Back to BC.org after a Recurrence and now Stage IV
Hello ladies and gentlemen.
I'll keep it brief for now however, i'm hoping I can navigate this site as well as I did first go round. The website has changed A LOT and I don't know what I'm doing quite yet.
I'm going to see if they archived my old stuff. It was a LOT. I was here in 2009 or 10 as Stage IIIc. Was NED until Spring of 2023 (YES—12 plus years) when I felt a rib pop. Lots of tests and a diagnosis. Mets to the bones. And that's where they stayed until this winter when they jumped the BBB and into my brain. That's where I am now. Currently on Xeloda which long story short, my Oncologist didn't think there was a benefit to taking (WRONG), and my last CT this week in fact, showed stable Mets and healing fractures. Lots of disease still all throughout bones.
That's it for now, but I'm wondering if there's anyone still with us from back in those days. I've lost some friends from that group, but there's one still here and thriving!
Hang in there folks. Hope to get to know you.
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So very sorry you had to come back like this, but wishing you lots and lots of good luck! Yes, this site has changed a whole lot. Many have gone due to the disease, sadly, but many also left when the site changed. There's still some reason to be here though and some good info and people, but I really miss the old site and all those other people who are now gone for one reason or another. There were so many who were so interesting, helpful, and even just "colorful". I originally joined in 2019 and I think I remember seeing your name back in some old posts, as it's not totally new to me. Well again, sorry you had to come back, but glad you are back too and hope that everything goes real well for you.
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Hang in there, my friend.
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