TRIPLE POSITIVE GROUP
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I have been missing for awhile. Life had been crazy and I had to put one of my dogs down. Good news yesterday was my last chemo!!!!!!!!!!!!!' Will start radiation in about three weeks. Hugs to all!!!
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greta - yay for finishing chemo, but so sorry about your doggy.
vildanbt - it is really important that your mom have either a MUGA scan or echocardiogram because in addition to the Herceptin she is receiving Adriamycin/Epirubucin, which can cause a more permanent type of heart damage. She does need to have a baseline of her ejection fraction, which is pumping action of the heart, asap.
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thanks for the answers. Doctor stopped epirubisin after starting herceptin. She took only one epirubicin. I asked him but after the first cycle for ECHO. He said not necessary. So I searched form the web and looked pro BNP myself. It was normal. But I worried about why he did not tell me.
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Greta, So sorry for the loss of your furbaby. Look forward to energy and taste returning post chemo. Taking a deep breath for you and doing a happy dance.
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Congratulations on last Chemo Gretagirl! Hopefully, radiation will seem easy compared to chemo. That's how is was for me.
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I celebrated being five years out a couple of weeks ago, and then found a lump in my remaining breast.
I'd had an MRI in March this year that was totally clear. I've had an u/s and core biopsy and this thing is big and ugly. Already at 2.5cm with it's own blood supply. Hopefully will have results of the receptors next week. We are testing for HER2 as well.
I'm seeing my bs on Tuesday. I'm currently on Femara, and now wondering if I should be still taking it. It obviously hasn't prevented a new primary.
Feeling very overwhelmed at the moment.
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Trisha-Anne! I'm so sorry. Five years and you think you're out of the woods, but you're not. That's what sucks about this disease; it's sneaky and underhanded. I don't know what to say about the Femara; it may have sort-of worked if your new primary is triple negative. Best wishes for successful treatment; hope you start feeling less swamped soon.
Congrats, Gretagirl!
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trisha - so sorry - sending you strength to face the coming news and a hug across the miles!
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My MO had me get an echo before I started Herceptin, and another after about 6 months on it. I know others who have also had one after, but my MO felt that since there was no difference between my first two that one after was not needed. I was 54-55 at the time.
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Awww ..Trisha -Anne..... Cannot express how sad I am to hear that you are facing this once again.
Somehow, someway we all seem to summon strength we never knew we possessed to get through this nightmare.
I wish you the very best in your struggle. We are here to help you.
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Trisha-Anne, sending you the very strongest good vibes.
I agree with you, ashla. Somehow, we find the strength.
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Trisha Anne, I'm sorry. That's really hard. Thinking of u. Wrapping u in a hug.
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Wish I had found this site a few weeks ago - but happy I did find it. I have my follow up appointment from surgery next Tuesday and also have an appointment to learn what the chemo plan will be. Getting anxious about working full time and supporting my two kids while going thru chemo.
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Trish Anne... Sorry to hear.
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Hi CyndiNic!
I worked through chemo, but I did meet with my department head to cut back a bit on some of my responsibilities so I wouldn't be too stressed. Let us know what your chemo plan is. Best wishes!
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So sorry Trisha-Anne. Especially right after celebrating your 5 years.
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(((Hugs ))) To Trisha so sorry. we are all here for you.
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trisha Ann that sucks. Sorry and hugs.
Gretagirl, congrats on finishing chemo.sorry about the loss of your furbaby.
Vldanbt, i had a MUGA before Herceptin. Then one every 3 months. I started sat an EF of 60. My next one i was 56. But 3 months later after my 1st Herceptin only infusion, it dropped to 42 and they pulled me off Herceptin. So absolutely. They need to do a MUGA or echo!
Much love
*edited to correct 21st Herceptin only to 1st Herceptin only
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Before my wife started her chemo treatments that included Herceptin like others she had a Muga scan to get a baseline on how her heart was performing. With her chemo being completed (6 rounds) and 1 Herceptin since her Dr. did schedule another heart check later this month. So since her first muga scan and her upcoming echo-cardiogram she will have had 8 Herceptin treatments and two scans of her heart. Her Herceptin treatments will take her into mid summer 2016 so I believe he wants to do two more between the one later this month and mid summer 2016.
This puts our mind at ease on several things... with her taking Herceptin and it being tough on her heart, then her being on estrogen blocker medication-- anything that will help us keep an eye on issues that may arise from all of the various treatments to me is a bonus
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Hi all. I've been reading, but haven't posted here before. I finished chemo on 10/23/15 and then I'm on Herceptin only starting next week until July, then I'm not sure. The last TCHP treatment hit me really hard with fatigue, nail changes and neuropathy and not much appetite. My chemo treatment was neoadjuvant and I meet again with the BS 11/16. Re: heart scans. My MO also ordered a baseline echo and then another after my 4th tx. She says I'll have one now every 3 months while on Herceptin. Thanks all for the good information I've found here!
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I also had heart scans done for ejection fraction, before my first herceptin / perjeta then after every third treatment which was about every 3 months. They infusions began with taxol and continued every 3 weeks for a year. My fraction dropped 5 points each scan and went from a baseline of 68 to 53. They would have stopped infusions if it dropped below 50. However with some exercise and prayer it went back up to 55 so I was able to finish treatment. God is good. Love, Jean
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Echo every 3 months is what my MO orders. Mine is coming up 11-19. Slight variations may occur due to technique by different techs and reading by cardiologist.
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Absolutely need to have your heart checked. That is protocol
Trisha Ann that sucks. I am so sorry.
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For those who have done their chemo treatments and now are going through their year of Herceptin.. is perjeta with Herceptin option only for when you are going through chemo? Or does anyone receive perjeta and Herceptin after chemo? Wife is only receiving Herceptin at this time.
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I asked my oncologist to continue on perjeta and since I had a complete response she said not to if I didn't have a complete response she would have presribed it. If she offered it I would continue as I believe more is better but she said I would be overdoing it
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no herceptin for me either, depends on if there are other factors, ask the doctor. But herceptin is protocol.
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Well my path results have come in, and this new cancer is triple negative. er and pr 0% and Ki67 at 80%.
So I guess I'm just very special and will be part of both the triple positive and triple negative group.
I'll have surgery Thursday next week, and have a port put in at the same time.
Feeling just a bit shell shocked at the moment.
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I met a lady during treatment that ER/PR positive in one breast and triple negative in the other - no HER2 though. Good luck, do you know what your treatments will be this time? Are they considering it a new primary? Is it in the same breast or the opposite one?
So sorry that you have to go through this again. God Bless you - Trisha-Anne
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Trisha-Anne, I'm so sorry you have to do any of this again. Shell-shocked can't even begin to describe how you must feel. Sending big hugs your way.
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Anyone here use Premarin cream? Yes I know it is estrogen....my OB just prescribed it and I'm weighing risk right now...
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