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My Husband, My Life, My Love, My Family, My Cancer
As I go through this forced path I have been thrown down, I have come to realize the love I have always had for my husband was strong. He is amazing and I love him with my very soul and entire heart. Never would I ever imagine the thought of dying and him being alone. Then the worst part hit me!! I can't seem to shake the…
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Pain management
Pain is complicated. Everyone is different and levels of pain differ, so our doctors have a difficult job sorting it all out, but I have the impression that female patients are not taken very seriously when we complain about our aches and pains, including not taking ourselves very seriously sometimes. l We are conditioned…
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Bone Scan and CT scan- Worried
hi! I’m not diagnosed with Stage 4, but will be having surgery Monday and treatment to follow. But recently I’ve had this upper back dull and deep pain. Went to chiropractor. Didn’t help. Now I’m worried. I’m having a bone scan and CT scan tomorrow. I hope it’s nothing. 😫 how did your spinal bone met feel? Or any…
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Bone Scan
today I had my first ever bone scan. Also a ct scan. During my bone scan after the full body they did a close up of my forearms, chest and then a side chest view. Does that mean there was something concerning or is that normal with breast cancer?
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FDA Approves Enhertu for Unresectable or Pretreated HER2+ MBC
FDA Approves Enhertu for Unresectable or Pretreated Metastatic HER2-Positive Breast Cancer January 2, 2020 On Dec. 20, 2019, the U.S. Food and Drug Administration approved Enhertu (chemical name: fam-trastuzumab deruxtecan-nxki) to treat people diagnosed with unresectable HER2-positive breast cancer or metastatic…
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I am lost and scared that my next option is chemo. Emotional Yo-Yo and I have chemo PTSD
Hi there i just need to vent my fears. Not even 2 years with MBC and i am about to quit all treatments. Emotional Yo-Yo takes tall. Back in 2016 chemos were rough but i was going for the win. But this time around is different. There is no end of treatment and there is no win per se. I am lost and scared that my next option…
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Starting my Fifth Year of Metastatic Breast Cancer, taking Taxol and Sleeping A LOT!
I just finished Taxol #4, this was with a 10% reduced dose. Lots and lots of naps needed. Not used to being so dependent on naps. Slight fever in the 99s, just wondering if this is my new regimine. I was told I will stay on Taxol until it stops working. Estrogen inhibitors like Ibrance, Verzinio, and Faslodex did NOT work…
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Anyone who on ibrance & xgeva had infected wisdom teeth extraction?
I appreciate all your inputs on this. I currently have infection in my wisdom teeth & the oral surgeon recommended to remove to avoid further complications even though my pain is not that bad. The pain is on & off, but it not bad at all even without any pain med, so I rather not having extraction, but afraid further…
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Trodelvy vs Eribulin SDX 7320
Hi, I'm Vita.My mom is Stage 4 Triple Negative breast cancer, now metastasis to liver. We have to choose this week which chemo... does anyone have any experience with these 2 listed above? Any info will be appreciated...
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Her2 2+ Fish test
Hello ladies. I have a question. My mother is almost 76 years old and she has breast cancer with bone metastases almost everywhere, at least this is what the pet ct showed. Her biopsy says Er+ 95%+++ 5%+ Pr+ 60%+++ 10%+ Her2 +2 Her tumor is only 8mm. I read that her2 +2 is "equivocal". This means that the HER2 status needs…
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Access to oncology articles and MD only forums.
Hello, To the moderator, MD associated witht this site, or anyone else who has access to the below two articles: Synergistic Effect of Cell Kinetics-Directed Chemo-Endocrine Therapy on Experimental Mammary Tumors https://link.springer.com/chapter/10.1007/978-1-4613-2049-4_37 The web site "theMednet.org" is accessible to…
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Blood Count -Liver High
Hi All Have been all good last 5 years but recent blood count showed liver emsymes out . ALP 230 jumped from 60 6 mths ago and LDH also raised above 200. No elevation to Cancer Markers both low and well within range , however had pain in right shoulder for 2 mths. Wondering if anyone has had similar high liver levels and…
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Delaying Xeloda
Happy new year to everyone. Ufortunately I didn't celebrate yesterday evening as my husband and kid were sick. I'm ok but I still have alittle vold. So the oncologist gibe me antibiotics and want to delay Xeloda for 10 days! I don't feel that bad enough to take antibiotics and delay capecitabina... I'm so afraid of…
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Introducing myself from Nairobi, Kenya
See first comment below for Rosebessie's story and welcome her to the community! This discussion was created from comments split from another thread.
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Not dx with stage IV but feel it's coming
In short, I had a CT scan in August that showed a partially blocked ureter, a slight swollen kidney, bladder wall thickening, slight ascites, and my ovaries were hidden because of bowels but looked suspicious. The CT was to rule out a bump I felt in my upper adoment that my MO thought was nothing. It was nothing. But like…
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Fareston (toremifene) for MBC post-menopause
Are there any Stage IV ER++ ladies here on toremifene as hormonal therapy? I have an MO appt next week and am going to ask about switching from Arimidex. My reasons for wanting to switch - I think I am developing carpal tunnel in my left hand, which can be a side effect of anastrozole. My pinky on that hand is now…
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Increasing CA 27-29 markers
Hi everyone, I am sure this has been asked before but I am concerned and not sure what to do. My CA-27-29 markers have been slowly increasing over the past few months. They were at 14, then went to 21, then to 29. I know they are still in the normal range but they are going up. I had asked my MO about this and were not…
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A cure happened for a hormone positive Her2 negative stage 4 patient in a trial!
I can't believe this isn't all over the news. I know it's early and few more years are going to pass before we hear about more of these but we finally had a cure for a hormone positive stage 4 patient in a trial. It occurred in the Elaine -1 trial!!
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Trodelvy - Looking for positive feedback
Good morning everyone! I have been fighting this battle since 2004 when diagnosed with Stage 2 B breast cancer with metastasis to one node out of 15. After a partial mastectomy and taking Arimidex for 8 years, was in remission until 2019 until it came back with a vengeance to a Stage 4 with mets to my bones and a lesion in…
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Everolimus
Has anyone been on everolimus? Doctor might switch to this from verzenio.
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Treating Faslodex-related acne
The newest insult to injury, my face looks like a sullen 16 year old. Has anyone dealt with acne following your Faslodex injection?
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Can lumpectomy scar break open?
I had DCIS in 2013 and had lumpectomy and 30 rads. In 2001 dx stage 4mets to liver. 2 years treatment and liver Mets have shrunk but my breast has changed and Pet showed active increase in that breast nodule and the scar has stretched almost into nipple. Is there a chance it can “bust” open? I see surgeon next week but I…
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Ibrance or Kisquali? Can you share your experience
I am on Ibrance and had an allergic reaction. My Onc says if I want to go on something stronger with more impact I should consider Kisquali. I am wondering if anyone has experience with both or either? Seems Kisquali has a longer span of time it works, but maybe greater side effects? He said once I switch I can not go back…
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Anyone NOT get nausea with Enhertu?
I am ready for my fifth treatment of Enhertu. My onc does a half hour anti nausea IV drip before Enhertu. My body's reaction is severe constipation. So for the 4th treatment I requested a different anti-nausea medicine. Guess what my side effect was? Severe diarrhea. Before I go back to the first anti nausea iv drip, is…
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Free Genetic Counseling through eReach Study
Learn how you can receive free genetic counseling through Penn Medicine’s eReach program. If you live in the United States and you haven’t had genetic testing for a hereditary cancer syndrome, you may be eligible to receive free genetic counseling by participating in the eReach Study. Why participate in the eReach Study?…
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Tested for Illegal Drugs
At our last office visit my MO gave me a print out of the previous week's labs. I didn't notice until I got home, but in addition to the usual labs, they tested my blood for cocaine, methamphetamine, fentanyl and others, mostly schedule II drugs. Could this be something to do with Medicare regulations?
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Experience with Verzenio???
Hello, I am new here, I was recently diagnosed with Stage 4 breast cancer. all at once, no previous diagnosis, it was missed in previous mammograms. IN some ways i am so lucky because i didn't have to go through the mastectomy (it would have limited my ability to do my job for months, i would have lost my job for sure) or…
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Weight gain on treatment
I am currently on letrozole, zoladex, and verzinio with stage 4 bone mets with a hip replacement, kyphoplasty and spinal injury. It is hard to be active because of pain but I try to work out 3 days a week...I have gained 20 lbs in 6 months and am only eating 1500 calories a day. Looking for advice- I am 5"2 and never been…
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Increase In Tumor Markers but Pet/Scans show stable
The doctor just called and said that since my markers have increased they want another scan in 3 months instead of 6 months. She told me that it was just a precaution since the scan has been stable and the markers increased, they just wanted to triple-check that the meds are working. Diagnosis in 11/22, two recent scans…
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Trust your gut re: Pneumonitis
All, This is a warning to all of you who are having symptoms of pneumonitis. In the past two years, I have had severe adverse reactions to Ibrance and Piqray. The Piqray episode sent me to the ER and the hospital for five days. This was in late March. My oncologist (former) gave me this drug when I had progression on…