INSOMNIACS place to talk in the wee hours

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  • Hi ladies! Thank you for all the wonderful information, input, and suggestions! What an amazing group you all are.

    Sas - Thank you so much for the link! Lots to study, but greatly appreciated!!! It's important to always be fully prepared before anything and knowledge is power! xo

    Chevyboy - Gotta love that MRI...not!!!

    Hugs to all of you! Hope you all have a great night!!! xo


  • jazzygirl
    jazzygirl Posts: 12,047

    image

  • luvmygoats
    luvmygoats Posts: 2,484

    So sad Patty. I know we never really know what goes on in other peoples' lives. Big hugs for your son and for you too. And certainly for his best friend.

    Deb - so what's the plan now?

    Mags - pictures are an absolute necessity. And dancing with your friend. He sounds marvelous. Did your trees survive? My rosemary bush is springing back to it's normal kinda bent shape. Not so sure about the cover to the dog run the goats use in summer. I have locked them out of it for 2 days fearing it might rip and dump ice on an unsuspecting goat.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Gawd, you guys have been busy. I've been working on a new thread on pain. Should have done it years ago.

    https://community.breastcancer.org/forum/6/topics/839123?page=1#idx_8

    Mags, thanks. Tomorrow I'll work on the thing I want to do for you. But had to write all the other stuff to put it in context. You can start using the pain documentation chart. Which actually, helps me too.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Patty, If the doc says surgery for the hip. Ask him How many he has done with the same background i.e bone mets and how did they turn out. Choice of type of appliance will be determined by what is to be done. When do you see the ortho doc?

    Deb glad it seems useful post questions re: that info on the Toradol thread and I will answer.

    Need to go play

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Chit, Donnie feel asleep.................................

  • Loveroflife
    Loveroflife Posts: 4,243

    Hahahaha....that's is something DH would say about me. Did you snooze? I am thinking ...,Mr. Furley from Three's Company. Hehehehe

    Edit: wrong guy...it's Mr Roper!!!

  • Patty, so sad to hear about your son's friend. I lost my Dad when I was about that age, it is so, so, hard.

    Chevy, OhMyGarfield about the vinegar. A little goes a long way, girl! Yikes! The purple stuff was gentian violet, maybe? Bet Sas would know. I like how the doctor was unperturbed about it, makes you wonder if you were not the first person to do that.

  • Loveroflife
    Loveroflife Posts: 4,243

    MammaRay!!! How are you and family? Done with radiation??

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Hey mammaR How you doing?

    Hi Loverly.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    fading fast here, Catch up tomorrow.

  • Loveroflife
    Loveroflife Posts: 4,243

    Good idea!! It's late for you

  • Loveroflife
    Loveroflife Posts: 4,243

    Oh dear, bad news? Progression?

  • Loveroflife
    Loveroflife Posts: 4,243

    What plan does your team have for you? How long since you you were told of the progression

  • Loveroflife
    Loveroflife Posts: 4,243

    Kathi, are you up by chance? Ms. Wren? I think Ms. Sas hit the sak.

  • Loveroflife
    Loveroflife Posts: 4,243

    Are you aware of the brain mets thread?

    https://community.breastcancer.org/forum/8/topics/...

    I am sure you will most likely find support there also. Can compare notes.

    Are you having symptoms from brain mets?

  • Loveroflife
    Loveroflife Posts: 4,243

    Need to charge my phone and brush my teeth, but I am not signing off. Not sure how much wisdom I can offer, but can listen. Be back in a bit

  • Loveroflife
    Loveroflife Posts: 4,243

    Yes, I know what you mean. This is my home thread too. I love these ladies as they accept my weirdness....I think hmm

    Anyway, constant headache makes sense with the fluid and swelling. I am sorry. Hopefully, you don't get the nausea/vomiting with the headache. So, once the swelling goes down, they will do radiation therapy to the brain?Is the steroids keeping you up or is it the running thoughts in your mind?

  • Loveroflife
    Loveroflife Posts: 4,243

    Which steroid did they put you on, decadron (dexamethadone)? It is possible it's the steroid on top of the angst. Anyone would struggle if it's progression. Concentrate on getting better and don't worry too much about telling your other family members about your situation yet, unless you think you will get better support from them. You don't need more stress at this time.I know you are a believer. It would be a privilege for me to pray for you sweetheart.

  • Loveroflife
    Loveroflife Posts: 4,243

    I need to go now as I have to work early tomorrow. Try to get some rest. Leave it at the alter. Hug

  • kathindc
    kathindc Posts: 1,667

    MammaRay, I just popped on. So sorry to hear your news. Now is the time to think only of yourself. Family can wait. You don't need any added stress in your life. You are definitely in my prayers sweet sister. Wish I could put my arms around you for a big hug. Hope this substitute can relieve some of your anxiety ((((((HUGS)))))).

  • Loveroflife
    Loveroflife Posts: 4,243

    Ask for Ativan if you continue to have racing thoughts at night. It might help you rest. Rest is important to fight.it's tough when you have a little one who still needs you. Ok, I'm going to bed now for real. Good night.

  • jwoo
    jwoo Posts: 936

    Hello Owlettes <3

    Just wanted to pop in and wish you all a Happy New Year. I hope 2016 offers us all a chance to find peace and some joy. I know 2015 has been hard on us all. I for one am not sorry to see it go.

    MammaRay, sending you a ton of love. I am so sorry that you are having to deal with this. I agree with Lover and Kathindc, you do what you need to do to care for yourself. Your family will be there for you.



    image

    Much love to you all.

    jeni

  • mammaray. - sorry to hear about progression. That stinks will be praying for you

    Jwoo. - Hi. Nice to see ya

    Hootie vh8

  • jazzygirl
    jazzygirl Posts: 12,047

    MammaRay- good to hear from you, but sorry to hear about the news. It sounds like they have some very good treatment to offer you however. I am sorry you have constant headaches.

    Talking to friends and family about any of this is tough. Perhaps give yourself so space to just adjust to this news as best you can and prepare for the treatment plan and the rest can follow.

    Sending you love and hugs across the miles. Wishing you better days sister.

  • MamaRay hugs and prayers. I hope you can get help for the headaches. Friend here in Wicklow dealing with brain too. She has 4 DD's all still in school. No words bad enough for such a bum deal you both got. Your faith NOTHING can take away, not the drugs nor the cancer.

    Patty hugs too. So sorry for your son's shock and pain, how good he is to care so much. I hope his friend is surrounded by love.

  • susan3
    susan3 Posts: 2,631

    imagegot you under my wing mamma ray. And of course and waaay more importantly, God has you in His arms. Love you bunches sister

  • susan3
    susan3 Posts: 2,631

    patty, sorry about you sons, friends, mom. Sad...and it does bring to close to home.

    Took my daughter over an hour to get out of the car to go into the wake the other day. He died of cancer, 4 days after diagnosis. It's so tuff when you mind races and you can't calm it down. It not only happens to us...it effects all around us. Prayers for you family.

  • Chevyboy
    Chevyboy Posts: 10,258

    Morning Susan..... so sorry for your Daughter...Was that story in the news? I thought I saw something about this....

    Loverly and MammaR.... That is just special that you two can talk like that.... late at night, and all by yourselves... and I know it helps......Sorry about the head-aches MammaR........ Wish I could help........ I've read about that going on, here on the blog, but find where Loverly is talking about, and maybe women going through this will have some suggestions?

    Hi Jwow and Wren! Feline, I know they are coming out with so many new drugs to help all these complications with cancer.... I just hate it when my "friends" here are going through so much.... especially when little kids are concerned!

    Wren, yes.... THANKS! I thought I read somewhere, that it is an STD..... Holy crap! I never heard of those things when I was in my 20's! But yes, I was always given antibiotics..... mostly for my rashes from drugs from allergies, and always having bronchitis....

    Maybe when you get to be my age, most things just give it up.... I am healthier now than I ever was..... I was so lucky ... I mean luckier than most that my breast cancer wasn't any worse than it was... and that when I fell and broke my hip, I came back from that....I wish for all of you gals, many more years.......

  • Chevyboy
    Chevyboy Posts: 10,258

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