HERCEPTIN and/or PERJETA Threads

1…888990919294»

Comments

  • livinglifenow
    livinglifenow Posts: 236

    @olma61 That research is very interesting. After my first BC diagnosis 16 years ago, I underwent radiation treatment. Approximately 2 years later I noticed a small dark spot on the radiated side of my chest. I went to my plastic surgeon to have it removed. He wasn’t concerned about that spot but wanted to remove a mole. I insisted he remove both. The mole he wanted to remove turned out to be fine; the spot I insisted he remove was pre-pre-cancerous. (I don’t recall exactly what the term was for it). Anyway, glad I insisted he remove it. Always go with your instincts.
    Hugs, Pam 💗

  • bsandra
    bsandra Posts: 1,080

    Dear Olma, thanks for the study. If these connections are known, it really is important to look very carefully into each patient's disease path and select those who can avoid radiation. For my wife, I'd say, radiation was pretty brutal. She felt good but skin wounds were crazy. Sadly, when it is stage IV, we grab any straw in the water to be able to hold on and not drown… so, when Sandra was offered radiation, we did not think too much… Saulius

  • olma61
    olma61 Posts: 1,085

    you hit the nail on the head, Saulius. I considered myself fortunate to even be offered the chance to radiate that last lesion that remained active. Had I not done it, who knows what may have happened….we can imagine.

    So I am just grateful my onc saw my back and caught this early for me. 🙏🏼

    Note, I also did not have the newer forms of rads that are more targeted, I had to go with EBRT due to insurance issues - maybe there is a difference in risk with the more precise, newer techniques? Not sure if this is researched or not.

  • olma61
    olma61 Posts: 1,085

    My quarterly scan was last week, all clear! My next Signatera test is scheduled for the end of this month. Will update!

    Dermatologist skin check is all clear too.

    After 8 years of having my fibroid ridden uterus mentioned on scans, I have finally seen a gynecologist and waiting for my ultra sound results. Not too worried because all indications are that they are benign, just annoying. 😜

  • moderators
    moderators Posts: 9,647

    @olma61, Great news all around!!
    Clear scans are always something to celebrate—congratulations! 🎉 And it's great to hear the dermatologist check came back clear as well.

    Good for you for finally addressing the fibroid situation after 8 years of it showing up on scans. It sounds like you're being proactive and hopefully you'll get some answers and relief from the annoyance. Fingers crossed the ultrasound confirms what your doctors suspect.

    Thanks for updating the community—these positive check-ins are encouraging for everyone here. Wishing you continued clear results on your Signatera test later this month!

  • livinglifenow
    livinglifenow Posts: 236

    @olma61 Great to hear your scans are clear! You are my inspiration. Have a wonderful weekend!
    Hugs, Pam 💗

  • bsandra
    bsandra Posts: 1,080

    Olma, congratulations, keep marching on!:) Saulius

  • olma61
    olma61 Posts: 1,085

    Thanks, everyone! It will be super interesting to see the final results of the FREE-HER and STOP-HER2 studies in a couple of years…hopefully will bring good news and more precise treatment options for a group of us with HER2+ MBC.

  • livinglifenow
    livinglifenow Posts: 236

    Here’s a question for anyone with HER2+ MBC who is on Herceptin and Perjeta: have any of you had to stop treatment temporarily due to a low LVEF rate? And, if so, for how many weeks? Did things go back to normal without needing to repeat this process?

    I’m just curious, because my LVEF rate has been slowly declining. Not to the point where I need to stop it, but wondering what others have been through. Also, at how many months or years into treatment did this happen to you? I’d appreciate any input. That would give me a point of reference. Thanks so much everyone. Have a great weekend!

    Hugs, Pam 💗

  • bsandra
    bsandra Posts: 1,080

    Dear Pam, my wife is on HP already for 8 years (but her LVEF is still alright. Hope it stays so… Hugs, Saulius

  • livinglifenow
    livinglifenow Posts: 236

    @bsandra Saulius, so glad to hear that your wife is so well on this treatment!

    Hugs, Pam 💗

  • olma61
    olma61 Posts: 1,085

    Well, my last signatera test for 2025 is….NEGATIVE!

    And all the gynecological testing shows nothing concerning, what is there is benign.

    Now I can relax and enjoy my holidays. I've got no medical appts til December (😣) but one is dental and one is dermo….so not so bad. Back to oncology in January.

    Hope all of you are doing well here ♥️

  • livinglifenow
    livinglifenow Posts: 236

    @olma61 Congrats on your negative Signatera test. So happy for you! Enjoy some time away from MBC tests and appointments.

    Hugs, Pam 💗

  • olma61
    olma61 Posts: 1,085

    Thank you so much, Pam. I'm glad for you as well ♥️

    Just found out I am on every six months scanning now! Woo-hoo 😁

Categories

Join Us on Zoom: Upcoming virtual support groups. Read more...
Share more about you! Fill out your NEW profile.