INSOMNIACS place to talk in the wee hours
Comments
-
Hi meadow. The car slow's down a bit from Friday till Sunday. I thought that was sucha good description. Glad you shared it
Donnie has painted the chairs and sofa side table we picked up at the curb. They look brand new. he worked out a deal with Stephen to buy the 1993 stealth. He has it running. He's excited. I kinda had hoped to keep it for Steve's kid. But that easily 17 years from now. I understand my Mom getting on all our cases about having grands.
Smartty you made 5 gens, hoping to make two gens. LOL. Evie pics when you can. Living vicariously through you.
0 -
sassy, we're doing February birthdays today at DD, Evie will be there.
0 -
Yogagirl- welcome to our thread. One of the big gaps I see in treatment is around what happens after we get spit out of the treatment tunnel. You find yourself in a place with SEs and more with time. I think depression, PTSD, and many other issues follow women after treatment, especially if they loose quality of life. I have heard it from so many women here, and know I had some of my own PTSD to deal with. I have spent a lot of time figuring out how to help myself in a world full of "your bloodwork is good and films are clear, you are doing well." Well, I think that may be true, but I am not the person I used to be?
Your handle suggests you are a fan of yoga, myself here too. Would love to hear more about your yoga? I am heading shortly to an evening meditation class and gentle yoga class this evening called "Sunday Sweet Surrender". It helps me to go in to the week with a good frame of mind.
0 -
I am different now too. I mostly always just stay home. I have little to no motivation, I am surely still depressed, with all the symptoms that comes along with that. I had so many side effects from the AIs that I couldn't believe it. For one of them I brought in the page long list for the doctor. My daughter was even suggesting to me that I should go off for quality of life issues. My knees hurt so extremely bad, my chemo brain took new forms, my concentration shot and so much more. Chem really wrecked me. I didn't care too much about losing my hair, eyebrows, eyelashes etc but then my teeth started to break off at the crown line, too much gatorade rotted my teeth under my crowns. The gatorade was like a miracle drink for me and I drank the full sugar type. It revived me. Now I look to having my remaining teeth removed so I can have whatever prosthesis I can afford. Just used my savings toward that on the escrow for the house we just bought so it will be awhile. It takes me forever to eat, I am so slow and cant go faster if I try. Yogurt works really well. I am happy to be alive, I am happy that my intellect seems to be returning, I am off of Tamoxifen for the time being because of vision troubles with it. So I feel somewhat more normal. However the phrase, "New Normal" does not resonate well with me.
I used to travel to third world countries and raise funds here for their work. I was pretty good at it. I know I can never go there again, I would be a burden and we don't do that to others in hard circumstances. I did things that to me mattered, that I had a purpose. Now it seems the most I can do is send small political donations and try to educate and encourage voting. I am 70 and my two grandmas lived to 88 and 93 and were active. I am very fortunate that I have friends from my childhood, youth and adulthood who stay in touch, I am so fortunate for that. I have a husband who is great, cranky sometimes but great none the less!
I hope I will continue to improve. Continue to matter.
Love Ginger
0 -
Oh Teka, so sad!
0 -
OH, Teka, that is so sad. Poor footprintsangel. Will go to her thread and send a hug.
0 -
Teka please, put a link to Foots thread, so we can offer condolences, Thanks
0 -
https://community.breastcancer.org/forum/31/topics/721325?page=117#idx_3492
Sas, this is where I've seen Foots.
0 -
Teka - So heartbreaking to lose any animal that we've shared our life with.
(Ginger & JazzyGirl - I can identify with what you're saying. While I am doing pretty well with my treatment and cancer is stable for now, there is always that sense of waiting for the other shoe to drop. I have wondered to myself how I will deal with it when my onc tells me that my cancer has progressed (hopefully not for a long time). Also, because I have fibromyalgia & osteoathritis, the faslodex makes those more pronounced. Grateful to have pain meds available. But, until I found this thread and all of the funny women here I hadn't been able to drag myself to my sewing machine. I have continued to do my volunteering one afternoon a week too. For me staying busy enables me to push my fears into the back of my mind for the daytime, but at night I have to use anxiety meds to calm my mind so I can sleep.
0 -
JazzyJune
Glad to hear you are doing well with your treatment and you are stable. I am sure it weighs heavily on your mind.
What type of sewing do you do? I am a crafter and after a finished working, I went back to doing a few Christmas fairs. Here's a picture of some of my crafts. The shows pay for my hobbies so I don't feel guilty with my spending
0 -
Lookforward - Oh Wow! such beautiful and intricate items you make. I do purses, water bottle slings, custom diaper bags, bibs, burp cloths, etc. I don't do any clothing though. Too many variables. A few years ago I did about 40 aprons, 50 knitted dish cloths, kitchen towels & pillow cases for a Christmas Bazzar, but they didn't sell too well. I also have a quilt I did and tried to sell, but have not found the right buyer yet. Hopefully one day.
Fabric & Dogs are my two greatest weaknesses!
0 -
JuneBug, you are very talented. The quilt is beautiful!
0 -
Junebug
I love your quilt , your colours are wonderful.
I don't have the expertise to do a large quilt. Here isa small black and white wall hanging that I am working on. I laid it on the floor to take a picture and look who wanted to try it out.
0 -
Lookforward, love the match!
0 -
Ginger, why didn't they tell us about the teeth? Mine are rotting, and I always had good strong teeth. Now my right front tooth has a big chip out of the middle so I'm snaggletooth. I'm just wondering if implants would be covered under medical since it was the chemo.
We had the best time last night with my doc and her DH who works with mine. I really enjoyed their company, DH said she was nothing like he would have expected knowing her DH. Our DHs have worked in the same company for 7 years (mine's been there 22) and while they don't know each other well they are more than nodding acquaintances. So we had a really good time and they liked the food. As we were leaving she asked how my back was doing and it took a minute for me to figure out she was asking about my stitches. Lol.0 -
nice work JazzyJne and Looking.
Here's Evie tonight.
I don't think her cheeks can get any bigger0 -
Smaarty look at her taking in her surroundings, how adorable
0 -
Meadow, I love the analogy of the moving car. So true. No worries. Just jump right in no matter how fast. You might miss and hit the unopened window, but it's ok. Someone will come along.
Glennie, thanks for the link. So sad.
JunieB and Forward, love your craftworks. Impressive. JunieB, when you are done and get a chance, could you show more pics?
Mag, what a blessing!
Happy to report no drama at both dinner or lunch for Dad's birthday, although SIL was straight face (understandably so). Sad that we have do it separately. It would have been better if everyone could get along and come together, but oh well.....it is what it is.
0 -
Awwww Would love to pinch those cheeks! I will pinch yours instead when we meet for lunch.
0 -
Loverof - I like the black & whites. You said you are working on it. How much larger will it be when complete? Also, really really adore the little fur ball on top of your quilt. What is his/her name? I used to have one that looked just like yours and her name was LadyBug. It seems I have a thing about the "Bug" name. Maybe I should name my new puppy "Bugs Bunny." Just kidding!
)I have a baby quilt I need to get assembled so I can get it to the long-armer soon. The baby it's for is due at the end of March, and the quilter is booked 10 weeks out. Yikes!
Smaarty - Thank you. Your granddaughter is very cute. How old is she? I was an only child and I never had children, nor did I grow up with any Aunts, Uncles, Cousins, etc. I'm so clueless about babies. I see you're in Sacramento. I pretty much grew up in Red Bluff, CA. At least until high school was done, then moved away.
Mags - Is the teeth issue from chemo?
Meadow - I can't remember if I said welcome to you before,so here it is now. "WELCOME!"
Sleep well Ladies. Until next time.
0 -
Thank you so much for the warm welcome to this thread. It's been a great comfort to read the conversations and comments. Just to know there are others out there who have the same or similar challenges; my medical team tends to keep the true SE from me until it's acute. Sleep is on my most valued wish list even more important than food if I have to choose. Then I have to be consistent w/ my green smoothies & added vegan protein.
You asked about my yoga experience. . .
I started when I was diag w/ fibro and the start of bone loss due to my Cal/Mag levels being so low and Vit D3 was in the 20s on my blood work. The lower body stretching and stance positions really help the joint pain.Then I started doing power yoga (holding the pose longer and/or w/ weights & props).
Some of the movements I have found help me with lower body bone/joint pain.
Seem to feel better when I have a chance to spend 1 hour (15 minute breaks throughout the day) checking out of daily work life (at a desk/PC) and experiencing some calm time.
Look forward to talking more about the benefits you are experiencing.
0 -
Jazzy that is Smaarty's GREAT grandaughter can you believe that? (no way does she look old enough to have achieved great grandmotherhood)
Smaarty - Evie is a bundle of joy!
Love the craftwork ladies.
Sorry to hear of a BCO sister losing a beloved companion animal.
We have just been through a general electio here in Ireland. Counting went pretty fast in reality but this funny cartoon appeared during the interval when counts adjourned on Saturday night for resumption on Sunday
0 -
JuneBug. My dogs name is Bailey. I think bugs would be a cute name for a dog.
My quilt is not going to be any larger, I just need to finish the binding. I was making a X-Mas one just before my diagnosis, worked on it somewhat during my treatment and also lost my motivation. I finished quilting the top a few months ago, but I am so disappointed my squares are not even and I don't like my colours. I also make purses. I going to buy some funky colours and make some tote bags.
Lover glad you enjoyed your dad's birthday. My husband flew out this morning to see his 93 year old dad. He is quite depressed and needs help getting some medical appointments. His brother lives in the same city, but goes south for the winter.
Yoga girl
I also enjoy yoga and plan on taking a gentle yoga class. I lost my range of motion in my left shoulder, from lymph node removal just over a year ago. It is much better than it was, so no more excuses. I'm heading for breast reconstruction in the future and want to be in good shape
0 -
Thanks Lover, I am determined to get in that car!!! And yes, hoping the windows are open!
Lookingforward, the quilt post made me smile
Yoga, I haven't ever tried yoga, except in a few times in my living room trying to mimic my granddaughters, ages 5 and 10. They do it with their mom, and I admit I am intrigued but intimidated. I can see how it is beneficial, just need to plunge in I guess
0 -
My DD with her DGD, Evie. Since Evie was 5 was early, she's about a month behind on doing things. She is more alert now and staying awake for longer periods. She hasn't started trying to talk yet which most babies do by this age. She will be a little behind schedule for about a year or so. My GD said that she giggles in her sleep!
LOL, glad the birthday parties went well. Families can be a pain sometimes.
Got my referral to PT and also made an appointment with an acupuncturist for tomorrow.
0 -
smaarty, she us so cute? I am sure you are having a wonderful time:)
Lookfor, my shitzu does the same thing. Any type a material object that hits the floor, she is on.
Happy Monday to all
Patty p, have they sprung you yet?
0 -
News from Patty, her phone is dead and she was able to text this before it died. She's still in " Will you let people know i am OK. Have dizzness and double vision. Very hard to read messages otpr type messages. Took meporob SN hour to get this done between going ack and making corrections and sleeping"
0 -
Yes, Evie is so cute. She looks like she is thinking in that pic or maybe concentrating on peeing. Seen that look before.
JunieB, are you speed reading? You will surely get people confused. It's ok. You are not alone. A few here have done it.
Forward, one of the reason we hesitate to move out of California because of Mom and Dad. Can't imagine helping them from far away.
I should get back into yoga as my range of movement on the mastectomy side is limited and can be painful if I am not careful with my reach. Thanks again Yogagirl.
Ms. Sas- thank you!
0 -
Yogagirl- getting back into what we used to do, including yoga, can be so scary after all this. You may want to check with your local cancer center(s) to see if anyone is offering a class for cancer patients. I have seen more of these around here and am actually interested to get certified to become an instructor to work with cancer patients. I need to have the time and money to do it, but am exploring this more seriously this year.
Gingerbrew- I am sorry you have had such a rough time. Many women here have not found there way to a good quality of life after cancer treatment. I think we are told the party line "you should be grateful to be alive" by the medical community and think all of us feel that for sure, but the rest seems to get too quickly dismissed. I am wishing you better days sister.
0 -
0
