All about Xeloda
Comments
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How sad that no one seems to figure out how to get to my bookmarked sites. I wish that they had not changed everything so drastically.
I just wanted to warn ladies to not take Paxlovid if you are on Xeloda.
I contracted Covid a week ago for the first time and still trying to recover. I didn't ask for Paxlovid since I heard that it can cause the Covid to recur. When my specialty pharmacy called to refill my pills, she asked if I had taken Paxlovid, because it can't be taken with Xeloda.
So be careful.
I am still on Xeloda with Herceptin and my latest CT scan still shows NED. I am approaching 24 years of MBC.
I hope that everyone is doing well.
Denise
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@denny123 I hope you recover quickly from your Covid...I caught it 2 years ago and as my neutrophils were low, everyone panicked and I had to be hospitalized for 3 days with IV antibiotics.
Thanks for the warning about Paxlovid under Xeloda.
I have been taking Xeloda for 9 months and I tolerate it well now. My markers are still decreasing and the next scan is scheduled for October.
Wishing you a speedy recovery and congratulations again on these 24 years.0 -
@soldanella. Thanks! this stuff is wicked. I was finally being unmasked around people, darn.
I got it on Thursday when I had to get fitted for a cpap machine. Heck, now I have sleep apnea. Wondering if that tech gave it to me. Afterwards, I went to Walmart and Panera. So it was one of those.
My reds and whites are always low but I don't know about my neutrophils.
Congrats on your decreasing markers!
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Hello everyone. It. Has been a great summer for me overall. I have been feeling decent on my 2000 7/7. However, this cycle second day on, I developed a couple of shingles spots. I have had shingles many times, usually just a few blisters and I use topical cream - acyclovir to clear it up. My doctor told me to hold off on my med for a week. I have a PET October 8, but my marker has dropped from 2100 to 62.3. I was reading back a few pages and while reading one comment I thought, “wow! This woman’s situation is a lot like mine.” Ii looked at the name, and it was ME! It made me chuckle. I think I need to get my eyes checked. I hope everyone is having a lovely fall like we are in northern Minnesota.
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I’m on Xeloda and got Covid last summer. I got paxlovid. My oncologist told me to skip Xeloda until the Paxlovid and Covid were gone.
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@gigil Your message made me smile, thank you for this moment of joy at the start of the day.
Sorry about your shingles, I hope it's not too painful.
It's nice to hear that your markers are down and that you had a great summer.
Thanks to Xeloda I was also able to have a pleasant summer, every 3 months my oncologist measures the markers and they are regularly decreasing. It's nice to have these moments of respite without having to worry about changing therapy.@AJ Yes, Covid seems to be making headlines again at the start of autumn. Are you getting vaccinated ? My oncologist recommends it, but I'm going to wait for the Pet Scan before getting the flu and Covid vaccines.
Good day to all.1 -
I had both the flu and Covid vaccines 10 days ago. Had a minor, 24 hour reaction for the first time ever, but well worth having the protection. I have grandchildren in school and daycare who I see on a regular basis. Don't want to limit that precious time so I get every vaccine available.
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@soldanella , yes I got both Covid and flu vaccinations last week. Felt a little funky the next day but not too bad.
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I’ve had icky digestive problems lately, probably from the Xeloda. Gastric reflux, gas, heartburn. Palliative care said to try Prolisec, which I did. Worked like a charm. But come to find out that it interferes with Xeloda. Thanks Doc! The pharmacist and oncologist confirmed this. So now I’m going to try Pepcid.
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But yes, Xeloda has been very tolerable and it’s working. Markers are holding steady.
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@AJ Yes, I also have heartburn, my oncologist prescribed me an anti-acid that I take when the discomfort is too present. Lately, I have had slight joint pain in my hands, shoulders, knees that occurs during the week of Xeloda and then disappears during the week of rest. I think that Xeloda induces a little more inflammation because my psoriasis is also more present.
Well done for the stability of your markers.0 -
I am still kind of funky after Covid. Sore throat daily, but not as bad as during Covid. Just totally wiped out.
I was going to get the booster after my CT scan since it can affect the nodes. But I got Covid right after my scan (which was good, by the way-so heading towards 24 years of MBC). My PCP wants me to the DPT booster since we now have all kinds of diseases spreading that were once eradicated. I will have to ask my onc when I can get all of the boosters that I need. There's only one urgent care place that will give me the Covid shot in my butt. I have bilateral lymphedema. And I have to get all of the other shots in my thigh.
I was warned not to take Prilosec with Xeloda, so I take Famotidine, which is Pepcid 40.
@gigil Sorry about your shingles, but it is so great that your markers have gone down!!!!
It's great to see everyone posting again!
Denise
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@soldanella , what’s the antacid you’ve been prescribed? Yesterday I went to my exercise class in the morning and came home and was exhausted. Didn’t get anything done that was on my to do list. Crazy drug. But tolerable overall.
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@AJ My antacid is called "Alucol". "Alucol Gel helps neutralize excess stomach acid and reduce the backflow of gastric juice into the esophagus." It is a rather mild treatment without side effects and compatible with Xeloda.
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.@denny123 Covid definitely doesn't want to let you go! I hope you get your energy back. Here, the cold and snow arrive with the seasonal colds; I can't wait to get my flu-covid vaccinations, even if I react quite strongly afterwards. I had two very bad bouts of flu last year and I don't want to go through that again (I forgot to get the vaccine in the turmoil of a new treatment).
I wish you a beautiful autumn, I love the colors that nature offers us this season.0 -
@soldanella Thanks! Although the weather is now nice, I hate the thought of winter approaching. I hate driving in the ice and snow.
I worked so hard in my garden this past summer, but the critters and bugs fought against me. I was able to grow green and yellow beans though. And I traded them to my friend in exchange for zucchini and squash. I have been gardening all of my life and am the one who spends hundreds of dollars on potting soil, weed cover, anti-bug stuff, etc. But I only reap a few dollars worth of veggies. LOL.
So each year, I plan different things to fight against the garden pests.
I spend the day listing and trying to sell items on eBay and other sites. My grandson, who is now 13 (!!) has loaded me up with hundreds of his toys. We do consignment at 50-50 and he uses the money to buy shoes for basketball and football. I have been selling online for over 20 years and it keeps me very busy and helps to pay the bills.
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@denny123 My husband and I started a vegetable garden four years ago, and I have to say that since discovering the metastases, it's helped me a lot to stay positive.
We've established a "garden budget" because we also spend a lot on potting soil and manure. We've embarked on perilous experiments, like growing melons at an altitude of 1,600 meters, resulting in a ball the size of a tennis ball (lol). Otherwise, what a pleasant surprise: the sweet potato has given us the honor of four potatoes! Otherwise, the zucchini, cabbage, carrots, and leeks are a real success, despite the spring predators.
So yes, in the village, they tell us it's a lot of investment and work for a small harvest, and that the supermarket is more convenient; but for me, the vegetable garden frees my mind and also heals me.
Otherwise, I haven't worked since the diagnosis. My parents are elderly and need help, so I try to be there for them. At 63, I am very lucky to be able to manage my life this way, and I am very grateful for this period where I am discovering a new way of living, more serene and less stressed. This is called the benefit of illness. Thanks to Xeloda I have enough energy to carry out my activities.2 -
@eleanora Thanks-that is a nice song!
@soldanella lol-love the tennis ball melon. I really do enjoy my gardens and getting outside for only about a half hour at a time (I get so tired so easily). Every year I try something new with planting areas, etc.
I use deer netting in front of everything, so my garden areas are next to my house, with the netting in front. My soil is so rocky, though. I hope that your parents are doing well.
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I am starting Madame X next week and just wanted to reach out to the experts about dietary restrictions.
It seems that there are a lot of foods that contain folate so I was wondering if anyone had recommendations of things to definitely avoid, my main concern is Hand and Foot Syndrome as I am an avid Pickleball player and really want to continue playing.
Thank you 😁
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@bigred62 I have been on Xeloda for 8 years. Google to find the 15 foods that you should avoid. It is mainly the dark greens, sadly. My downfall was large spinach and broccoli salads. So now I eat iceberg lettuce. Dried beans and whole grains should be eaten only in moderation. I stopped taking my multi-vitamins since they had folate. I am going to try to paste my list of what to eat…
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This is my list of what I DO eat. And FYI, my folic acid levels are normal, even though I am cutting down. When I am in doubt of a certain food, I just google to see if they are high in folic acid.
I eat iceburg and red lettuce, tomatoes, cucumbers, peppers, olives, green and yellow beans, squash, cauliflower, carrots, potatoes, sweet potatoes, onions, sauerkraut, peaches, plums, watermelon, apples, chicken, pork, beef, fish, pasta, rice, whole grains, popcorn, chips, pretzels.
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Thank you denny123, this is very helpful 💕 I will google anything I'm not sure about. I found a huge list sorted by the quantity of folic acid I just wasn't sure what is considered high so I will look at your list as a guideline comparison. 😊
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denny123 8 years!! That is fantastic and very encouraging for a newbie 😀
Thank you 🩷
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Hello everyone. I hope you are doing well on the planet of Xeloda. I am here to give some encouraging news, after almost 1 year of treatment under X. My scan from last week is comparable to the one from last July, no recurrence of the disease, it's perfect. I will be able to enter into the end-of-year preparations with serenity. Apart from a slightly more pronounced hand/foot syndrome with the arrival of the cold, I am still tolerating Xeloda well (a little fatigue but I am adapting).
I just have one question because I have a strange odor that's been following me for several months now, and I'm wondering if it's due to the chemo? My husband and those around me don't smell anything unusual... but well, if that's all it is... I'm very happy to be able to lead a relatively normal life right now after the medical marathon of last year ! You know what I'm talking about: enjoying life despite the burden of illness.
I wish you all much genteless, I peace and serenity.🎄✨
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Hi Soldanella,
Thank you for sharing the wonderful news, I am very happy for you!
I literally started today and am good so far!!
I have a list of Folate foods that I found on line so will adhere to the lower choices. I have attached the list in case you haven't seen this one to help with Hand and Foot Syndrome.
Foods Low In Folic Acid / Folate - List
I will be coming back here to report my progress to help others.
Thank you
Jill
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@bigred62 I wanted to chime in on the SE of X.. I see you're trying to avoid hand & foot syndrome. X can cause you to lose your fingerprints (as when you use the touch button on your computer). My MO recommended Udderly Smooth Extra Care w/ 20% Urea to help with the symptoms. X did cause peeling around my finger tips, and the cream helped. It's important to keep your hands (and feet) moisturized moving forward. I didn't have a problem with my feet but it wouldn't hurt to treat those as well. When I was finished taking X, I stopped using the cream… and I ended up losing my fingerprints for the computer sign on anyway. X stays in your system for quite a while, so if you get the cream just keep using it well after you're done with your treatment with X. It wasn't hard for me to avoid folate, I'm not much of a salad eater. I did stop taking my multivitamin though.
https://www.amazon.com/Udderly-Smooth-Moisturizing-Chapped-Unscented/dp/B00D86VL1U/ref=sr_1_1_pp?crid=28XHG9F6ZZTI2&dib=eyJ2IjoiMSJ9.h2o9Bh3eEtNIcoRNkVLZWWqo3Hk64ZHjG-4VgM44dgW7UOQZHhDzNe9fyVMab2fxQ5GCvxs8h5Dp3RsHnkwoopLXKGrRAHO8Q8dbTMoAZZaVhxRA1brGo7AoVN-0K98jVIzv43LveiQPyK0AIvMPCob3WgJdxfyt4SAAhswfQ57ZE1y_SUBhHqpBsZjYsrcOrWGMrKtI5SBCYM0rJaflbSTga0m1tbOK8ADLV6FHnOj1IByXuPjGegbLG5g_SVlmH-RsFJngHqA1CI2DPpY0UuC4DFZD1y6MmbGAPT09PJw.5fPhPwJjNl88HiXrxKG4xfWjrX2GGTsku33ZRg0zVm8&dib_tag=se&keywords=udderly%2Bsmooth%2Bextra%2Bcare%2B20&qid=1764710122&sprefix=udderly%2Caps%2C156&sr=8-1&th=10 -
Hi justsnapd8,
Thank you for the information, I will order some of the cream you suggested. I am expected to stay on X as long as I can tolerate the SE so hopefully I can manage them as best I can.
I found an extensive list of folic acid foods on the internet and was surprised by a few of them like Beets and Bananas so will have to watch my diet carefully and see what to avoid.
Take care!
Jill
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