De Novo Stage IV

denny123 · August 3

Hi Everyone! I had to write to the mods to figure out how to get to our thread. I couldn't remember the title of this thread!

How is everyone and I hope that you can find your way back here.

seeq · August 4

@denny123 - I'm glad you found us!

denny123 · August 4

@seeq Thanks! But since no one else has posted lately, it seems that no one else can find us. How sad.

kbl · August 4

@denny123 if you periodically come in and type bump, it will keep it active.

seeq · August 4

@denny123 ‐ also click/tap on the ribbon next to the name of the thread to bookmark it. There is not much going on with me. I'm still coasting along on Verzenio and anastrozole. My 5 yr cancerversary was in June so🤞🤞🤞. @kbl started another thread

https://community.breastcancer.org/en/discussion/886873/i-m-on-hospice-anyone-else

denny123 · August 4

@kbl Thanks for writing! I was wondering how you are doing! You are always in my prayers!

seeq · August 5

@denny123 that was still me. You should check out kbl's hospice thread. I'd hate for you to miss a chance to connect if you want to.

moderators · August 16

Hi everyone, we are so sad to report @kbl 's sister posted this morning that she passed last evening. As with each loss, we are so saddened to have to share this news with you and hold everyone who loved Kris in our hearts while we grieve along with you. Kris was so loved here, contributing and caring so much, and will be deeply missed.

Sending gentle hugs,

—The Mods

threetree · August 16

All my sympathies to Kris' family and friends. She was a truly special and remarkable person whom I will always remember with special fondness. I have lots of tears this morning.

heidihill · August 17

So sad. My condolences to her family and her friends here.

threetree, I recognize your pic! Hugs to you.

denny123, I'm still around, too. I'm 18 years out this month and still NED

threetree · August 17

@heidihill - Heidi, I think it is @illimae who's picture you are remembering. She's been here a long time, and maybe she remembers you too?

illimae · August 17

I remember Heidi! 9 years for me so far and still active.

Thinking of Kris and how she would love the beautiful weather I have right now 🙂

harrow · August 17

I’m sad to hear about kbl. She was someone who helped me see light through the dark days when I was first diagnosed. My thoughts are with her family and friends.

Thank you to the rest of you who continue to post and give me hope.

olma61 · August 17

So grateful to have “known” kbl through this forum and for the valuable discussions she started and participated in. ❤️

snow-drop · August 17

@kbl Kris will be deeply missed and always held in our hearts. She was such a brave, generous, and supportive presence here.

bsandra · August 20

Oh, RIP dear Kris… my heart is full of tears:/ Saulius

denny123 · August 25

Oh I am so sorry about KBL. Her posts were so informative.

I have missed all of you and I wish that this forum had not been changed again. I can't find any of my former discussion groups.

@heidihill Congrats!

cyathea · October 1

I haven’t been visiting lately. So sorry to hear the news about @kbl I am grateful for the time we had with her. She was a light to so many. She graciously shared her experience and helped me a lot when I was first diagnosed.

superdenovo37 · October 20

Hi, I don’t post often but I like to check in once a year, during the month of my initial diagnosis. It’s been five years since my de novo diagnosis. My daughters were 2 and 5 at the time, and are now 7 and 10.

We have been keeping busy with our favorite fall activities like apple picking and decorating for Halloween. Yesterday we enjoyed a trip to the zoo :)

I have been on Enhertu for 56 cycles (three week cycles), and am so grateful it has continued to work for me. This forum was a great source of kindness and hope early in my diagnosis, and I hope my annual posts help others in the same way. Best wishes and love to all of us! ❤️

I’m very sorry to hear about @kbl . I will keep her family and friends in my thoughts. ❤️

seeq · October 21

@superdenovo37 thanks for dropping in. It's great to hear that you are doing so well. Enhertu has been a great treatment for so many people I how it continues to work for you for many years.

denny123 · October 25

@superdenovo37 It's great to hear from you and I am so glad that Enhertu is working well for you! Enjoy those sweet little girls!

bsandra · October 27

Dear @superdenovo37 , 56 cycles of Enhertu, wow! I remember times when during Cleopatra protocol clinical trials >50 injections of HP were wow… now we are on to most powerful ADCs and we manage them well. You are amazing, your team is amazing! You are there for your daughters and that is the best thing in this world… Many many chugs and keep us posted from time to time,

Saulius

De Novo Stage IV

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