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Interactive decision support tool!
Hi All, We're letting you know about a new interactive decision support tool for patients that could be helpful in making treatment decisions for people with a metastatic breast diagnosis. It was developed by Clinical Care Options, LLC, and it can provide you with recommendations from 5 experts regarding treatment. We hope…
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My Husband, My Life, My Love, My Family, My Cancer
As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the…
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CDK4/6 inhibitors
If you have taken Ibrance or Kisqali or another CDK 4/6 inhibitor, I would appreciate hearing about your experience. I recently had to stop Verzenio because of unmanageable side effects. Oncologist wants me to consider an alternative in that drug class.
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Trodelvy - Looking for positive feedback
Good morning everyone! I have been fighting this battle since 2004 when diagnosed with Stage 2 B breast cancer with metastasis to one node out of 15. After a partial mastectomy and taking Arimidex for 8 years, was in remission until 2019 until it came back with a vengeance to a Stage 4 with mets to my bones and a lesion in…
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Enhertu and Faslodex?
Hi, My Mom started Enhertu today. She is also ER positive. Does anyone take Faslodex along with Enhertu? Thanks, Stacy
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Not diagnosed with progression but worried for my Sister
Hi everyone-Some of you may know me and remember that my younger sister also has breast cancer. Diagnosed at age 50 (age 60 now) w/ILC stage 3B, and once to MO she ordered a bone scan which led to a biopsy and was then diagnosed with bone mets. AIs worked well, Xgeva, and after a couple of progressions she has been on and…
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Feeling like an Imposter
Six years ago, at age 46, I was diagnosed with Stage 1B mixed mammary carcinoma, ER+/PR+, HER2- in one breast. I had one surgery - double mastectomy plus bilateral salping-oophorectomy direct to reconstruction. I have a strong family history of breast and ovarian cancer. I did not need radiation and my Oncotype score of 18…
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Herceptin Side Effects
As a 22+ year survivor of Stage 4 MBC de novo, I have been on Herceptin for about 21 years. I have not had any problems until about a year ago. During the infusion, I have chills and shaking. Sometimes it helps to request a warm blanket, hot cocoa and turning on the seat heaters. As soon as I leave the chemo center and if…
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Coping with emotions
Background: I'm 52 with MBC. In 2022 diagnosed with estrogen positive cancer w/high BRCA indicator. Had a double mastectomy and chemo. In February 2024 noticed a lump in the scar tissue from the mastectomy. My doctor and I thought it was just necrotic tissue, but she ordered a PET scan. Not only was it not necrotic tissue,…
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First Post. Emotional support
Hello. I meet regularly with others in online bc.org zoom meetings. I am currently in treatment with MBC. IDC and ILC HR+ HER2-. I am taking Verzenio 100mg twice a day. Letrozole AM only and Xgeva once a month. I live with my sibling and his family. It is a gift in many ways but also a struggle. I found out this morning…
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Not diagnosed with metastasis but mixed tumor marker results
Hello again, It’s been a long time since I’ve posted on these forums. I’m almost 10 years out. I had 3 different tumor markers ordered by my GP in Bulgaria and done at an accredited lab. CA-15 (13.1 U/ml) and CEA (1.72 ng/l) were normal but a new marker I’m not familiar with was elevated. It’s called CYFRA 21-1 and seems…
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Antibiotics use linked to poor survival in MBC??
Hi everybody I just read several studies that link antibiotics use to worst oucome in breast cancer... But been metastatic with continue cures and low white blood cells I unfortunately have to use them from time to time. Now I got a cold with ear infection and I'm terrified to have to take them, after I'm reading all this!…
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Pain management
Pain is complicated. Everyone is different and levels of pain differ, so our doctors have a difficult job sorting it all out, but I have the impression that female patients are not taken very seriously when we complain about our aches and pains, including not taking ourselves very seriously sometimes. l We are conditioned…
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Fareston (toremifene) for MBC post-menopause
Are there any Stage IV ER++ ladies here on toremifene as hormonal therapy? I have an MO appt next week and am going to ask about switching from Arimidex. My reasons for wanting to switch - I think I am developing carpal tunnel in my left hand, which can be a side effect of anastrozole. My pinky on that hand is now…
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Joint replacement and Ribociclib
I had a total reverse L shoulder replacement 5/9/24. I stopped the Ribociclib a month before surgery to have adequate counts. Im interested to know if there are women out there who have undergone joint replacement while on Ribociclib and when they resumed their dose cycle. My oncologist wants to resume in 3 weeks. I am on…
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Bone Scan and CT scan- Worried
hi! I’m not diagnosed with Stage 4, but will be having surgery Monday and treatment to follow. But recently I’ve had this upper back dull and deep pain. Went to chiropractor. Didn’t help. Now I’m worried. I’m having a bone scan and CT scan tomorrow. I hope it’s nothing. 😫 how did your spinal bone met feel? Or any…
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Bone Scan
today I had my first ever bone scan. Also a ct scan. During my bone scan after the full body they did a close up of my forearms, chest and then a side chest view. Does that mean there was something concerning or is that normal with breast cancer?
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FDA Approves Enhertu for Unresectable or Pretreated HER2+ MBC
FDA Approves Enhertu for Unresectable or Pretreated Metastatic HER2-Positive Breast Cancer January 2, 2020 On Dec. 20, 2019, the U.S. Food and Drug Administration approved Enhertu (chemical name: fam-trastuzumab deruxtecan-nxki) to treat people diagnosed with unresectable HER2-positive breast cancer or metastatic…
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I am lost and scared that my next option is chemo. Emotional Yo-Yo and I have chemo PTSD
Hi there i just need to vent my fears. Not even 2 years with MBC and i am about to quit all treatments. Emotional Yo-Yo takes tall. Back in 2016 chemos were rough but i was going for the win. But this time around is different. There is no end of treatment and there is no win per se. I am lost and scared that my next option…
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Starting my Fifth Year of Metastatic Breast Cancer, taking Taxol and Sleeping A LOT!
I just finished Taxol #4, this was with a 10% reduced dose. Lots and lots of naps needed. Not used to being so dependent on naps. Slight fever in the 99s, just wondering if this is my new regimine. I was told I will stay on Taxol until it stops working. Estrogen inhibitors like Ibrance, Verzinio, and Faslodex did NOT work…
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Anyone who on ibrance & xgeva had infected wisdom teeth extraction?
I appreciate all your inputs on this. I currently have infection in my wisdom teeth & the oral surgeon recommended to remove to avoid further complications even though my pain is not that bad. The pain is on & off, but it not bad at all even without any pain med, so I rather not having extraction, but afraid further…
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Trodelvy vs Eribulin SDX 7320
Hi, I'm Vita.My mom is Stage 4 Triple Negative breast cancer, now metastasis to liver. We have to choose this week which chemo... does anyone have any experience with these 2 listed above? Any info will be appreciated...
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Her2 2+ Fish test
Hello ladies. I have a question. My mother is almost 76 years old and she has breast cancer with bone metastases almost everywhere, at least this is what the pet ct showed. Her biopsy says Er+ 95%+++ 5%+ Pr+ 60%+++ 10%+ Her2 +2 Her tumor is only 8mm. I read that her2 +2 is "equivocal". This means that the HER2 status needs…
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Access to oncology articles and MD only forums.
Hello, To the moderator, MD associated witht this site, or anyone else who has access to the below two articles: Synergistic Effect of Cell Kinetics-Directed Chemo-Endocrine Therapy on Experimental Mammary Tumors https://link.springer.com/chapter/10.1007/978-1-4613-2049-4_37 The web site "theMednet.org" is accessible to…
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Blood Count -Liver High
Hi All Have been all good last 5 years but recent blood count showed liver emsymes out . ALP 230 jumped from 60 6 mths ago and LDH also raised above 200. No elevation to Cancer Markers both low and well within range , however had pain in right shoulder for 2 mths. Wondering if anyone has had similar high liver levels and…
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Delaying Xeloda
Happy new year to everyone. Ufortunately I didn't celebrate yesterday evening as my husband and kid were sick. I'm ok but I still have alittle vold. So the oncologist gibe me antibiotics and want to delay Xeloda for 10 days! I don't feel that bad enough to take antibiotics and delay capecitabina... I'm so afraid of…
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Introducing myself from Nairobi, Kenya
See first comment below for Rosebessie's story and welcome her to the community! This discussion was created from comments split from another thread.
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Not dx with stage IV but feel it's coming
In short, I had a CT scan in August that showed a partially blocked ureter, a slight swollen kidney, bladder wall thickening, slight ascites, and my ovaries were hidden because of bowels but looked suspicious. The CT was to rule out a bump I felt in my upper adoment that my MO thought was nothing. It was nothing. But like…
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Increasing CA 27-29 markers
Hi everyone, I am sure this has been asked before but I am concerned and not sure what to do. My CA-27-29 markers have been slowly increasing over the past few months. They were at 14, then went to 21, then to 29. I know they are still in the normal range but they are going up. I had asked my MO about this and were not…
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A cure happened for a hormone positive Her2 negative stage 4 patient in a trial!
I can't believe this isn't all over the news. I know it's early and few more years are going to pass before we hear about more of these but we finally had a cure for a hormone positive stage 4 patient in a trial. It occurred in the Elaine -1 trial!!
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Everolimus
Has anyone been on everolimus? Doctor might switch to this from verzenio.