Stage IV MBC Fitness

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  • threetree
    threetree Posts: 2,408

    I tried a short walk yesterday (day after liver biopsy), but turned out it wasn't a good idea. I thought I would only essentially go around the block on nothing but flat sidewalk, and not at all attempt my usual 3 miles with a couple of moderate hills. Well I only went about 3/4 of a mile and by about 1/2 way into it, I knew I'd made a mistake. The biopsy area was feeling sore and getting worse and then I got a little lightheaded and felt generally not good. That "listen to your body" feeling just said "head home now". When I got home I took my vitals and my blood pressure was down to like 98/58 and stayed in a similar spot for about the next 2 hours. I read that it wasn't unusual to get low blood pressure after the procedure and that it's usually temporary. They say that as long it doesn't come with other bad stuff like bleeding, it's not really anything to worry about. My blood pressure didn't come back up until I took time out to just sit up in bed for about half an hour and do nothing but scroll on my phone. I don't think I'll try walking again until the week-end at the earliest, and then I'll only go a little way. This has me frustrated because just hanging around my apartment I get bored, bummed, and tired and achy. Those walks help all of that, but I think I just need to stay in for a few days now. Oh well.

  • chicagoan
    chicagoan Posts: 1,383

    @tougholdcrow How wonderful that you were able to do the 40 minute swim! It must have felt great. Good for you!

  • aj
    aj Posts: 387

    @threetree did they give you any painkillers to take home? They gave me 5 oxycodone which really helped. That pain is weird, I felt it in my right shoulder.

  • threetree
    threetree Posts: 2,408

    @AJ - No, they didn't give me any painkillers and they implied that this was usually a pretty straightforward "go home the same day" and rest and you'll be fine tomorrow sort of thing. From what I'm reading online that is definitely not always the case. I've read about the pain in the right shoulder than can happen. Apparently there is a nerve in the liver area that refers to the right shoulder, and it can be affected by a biopsy. I'm sorry that happened to you. I'm also reading about low blood pressure problems that can come with it. Most things I read say to give yourself a good week to feel back to normal, but the medical people were talking more like 24-48 hours unless you wound up bleeding excessively or got an infection. I've had none of those problems, but I am just plain sore and very tired. I think they did say I could take Tylenol if I felt the need, but I haven't done anything like that at this point. I am a bit better today, and I think I'll be fine overall. I just wish they had given a more realistic picture of what happens instead of downplaying what might be some common realities for a lot of people.

  • olma61
    olma61 Posts: 1,085

    Hi all, just a quick check in since my last visit here…I’ve been pretty consistent with my exercise, not going as hard as I would like to but I’m hanging in there. I’ve been going to the pool in our community a couple times a week. We have some equipment there we can use, I’ve been using the hand buoys as strength training as well as doing a little swimming and water walking and it feels great!

    Still using my exercise machine for at least 10 mins just about every day. Not sure if I said it in the other thread but I have a Gazelle Glider, one of those infomercial items that for me turned out to be very useful. It’s similar to an elliptical workout but less stress on the knees for me and zero impact on the feet. Very helpful when I am having a stiff or achy day.

    My little 3yo grandson saw me doing wall push-ups in the garage one day and wanted to join, now we are doing walking and calisthenics every day together in the garage. He will ask every afternoon if I want to do wall push-ups! My little personal coach ❤️

  • chicagoan
    chicagoan Posts: 1,383

    @olma61 Love the image of you and your grandson exercising together! Never heard of the Gazelle Glider before. I'll have to check it out. I've been doing water aerobics too recently-it feels really great.

  • gailmary
    gailmary Posts: 619

    Olma61, that's great that your keeping up with your exercise and that you have that little personal coach. I can only wish.

    I finally got a good walk in today at 2.5 miles. Weather has been agreeable here.

  • tougholdcrow
    tougholdcrow Posts: 477

    My heart goes out to you, @threetree , and I hope you are on the mend soon. For those of you swimming, I just recently got back to that after a couple of years of not swimming, and it really does make me feel pleasantly relaxed. I'm a pretty strong swimmer, but it used to really affect my hip, probably because of bad form, but I'm more aligned because of Pilates. My back has been killing me from too much sitting in a car, but getting back to Pilates today really helped with that. I'm a true believer.

  • brutersmom
    brutersmom Posts: 1,132

    I am glad to see everyone is keeping up with exercise. I still do weights and cardio 4 xs a week. My daughter's pool is finally repaired. Went swimming today for the first time. Pool needs to warm up. The last few days have been chilly. Hopefully it will be more like summer this week.

  • rlschaller
    rlschaller Posts: 728

    here is a nice 20 min cardio I love - incase you can’t get out to swim, or walk today. ❤️

  • threetree
    threetree Posts: 2,408

    @olma61 - I absolutely love the story about your grandson! So sweet. I wish I had something similar in my life. I've never tried machines except for a treadmill once in a blue moon. Your Gazelle Glider sounds interesting and very useful. So do the hand buoys in the water. It's so good that you just really stay on all of this.

    @gailmary - So glad to read that you got a good walk in. That's the kind I think are good too, those ones that are a good 2-3 miles.

    @tougholdcrow - Thanks so much for the sympathies - they are very appreciated. I think things are finally improving. It will be a week tomorrow since they "did the deed". I tried walking that day after, but it didn't go well at all, so I've stayed in for days. Just yesterday, I did venture over to the grocery store, as it's only 1.5 blocks. That worked out so well yesterday morning that I went back again in the afternoon. I figure it gave me 1/2 mile total for the day 😉. When I get done here with my tea and reading, I am going to go out and try a real walk again. There's an almost totally flat area in the residential neighborhood nearby that makes for a good 1.5 - 2.0 mile loop, and I think I'll give that a go. I normally find it "too easy" and not as long as I like, but it's perfect for times when I'm not feeling quite up to my normal self. If this goes well, I'll try a bit more tomorrow.

    So many swimmers here! Good for you. I just can't get myself to go through all the finding a bathing suit, driving to a pool, clothing changes, showers, etc. that seems to go along with a pool visit. I'm glad that it might be unique to me, and that most people aren't bothered by it. I think actually being in the water is great. If I could just snap my fingers and have that part of it, I'd do it too.

  • threetree
    threetree Posts: 2,408

    Well my "easier" walk I was going to try a few days ago worked out fine, although I could feel it, after a week of not walking. The next day I took it further and got about my whole preferred 3 miles and the 2 small hills back in. That too worked, but I was extra tired. Not able to walk yesterday as had a lot errands to run with the car. Dr appts. today, but hoping to get back to the regular walking again tomorrow. Getting back to it after that biopsy, slowly and steadily.

  • tougholdcrow
    tougholdcrow Posts: 477

    It's great that you can get moving so soon after the procedure, @threetree . I'm back from vacation and going about my usual schedule of walking the dog and doing pilates. Nothing very interesting to report.

  • chicagoan
    chicagoan Posts: 1,383

    After these months of right hip problems, my poor left leg developed something this week. I got an x-ray-supposedly nothing's wrong but it hurt for a few days to bear weight and I had to use a cane to walk. But I was able to get in the pool today for water aerobics. Felt really good to move. I'm a little sore now but it's a good sore.

  • aj
    aj Posts: 387

    I swam on Monday, exercise class on Tuesday, mile and a half on Wednesday, and 4 mile walk today. Whew!

  • tougholdcrow
    tougholdcrow Posts: 477

    That's impressive, AJ! @chicagoan thank goodness for swimming, since it's so much easier on the body.

  • threetree
    threetree Posts: 2,408

    @tougholdcrow - Hey, walking the dog and doing pilates is great; doesn't have to be especially interesting (although I think walking the dog could be interesting at least sometimes). Sometimes just routine and "no big deal" is where it's at! Good for you.

    @chicagoan - I didn't realize your hip was that bad. You've always sounded so spry to me. Good that the x-ray didn't show anything; maybe just some "overuse". Glad to read that yo got in the pool. I've heard that water exercise can be absolutely the best for stiff and sore muscles. Sounds like it really helped a lot.

    @AJ - Wow - you've really been at it. Sounds good and fun.

  • chicagoan
    chicagoan Posts: 1,383

    @threetree I had a fantastic lifestyle until a PA decided I should no longer be on an NSAID. I was on Celebrex. I ran out of pills in March and the pain set in. I was able to go on Diclofenac for a month in May and was back to being able to walk 5 miles and play pickleball. Another PA refused to renew that prescription. I will finally see a new primary care doctor at the end of the month and want to discuss this. I can get diclofenac online from doctors who have never seen me but I'm waiting to take it to see if there is a way to monitor the risk. In the meantime I have been doing PT and acupuncture, taking Chinese herbs but my mobility in my hip is very limited. It is now a slog to walk even a few blocks. It's been a frustrating summer with walking being so laborious. I also have scans in August. Naturally I am wondering if it is more than arthritis or is the cancer is active again in my hip.

  • mara51506
    mara51506 Posts: 7,161

    I am checking out you tube senior shape exercises because overall anything I do is usually indoors. I like all of the videos thus far, still like Leslie Sansone and Paul Eugene senior gold 10 min video which I do while standing.

    I used to be in better shape just a few years ago, tripping over stuff outside and falling, being unable to stand up again caused more fear but I have canes and walking sticks from @chicagoan which mean I am less likely to actually fall. I need to put on the big girl pants and get to it. I still want to walk to the mall that is a 5 mile walk roundtrip. For now, need to work inside while housework happens. Overheating was a problem but I do have full protection, neck fan and hip fans as well, evaporative head bands and also water. No real excuse anymore. Those are goals, need to start with small steps first and go about it later. I have to stop telling myself I cannot do it and just do it or start with the indoor stuff first then move to short outdoor walks. Indoor walks are no issue for me as I do it with DB visits and his grocery shopping. I will see how exercise fits in with other activities I do.

  • tougholdcrow
    tougholdcrow Posts: 477

    Five years ago, I was at a "high" aerobic fitness, or at least according to Apple watch so who knows. I want to get back there. Right now, I'm at a slightly above average fitness. I was reading that "Japanese walking" is a good way of increasing fitness, so I'm going to try it. It's essentially 3 mins intense walking, 3 mins regular walking, etc, alternating for 30 mins, 4 days a week. I just wonder whether the dog will let me walk fast for three mins without stopping and sniffing.

  • threetree
    threetree Posts: 2,408

    @tougholdcrow - I recently read about the "Japanese Walking", and it might be good to do like a gym exercise might be, but I still prefer to just walk the regular old way and take in the sights, sounds, and smells, etc. It does sound interesting as a targeted kind of fitness technique, but to me then, it is different from "walking". I've noticed that there are now all kinds of "walking" methods that are being touted and it seems to be something of a new trend out there for some, e.g. "Japanese walking", "rucking", etc. There are more too. With all these focused walking techniques it seems that you have to take your mind off of the usual sights and sounds of "regular" walking to do things like count, or measure your heart rate, etc. That to me is more like gym exercise and calisthenics, etc.; just maybe done outdoors (which would definitely have an appeal), but I do think it is notably different than just "taking a good old fashioned walk". Please let us know how it goes. I am curious to see just how much people enjoy these new targeted types of walking and just what kind of benefit they see, as compared to regular old walking. Wondering too if people notice or care about the kinds of trade offs I see.

    @mara51506 - Great to see you trying to get back to some outdoor walking. I think walking to your mall sounds wonderful. While I always absolutely enjoy just walking for the heck of it with no real purpose other than getting some fresh air and exercise, I do find that a walk with a purpose, e.g. to the store and back; to the cleaners to drop off or pick something up, etc. can motivate me to take a good walk. Sometimes I like taking "the long way" to a nearby store or something, just so I can get a good walk in, but with an end goal like shopping or something. Also, @rlschaller has noted a lot of videos that she likes to do at home, as you are. I should make more of an effort to check out some of those videos too. I think you are smart to start with the small little steps first, but I really hope you do achieve that goal of a nice walk to the mall and back - good luck!

  • tougholdcrow
    tougholdcrow Posts: 477

    @threetree I suspect we both read the Times! I take two walks a day and will take some longer forest walks when the heat dies down, because I totally hear you. . . nature is too beautiful and blessed to ignore. I did try the Japanese interval walking for two days and felt a bit euphoric afterwards.

  • threetree
    threetree Posts: 2,408

    @tougholdcrow - Thanks for sharing the results of your Japanese walking - that sounds wonderful. I think I read a couple of different articles about all these different walking methods, and they most likely came from Yahoo News which pulls in a lot of stories from a lot of different sources (like the Times), so not quite sure of the original source. I usually note the original source at the time I initially read, but rarely remember what those original sources were later on; only if it was interesting or not. I seem to remember the most recent was an article exclusively about the Japanese walking, and then the other one was while back and about a lot of different methods of walking like Forest walking, Rucking, and other things like a "Bimble" (that's probably more what I do, naturally). It's all pretty interesting in its own way.

  • chicagoan
    chicagoan Posts: 1,383

    I've been struggling with walking since being taken off my NSAID and last week other leg also developed intense pains in the calf. Supposedly, according to an Xray, "nothing" is wrong. I feel good b/c today I managed to walk the 4 blocks to the gym without a cane and did my weight routine. Both legs actually feel better! My upper body was starting to ache from missing the weights. The pool is closed this week but I can get back to water aerobics next week. I also see my new PC next week. I'll discuss the NSAID situation with her and hopefully will get put back on with monitoring. If not, I will take the smallest doses possible on my own.

  • aj
    aj Posts: 387

    I went to Enhance Fitness today. It was a hot day in Seattle and I sweated like you know what. Came home, ate lunch and went to get my monthly bloodwork done. The last time I went to oncology I had a nurse practitioner. She ordered a bunch of additional tests, one was a urine test. It showed blood in my urine, protein in my urine, and something else. Probably dehydration. I’d also gotten an iced latte! I have a feeling that they’ll be all concerned and send me for another one. I’ll be sure to drink a lot of water beforehand!

  • tougholdcrow
    tougholdcrow Posts: 477

    @AJ It's always something, right? My CT scan showed something in my colon, had to have a colonoscopy (blah), diagnosed with focal colitis, now waiting 7 months (I kid you not) to see a GI guy, and it's all probably nothing. We are under so much surveillance now as cancer patients, but I guess that's all good in the long run. Yeah, probably dehydration or a mild UTI. I had a challenging Pilates class yesterday and was dripping with sweat, mopping my brow, and sweating all over the machine, slightly embarrassing since nobody else seems to have this problem. I will toast you with a latte.

    @chicagoan Have you tried daily stretching? I find that this helps with the pain I get in my hips and lower back anyway. I was a wreck after taking a month off from Pilates, taking steps with both feet at a time, but feel much better after getting back to it, since it involves a lot of stretching. I don't know how old you are, but it seems stretching just becomes necessary for all of us oldsters at a certain point. Also, you might ask about the topical cream NSAIDS? They seem to be less damaging. Water aerobics sound great, very tempting in this weather.

  • chicagoan
    chicagoan Posts: 1,383

    @tougholdcrow I've done yoga for over 40 years on a daily basis so I do a lot of stretching and was a certified Iyengar yoga teacher for many years. The most helpful thing from my recent PT sessions was the advice that I stretch the back of my legs every 2 hours. So I do standing forward bends throughout the day. I still think something is wrong to need to stretch so frequently but it helps. Usually if I stretched once or twice a day my hamstrings and calves stayed supple. I looked into the topical NSAIDS but Voltaren (Diclofenac) specifically says it is not for use on hips or buttocks. I use Tiger Balm which helps a tiny bit.

  • eleanora
    eleanora Posts: 472

    Reading this thread has given me a mental boost! So glad to see so many staying active. I ride a stationary bike for 45 minutes 5 days a week. The bike has a rubberized platform attached to the handlebars that holds my kindle. I choose thrillers for that reading, as I pedal faster during the exciting parts! I was also a daily 2-4 mile walker, as I agree with all of you who love to be outdoors, however the summer heat and humidity in VA have limited me to short walks from June into mid-September, so really looking forward to next month.

    @olma61 Love that your grandson exercises with you. Think of the example you're setting for him 😊.

    @chicagoan So sorry the left leg has gotten worse. I also worry about them taking away my Celebrex, and that is the one medication I would feel comfortable getting from an online source. I have arthritis and sclerotic mets in my left hip, as well as arthritis in both knees and my left thumb and the pain is pretty significant. Too many of those who closely monitor our health forget about the QOL. I have two areas around my shoulder blades that have been painful since my original lumpectomy and have been diagnosed as nerve/muscle damage. I have prescription (5%) lidocaine patches to apply as needed. You can use up to 3 on various body areas at the same time. Don't know if that would help your pain, but don't think it could hurt. Don't know how old you are, but I am on Medicare, so there's no cost.

    To everyone else here, I hope you're able to keep on moving!

  • threetree
    threetree Posts: 2,408

    @chicagoan - Just a thought about your hip: Since nothing showed on the x-ray, do you think it's possible that the weather might have something to do with the extra pain? We're having a bit of a heat wave here in Seattle and I've noticed all sorts of ramped up joint aches. I've been doing some reading too and was surprised to learn that the humidity and dew points, when they get high, can be as bad on joint and muscle aches as the cold and damp. I also second @tougholdcrow 's suggestion re stretching. I had been going to PT, but stopped last spring (long story) and I also think some of my new big aches and pains might be due to the lack of doing those PT stretches. I don't know what your weather is like right now, but my sense of Chicago is that it's pretty hot and humid there in the summers. I hope you find some relief!

    @AJ - Boy was "sweaty" ever the word for Seattle yesterday! I'm pretty much back to my old routine walking now after that biopsy, and I experienced a lot of what you did yesterday. I went on my approximately 3 mile route, parts of which were in the baking sun, but I actually loved it, because there was a nice good breeze, and that helped a lot in feeling cool, but not in the sweating department. I had a doctor tell me once too, that a little bit of blood in your urine isn't a big deal and usually suggests dehydration. Hope that iced latte did the trick. I came back from my walk and had a good iced tea.

    @tougholdcrow - Like you and @AJ , I too have noticed that the staff at my clinic can get real concerned and then order more tests, etc. if I'm not careful what I present to them. I agree that it's probably good in the long run, but sometimes, I'm just throwing something out there that I've wondered a little bit about and they just pounce. I'm learning to think twice before bringing any new or bothersome symptoms up, because so many of them are really just routine side effects and come and go routinely. I hate the idea of more tests, if I'm just "noticed a little something". If you're having to wait 7 months to see the GI person, I can't believe it's all that serious. Yep, it's the time of year for iced lattes and iced teas. We're supposed to have a little cool down here starting today, and maybe even a little rain this evening.

    Happy exercising to all and have a wonderful day!

  • olma61
    olma61 Posts: 1,085

    I’ve been keeping up with my pool exercise, doing water exercise 5 days out of 7. I think the resistance exercise is building a little upper body strength, I was able to do a couple things I could not do before like open the big beach umbrelllas around the lounge chairs at the pool! I could not co-ordinate to hold the umbrella open while putting the peg in the hole with the other hand If you’re familiar with this type of umbrella you know what I mean, if not, it is definitely an operation that requires 2 hands and probably normal arm strength but mine was absolutely sub normal.

    And I try to do a little non-water exercise in the evening no matter how small and to reach at least 7K steps on my step tracker.

    @eleanora yes, I love that I can set a good example…his mom is very athletic so he has a lot of positive influence in this area but I’m glad I am also a part of it. The kindle holder on your bike sounds like a great idea, if I can figure out how to get something like that on my gazelle, I would love it.

    btw here is the gazelle glider, someone (I think @chicagoan ) mentioned not knowing about it….I remember it being advertised on infomercials a long time ago by Tony Little a big muscular guy with a long mullet hairdo was the originator and appeared in the commercials.

    I started using a machine like it at the outdoor “gym” area that was in the park near my former home…and then I looked around online and realized that the home version folded up and did not take up much space so was good for apartment living….and I got one for myself. Here’s what the machine and Tony little look like

    https://gazelleglider.com

    I got rid of my first one when I moved and picked up a new one free on FB marketplace 😃