eye (ocular) metastasis - a rare location for metastatic breast cancer
Three weeks ago I thought I might have a retinal tear when I woke up one morning with bright flashes in my eye. But my optometrist saw something different. Long story short he referred me to an ocular oncologist and she diagnosed me with breast cancer eye metastasis after almost 9 years NED. It's a rare location (only about %.05 or BC mets locations). Today I had a PET scan and am awaiting a CT scan. I think it's in my pelvis too as I've had some pain in the area for almost two months and in the last month started getting a dry cough with some chest pain. Ugh, the waiting to find out how bad (or not so bad) it is, is the worst period of waiting isn't it? Has anyone else on this forum had eye mets?
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Hi @toughcookie,
We're so very sorry to hear of this progression. We have had a handful of members who in fact have been diagnosed with metastasis to the eye - hopefully one of them will chime in soon with their experiences.
In the meantime, this website discusses how to spot an eye metastasis and treatment for it:
In addition, we hope you'll consider joining us in one of our free, weekly MBC Virtual Support Groups to get more support. You can see the schedule and register here:
Sending hugs while you wait for answers and a plan. We're all here for you!
—The Mods
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Peace and healing thoughts for you, @toughcookie . I'll be following your post on this as I am monitored yearly for this by my opthalmologist with my history of melanoma long before the bone mets. Hopefully there are good treatments and results. Please keep us posted on how you are doing. Thinking of you. Terry B.
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