INSOMNIACS place to talk in the wee hours
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WOW! With a medical team like that I'd never leave the hospital!! Ok, maybe I would if I got that nurse assigned to me hehehee
Now that I've found an awesome place to hang out on my sleepless nights I've been sleeping too PurpleMinion...
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God help if I have to go to the hospital for anything and I get that nurse, I'd be running the other way in the hospital gown flapping in the wind behind me
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When we bought this house 5 years ago, I bought 2 Tiffany rose bushes, bare root, at Sam's. Made the mistake of planting them out front where I never go. One of them died, but the other – I cut 3 long stems today. They are the most fragrant (actually won a prize for fragrance) like sticking your face in a bowl of fresh raspberries with a little clove tossed in. Pink shades to cream centers. y favorite.
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ello beautifuls!! I read my responses from waaaay back, thank you❤️❤️❤️ Had the old ovaries out beginning of April and feel so much better😍
Those Dr.s tried to get me to take more meds to counteract the tamox, but guess what I did? I quit!! Just like that, called dem beaches up and said I quit, figure something else out😂
So started Femara and my problems are gone, no more blurred vision😜 No more rip your head off emotions😜 Less edema, no more panic attacks and I'm not even on Effexor😂
My only SE's are a little swelling, weight sucks, aches in morning and some fatigue....I think left over from chemo/rads to be honest. Still have mastectomy pain but waeva, to bad so sad, lol
Thank you for being here😍
Hope you all are feeling good, I'm checking my messages again😊❤️❤️
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Loverly- I am working with a team of seven providers on my project; 4 men and 3 women. None of the men look like that! LOL!
However, I have probably shared this story here before about when my mother had her stroke some 12 years ago. She was in ICU and her neurologist came in the next morning and he looked just like Antonio Banderas. My sister and I just stopped in our tracks when he walked in the room. My mother always judged men based on their looks but did not seem to notice him that much.
The one time she has a movie star looking guy in her presence and couldn't appreciate it! We did however!
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Smaarty: Nope, haven't dove into reading yet. Still been catching up on my DVR. Had a short outing with sister today and came home and napped two hours. Still easily tired, but doing pretty darn good otherwise.
In other good news. Pathology came back today. No other cancer was found in the L breast. Tumor ended up being 7mm not 6, but still caught very early (Thank you grandma). No lymph nodes involved. R side Prophylactic was clear besides a haratoma. Only thing that BS said was that I could technically be considered a triple negative because my ER+ is only 8%. They normally don't start Tamoxifen until 9%. Will have to have that discussion with MO (referral has been made). I'll be interested to see if they feel if I need any further treatment. BS says probably not, but will have to see.
Welcome to the ladies that have joined this great group of ladies. I lurk and occasionally post. Love all the baby pics
WenchLori-love it. As bad as it may sound, my dad used that term in a sort of "loving" way. So your name, brings back some good/funny memories of him
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Beautiful rose magdalene! I can smell it from here! I need to find one for my Mom's rose garden
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Sensitive- yay for good path report. You are coming through the other side of this now. Continue to rest a lot, big assault to the body!
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Welcome, Lori! Love your name!
I found a source for you; I just bought my Cecile Brünner from them and it is thriving, already has buds, just got it last week. Good people.
Off to bed, haven't gotten more than an hours' sleep the last two nights but wasn't awake enough to post. Got to sleep.
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Mama Mia, ShepK!
Jazzy, considered yourself blessed the providers whom you work with can afford to buy scrubs or bottoms that stay on. Now, when you go to work tomorrow, try not to picture the providers half dressed like the men above. Stay focus.
I am surprised that Mema hasn't come out yet to say something.
Sensi,
for the good news. I remember I would drain more when I moved my arms a lot. Not sure if it's the same for you. Take it easy. Mags, is the Tiffany even more fragranced than the Double Delight?
Ms. Sas, how is your derrière?
JunieB, are you still in search of that blanket? Hope you are just busy getting ready for surgery next month
Myra, you sound so much better compared to the last time you were here. Amazing how QOL shifts when the right drug is found.
BTW, ShepK, hope your appointment went well.
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My mom gave me pieces of a plant recently, thought there was a lot of pieces, but when I transplanted them, it turned out to be half a dozen in a good sized pot. Now I am trying to find a small version of the same plant to fill in the middle of the pot where its bare.
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Thank you the link magdalene, I'll check them out now!
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I didn't want you to miss my post. How are you? My hair went grey since the last time I saw you. Kidding, it went white. How are you Why do you popin every 8-10 months. It's fine, just wondering. I'm off to a colonoscopy today. UGH. BUT my treat to myself is a Carrabba's dinner after if I'm in shape. Updates please
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Loverly- ha ha about the providers and the half dressing. I so don't want to see most anyone at my client site half dressed, but especially some of the old docs. LOL! Thanks for the visual!
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Sas I get sick of myself and maybe this board can be a bit depressing when I'm in a funk...which has been a lot in the last few years. I always come back though, although a little scared to see who is still here and who is not.
The 4, I mean, 3 kids and 1 husband and two jobs thingy sorta get in the way.
I was on 20mg of temazepam for a while but came off about a month ago...last night was my worst with 3hrs of sleep.
Today's my daughters 8th birthday and we have another monkey running around.
So that's a good taste of my life.
I heard some great news about no cancer in lymph nodes, whoop whoop!!!❤️
White hair?? Let me see
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Loverly, That was a lovely pic of your Mom. She has such a kind face. You look very much like her. Do your sister look like her too? Sorry I can't remember is she still with you? I know your dad .....Any word about tests yet? Are the pfttt over?
Purple, Hmmm this should be the beginning of the chitty time? I caught the " I did manage to not take ativan or my beta blocker at bedtime (discovered mistake by OCD inspection of just-filled pill" Does that mean you take a beta blocker dose at bedtime or you use it for sleep. The OCD nurse here. Hugs
Sensi, hope you are feeling better too. How are the drains? There is a whole unsolved controversy that has been going on for > a decade about drains. Hell controversy about everything in all fields of medicine is millennia standard. Hugs
Shep, I may be back at 2d6 today. I need to follow up on a thing you asked. Thank you for getting that thread going again. I've finally learned my absolute priority is to come here first before my housekeeping threads and politics.
JUNIE HOOTIE HOOOOOOOOooooooooo
Susan have you come up for air? How's Elena? Did I get her name right? BTW what's the backstory on her name? My real name is both grandma's My twin was supposed to get a grandma name too, but the person writing her birth certificate screwed up and instead of Bea she wrote Bee. Sister Sue hates it. Ilike your description of rock head, haven't heard that before
Smarrty Evie pics? Evie doing well? Did you see that thing I wrote about the Christmas tree? I get so mushy every time I look at the 'things ' on the tree. You were going to post a pic of DGS with his new leg. How's he doing with the pain. Has his brain unlearned the signals yet?
Hi1, the FATIGUE BOLLICKS it. Bollicks is one of the worst swear words in English english. It's equivalent to the "F"word. But since few understands it here, we can use it without impunity. If you say it around an English person be prepared for a stark reaction LOL.
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Wench this was me yesterday after the colonoscopy
Your Hubby sounds like a great guy
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sas-schatzi, I love it!!
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Feline, Some of the hospitals regionally practice multidisciplinary approach. The best here is a rehab hospital. It's a full blown hospital regional head& spinal trauma and stroke. If it weren't an hour+ in each direction I would have worked at it in a nanosecond. I never saw a hospital that was run so well. I'll give them a plug. Seapines. My own facility bragged of it, and we had the round table, but I didn't see that it translated too outcome as I observed at Seapines. Are you worn out on W&F's? I understand if you are. After so many months it can become a chore versus fun.
Lookie, we sent a singular helicopter? I really don't know if that's appropriate to the scenario. Seems very little and yet might be big, dunno. Glad you aren't in the midst of it. Do they do controlled burns in Canada? Florida is very big into them. It can be trouble though when they get out of control.
Sensi, I fell down on the drain thing. They may be out by now. If not you can strip or milk the line. If they are still in google YouTube and see if they have a film.
Shep I could tell you about OR stories, but some I just can't even after almost 40+ years. One though I can. in gas gangrene cases, we had to strip to our underwear wrap in a blanket and toddle down the hall to the shower. Only now thought that slipping into a patient gown could have been done before the blanket. LOL too late!
Mags, your rose is beautiful. You describe the scent so well. like a fine wine
Jazzy, Dr Banderas sounds yummy. I agree it was too bad that Mom didn't get to appreciate him. Darn.
Sensi, Chit on the hormones.Chit on being borderline on the ER+ and treatment decision. It was the same way for me with RAI 131 with the thyroid ca. Bummer. The treatment caused way more trouble than the cancer.
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Myra, I agree with Loverly that you sound much better than last visit. Love the way you refer to the 4 kids. Men really are so much like kids. Donnie DBF and I are still together. 4 years this month. It's very nice. Haven't thrown his clothes over the fence in a couple of years now LOL. Yes, it's tough to come back and see folks gone. When I look through old threads for something and I know what has happened to some dear sisters it is saddening. But I say a prayer and remember them.
Loverly, scope went fine. One polyp. Snip, snip, burn. Diprivan instead of versed. It was great. Missed the versed though. I LOVE versed' s relaxtion quality. So nice on sore muscles.
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NEWS FLASH. This may be old news to some. Yesterday I saw for the first time the infrared vein finder. It's on a tripod with a long adjustable arm. It has about a 3by3 field exposure. It's light is directed over an area of skin. You can see ALL the blood vessels. Because you can see them a tourniquet doesn't need to be used. Vein scarring and valves can be seen and avoided.
I had my lovely nurse Marilyn do a whole tutorial. I so would have loved to of had it when I was practicing.
A biggy for me is to be able to take this to the port thread I mentor. Discussion periodically occurs about whether to have a port when only one round(4) of adjuvant chemo is the plan. I was refused a port, but not without a strong discussion.
I only had one single chemo b/c of complications. In that one chemo it took 3 nurses 5 sticks to get a vein. Some chemo extravasated (leaked). That vein where the extravasation occurred has always looked dark even though it's been 7years. The infrared showed that vein and the smaller veins extending from it as shriveled and almost hairy. I'm not describing it well, but the area was very visibly different. Also, unusable.
Wouldn't of happened had I had a port.
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OFF to housekeeping threads and politics. Have a blessed weekend. Hope all the nasties improve.
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so this is DGS, 6 mos out. He's doing great, can drive again, now helping his BIL with lawn jobs. He needs to use a cane or one crutch to get around. The lawn mower is a good substitute ! 😜 He also got himself a dog which is also an amputee
Evie got exposed to chicken pox last weekend as well as some of the other kids. They are my sisters grandkids. Her 6 yo came down with them even tho he'd been vaccinated. He goes to a private school so the vaccination rules apparently don't apply there. So Evie probably isn't going to get them, she was asleep the whole time in her stroller. But a 11 month old who's to young to be vaccinated and 3 yo brother who may not have been yet and the 5 yo who moms been too slow to get her vaccinated will probably get them. What a pain for the kids. Everybody is keeping their fingers crossed.
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Hello! So, I have been sleeping! It is is strange. I suspect that I will revert to my usual insomnia in the next few days as the big post chemo steroid crash is almost done and I am feeling much more normal.
Sas, The beta blocker is new and I hope temporary. I was on an immunotherapy trial for a few months and that tweaked my thyroid and induced hyperthyroidism (Hashimoto's). My resting heart rate used to be around 55bpm, now I'd say it's more like 64-65 after a year of being so sedentary, however with the hyperthyroidism my resting heart rate went up to around 95-100! So for now I take a beta blacker at bedtime and it is knocking me out!
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Smarrty, DGS Looks great. Love that smile. .......PITA about the chicken pox. There should be a report to the public health depart. about the kid that was a vaccination failure. Not that anyone in your family should do it. The kids doc should do it. The public health dept. tracks that kind of thing. And then if your kiddos come down with it there docs should report it. I suggest they check in with her doc and ask what he suggests. Vaccinating the older ones now even if they have been exposed might allow the course to be less severe. I definitely suggest that Evie's Mom check in with her doc b/c being a premie her immune system isn't as developed. My memories a little faded, but they used to do a MMR titer at first visit when prego. Not sure if chickenpox titer on Mom is done with the others. If a chicken pox titer was done then maybe Evie's good. Especially if she breastfeed. But it seems something interfered with breastfeeding.
The public health dept. takes vaccine failures very seriously, all the way to the top with notification of the CDC. Lot's of behind the scenes activity. Not sure at what point a public health advisory is triggered.
When I was little folks would take their kids intentionally to some ones house to get them exposed. Times change
. Memory trigger--- from Labor & Delivery. When Preggers were admitted if MMR titer wasn't on the docs documentation a titer had to be drawn. NO IDEA if a chicken pox titer was added to the bunch. TOO many years ago LOL.
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Purple, your avatar is so much fun. It just pops right out there and wakes me up.....Which Beta blocker? Is your dose extended release? If not, I have a concern. What kind of doc prescribed it? A beta blocker should have 24 hour coverage. Unless it's Extended release that's were my concern is based.
This is a nice little study comparing the beta blockers. Regular and extended release. It borders on layperson >>professional. I think you could use it reasonably enough. At least the first page. The "full review" page flips into the professional side. I would store it for sure. It would give you a nice tool base to be able to discuss things with your doc.
I'm going to look at two drugs that I wasn't familiar with BBL
http://www.ncbi.nlm.nih.gov/books/NBK45571/
Let me know if you think I'm a pin head about you being able to use the first page. I thought it quite good, but I used to teach these drugs to medics. Our perspectives are way different. I like the format they used to explain what drugs were applicable to each disease/ condition. Very nice. If I were teaching I would use this and make a outline thingy.
Edit: the two I looked at had no application to you.
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Oh Purple, I studied thyroid when I was dx with the ca. It's a pain in the ass. They're is the easy stuff that all professionals learn, and then it gets way crazy. Please, tell me you are reasonably well controlled? It's bitch of a study. I don't want to go there again (Hahah like you asked me too or sumpin). I'm the thread busy body if you didn't catch that. What's your Thyroglobulin and antibody levels?
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Ya know Purple, gonna bug you about this beta blocker thingy. Drugs are drugs. All drugs have consequences. Unusual to prescribe a beta blocker for what you describe. What was your BP? Any funny activity? Why wasn't conditioning i.e exercise suggested. So, try to put all my buzy body questions together. You can see I just drop them all over the place.
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Sas, I don't mind being bugged. First, be assured that it is an endocrinologist who has been treating me and working closely with the oncology team so I feel reasonably safe as far as they know what they are doing. I am only taking 25mg of atenolol once a day and that is just temporary until we figure out what I really need or (what seems to be happening) the problem resolves. I will check the lab values in a moment and get back to you - they are SO much better now than they were a month ago and we draw again on June 1.
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You can see, in April especially, that my T3 free was going up and TSH was going down, and my heart rate was going WAY up...
Thyroid Peroxidase Antibody 3.2 IU/mL Name Standard Range
1/25/16 2/15/16 3/30/16 4/25/16 5/9/16 T3 FREE 2.4-4.0 pg/mL
3.7 4.2 5.5 4.8 3.2 Name Standard Range
1/25/16 2/15/16 3/30/16 4/25/16 5/9/16 5/9/16 TSH, 3RD GENERATION 0.40-4.00 uIU/ML
2.15 1.71 1.62 0.04 0.17 0.15 0
