Can we have a forum for "older" people with bc?
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So sorry for you. Praying God will give you strength during this time, sometimes it just never seems to end.
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(((((((Puffin)))))))
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Puffin,
Sending what strength I can. I am so sorry for your brother's and your loss as well as the rest of your family. We never know why we are tested in certain ways. Sending as much healing energies and light as I can.
Jackie
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Puffin, so sorry for the loss of your SIL. May her memory be for a blessing.
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I'm so sorry Puffin........ sometimes it's just like our world is falling apart.... so many things happen, and there is just no reason or understanding.
(((((Puffin)))))
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Puffin
So sorry to hear of the passing of your SIL so soon after Lew. I know it is going to be very hard on you, but please remember that each one of us on this thread, plus any other threads you may be on, will be thinking and praying for you and sending you our best hugs and thoughts all the way thru this difficult time.
Anne
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This morning take a few minutes to reflect on
how you give of yourself to the world. Often we
get caught up in the frenzy of buying and
giving things. Look at the ways you give
appreciation, friendship, energy, time, love,
and affection, and give of your own special
talents and abilities throughout the year.
Acknowledge yourself for having enriched the
lives of others.Spend some time loving
yourself for the giving light that you are.
Shakti Gawain0 -
Thank You.
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Puffin, I have an idea how you feel. Enough is enough! How much is a person supposed to take? We've had three and a half straight years of bad things.
Just when I thought I had dealt with one thing, the next happened. There was no time to breathe, much less find a way to adjust. I can take some comfort in the fact that I haven't actually gone crazy yet...or have I? Who can tell? Hope you find your way through it soon.
Mike is 81 days past his bone marrow transplant. Only another 3 weeks or so until he is "released" from his clean room and interact a bit more with the world. He can move back upstairs to our bedroom but I think he's so used to his room, he might stay there. Milestones are the first 30 days, day 100, day 180, and the BIG one: one year. overall, he has a 50/50 chance of making it.
Up until a month ago, things were going very well. Then his platelets began to fall. They've continued to fall about 20 points a week. They doctors are now concerned. He had another bone marrow biopsy a few days ago. We will get the first preliminary results tomorrow but it will take another week or so to get it all. Hopefully they will be able to figure out what is causing this. The dire possibilities keep me up at night. It could also be a fluke and might reverse itself.
I haven't been on here much in the past couple of weeks but I've been very busy coloring. It keeps my mind off of what could happen. I even entered a coloring contest sponsored by the best hamburger chain in Texas, Whataburger. I won't win, of course. There are so many professionals who have already posted pictures. But nonetheless, it was fun and these days I need to grab any moments of fun that come my way.
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(((Sandra))) In your & Mike’s pockets for an answer and a successful solution. And you are a great colorist. I don’t have the patience or the eye to choose the right colors without guidance of a thumbnail or numbers.
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My greatest accomplishments shall never be known, perhaps even to me. Having made someone smile and see the world a bit brighter, having given someone hope for the future, having helped someone see potential inside him or her self that he or she never might have seen otherwise, having helped someone to see just how beautiful he or she really is--these to me are the achievements that most can help this world to be a brighter, more loving place.
tom walsh0 -
Sandra, many hopes, prayer, and universal light as you and Mike work on this negative sounding event. Perhaps one of your grandest accomplishments is that you have had an extraordinary ( not in a good way so much of the time ) life and you have just kept going --- somehow, someway, you have not given up. You just forged ahead as if there were a perfect outcome --- and often that is EXACTLY what fosters a really good one. Life always presents challenges, for everyone. It is hard to know why one person seems to get far more than others, but I hope you know, watching you, listening to how you describe your life and how you live it, gives me a heck of a lot more courage to want to live mine with my head held high.
I've got a secret -- usually, the minute you have the thought that you just might be crazy if proof that you are anything but -- and just as sane as anyone. That thought has held me up a whole lot of times. I don't think we are kicking up quite as much sand as we were a while back but I'm still there with you.
Jackie
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We saw the doctor this morning. Platelets down to 63. This is not good.
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Hugs and prayers coming your way.
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I am so sorry. Prayers and healing thoughts on the wing.
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You are a child of the universe, "fearfully and wonderfully made." In the history of creation, there has never been anyone like you. Accept this reality about yourself—that you are a special, unique human being who has a place on this earth that no one else can fill. Acknowledge yourself as a glorious expression of your loving Creator. This healthy self-love will form the foundation of a joyful and satisfying life. Then, as you love and accept yourself, your inner light will shine outward to bless and heal your fellow human beings. - Douglas Bloch
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(((((((((Mike and Sandra))))))))
Many healing and hopeful energies coming your way.
Jackie
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Time to put them on and pull them up.
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Sandra-
Hugs, prayers and good thoughts coming your way.
Anne
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Sandra - you and Mike are always in my thoughts. Doubling the hugs.
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Puffin and Sandra, you both are in my thoughts.
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sandra and Mike,. Prayers and positive thoughts are being sent your way!
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I hope that my achievements in life shall be these -- that I will have fought for what was right and fair, that I will have risked for that which mattered, and that I will have given help to those who were in need that I will have left the earth a better place for what I've done and who I've been.
C. Hoppe0 -
Sandra, you and Mike are in my thoughts and prayers.
Puffin, thinking of all you have been through and hoping times get better. Glad you received a good report from your docs!!!
I had doc appointments today. 2 years NED for me, too!! Will see the BS and RO in one year, but will still see the MO every 4 months. Not bad!!
Take care!!
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So many brilliant and gifted people squander their gifts because they lack the humility of self-understanding. When we think we know it all, we miss the point. When we think we know everything about ourselves, we show our ignorance and our arrogance. The wonder of human beings is that we are constructed in such a way that we can spend our entire lives exploring our inner universe and its connection to the universe as a whole and still barely scratch the surface.
We are a wonder for us to behold. -Anne Wilson Schaef0 -
Joy, sorrow, tears, lamentation, laughter--to all these music gives voice, but in such a way that we are transported from the world of unrest to a world of peace, and see reality in a new way, as if we were sitting by a mountain lake and contemplating hills and woods and clouds in the tranquil and fathomless water. -Albert Schweitzer
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Hi to all here...
It's been awhile since I've posted but I've been reading recently.
Sandra, we are praying for Mike and for you through this time of uncertainty. Sending positive thoughts and healing prayers for you and your family.Puffin, how sad that your SIL has passed so quickly. You have had too many losses.
I am happy to hear about your 2 years. I wish you continued health. I am sending hugs and prayers for you and the family.Carole, summer must be near if you are putting your boat in the water. I wish you a good week ahead as you enjoy your long vacation.
Jackie, thank you for being here each day to greet and inspire the ladies here. I wish you a good week end with peaceful moments.
Joan
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Looking ok outside for now, but today was a rain day. I got by since I was able to get out and feed the feral cats. I'm not sure how much they actually got to eat as shortly after I got to the second place it started raining again. Little Gray was there and wanting some food. I tried to move to a close and what I thought was a slightly better spot ( under some trees where not so much rain would hit ) but Gray being a creature of habit wouldn't take the few steps with me so left the food out in the open where Little Gray prefers to be.
Joan, I'm so glad you came. It has been a bit quiet here but so much going on for some here. I pray things come right for everyone who is currently in the midst of problems, illness, loss and will renew my plea for healing energies to either solve problems completely or if not to find an area where it feels all right for the problem to linger while they are being solved.
I hope we don't have rain tomorrow, but I'll surely have to fix my hair ( nice wash and set ) if it is nice. I look like something the cat drug in for sure as when it is going to rain --- I leave my hair air dry from its wet stage and it isn't the greatest looking but always seems better than doing a nice set that often then falls in all the wrong places. Likely I need to go have a trim, but been a little busy lately since I've worked daily.
The family hopes to bring my little gal home very soon ( sure hope that works out ) though to me it seems she has a way to go yet. Wondering out loud here if they might need me to come a little more there until things are better and my little gal has a bit more strength. Sure hope she doesn't have any more UTI's as this time it has taken a lot of time to get her back in shape.
See you all tomorrow.
Blessings to all,
Jackie
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I had a seemingly inexplicable arm LE flare shortly before bedtime last night--after being totally fine (ring was even loose) for a few days I suddenly felt a soreness and tightness on the inside of my forearm. I did MLE, and wondered. “maybe the weather reports were wrong--is there a storm on the way?” (My arm and my sinuses are great barometers). Checked the weather app on my phone and sho’nuff--those little stratus-cloud-and-lightning icons next to Sat. & Sun. And this morning it was gray. Had to go to the Immediate Care clinic to get my back biopsy bandage changed (I can’t reach it!) after I carefully and painstakingly showered. The nurse didn’t have any Tegaderm dressings (my derm used one over the pad-and-tape), and I'm sensitive to conventional adhesive, so she used a lot of paper tape and warned me it might not hold--and not to get it wet. Next time I’ll need her to change it will be Tues.--she said to bring my own Tegaderm. So I went across to Walgreen’s to buy some (yeesh, it’s pricy) and just as I was checking out....the heavens opened. Waited for it to ease up a bit and dashed as best I could to my car before my T-shirt could get wet and the bandage fall off. (Tomorrow, Bob can change the bandage; Mon., either my LE doc’s nurse or my housekeeper can do it--and she can also do Wed, Thurs., & Fri. Next weekend, I’ll be dependent on the clinic again. (Even if they start charging me, Medicare’s likelier to cover it than it would a visiting nurse).
Had to back out of a quasi-gig for tomorrow--a friend out in the far w. suburbs is celebrating 50 yrs. in music and I was to be part of a 20+-person lineup. But it’s an all-day thing (I was supposed to back him up at 2 but not do my own original till at least 6, and the “last dog dies” at 10) and Bob doesn’t want to go. Moreover, because the sutures are on my back, I have restrictions on lifting, reaching and stretching--not very conducive to draping my arm over a dreadnought-depth guitar, much less carrying it. I hope it eases up by Fri. night, when my songs will be the “muse” for Gordy’s improv troupe at the comedy collective he belongs to (three sessions of two songs each, and they will improve a sketch after each set). He will carry the guitar, of course. And he will make me look & sound good, because he’s running tech that night. It’s during the first night of Andersonville Midsommarfest--which used to be free (and my long-ago cover band used to play during the daytime). Now, it’s one of those interchangeable street fairs run by the city and subcontracted out to an event-booking agency--with regionally semi-famous bands playing the stages in the evening, people having to pay $5 and up just to get in, and beer-besotted millennials everywhere. Gordy fears that nobody’s going to want to pay to get into the fest and again into the theater (though I think there might be theater-only access on s side street) and nobody who paid to get into the fest is going to opt for a comedy show rather than the band whose songs they might have heard on the radio). I’m going to bill it as “come for the beer and the bands.....stay for the air-conditioning."
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The funeral went OK, though it was different. NO music, no photo slide show. I sat with Julie's angry sister and parents. Julie's daughters didn't call them to tell them their daughter had died, Julie's brother read it on Facebook and called his parents and asked "did you know Julie died", no, that was the first they'd heard. Julie's sister had gone to the car races with her husband (who is a racer) and they'd posted a selfie on FB (they live about 8 hours away from Julie). One of Julie's friends posted on Facebook for everyone to see "glad to see you're having a good time while your sister is suffering". It became my job at the funeral to keep her sister from flipping the bird to the woman anytime she walked by.
I had a great time at granddaughter's dance recital (she's 14). Her dance group is dancing at Disney in Florida. They've danced there before, but this will be her last time. I decided to join them! I went on line and got tickets on the same flight, and they got a free 4 bedroom house at hotels.com and had an extra bedroom. Nov 30-dec 5, I'm so excited!
Still a nervous wreck driving on these 3 and 5 lane freeways, will be driving back to Fargo after lunch today.
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