Starting my 24th year of MBC de novo!
Yay! Today is the start of my 24th year after my dx of Stage 4 MBC de novo. Still hanging in here! Here's my history.....Dx’d in December, 2002. ER+, Pr-, Her2+++ Metaplastic BC. Had A/C & Taxotere. Left side was DCIS and Her2+++, but right side was tubular and Her2-.In 2004 my liver was filled with tumors. I had a liver resection, and then a clinical trial of then “New” Gemzar & Herceptin, which cleared out the mets in 9 months. Stayed on only Herceptin for 7 years, but had a chest node recurrence in 2012. Gemzar, Aromacin didn’t work. 3 years of Kadcyla along with Faslodex. When Kadcyla quit working, I had a Foundation One test which showed that my mets had turned to Her2- Somatic. Clinical trial of Poziotinib that got rid of the nodes in 8 days. But Poziotinib was so nasty and toxic that the trial has been ended.Now NED and have been on Xeloda and Herceptin for 8 years.
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Wow @denny123 what a wonderful cause for celebration!!! Thank you for sharing your inspriational story with us and we hope you do something special today for yourself. Sending lots of good vibes for many, many more years ahead!
Hugs and cheers for you!!
—The Mods
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Thanks Mods! Just hibernating here in frigid Pennsylvania, anticipating a foot of snow. ugh
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@denny123 They are making so many advancements with HER2+. It's amazing and wonderful, and a cure for it may be in sight. I am HER2 low, so I hope to benefit if my current treatment fails. Thanks for pioneering the way.
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@tougholdcrow Thanks! Apparently I am both Her2+++ and Her2 low. If I have a recurrence, I will need another biopsy. Best wishes for you!
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