INSOMNIACS place to talk in the wee hours

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  • junieb
    junieb Posts: 945

    Wren - So sorry to hear about your niece. Will lift her up in prayer too.

    Shep - I use supplements that are certified natural (not synthetic), non-GMO and soy free. That said, the Turmeric I use is from Dr. Mercola.com The dose is 2 capsules, 1 time a day. It contains Turmeric & Ginger Root powders (certified organic).

    I contacted iHerb today AGAIN, because the last CS agent said they would be sending me a return shipping label within 24-48 hours, and I haven't gotten it yet. Since the probiotics are already spoiled, they are sitting in the original packaging waiting for the label. I've told them 3-4 times I am going in the hospital on Thursday. Today I told them that if I don't have that label by tomorrow afternoon, I will contact the BBB and file a dispute claim for the charge with my bank. I doubt even that concerns them though.

    I've dealt with iHerb for a couple years and it is just in the last several months things have gone down hill. They used to have live CS agents you could speak to on the phone, but now you can only contact them via their chat line. I suspect that the company may have been bought out or merged with another company, which might explain the sudden decline in their customer service.

    In regards to my half-sister, I am prepared to accept it if she chooses not to contact me. We share a father who was not a nice person and I don't know what her relationship was with him. She has always lived near him when he was still alive. I hadn't seen him since I was 2. So who knows what she may think my purpose is in contacting her now.

    Patty - Good to see you! Hope you're doing better.

    Smaarty - What type of small pillows are you referring to in your post to Wenchie? I ask because I am wondering if they are something that would be helpful to me after my surgery.

  • WenchLori
    WenchLori Posts: 1,027

    Smaarty, no I haven't gotten my small pillows yet. Honestly I forgot all about them until you reminded me. I sew a little, how small should I make them? I'd love a set if you can spare them!

  • WenchLori
    WenchLori Posts: 1,027

    Maybe we should start a traveling pillows thread? We can make some that can be written on with name, date etc and passed on to the next in line for surgery. They can add their name post a picture of the pillows and keep going until the pillows are filled up (unfortunately!) 🙁

  • Smaarty
    Smaarty Posts: 2,615

    the ones I received and made are about 7 x 12. Used under the armpits to add extra padding. I will get them made ASAP. I don't know if this size would help you JunieB. I know my sewing group made larger size for those having sx like hysterectomy. You're having hip, right?

    I like the idea of sharing if possible. It's been 1-1/2 since my last sx but I still use one of mine in the car because the seat belt bothers me on longer drives.

    Wrench, pm me your address. They'll come by priority mail. I'll let you know when they're in the mail.

    Wren, sorry for your niece, hope things are improving.


  • junieb
    junieb Posts: 945

    Smaarty - Thanks for the info. And yes my right hip is what is being done. So I don't think the pillows will be necessary. Thanks again.

  • Loveroflife
    Loveroflife Posts: 4,243

    JunieB, that is so frustrating and annoying with iherb. When is your surgery date again? Waiting with you to see if your half sis response.

    Lori, Spironolactone is an aldosterone antagonist. It can cause breast enlargement by converting testosterone to estradiol. It is interesting that there is no strong evidence that link Spironalactone and breast cancer, but there are reports of breast cancer in patients taking Spironalactone. What?!? We need more studies but who will fund it?

  • junieb
    junieb Posts: 945

    Loverly - Thursday, June 9th. Don't have time yet. They'll call me Tuesday or Wednesday with that.

  • Loveroflife
    Loveroflife Posts: 4,243

    Ok 👍...will keep you in prayers. Will you have access to internet in the nursing home?

  • Loveroflife
    Loveroflife Posts: 4,243

    Hey MammaRay! I was thinking about you while I was in the shower earlier. I'm sorry the headache and tummy ache is keeping you up. Hoping gamma knife is working and the headache is just a temporary side effect.

    Patty, hugs.

  • Loveroflife
    Loveroflife Posts: 4,243

    Thank you. I am good. Just a bit gassy (sorry tmi)....probably from eating two cloves of garlic earlier and a small portion of lasagna several hours ago. Other than that no complaints. Is your son on summer break? I remember you home school him. Hope you find relief for your headache soon. Nite nite and hugs.

  • feelingfeline
    feelingfeline Posts: 5,143

    MammaRay Heart

    Wren I hope your niece is doing better.

  • PattyPeppermint
    PattyPeppermint Posts: 8,950

    wren. Praying for your niece.

    Hootie hoo

  • WenchLori
    WenchLori Posts: 1,027

    Thank you Lover for the information on Spironolactone. Leave it to me to read the wrong article about it, I've learned something new today. How would one go about getting research started? Funding would be a great thing! Now, should I stop taking Spironolactone? As I mentioned I'm only using it to help stop my hair loss. Being bald would be easier to deal with than BC, but then again BC is already here.

    Sad

  • Loveroflife
    Loveroflife Posts: 4,243

    image

  • Loveroflife
    Loveroflife Posts: 4,243

    Lori, I am not qualified to advise you to continue or stop taking Spironolactone. I do think our self image does play a role in our mental health. There are many risk factors for breast cancer. Spironolactone might not be shown to be a risk factor in large population, but we really don't know for sure of the individual risk factor. Have you tried minoxidil?

    This is a pie chart of proposed budget for 2016:image

    Out of the &31.1 billion, NCI gets $5 billion +. Would love to see the piece of pie a bit bigger for research.

  • junieb
    junieb Posts: 945

    Loverly - I will be taking my cell phone & charger with me, so that will be my only access to the web. I've gotten onto this site once with my phone, but screen is small and difficult to read, but will still try.

  • WenchLori
    WenchLori Posts: 1,027

    Thank you Lover, I haven't tried minoxidil yet but I do use a shampoo and conditioner with peppermint and thathelps to stimulate the hair folicals.

  • shepkitty
    shepkitty Posts: 878

    Wren ~ hope you get some good news on your niece. Prayers sent.

    Patty ~ Good to see you :)

    Loverly ~ I've been worried for you! You tell us you're going on a little "getaway" and post a pic out the car window showing heavy traffic and a convoy of military vehicles......was there "something" you didn't want to tell us about? My goodness! I got my bargain tablet in the mail Thursday. I love it! I'm typing on it right now :) Best Buy still has them in on sale for 39.99 shipped. Highly reccomend, nice picture, lots of nice feature and runs fast. It can use wifi or a Sim card from Verizon. This is the first tablet I've seen that can be used as phone when the Sim is installed. Here's the link again:

    Insignia 8" Flex Tablet - 8GB Black NS-15T8LTE

    JunieB ~ How long will you be in the nursing home? You need to be online! Do I need to send you a tablet? ( Shhh, I have FFH's store charge card) Love the Monday Pom! I have a soft spot for Pomerainians. So cute and so full of spunk. Smart little doggies. Following Boo on Facebook is one of my guilty pleasurers! Have you seen pics of the "designer" Pom breeds? They are being cross bred with Huskies and German Shepherds. So wrong, but sooooo adorable!

    Purple ~ Your backyard looks heavenly! It must be soon nice to nap in the hammock. Hope the blahs fade away soon. Why can't some brilliant scientists create ways to turn all of our SEs into feeling great, looking marvelous? Have you started rads yet?

    MammaRay ~ (((hugs)))

    SAS ~' Did DS do his lawyerlie duty and fix things for Donnie?

    Big "Hey" to everyone :)


  • sas-schatzi
    sas-schatzi Posts: 15,889

    Wenchie, spiralactone/aldactone is not a beta blocker. I'm confused what made you think it was. I don't know everything, so I went and checked. And there is nothing related to beta activity. It has a very convoluted affect on the kidney aldosterone. But again nothing beta. It's common claim to fame is it's a potassium sparing diuretic. It used to be used as a last resort diuretic for kidney disease. But more recently as a first line diuretic versus Lasix/furosemide.

    The article is specific to a beta 2 blocker. The article has a good description. What the article doesn't say is beta2 blockade is absolutely contraindicated in asthma. Lethal. The most common drugs used have beta1 & beta 2 affects. i.e. coreg, carvidiolol, Inderal, tennormin. Here's a list it's simpler.

    http://howmed.net/pharmacology/beta-adrenoceptor-blockers/

    Starting to get to technical. There is an enzyme on the cell TNBC surface that has beta 2 receptors. By blocking the receptor it slows down cell proliferation. There that's simple

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Loverly, I took Micardis for a few years until I found out it was linked to BC. I wasn't happy. Also, I found out that HCTZ has a link to diabetes. I wasn't happy about that one either. Plus all oral hypoglycemic except metformin and starlix, lead eventually to type 1 diabetes. Wasn't happy on that one either. Of course the time I lost part of my colon b/c of Celebrex, I was the most unhappy. That's when I made up the phrase "All drugs have consequences". Not that that was wholly original to me, but it became a mantra.

    HI> MAMMARAY, sorry you are feeling poorly, praying sweetie. How lonf till Gamma ray is done?

    Wenchie, you can ask your doc to switch to another diuretic. BUT BUT have them read the article and maybe a low dose Beta1/beta 2 drug will accomplish what you need and it be a two for one drug. Definitely push the buttons on this one since you want off spirolactone. Who prescribed the spirolactone?

    I could go a speaking tour of how and why drugs are prescribed the way they. I won't. But seriously this would be a good time to ask for a drug that has a beta2 blocker in it.

  • junieb
    junieb Posts: 945

    Shep - A flex tablet is an interesting idea, but I don't know where I'll be for rehab or if they'll have wi-fi. Most do I'm sure. Plus any extra money I have I am putting aside for puppy. So, I think my smart phone will work well enough for now. I'll for sure be checking in. Also taking my knitting and hopefully a book or two. There are 3 David Baldacci books I want to read. Will check the local library tomorrow.

    It was 98 & 99 degrees here on Sat. Sun. and today is 95 degrees. UGH! AWFUL, AWFUL, AWFUL! All I can say is I am so glad we weren't alive a 100-150 years ago when women wore those petticoats and full dresses. Can't even imagine.

    Oh yeah, almost forgot, I agree that mixing breeds is just a crime against nature. A Pomeranian and a larger dog like you listed, just so wrong. The Pom's are already cute enough just the way God made them.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    OH Junie, so funnie about the breed thing. I didn't see a pic, But all breeds came from breeding different dogs with certain characteristics to get to another breed. But I know you know that. Where I object to breeding is when they go for looks versus health and smarts. Or they don't recognize that inbreeding allows for genetic defects that cause for too many problems. One breed is the Bernese Mountain Dog. I became entrance with the breed because of a documentary. Looked at their bio, not good health wise. http://www.bmdca.org/health/diseases.php Not good.

    But I so seriously loved all my dogs, as we all do. I wish I had cremated all of them so they could be with my ashes, that will eventually be blown to the wind.

  • sas-schatzi
    sas-schatzi Posts: 15,889

    Donnie was so funny with the blow coming. I asked if it was right or left coast. He prepared for several days. I kept saying is it on our coast. I got interested about 4:30 this afternoon. We had heavy rain for a total of about 40 minutes. The west coast of Florida was much more impacted.as was the north of Florida east coast. Very lazy. But we have a long season of storms. Learned long ago, lay in supplies in June for the whole season, then only pay attention when it's serious to our area, otherwise it can make one too crazy.

    Donnie broke one of my special pieces of glass tonight. Took me a bit to get over it. Bummer. But it does support why special glass must be used versus put in a cupboard. Can't enjoy their specialness stuck away in a cupboard.

  • shepkitty
    shepkitty Posts: 878

    JunieB ~ Sounds like you're having a Carolina intro to Summer! Do ya'll all have central AC like we do here? I would still like to dress like the Southern Belle that I am - I'd clip some little fans to the hoops in my skirt though! I'm such a tech junkie....I carry a separate tote for my "toys" for all my doc visits. For an extended stay I'd need a little suitcase! I'll hold on to FartFace's charge card just in case ;) Let us know about the rehab.

    Here's Mya the Pomsky, she looks like a fox!

    image

    I totally do not condone the mixing...........but I totally would love to have one of these babies!

    imageimage

  • wren44
    wren44 Posts: 8,075

    You never know which traits they'll have from each breed. We fostered a Pit Bull - Basenji mix once. Hard-headed but sweet. And we found her a great adopter. They wanted a medium sized, crate trained dog to take on their private airplane.

  • shepkitty
    shepkitty Posts: 878

    Basenjis are tough little buggers. Must have gotten the sweetness from the Pitt side! Pitties get a bad rap. All my years of training I never came across a mean or aggressive one. All were big mushes. Funniest one was a little pup that was totally doted on by her parents. They brought her to each class wearing her pink jacket and little pink bows in her "hair". Wish I had taken pictures!

    One of the prettiest mixes I've ever seen was a Chow/German Shepherd. She had the Shepherd markings, the round Chow face and the pouffiest, softest fur. She was like a big teddy bear! Nice temperament too.

    Berners are such lovely creatures but so genetically flawed. They really shouldn't be bred at all, it's too cruel. I have a neighbor that had one. Sweet dog, ass of a owner. She was seen as an investment. The owner spent thousands of dollars to have the dog repeatably artificially inseminated. The poor girl suffered many miscarriages and stillbirths. The one pup born alive only lived a few days. Heartless, heartless owner. Berners only live for 7 or 8 years.......so sad.

  • shepkitty
    shepkitty Posts: 878

    Here's Boo and Buddy to make us smile again.......

    image

  • shepkitty
    shepkitty Posts: 878

    Sas ~ Oh No! Is Donnie sleeping in the car tonight? So sorry it was one of your "specials" that got broke :( How bad is the storm down there? SC is supposed to get it in the wee hours tomorrow morning. We've been lucky and haven't had a major storm since Floyd in '99. Charleston will get nailed sometimes but the way the coastline shifts, along with the way the gulf stream flows, Myrtle Beach will miss a lot of the bad stuff. The storms will skirt by us and then wallop Cape Hatteras.

    I've been laying kinda low the past few days processing my latest turn of events. I saw the new RO Wednesday. I really like him. He gave DS and me a thorough "tour" of my spine on his big computer screen. Excellent at explanations and very easy to talk to. He spent about an hour with us. My spine is falling apart again and I need to have surgery. Maybe within the next 2 weeks. Still waiting to hear from the scheduler. I have two vertebrae that each need radiofrequency ablation and kyphoplasty procedures. One of the vertebra is the one that had the oops with the broken metal thingy last year. There wasn't enough cement injected into one side and now it has shifted. The top of L3 now has a Schmorl's node, which looks like a scoop has been taken out of the vertebra. This was caused by the downward pressure of the L2. L2 is quite damaged. Some of this is from progression of mets. Progression of mets in L5 has resulted in the vertebral body being mostly filled by cancer. Untreated my spine will collapse. Cement is my only option - nothing to bolt rods or pins to. Lots of other really f'd up stuff in the rest of my spine and neck; taking it one step at a time.

    I've had a large area of redness on my defective breast along with pain and swelling since about February. I had an ultrasound, mammogram and a punch biopsy which showed nothing to indicate IBC. I had two rounds of antibiotics, which reduced most of the pain. My auxiliary nodes are still sore and a little bit swollen. The redness is still there but has faded some. Ugh. MO is following up in July and will decide then if the Femara is failing. Seeing all the shite in my spine has me nervous and worried that I need to switch to a different AI now. Wait and see, wait and see.....lots of that going around lately. Thppppp.

    DS is going for an ultrasound this week to see if his gallbladder needs to come out. No one on my side of the family still has theirs. Poor kid :( Bad timing for my upcoming back stuff. Much prefer to have him with me for my med stuff than FFH. Oh well.....maybe we can bunk together during our recoveries......

    Okay, enough of this "stuff". Here's my other FaceBook fave posing with her Dude:

    Lil Bub!

    image

  • lookforward
    lookforward Posts: 372

    Wren thinking of you and wishing your niece a full recovery.

    Shep cute dog pictures, your knowledge is admirable. What dog breeds do you recommend, I prefer smaller breeds, especially since I'm still carrying my dog up and down stairs Glad you are enjoying your tablet, I love my tablets, I download books and movies from hoopla and overdrive. I also have zinio for magazines. I never thought I would become so tecky my family is amazed.

    Junie we had 30c here today, but compared to you that is cool. I haven't read David baldacchino, he is my husbands favorite author .

    Sas did the storm miss you.

    Mamma Ray hope you are feeling better.

  • shepkitty
    shepkitty Posts: 878

    Hey Lookie!

    Your baby looks like she would be heavy to tote up and down the stairs! We do what we have to for them though :) Little dogs, hmmm....they really become more of a personal choice than the big ones. I like Pomeranians, Shelties, Shiba Inus. King Charles Cavaliers are nice too. I also really like Australian Shepherds - compared to my giantess, they are small breed!

    Neuropathy......hate it. I'v got in in my left arm and lower left leg and foot. My foot will get so numb it feels like frostbite and hurts! My leg is caused by pinched nerves in my spine. My upcoming kyphoplasty may relieve it somewhat. My arm is a combo of nerves being pinched by my neck and lymph nodes. Does your doctor know about your legs? Some meds and chemos can cause the numbness. Or it could be a pinched nerve somewhere in your back. Some people get relief from Neurontin, Lyrica or Cymbalta. Fingers crossed you will find an easy fix. With numb feet you have to be so careful where you step and not to loose your balance. I keep stepping on the kitty and dog.....you'd think they would'a figured out to move by now! Smart pup you have - being carried on the stairs is the best way to stay from underfoot :)

    Did your baby's bloody diarrhea stop? Did you find the cause? (DOG poop Sas - not people lol ) Hope you had a nice getaway. Are you a "traveler"? I love getting away and exploring, even if it's just a day trip. I get antsy if I stay put too long. Haven't done much adventuring in a long while. I have lots of ants in my pants. (not really!)

    Off to put my ants and other critters to bed.

    Good Night!

    Edited to say complain away - it's nice to have someone to commiserate with. Lil Bub is a sweetie. She is a famous internet cat who was a special care rescue. Her owner refers to himself as Lil Bub's Dude. He is an incredible person with a huge heart. He and Bub make personal appearances for charity and have donated thousands of dollars to animals in need. http://lilbub.com/ and her FaceBook page are happy places to visit :)