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mastectomy site feels stiff

I had a single mastectomy three weeks ago. My chest feels still. Feels like I'm wearing a tight bra on that side when I'm not wearing any bra. The plastic surgeon - one week post surgery - said this is normal and will go away. I had a post-op visit with a PA in the general surgery dept this week and she said it may not go away. Not what I want to hear

Has anyone else experienced this? did it go away?

Comments

  • cookie54
    cookie54 Posts: 1,220

    @mary9999 Hope you're continuing to heal each day. Unfortunately after my BMX I always had some degree of tightness. I have implants not sure if you do?You will adjust to the new normal in time. As I always say there is no comparison to actual breast tissue.

  • I don't have an implant. I may get one later. the doctor was going to place an expander in at the time of the mastectomy but didn't do it. I guess my circulation wasn't good enough. so now if I want the implant I'd have to have one surgery to do the expander and then go back later for the implant and the lift on the other side. after what I went through with the mastecomy with the drain and everything I don't know if I want to do that. I'd have a drain again with the expander.

    right now I'm working on prosthesis. I got a silicone one and will have to wait until the doctor gives me the green light to wear it. in the meantime I have a little cheap one and two bras with pockets - much better than one flat breast and one D cup.

    thanks for responding. I'm a bit disappointed in what you said but appreciate your answering me.

  • cookie54
    cookie54 Posts: 1,220

    @mary9999 You do what's right for you! I hope that over time the tightness lessens a bit for you. Remember everyone heals differently and this is all fresh right now. Take care.

  • My surgeon was very proactive in getting me to stretch after surgery, even prescribing PT, and I think it helped tremendously. The hospital also had handouts of exercises.

    Of course you don't want to start without checking first with your surgeon, to make sure everything is safe. But I would recommend you reach out to them and see if they can give you some guidance.

    Hope it gets better!

  • yes, I have an appointment in two days and I'll ask about exercises. I just as soon not go to PT if I don't have to but would go if needed. I don't want to just live with the stiffness long-term.

    thanks

  • I saw the plastic surgeon last week. He was very pleased with my healing. He says the stiffness is normal as I'm still healing and it will go away. He doesn't want me to do any stretching yet, other than raising my arm up. I hope he is right and the PA in surgery who said the stiffness may not go away was wrong.

  • mary9999
    mary9999 Posts: 51

    I'm feeling stiff and numb six weeks post mastectomy. My plastic surgeon says this is normal and will go away. Women on Reddit say it's permanent. I'm leaning toward a fat injection on the mastectomy side and a reduction and lift on the surviving breast. but now I'm worried that I could end up with two stiff and numb "breasts".

    maybe I should just leave the skin mound and wear a prosthesis

    the stiffness isn't bad when wearing a bra but with no bra it's very noticeable

    any advice?

  • cookie54
    cookie54 Posts: 1,220

    @mary9999 Hi sorry your still feeling very stiff. Perhaps you can give it more time? Seems pretty fresh to me..thoughts?

  • mary9999
    mary9999 Posts: 51

    thanks

    yes, I'm giving it time and stretching my arm up repeatedly…..doctor didn't want me to do any other exercise with my arms yet

    I do have full range of motion with that arm so that's good

  • katg
    katg Posts: 264

    I had a dbl and I say it took close to a year to end numbness. There is no comparison to real breasts. I had 3 surgeries. One side expander then both sides to implants. It is an odd feeling some days. You will notice on your real breast side they are not felt most of the time. An implant is just there. It is hard to explain, but i now have smaller breasts so the fact they are not real is something that is less noticeable as time passes. My last surgery is coming on 2 years. The part i love is i look the same as when i had had real breast. That lets me be the me I want to be.

  • After 24 years, I had my implant removed due to a skin infection. Breast surgeon sent me to occupational therapy for 8 weeks. Entire purpose was to massage around the scar so the skin would loosen up. Also included some stretching exercises. Had to do both at home, especially the skin massage. Made a big difference.

  • mary9999
    mary9999 Posts: 51

    it seems that it's pretty likely an implant will have to be removed sooner or later, although 24 years is a long time.

    This is one reason I don't think I want to get an implant (though I had originally intended to). I'm 74, so if an implant had to be removed in ten years I'd be pretty old for any kind of surgery.

    Thanks for the info on occupational therapy.

  • mary9999
    mary9999 Posts: 51

    I saw the plastic surgeon this past week. I didn't even bring up the numbness/tightness. I've just more or less accepted that this will go away in time - or not.

    He said after my January visit with him he could do surgery. But I would have to have minimum of three surgeries. First probably fat injection, second implant (the fat injection would allow him to do implant without expander), then months later lift on the other side. Not sure this is definite or possibly he might find that he does need an expander.

    Also there is a chance I could be satisfied after the fat injection an not need an implant.

    I'm not sure I'm up for three more surgeries. these would be easier than the mastectomy but still you have risk every time you have anesthesia.

    according to an internet search, more women go flat or have no reconstruction than the number who have reconstruction. this, along with my age and the multiple surgeries is giving me pause.

    Also there was a conversation on Reddit where women who had reconstruction mostly said the implants don't feel like real breasts at all and they are numb. also they look fine with clothes but not natural when nude. consensus was they don't regret the implants but don't find them ideal.

    I have a prosthesis and don't mind it. the biggest drawback it transferring it from one bra to another. so I find if I'm just doing errands I go without it and wear a loose shirt.

    I'm spinning. doctor said just go enjoy life for a couple of months and stop think about it. also said doing nothing more is an option.

    DH isn't pushing me but I get the impression he doesn't like the idea of going flat After my first lumpectomy failed to get all the cancer he wanted me just get another lumpectomy but I didn't want the radiation that would come with that. He is a minimalist when it comes to doctors. Has refused treatment/advice multiple times.

    If anyone has advice or experience, I'd appreciate it.

  • gaildd7
    gaildd7 Posts: 3

    I am newly diagnosed with breast cancer, stage 2. I have agreed to do the mastectomy which takes 4-7 wks to get scheduled. Can anyone give me suggestions for getting ready for this surgery then immediately afterwards, ways to speed up recovery. I use to take peptides but heard a doctor say NOT to take peptides aside from Thymosin-A.

    Thanks!

  • mary9999
    mary9999 Posts: 51

    are you having a single mastectomy or double? The double may take more out of you. I had a single. It was a big surgery. I didn't have enough pain after to take the narcotic pain meds. I found the drain to be a PITA - a constant reminder of the surgery. I was glad my husband helped with it at first. After two weeks when I was able to drive again and have the drain removed, it was a relief.

    The only advice I can give is to rest so you can heal and follow the doctors orders. One thing my surgeon's nurse emphasized strongly was no ice EVER again on the breast area where I had the surgery. I was glad she said it that way rather than just including it in a list of instructions.

    GL to you.

  • moderators
    moderators Posts: 9,647

    @gaildd7 - Hi and welcome to the community. We’re so sorry for what brings you here, but we’re glad you reached out. We’re sure you’ll find lots of support and understanding from our members as you prepare for surgery.

    You might find these resources especially helpful:

    Getting ready for surgery? Join us on Zoom.

    Prepping for Surgery? Start Here.

    Hope this helps, and please let us know how you’re doing as things move forward. We’re all here for you.

    The Mods