refrigerated for 2-3 weeks
Can be frozen
I take 1/4 tsp twice a day but will increase in another week.
For more information, go to Facebook and request to join the Tumeric User Group.
I can't believe how wonderful I feel and I've only been on it for a week. Lots of energy but the no breast pain is wonderful.
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BTW, I suggest if you are interested go to FaceBook and search for The Tumeric Users Group and request to join. There is much information/scientific too. Tumeric is not to be used with many chemo's so if on chemo.
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Thanks ArleneA! I'm on chemo, but will start once off of chemo and healing... Most people I know started after they were done treatment... Thanks again!
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Funny - I just read about Golden Turmeric Milk, you mix coconut milk with turmeric and some other spices and drink it before bed time, helps sleep and pain. I just tried it last night, not sure it will work that fast, but I'm going to keep up with it, and definitely looking into the turmeric paste....thank ArleneA
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The paste has also alleviated all my joint and muscle pain from the Arimidex.. So easy to make and while the taste isn't the best, it's not so bad I can't just take my 1/4 tsp off the spoon. Glad some of you have heard of it. I'm so excited.
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good luck, keep us posted jersey22.
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Counting down to last chemo tomorrow morning!!!!!!! Actually felt really good yesterday and was able to go have dinner with dear friends and enjoy it... That hasn't happened since early June, before this journey started. It felt good to feel human and to be amongst people. A bit tired today, but that's ok... LAST CHEMO! LAST CHEMO!
Warrior on, women! Warrior on! You all rock!
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jersey - yay
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Jerseygirl22,
Glad to hear that you're reaching the end of your "chemo journey"! Hope the SEs from your last infusion are bearable and that you recover quickly.
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Jersey, yeah to the last chemo! The taste buds and energy DO come back. 8 weeks PFC feeling better every day. Here's to an uneventful spa day.
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Last Chemo is so wonderful. Congratulations for making it through!
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Hi. I was just wondering after AC/ taxol chemos are done and the one year of Herceptin is still ongoing, do we usually take tamoxifen during the time? I read somewhere tamoxifen increases her2 cells? Is this true?
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I had my last chemo on 12/3/14, then had my operation (lumpectomy) on 1/11/15. In February, I resumed Herceptin and began hormonal therapy (Aromasin). I have never heard that about tamoxifen; maybe, someone else can chime in.
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Im on an AI and they started it about 6 weeks PFC, during rads and while I was still on herceptin
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laura - this is some older info, but worth reading and speaking to your MO about regarding ER+/Her2+ and the effect of Tamoxifen. I think there is some lack of clarity as to whether it is Her2+ overexpression making Tamoxifen less effective, or Tamoxifen stimulation of Her2. The question becomes what is driving a recurrence - the Her2+ or the ER+, or both, because of Tamoxifen stimulation, Tamoxifen resistance, poor metabolizing of Tamoxifen from the outset, or none of those things.
http://www.cancernetwork.com/articles/preventive-effects-tamoxifen-vary-her2-level
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Extremely bummed.... last chemo delayed until Tuesday Nov. 10th!!!! The peripheral neuropathy that I am having in my fingers and toes is not easing enough, so they want to back off for a week to see if it eases up more, and then do last chemo on Tuesday. They want to take every precaution that the PN doesn't become permanent. (insert sigh) I guess it was more upsetting to get ready for the end of this phase and ready to ring that bell and have this part done. Especially since I met with the Radiation Onc, and set my plastic surgery consult appt. So I was really seeing the light at the end of the tunnel when I rolled up to the MO's office today.
It's all good and I'll warrior on.... just really want to go bat the crud out of something right now... Keep the good vibes coming for next week women! So glad you all are out here a support!
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My MO doesn't seem to think there's room to play around with NOT doing endocrine therapy. . . But you'd better believe I'll ask her about the ER+/HER2 crosstalk when I see her on Wednesday!
JerseyGirl, hang in there. There's still light at the end of the tunnel. And think of it this way: you have a week of feeling pretty good ahead of you, right?
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I asked my onc about the cross talk and she said it can be possible. I am on Lupron but on tamoxifen instead of AI. MO was worried about bone density and said clot risk on tamoxifen was same as the pill, which I was on for decades...
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jersey girl, take a breath and enjoy the break! I had a similar thing happen (bad echo result) and had to wait I hated pushing off the end, but next Wednesday will be the last Herceptin - so I did (or soon will) get there anyway!
Special K does the ER/Her2 crosstalk thing potentially decrease AI effect too? I didn't see anything about that in a brief literature search.
Another turmeric fan here, I take it in 1000mg capsules twice a day. I had a marked decrease in AI related joint pain within a week.
Now I'm working on the nasty hot flashes with acupuncture - they do seem less intense and a little less frequent but too soon to tell for sure.
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ttfan - not that I am aware of, but I have not been looking exhaustively. I know that my MO was specific about wanting me on Femara - my assumption was a performance edge statistically and I never really quizzed him about it, but he did let me switch to Arimidex after six months due to trigger finger issues. I stayed on it for a year, but then developed more triggers so I switched back to Femara, but a different brand, and no further problems. The potential interference with Tamoxifen may have been why my MO was less than enthusiastic about my suggestion to switch to Tamoxifen after my five years are up with AI drugs. I am willing to stay on something and I am not sure I want to fly without a net! I have my regular appointment with him next month and I will bring the crosstalk question up in regards to both types of hormonal therapy and see what he says.
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Ah, Jersey girl so sorry they postponed your last tx. That's really a letdown, even if its for a good reason.
I had some disappointment too yesterday. I had a reconstruction revision surgery and was so looking forward to nipples but the PS decided they have to wait till what he did settles do they are even. He'll do them in a couple months in his office, sigh. The revision however looks really good.
I have a new issue that I think is chemo related and wondering if anyone else has experienced this, an ingrown nose hair! I'm guessing that when they.grew back one came in sideways.
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Sorry about your nipples but good news about your revision surgery, debiann! I know you weren't happy with how your reconstruction looked.
JerseyGirl22, sorry about the delay. Here's hoping your neuropathy dissipates and you can be done soon!
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Thanks for the encouragement, my warrior women! So many people have said, "Aww, it's just a week, what's the big deal?" It's hard to explain to someone who doesn't get it... I'm thankful for you women out here who understand what it means to be so close to the end of this part of the journey, and to have it delayed.
Warrior on! Breathe in. Breathe out. Move forward, always! I'll have a definitive on next week by Friday when they assess the neuropathy. Meet with the PS on Friday, so praying for some positive news with regard to reconstruction...
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Jersey,
Congrats on getting done with chemo!!
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I asked my oncologist today about ER+/HER2 crosstalk. She said that many of those studies (which indicated that Tamoxifen might amplify HER2) were done before Herceptin was protocol for HER2+, and that Herceptin has all but eliminated that concern. For what it's worth.
She wants me to have genetic testing far beyond BRCA, and I have really mixed emotions about it. Do I want to know if I have some weird mutation that means I'll get more cancer? Not really. But she put it to me like this: if we know, then we know. Then, if something comes along (immunotherapy, gene therapy, etc.), I'll be a candidate.
Any thoughts about this?
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go for it, age would indicate much, your will to live, and possible new discoveries. My 33 year old daughter went for the testing because of our family history, she was not fearful at all. Now the other daughter doesn't want to know, but is willing to go for hysterectomy because of bleeding, here age is another factor. It's rotten we have this type of breast cancer but the more they know, the more I hope they can improve cause no one is getting out alive.
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That is a good point--if you know and can qualify for something down the road... At our age that is something definitely worth considering.0
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Hello
I want to ask something. My mother has triple positive tumour, she is 63 years old. And we just started neoadjuvant chemotherapy. She took 1 cycle epirubicin docetaxel cyclophosphamide and in the second cycle she will take herceptin docetaxel cyclophosphamide. Our onc did not order Echocardiogram or MUGA.
Is cardiac examination mandatory during HERCEPTIN treatment, are we doing something missing
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Did your mom recently have a Muga or Echo so they already have her baseline data? Definitely ask about having this done. Some have had to delay or even stop herceptin because of its effect on their heart. It needs to be monitored. I had a baseline MUGA, 2 during treatment and one when treatment was finished. The center that did my MUGAs said that most of their patients are on herceptin.
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