Afinitor - anyone have input?

marcials1 · September 3

Hello out there, I am switching from Verzenio after bone mets have spread to possibly multiple organs. Still waiting for PET and results. Tumor markers climbing along with liver enzymes. One of the meds I am being told is next for me is Afinitor (everolimus). Info I have been given is not sounding like it’s going to be tolerable. And I cannot find any threads here other than from maybe 2014 -2016. If anyone has anything to share I would appreciate hearing from you! Thank you!

moderators · September 4

@marcials1 - We’re so sorry you’re facing this right now. While you wait for others who’ve had experience with Afinitor to share, we wanted to pass along this page from our main site with information on Afinitor (everolimus) that may be helpful:

Everolimus (Afinitor): Side Effects, Cost, and More

Hope this helps!

The Mods

marcials1 · September 4

It does not appear there are many on this medication. That is discouraging. Thank you for your help though.

maggie15 · September 5

Here is a more recent thread. My only connection to it is severe pneumonitis, something you really need to watch out for on this med. Hopefully it will be tolerable and effective for you

https://community.breastcancer.org/en/discussion/comment/5871176#Comment_5871176

marcials1 · September 5

Hi @maggie15 thank you for that information. I appreciate it very much.

Afinitor - anyone have input?

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