Tiredness and dose reduction kisqali
hey everyone.
my first post. I am 18 months into treatment with stage 4 in bones. Ive had a couple late starts on treatment due to neutropenia and a gross gastric event shall we call it.
anyone else really tired sometimes on this stuff??
I’m lucky fortunate to have stability on this stuff and very grateful for that but it really is pretty knackering in comparison to what I used to have energy wise. It might also be the cancer and the letrozole. Anyone done a dose reduction for tiredness? My primary onc says don’t do that so I am loathed to go against what she says. A second opinion Onc at Marsden says try it.
Would love to hear any og your thoughts. Sending you all a tonne of love and light on what is sometimes a hard and heavy ride. We got this… sometimes and it’s ok to fall apart too but let’s keep going is todays vibe xxxx thanks you all. 😘😘
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@dangermousexl I am only a few months into my kisqali treatment so I am not an og by any means. But, I was just talking to my onc about fatigue. It’s likely a combination of things for me. I finished radiation about 3 weeks ago and I haven’t been regularly exercising since because it wiped me out. So my onc and I discussed regular exercise and maybe acupuncture. But, she said if next month when I see her, I’m still feeling it, she would try a dose reduction. It wasn’t her first recommendation and I didn’t bring it up but, for what it’s worth, it was definitely on her short list of remedies.
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thanks xx helpful to hear someone else’s experience. I’ve not had radiation yet. I’ve had a few times of low white blood cells at end of each cycle now and I think Onc holding onto max dose as it’s working and stable so I see the point. Also interesting the breast nurse said maybe try not taking letrozole for 6 weeks is an option..
I’m very cautious of not taking medication that’s working but then being fatigued to the max is also pretty rough so will see what happens this cycle and take a view. Thanks so much for your reply. Good to hear someone else’s experience and sending you very best xx
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also og was supposed to be of!! Xxxxx
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