Get support from others while facing a new diagnosis of a distant recurrence of breast cancer or de novo metastatic disease (stage IV). You are NOT alone.
Please join us for one of our Virtual Support Groups on Zoom -- register by clicking the links below: Do you have metastatic breast cancer (MBC; also called stage IV)? Register: Mondays at 2:00 PM EST, Tuesdays at 8:30 PM EST and Wednesdays at 4:00 PM EST Metastatic Lobular Breast Cancer Register: Third Thursday of every…
Here are some helpful resources if you've just been diagnosed with stage IV breast cancer, also known as metastatic or MBC. Join our free Virtual Support Groups for MBC! All with Metastatic Breast Cancer (MBC; also called stage IV) Register: Mondays at 2:00 PM EST, Tuesdays at 8:30 PM EST and Wednesdays at 4:00 PM EST…
newly diagnosed HR+ aggressive lobular stage 4 with hundreds of bone metastases. Showed up on cr scan head snd mri neck when I complained of bone pain. Was PET negative and normal cmp and cbc so oncologist suspects bone only. However I read it ifnt easily picked up on PET as lobular grows in sheets. Oncologist said don’t…
I was recently diagnosed with her2 negative metastatic breast cancer stage 4 that is not in breast but now in bronchial, bone , abdomen , pelvis. I have been coughing a full year. Had breast cancer stage 1b in 2020. So recurrence. Wonderful Pulmonologist was one that finally found what was wrong through lung biopsy ! Went…
19 years ago (43YO) - DCIS, Uni Mastectomy, no further treatments Now - Postmenopausal (3 years), swollen supraclavicular lymph node (same side as initial mast), PET scan also found 2 other lymph nodes - intramammary at 2nd rib, and mediastinal node (near spine and heart). ER+, PR+, HER2- Dr says it is a unique situation…
Three weeks ago I thought I might have a retinal tear when I woke up one morning with bright flashes in my eye. But my optometrist saw something different. Long story short he referred me to an ocular oncologist and she diagnosed me with breast cancer eye metastasis after almost 9 years NED. It's a rare location (only…
Hello, My original diagnosis in June 2022 was Stage IB (T2N1mi) ER-93% PR-70% HER2 - (2+ by IHC 1.0 by FISH ) Ki-67-80% I did lumpectomy and breast reduction, 4 rounds of TC, and anastrozole switched to fulvestrant due to side effects. In April of 2025, my CA27-29 spiked and imaging was ordered. Signaterra negative for…
I have not been here for several years. I was diagnosed in 2016 with stage 2A ER+ PR- Her2-, one positive lymph node. I had lumpectomy, chemo, radiation and just started my 10th year on anastrozole. Today I had my annual breast MRI and got a call from my oncologist shortly after. I have a highly suspicious 4 cm lesion in…
Hello All. I was diagnosed with stage 3 BC 16 years ago and had mastectomy, chemo and radiation. Have been in survivorship program for 15 years. Persistent cough took me to Er last week - CT showed multiple lesions in my lung and liver - dr thinks it is metastatic spread to organs. Had a liver biopsy yesterday. Awaiting…
originally diagnosed IDC grade 2 , stage 3A HR+ with Allred score 8/8 and HER2- at the age of 46, 10 years back . Surgery, chemo and radiation therapy done as part of treatment followed by 5 years of tamoxifen followed by 5 years of letrozole and Zolenic acid. Now got bone pain few months back. When done pet scan and MRI…
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