Can we have a forum for "older" people with bc?

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  • threelabs
    threelabs Posts: 1
    edited October 2016

    I was just diagnosed on 10/18 with BC. I am 63 and would love to join a group like this. As I am just beginning this journey, I look forward to finding some answers to my questions as they arise.

  • illinoislady
    illinoislady Posts: 46,506
    edited October 2016

    Welcome three labs,

    Sorry that you had to look for this club but we are here for you and will offer whatever we can to help you along the journey and path you, like so many of us, were forced into. We have forged great friendships and deep support and I think we are all stronger for it. Come anytime and often. The door is always open.

    Blessings,

    Jackie

  • moderators
    moderators Posts: 9,719
    edited October 2016

    Hugs to you, threelabs. We are all here for you!

  • darab
    darab Posts: 895
    edited October 2016

    Welcome Threelabs, Goincrzy, and Tata to this thread. I think it's helpful to have women at such different stage of this journey. Those who have been here for so long really help guide those of us just starting out. I've found every single thread I've visited to be helpful, informative, and supportive. Come back often!

  • ritajean
    ritajean Posts: 4,042
    edited October 2016

    Great picture....Ann and Bonnets! I'm so glad you could get together!

    I am headed out early tomorrow morning to meet my son in Columbus, OH We will then ride in together to Cleveland. I am so excited. I have been a die-hard Cub fan from day one and he bought us tickets to the first game of the World Series in Cleveland Tuesday night! I just sat and cried when he called me to tell me. I never dreamed that I'd get this chance in my lifetime! GO CUBS!

    Carole, I also enjoyed The Girl on the Train.....but there are very few books that I don't enjoy!

    Welcome to the newbies on our thread. This is a good place to come for info, comfort and companionship. The gals here are awesome!

    I have a crock pot full of chicken and noodles cooking in the kitchen and I need to finish it off so I need to get off this computer. I spend way more time that I should on it!

    Hugs to all of you.

  • Seedsally
    Seedsally Posts: 141
    edited October 2016

    Welcome three labs. Just come by anytime. Learn all you can because knowledge is power.

  • carolehalston
    carolehalston Posts: 9,018
    edited October 2016

    Welcome, threelabs. We hope to be here for you, as the Moderators said.

    Today I cleaned the porch and patio with our small power cleaner. Then I ironed for a short time. Wow! I'm impressed with myself!

  • Goincrzy8
    Goincrzy8 Posts: 79
    edited October 2016

    You ladies are awesome. You that have been thru everything, here to help us newbies who starting a new journey that we dont want to take. I too amazed at the women that are here. How sad that they cant find a cure for this. My BFF was the first person I told because I needed to tell someone and she knew me enough to come rushing home and offer me that glass of wine.She told me she would be there Wed for the oncologist. I just want to know what is growing in this dam boob of mine. My son and daughter in law will also be there. This past week of waiting is BS and so scary and frightening. Every ache now I am oh crap has it spread, is it just in by breast. This waiting is the worst.

  • illinoislady
    illinoislady Posts: 46,506
    edited October 2016

    All that we are is the result of what we have thought; it is founded on our thoughts, it is made up of our thoughts.If a person speaks or acts with a pure thought, happiness follows him or her like a shadow that never leaves. -the Buddha

  • illinoislady
    illinoislady Posts: 46,506
    edited October 2016

    Goincrz,

    Had a whole post and it flew away at the last moment. I think sometimes my fingers get ahead of me. Good for you. You are venting and you NEED that release. Cancer isn't fair, in fact it's darn sneaky. Just know this --- the waiting is horrid. I think to a person we all had major dislike of having to go through hours of being adrift -- feeling out of control with no anchor.

    It will all come but some steps are indeed difficult and hard to bear. In fact, I think every pain/ache is scary -- but you know, one of the worst things about cancer is that it doesn't hurt. It doesn't ache. Nothing to warn you that it has come and in fact been with you perhaps for yrs. Once you have everything identified and have formulated a GOOD plan you will feel much more in charge of things --- way less as though you are just adrift not having any place to land.

    I have so much more I said, but I don't think I can duplicate just know. We are with you and sending strength and positive energies to keep you as level as possible.

    Blessings

    Jackie

  • puffin2014
    puffin2014 Posts: 979
    edited October 2016

    Welcome to the newbies. I've was diagnosed 3 years ago when I was 62, had a lumpectomy, then had chemo because my oncotype score indicated my cancer was aggressive even though it was small and my lymph nodes were clean, and then radiation.

    My overall thoughts and suggestions: Don't read every article on the internet you find about breast cancer, you'll just get confused about all the conflicting and scary stuff out there, you'll find everything you need here on this site - up to date and accurate informational articles, and a great variety of forums. Join the forums that apply to where you're at in your journey and mark them as favorites so you can find them again. Don't look too far ahead and try to solve all the "what if's" - it's a waste of time and energy. Deal with what you have control over right now, mobilizing your support system, preparing your questions for your health team. Go to your appointments with your questions written down, and start a folder to keep track of everything.

    Ask each of your doctors if it's OK that you record your appointments with your smart phone/iPod. They cover so much info it's hard to take it all in, and even having a second person with you isn't always the answer. Lew wasn't very good at taking notes and often neither one of us good remember everything that we'd been told. It was several months between my first visit with the radiologist and when I finally started radiation, and it was so helpful to go back and relisten to that first session.

    It will get easier as you learn about more about what you're dealing with and a definite plan is developed, Ask for copies of your pathology reports after your biopsy and surgery, You have a right to them, and it will help you research your options, and it'll help us answer your questions. Knowing your stage and grade, and whether your tumor is hormone dependent, is very useful.

    One step at a time, take a deep breath, and don't be reading about chemo if you don't even have your biopsy results yet. You may not even need it.


  • carolehalston
    carolehalston Posts: 9,018
    edited October 2016

    Great advice, Puffin.

  • Goincrzy8
    Goincrzy8 Posts: 79
    edited October 2016

    So tomorrow I go to oncologist. What information can I expect from him? Will he tell my type, etc. I have only had biopsy following the ultrasound. So not sure just what he is going to tell me. After that I will call surgeon and make that appointment. You ladies are such a great comfort knowing that others have been in our shoes.


  • ElizabethAM
    ElizabethAM Posts: 202
    edited October 2016

    Goincrzy --- He will tell you many things that you may not understand right away.... Find a free tape recording program for your phone and tape your whole session with the doctor.... Then you can listen to it when you are not stressed and review what he says with the information on this web site about types of cancer and treatments....

  • joan811
    joan811 Posts: 1,982
    edited October 2016

    Jackie, When I read back today, I found your quote about words...it is so true. Words are just our "models" of real life ideas, feelings, and actions. There is so much going on behind our words!

    Ritajean, I am on the edge of my seat watching this Cubs game. It must be tough to watch them fall so far behind. I am glad you got to go to the game. I have been to a few World Series games in NY. Safe travels!
    ChiSandy, I am a Yankee fan rooting for the Cubs. They earned it and I want them to make history! Enjoy the pulse in the city. My son lives there and he texts me now and then to describe the vibe.

    Carole, I am glad to hear you are playing golf at home again. It sounds like your mother is doing well at her residence. Do you have a change in the weather in fall? I just pushed my thermostat up for the first time this year. It is in the 40s outside.

    Goincrzy8, I am glad you found BCO and this thread. This experience with other women who face surgery meant so much to me when I was diagnosed. There should be a thread for women like you who are being diagnosed this fall and who have surgeries scheduled. But stay here too!

    Meeting with your MO can be informative. The things that you hear may not be easy, as no one wants to go through surgery and treatment.

    Things you can ask would include a complete explanation of your initial biopsy result. Your cancer should have been graded and typed which gives the MO information regarding possible treatments. You can ask for a copy of your biopsy report. Any words, acronyms, or numbers you do not understand can be looked up on informative sites such as this.
    Note that your stage of BC is usually determined after surgery when the entire tumor is analyzed. There could be a few changes after the surgical biopsy.
    You can ask about treatment options at the medical facility you choose.
    You can ask about testing such as the Oncotype score which is a recurrence score for early stage cancers. The score is also useful for guiding treatment decisions.

    Most MO offices have written material for patients to take home to read.
    I wish you a good appointment that answers your questions.

    Anne and Jean, it is so great to see your photo of your meet-up. You are both special ladies, and even better together, I'm sure.

    Heading off to get sleep and face a long work day tomorrow.

    Joan



  • chisandy
    chisandy Posts: 11,646
    edited October 2016

    You won’t get an OncotypeDX test ordered until your final surgical path results are in. The test is almost never ordered on initial biopsy samples because the information (hormone receptors, HER2 status, size, grade) can change and the core sample isn’t always representative of the whole tumor. And it will also be necessary to find out how many nodes, if any, are involved—if more than 3, chemo is a given (as it is when the tumor is ER- &/or HER2+: for the latter, targeted therapy such as Herceptin is not given without chemo). It’s unusual to meet with the oncologist before the surgeon, unless the tumor is large enough that they’re considering shrinking it with neoadjuvant chemo (or for ER+/PR+/HER2- patients in a trial right now, neoadjuvant endocrine therapy) in order to be able to do the least extensive surgery.

    Going off the radar for awhile—have to leave for Iowa City tomorrow and will be busy during my music conference through Sunday (may have to stay over Sun. night if it gets too late to drive home after my concert). Spent all evening trying to print out business cards & handbills (still need to cut the latter to postcard size—hope I can make the hotel's business ctr. in time or locate my buried paper cutter before I hit the road), and still need to pack (incl. my meds, which is truly tedious) before going to bed. Didn't help that I had to shop today for the Halloween candy in case I don't get home till Monday. My Cubs got crushed tonight—probably because I bought the hats & t-shirts today.


  • Goincrzy8
    Goincrzy8 Posts: 79
    edited October 2016

    Well today I find out all the future stuff. I thought I would be fine but find myself in that crying stage. I guess the fear of the unknown. I only have the appointment with MO first because they called me right away. The BS called a couple days later, and I asked her who I should see first. She said see MO first and bring records to us after your appointment. I just am tired of the limbo land. Again, I have no choice but to sit an wait. All things happen when they are supposed to.

  • Seedsally
    Seedsally Posts: 141
    edited October 2016

    Goingcrzy. You are taking another step today. Please have a notepad and pen. Jot anything down you think you may want to think about later. No question is too insignificant to ask any of the doctors. Remember that. And good luck! You are on this journey now that we are all traveling together. Warm thoughts to you!


  • illinoislady
    illinoislady Posts: 46,506
    edited October 2016

    "Let us be grateful to people who make us happy: they are the charming gardeners who make our souls blossom."

    – Marcel Proust

  • carolehalston
    carolehalston Posts: 9,018
    edited October 2016

    Goingcrzy, I hope everything has gone well for you today as you begin to learn your medical situation. I knew nothing about bc until I was a "victim." Knowledge helps a lot.

  • Goincrzy8
    Goincrzy8 Posts: 79
    edited October 2016

    So for some reason I feel 100% better today. Oncologist is a young female, I liked her . I have the most common breast cancer IDC after breast exam she feels that I would probably benefit from a lumpectomy with radiation, which is what I have been praying for. But we will see what the surgeon has to say. She did say I would need hormone therapy I do have the pathology but it doesnt make sense to me, so I will wait till the lab post it on my account so I can see the full report. Here in CA it takes 14 days after the physician see its.. She wouldnt let my daughterin law tape the conversation so from the notes she took, I am relaying the converstion....GOSH just knowing is so much better.


    thank you ladies for being here.

  • sandra4611
    sandra4611 Posts: 1,750
    edited October 2016

    I haven't been here in awhile. Right now my husband Mike is in ICU with a TBI (Traumatic Brain Injury.) He was walking with a cane in the kitchen, suddenly lost consciousness and fell straight down on his face on the concrete floor. The sight of him lying there in a spreading pool of blood was something I can't get out of my mind. I thought he was dead but right after I called 911 I heard him choke. Blood was everywhere since Mike's platelets were so low his blood wouldn't clot. I tried to keep up with it to give him a way to breathe. He has a hematoma in the portion of his brain that controls speech. This is day 5 and his condition has improved to "guarded." His heart was misbehaving as well, but is ok today. He is getting two spectacular black eyes, lots of discoloration on his face, a broken nose, busted lip and chin.

  • chisandy
    chisandy Posts: 11,646
    edited October 2016

    (((Sandra & Mike))). When it rains, it pours. Prayers that he makes a full recovery.

  • wren44
    wren44 Posts: 8,075
    edited October 2016

    Sandra, Sending good wishes and healing thoughts. You two have had way more than your share of troubles. Hugs.

  • bonnets
    bonnets Posts: 737
    edited October 2016

    Praying things will start to look up for you both, That God will give you strength to deal with this last hurdle. Jean

  • Goincrzy8
    Goincrzy8 Posts: 79
    edited October 2016

    I am sorry to hear this, prayers to you

  • puffin2014
    puffin2014 Posts: 979
    edited October 2016

    Goincrzy8, I'm really surprised your MO wouldn't let you tape the appointment, she's the first one I've heard that's refused. Don't give up on asking your surgeon, explain that they cover so much information so fast, and when you're under stress it's hard to get it all the first time and you just want to review it again when you get home. It's not like you're preparing to sue her.

    Sandra, I'm so very sorry, that's the same thing that happened to Lew and I remember that growing pool of blood vividly. The nose is so vascular that falling on your face causes lots of bleeding. Did they do surgery to remove the hematoma or wasn't that an option for him? My prayers are with you both.

  • illinoislady
    illinoislady Posts: 46,506
    edited October 2016

    Doing nothing for others is the undoing of one's self.We must be purposely kind and generous or we miss the best part of life's existence.The heart that goes out of itself gets large and full of joy.We do ourselves most good by doing something for others. -Horace Mann

  • illinoislady
    illinoislady Posts: 46,506
    edited October 2016

    Sandra, I'm so sorry to hear this but hope is a fantastic thing. It is always there waiting for us ( once we have regained some of our own senses ) to pick it up. The Dr. I work for had a TMI ( fell off a ladder 12 feet down ), so while it may look horrendous the outcome can be okay. Just that you have had such a plateful that it really does seem majorly un-fair for the burdens to increase again. Lots of hopes and prayers and positive healing energies.

    Goincrzy -- glad you are now on this side of your appt. It does make a difference when information starts coming in and you can begin to feel like you are not stumbling around in a fog completely adrift and totally un-prepared. Each step gets you closer and closer. As far as the hormone therapy I not completely sure either --- too long ago since my dx. I guess. Right at his moment I would say I think she may be talking about a 5 yr. pill therapy that a majority of us do.

    It is a pill that basically cuts off any errant cancer cell at the pass. In other words, it just can't develop and dies. We have lumpectomies, and then radiation, and then sometime after that start the pills. The way it was described to me long ago is that it was like insurance. You want to take every possible avenue to make sure that what you have done so far is covered as much as can be and the pill ( should some cell have been missed ) will likely be the thing that would take care of that. I didn't think twice --- wanted anything and everything that would get cancer out of my life and so I took Anastrozole ( that is generic Arimidex ) for 5 yrs.

    Glad you are headed in the right direction.

  • Goincrzy8
    Goincrzy8 Posts: 79
    edited October 2016

    Yes she said Arimidex, for 5 years. I am ok with that. I did ask if I could still have my wine as a friends mom is on a medication where no alcohol is allowed. Which is fine with me also, but I do enjoy a drink now and then. My BFF and I when having a stressful day will text and ask if they want to wine tonite. So today I feel myself, but only with that dam "C" word in my life now.

    The unknown is what makes us feel out of control. Hard for a strong independent woman who likes to be in control.

    You ladies are the best, can't say that enough.


    Sherry