Seriously? First IDC, then DCIS, now possible DCIS again.
Has anyone had multiple new DCIS primaries rather than recurrences? I had IDC in my left breast (treated with lumpectomy and radiation ) in 2011, DCIS in left breast (treated with left-side mastectomy) in 2021, and today my radiologist found new calcifications in my right breast. I'm having a biopsy on Wednesday. She suspects it's DCIS. I'm planning on having a right-side mastectomy soon regardless. How odd is it to have breast cancer three separate times? Thanks, everyone.
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I had DCIS in 2018 high grade in my right breast. Large area over 6 cm and negative for hormone receptors. I opted for right mastectomy with direct nipple sparing reconstruction which resulted in delayed healing because of skin necrosis. It took almost a year to heal and's the last thing my plastic surgeon said to me just be thankful it was low grade breast cancer!, which I was,however who signs up for a mastectomy?
Well June 2024, another diagnosis of DCIS high grade and this time estrogen positive in left breast! The breast surgeon told me this is treated as a new primary cancer.I opted for left mastectomy September 4! Recovering and I saw the oncologist today and she told me that I don’t need tamoxifen because of opting for mastectomy.
Still a little nervous about the evidents of DCIS twice and presenting differently.I just wanted to let you know, yes it can return and be different in how it presents.
Good luck with your decisions and I think you have to advocate for yourself.
Take care and all best wishes for you 💞1 -
I was just diagnosed with DCIS is opposite breast, but same high grade DCIS as in 2015 in left breast with treatment then of lumpectomy, radiation and anastrazole. Now I am diagnosed with this again in the right breast and there is no other option for me personally than double mastectomy. I meet with my oncologist Dec 31 and a new surgeon Jan 6.
Good luck to you.
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Welcome, though I’m sorry you’ve had to join us. I have no stats to offer but I do remember a few who found themselves in situations similar to yours. Since it has only been a few, I’d be tempted to say it’s less common but that doesn’t mean never. When my bc was found, left, calcifications were also noted on the right and I opted for a bilateral because we know where those calcifications were likely heading. Breast cancer is maddeningly complex and unpredictable 😡Take care
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Hi I’m going through surgery for the 2nd time for a DCIS again! Frustrating they mentioned radiotherapy this time , I could have had a mastectomy but opted for surgery again, hope I’ve made the right decision
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