INSOMNIACS place to talk in the wee hours
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Smarty- Evie looks like she is doing great. Enjoy time away. Be safe!
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Jazzy, I love the cactus. A group hug is definitely called for!
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Jazzy, love that group hug cactus! Did you take that picture
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Thanks gals for your replies and hi! to gillty98. Still slept like hell last night, but I know - it's normal, it's normal, it's normal, it's normal, it's normal.
As a follow-up I SAS I did get the Silvadene cream and started using it couple days ago. It is hell getting off though when it is time to get ready for chemo. Oh, funny story -
i picked up the cream and the pharmacist wanted to talk to me about it. Well I wanted to talk to him too. Anyway, he gives me the scoop about putting it on and making sure to take it all off, then says, "in fact, try to take it off 24 hours before radiation to make sure it is out of your system." Huh? I must have looked like a crazy person. I say, "I'm really confused now, becauseI get radiation every single day." Then he looked shocked. "Really?" I say, "WEll, yeah. That's how it works." He tells me, "then do the best you can but make sure to keep it on at least for 24 hours before radiation"..... I truly felt like banging my head against the window. Put it on 24 hours ahead, leave it on for 24 hours, but take it off 24 hours before radiation. Got it! Hahahaha I did talk to the dr. and got the scoop, but it was worth a laugh. I confused laugh, but still a laugh.
Sorry ladies, and gents if any, but I must have made my boss sound like a troll. He's not. In fact he has been wonderful and very very very supportive. It's just that he is in same mind set - radiation done, all fixed. Back to life as normal. Today was my day off but I went in and talked to him about shrinking my schedule in half. Do half days. He was good with it, but now I understand where he was coming from. Apparently my FMLA ran out on the 31st, but HR neglected to tell me. I work retail so we are on a point system for absences. Each absence is 1/2 to 1 pt off. You get 9 and goodbye. But you earn one a month too. It works good. But you lose a pt even if you take sick time, which I didn't know. So I have been losing pts and not knowing it - even if they only schedule me 32 hours, I lose 1 pt for not working the full 40. It's complicated, but I get it now after a couple of years. So he thought that I KNEW my FMLA was up but didn't renew, and my negative pts are racking up He has been making excuses to mark me excused as much as he can, but can't do it all the time. So he was trying to subtly get me back to the 40 hours because he doesn't want to lose me. Needless to say my FMLA was reopened today - on the spot. All will be better AND I explained my mini-PTSD thingy I'm going through. He understands better. I guess I used that as an example but wasn't clear in my falling apart moment.
So on top of everything else, I am moving this weekend. Yep - can't stuff your life full enough of major situations when you just want to hide and chill. But my daughter is coming from Portland, OR (I'm in WA state on the east side) to help. AND she's pregnant! Yippy!!!!! My first grandbaby to get all blubbery about. Can't wait. So last year was tough, but I have a new home this year and a new grandbaby to look forward to.
See I'm doing ok for this moment in time. Don't be shocked if you hear from me in a couple of hours tho. hahahaha
Just really wanted to say thanks for the thoughts and not listening to my "no advice, no sympathy" blah blah blah. Bring it on. I need it. Maybe not so much advice, as SAS was great with the thread on silvadene, but I can use upbuilding stuff until I explode.
BTW - what's with the glassware? I know, I should go back and read all 1136 pages of the forum but..... pretty sure that won't happen. Easier just to ask the question.
Dy
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dy I like glass, it's been my diversion from hell for years.
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Can't be silly tonite. Was going to write, but having this weird new pain on my right lower quadrant that came out of the blue. Will chat tomorrow. Love to all.
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Loverly.... you mean like your lower right quarter-panel? That's on my car.... I read from car-fax, that my car had a "repaired" right quarter panel before I got it... I also think that is where the Ambient air temp sensor is.... so that's probably why it isn't working. You know I NEED to know the temp out-side my car, in case I don't know it when I WALK to the garage to get in my car....
Now WHAT were you saying? You mean like where your ovaries are/were? I'll bet that's what it is.... I get those pains like every month when I used to have that girl-stuff going on... I think they stop about age 90.... so just a few more years.....
If I haven't nailed your pain problem yet, just let me know....
You see Dyane? I offer my advice for a mere sum of nothing....
So your FMLA must mean something beyond my comprehension.... You mean your boss is NOT a dick-head as previously noted! Okay, we'll go along with that.... Oh God.... you are MOVING? On purpose? I can't imagine ever moving further than out of the house into my gardens...... Even shopping doesn't count. Moving boxes of stuff downstairs to the garage is all the moving I want to do....Congratulations on being an almost Grandma! THAT was my favorite time of my life... Being close to my Grandsons from the time they were born until they took up and MOVED to Orlando when the youngest was about 12.... STILL hard... but I had all those years and memories! This will be your favorite job! What shall we name him/her???
Sounds like Silvadene is in the same family as Elmers glue.... It used to be fun to spread that on, and peel it off... I'm thinking I would not use that, since the pharmacist went into cardiac arrest when you told him.....Aren't you supposed to put it on the outside? What are you guys DOing? You mean it's absorbed? I have to look this up... I don't know where y'all come up with these things..............
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Hi Sas and everyone, here I am in my weird stay up later and later paRT OF MY MOST WEIRD SLEEP CYCLE. Sorry caps.
I fel asleep in my recliner this am and awoke at 3:10 this afternoon. I stood up and somehow fell over backward through the glasstop of our large spuare coffee table. I had papers and books on a lot of and that probably is what saved me from being cut up. I felt the glass breaking and giving way under me even after I was down. I couldn't move for a bit and it sure felt awful to feel that glass breaking. I am bruised and have an abrasion almost all on my left arm. I am glad I didnt die today it would have been sad for my husband to come home to. We will replace the glass with some kind of safety glass, today it broke into pieces which I think is dangerous.
I wonder why I cannot move for what seems forever when I fall. The last five times I have been unable to move for minutes and minutes, no popping back up for sure. It seems at first like my brain will not cooperate in mAKING A PLAN TO MOVE, cAPS AGAIN SORRY. I have an intention tremor in my hand and it just hops around the keys, you shoukd see how horrid mt writing in on my IPhone, pure craziness.
I read some things on home safety today aand will implement a number of the suggestions. I am 70 and guess I am officially a senior if falling and not being able to get up counts.
I hope you are all having a good weekend. Weather here is pretty much mid 50's day and mid 40's night with rain every day, spitting rain no downpours.
Hugs Ginger
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Eyeore- I did not take the photo, it is off FB. Although I live in the desert (high desert), we don't have that type of cactus here. They are so cool. Glad you liked the photo. I think we could all use a group hug from time to time.
Dyan- yes, FMLA will take you so far. I like the idea of the PT work, that is what I did as I was doing my rads as well as for a bit after I finished treatment. I worked it out with my client (self employed) to do that and also work remote some of the time without ever saying what was going on; the benefit of self employment. I will say that working right after treatment was not easy, especially with the fatigue, but it was sort of a rope to pull me back into the world and be sure I had income, especially with all the bills that came with treatment.
One thing you are finding out that I found so hard to deal with after cancer treatment was the "you are done with treatment, everything is back to normal now". Because I kept my dx and the rest private from work, I did not have client comments to deal with, but did go through it with some in the family and friends. My standard response became "I had cancer folks, not the flu." The people who understand it best are either people whom have gone through treatment or those who have supported others in the past. So hang in there on that front and find your own way to tell people it is typical to feel tired for awhile after cancer treatment. I stayed away from people that I could who tried to judge, dismiss or put me on their own schedule for feeling better. It is not about them.
Your HR dept dropped the ball so it sounds like your boss is trying to make sure you still have your job. Does your company have one of those donation buckets? I was on FMLA years ago when my mother became very ill and needed to be away for a period of time. I used up all my PTO and then put in for some donations of PTO from other people. I was amazed with the kindness of strangers that helped. If your company has one, use it!
A move in the middle of all this, hugs sister. Glad you have a new home and grand baby to look forward to!
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Have you thought about one of those "help I've fallen" alert systems? My mom had one, gave us both some peace of mind. Chevy needs one for when she trips over "rocks". Two years today
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Oh yes it was Spookie! But I did better then they thought I would! I've heard it can be "life-changing" and dangerous for a person my age... but I showed them! Probably knocked some sense into me... It was just a hip....
Ginger...DANG! You're not supposed to DO stuff like that! You fell smack-dab on top of a glass table? Did you pass out? When my DH fell last month, he passed out, and fell over backwards also...! Then stood up and fell front-wards! Did you get checked out? As to why you fell?
We used to have a coffee table in front of our sofa... but moved it clear out.... Have a stand in between our sofa and his recliner.... That gives us more room to fall.....
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Chevy yoou are so funny, "Gives us more room to fall!"
No i didnt go in, I didnt hit my head or I would have gone. I rtealized I had been asleep in my recliner and tried to stand up quickly because I needed to pee. Several months ago I hurried to get on the toilet in the morning and I passed out as a went to sit on the toilet. I rolled over forward with my shoulder hitting the edge of the wall next to the shower. I was dead in the water on that one too. At least I didnt go through the shower door. I am tall and have low blood pressure and when I was a kid I would get all wobbly when I stood quickly.
"Gives us more room to fall!" "Gives us more room to fall!" "Gives us more room to fall!" "Gives us more room to fall!" "Gives us more room to fall!"
Love it love it!
Ginger
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Ginger, I think that period when you can't move is your brain going what?! and then checking to make sure it's safe to move. You do have to remember to stand up slowly if your BP is low. Mine drops if I'm nauseated. Had to go in when I felt in the wastebasket and got a black eye. Someone researched falls in nursing homes and said most happened when the person was transitioning from one position to another, sitting to standing or walking usually. It would be scary for me if I were home alone when I fell. I never thought about leaving more room to fall. I'm not sure my house is large enough to do that.
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Ginger,
Blame it on A/C. It's the root of all medical evil. Hated that devil.
Are you still on the AI? Just an idea, have you thought of one of those Costco walkers? Just for when you wake up groggy, or are not feeling 100%. At 70, you are still a spring chicken ( compared to you know who ). When I was recovering from my coloectomy, I used a walker. I should of during the scary days of chemo, cause I was dizzy a lot. Be safe, don't fall.
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Ginger: don't get up quickly! Sounds like you have orthostatic hypotension. Blood pressure plummets when you stand up quickly. Try to ease your way up. Especially when going from laying in bed to standing, sit on the side of the bed for a minute before attempting to get up. BP needs to try to normalize.
I am laughing at Chevy,,, **more room to fall***
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Glitti (I think Ms. Chevy changed your name) and Dy, welcome! I hope you stay and play with us for awhile. I think I have said this before-these ladies are no insomniacs because when I come on at night, most of the times I talk to myself because they all are usually sleeping. They must have some good hypnotic meds in their cabinets. I'm not on any prescriptions currently and I am grateful. But, at the same time I am a bit worry with no " insurance".
Glitti, I think feeling down every so often is normal while you are going through or just finished treatment, but if you are depressed over a period of time is not normal imho. Tamoxifen can cause depression in some patients
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Okay, another idea, for those who find it taxing to stand up normally...... Roll over on your side.... and slowly put your feet down on the floor, then go down to your knees... and then put your hands down, and just crawl everywhere you want to go. You may also invest in knee-pads. When you climb to something you can hang onto.... just pull yourself up.... slowly..... Then if standing is too hard for you, get back down....
Have people wait on you.... Is it because you are too tall? And suffer from lack of oxygen? I climb our stairs on all fours.... And slide down with my left side against the wall, and go down bad leg first...then take turns with all your feet..... I hold on to the other wall and I never fall. You guys just have to be creative.
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Warning: Do not try and walk without first drinking morning coffee! Then you'll be okay.
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Ms. Smaarty, happy cruising. I'm glad you are able to go. Lovely blanket. Okay, I will keep an eye on Ms. Chevy.
Ms. Sas, no, I have not started junking. I need to get rid of my junks first. Hah! I love pretty things too. With my type of OCD, they will call a 51/50 on me if I start. I do enjoy seeing the pics of your thrifting.
Ms. Chevy, I think the pain I had last night was from my right ovary trying to spit out eggs. I have history of hemorrhagic cysts on that side. The sacroiliac combined with the ovary pain was the first for me. Oh the fun of the aging body.
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Ms. Ginger, with orthostatic hypertension, you just have to remember to change position slowly. I have it too when I don't eat enough salt to drink enough water. No fun when you are already a clumsy person.
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Yes Loverly.... I think so too! Just because we go through menopause, doesn't mean our "parts" give it all up.... If we have them, they could cause problems.... Geez, I remember having the WORST cramps... Every 3 weeks! Standing at the bus stop and almost crying with pain.... Do they still make Midol? And hot-water bottles? And pillows to scream in?
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Hahahahaha Ms. Chevy, I found some nice looking knee pads to go with different outfits and even lingerie
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Have not hit menopause yet. Maybe peri -menopause is what I am going through now. I don't like Eve. Why did she have to disobey? Now we all have to suffer because of her
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Chevy: how many feet do you have?
Ginger: I'd take "have people wait on me", personally. Not gonna touch the lack of oxygen theory. But OW.
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Those are Chevy shoes!! ๐
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we have made it to Houston. Off to the ship tomorrow then no more internet. Think I'm going to die!!๐
Ok, LOL, glad your pain in the side is gone.
It feels really weird when you stop going to the docs every week. I remember thinking what am I going to do now? All this time and no more appointments. Now it's been over a year so I don't miss it anymore. And I don't have to see anyone for the "girls" for 4 years, unless there's a problem. I haven't ask about pt yet, will do that when I get back.
Be good. Susan, you doing better?
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Haven't been here in a couple weeks and have enjoyed catching up with everyone. MsChevy, you are soooooooo hilarious. I've made a copy of your pic of the lady in the swimsuit in the snow. Plan on keeping it with me to show people who laugh at me when I pull out my folding fan or the electric one. While I have numerous flashes during the day, thankfully I have not been struck with the night sweats, thus far.
I got to have my monthly 30 min. massage last Wednesday and it was wonderful until about an hour after, then my whole body hurt all over. I was told that it's from the toxins in my body being stirred up and to drink lots of water.
I don't remember if I mentioned that I am waiting to hear from the breeder about getting a puppy, but I called her on Friday and she told me that her dog Kyleigh might be pregnant and would let me know. If so, I could get my pup in early June. Waiting is so hard.
I enjoy seeing your pics SAS of your junk store finds. I don't collect anything anymore though. Seems my stage IV dx has given me the urge to de-clutter. I've sold a couple items and have some others I want to sell as well. However, I did rent a booth at a local consignment boutique to sell my hand made items. So lets hope that goes well. I had like 30 aprons, 6 purses, some bibs & burp cloths, etc. in my closet that I'd made and needed to move out. I also plan on making a diaper bag as a sample for any potential customers to request custom orders. So with a puppy and sewing to focus on, I can stay busy and not too focused on my dx.
I hope everyone is having a nice weekend where ever you are!
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