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Any Long term two time breast cancer survivors out there?

saadia1
saadia1 Posts: 12
in Second or Third Breast Cancer

Hello

I was diagnosed with breast cancer (Triple positive) in 2017, went through the whole gamut of treatment - masectomy, taxol / Herceptin and 5 years of tamoxifen. It was classified last stage 1 early stage.

Two years after I stopped tamoxifen, I got diagnosed with breast cancer again. This time it's ER/PR positive but Her2 negative, stage 3

I am currently started undergoing the whole range of systematic treatment again - chemo, surgery, radiation, hormone therapy.

But I am so depressed. I don't know if it's worth it.

Looking for hope and light.

Please anyone out there who is a long term survivor of Breast Cancer twice, Please reach out and share your experience.

Thank you

Comments

  • starbridge
    starbridge Posts: 24

    Look up 7of9 - she has had a couple of brushes with breast cancer- slightly different story from yours but one that will give you hope. There is also a post on the Success Stories thread where someone had their first BC in the 30s, a second in their 50s and were still going strong in their 70s.

    I would be demanding lifelong tamoxifen/AI in your position.

    What grade is your current cancer? Have you a family history/had genetic testing?

    Wishing you all the very best with your treatment. Hang on in there. We all feel very bleak at the start of the stage 3 journey but it does get better.

  • malebreastc
    malebreastc Posts: 112

    I have been around for more than 20 years, first diagnosis Stage 2A in 2004 and second time Stage 4 in 2021, I was asked to stop Tamoxifen after 14 years and 3 years after stopping had a recurrence.. now u am on Faslodex and Ibrance and am doing perfectly fine for more than 3 years. I know how you feel, just hang in there and it will be fine..

  • maggiehopley
    maggiehopley Posts: 191

    She hasn't posted on here in a while, but mavericksmom has had breast cancer 3 times- twice in one breast and once in the other. As far as I know, her treatments were all successful, and I assume that she's not posting because she has moved on and is living her life.

  • saadia1
    saadia1 Posts: 12

    Thank you for the responses. I will look up the two contacts provided to see if I can some more info. Fingers crossed.

  • ts542001
    ts542001 Posts: 39

    just saw this post. was first diagnosed in 2001 at age 46 invasive ductal ca right breast, stage 1, dcis left breast - treated with chemo "light" and aromatase inhibitors for 5 1/2 years

    next cancer diagnosed 4/2019 routine MRI showed invasive cancer, at same time severe back pain diagnosed as bone mets, treated successfully with keytruda, which i am still on

    and finally november 2024 diagnosed with stage 2 invasive ductal ca. on aromatase inhibitor

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