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Just received my Pet Scan results
Hi everyone, I have unfortunately been on this site for 9 years now. Diagnosed with early stage in 2015. Then had a recurrence in 2022. Yesterday I had a follow up Pet scan and the indication says "New hypermetabolic abdominal, pelvic, and thoracic lymphadenopathy, presumably reflecting metastatic disease." I briefly spoke…
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Recurrence after 12 years (even with BMX)
I was diagnosed and treated for ILC Stage 2b 12 years ago. Had BMX and took Tamox and AI for about 6 years. I was told 1-2% chance of recurrence in chest wall, etc. Low and behold, a lump under my arm on original BC side. Biopsy confirmed not a lymph node but ILC tumor. Surgeon planning to remove tumor and potentially do…
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Looking to connect with other young ladies with MBC
Hello I’m new here, I’m 33 Diagnosed in 2022 stage 3 DIC, 5/19 axillary lymph node involved, ER+, HER -. I did 5months chemo, double mastectomy, radiation. I’m now on verzenio and anastrozole. I fell well so far. On my recent routine blood work my ca 27-29 goes up from 26 to 44 Unfortunately Scans show multifocal bone…
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Recurrence and Now Down the Rabbit Hole
I was dx in 2011 with IDC ER+PR+Her2-. It was in the left breast around 1.2cm. I had a lumpectomy, chemo (TCx4) and rads. I couldn't tolerate Tamoxifen so I took Aspirin each day as the theory back then was it could keep inflammation down and possibly ER+ away. So here I am 13 years later and my mammo showed I now have 2…
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secondary breast cancer spread to my colon
Good afternoon, I have just had an operation to remove my large bowel and had a permanent stoma fitted 6 weeks ago. I have secondary breast cancer in my spine ribs and skull. Today I was told the cancer in my colon is spread from my breast. The question I have because my oncologist has never come across this before is what…
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My mom just got diagnosed with liver and bone met
Hello, l am from India, and my mother has recently been diagnosed with liver and bone metastasis. My family is considering moving her to the United States for further treatment. Could anyone please provide recommendations for the best hospitals in the U.S. for such conditions? Additionally, I would appreciate any…
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Kisqali
Anyone taking Kisqali for Advanced Stage Metastatic Cancer. If so how how long did it take for you to know if it was working for you? I have Mets to my liver and spine, likely in lungs too. I just want to feel better.
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Unfortunately it appears I am back.
Made it almost five years. I was concerned about slowly rising TM so had a CT last summer. I did see something on some of the vertebrae when they showed me the scan but was told it was just some arthritis. Returned this month and on what was to be my last routine CT scan, before they sent me off into the “every two year…
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MY MOTHER INLAW HAS STAGE 2 HORMONAL BREAST CANCER
Good evening everyone; I live in Turkiye and my mother inlove has stage 2 hormonal breast cancer. She took chemo, surgical operation then radiotherapy but after all of this, cancer cells again reveal at the same breast (left). By the way she has an implant after surgical operation. Currently she begins to take 2'nd chemo…
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Just diagnosed
I have just been diagnosed with stage 4 metastatic breast cancer. I’ve had breast cancer before, but that was diagnosed at stage 2 and I was able to get surgery, chemo and radiation. How does everyone handle knowing that cancer is just staying in their body? It’s scary knowing that I can’t do anything about it.
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10 years after BC diagnosis, I have mets in lung which are BC
Hi All My oncologist called this morning to confirm that the node in my lung is indeed breast cancer, it took them a few days to figure out but they knew it wasn't lung cancer. I'm so shocked. I had stage I, HER2+ breast cancer diagnosed 10 years ago and had a lumpectomy, lymph node removal (which was clear for cancer),…
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Not sure what kind of scan I should have for possible bone mets
Hi all, I started having pain in my groin/hip area the end of March, not sure if it was caused from exercising. Anyway, it hurts when I walk in hip/groin area. Wearing a ace band as a brace, and I also take pain meds for truncal lymphedema that also helps with the pain. The pain causes my gait to be off & I walk with a…
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My mom was just diagnosed
Greetings everyone. After months of not knowing, my mom has just been diagnosed with "metastatic adenocarcinoma and [results] are most consistent with origin from breast primary." The results are from colonoscopy and pathology is showing ER/PR+ and HER2-. For some background, she was diagnosed in 2013 with IDC on the right…
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I have a question for my mom
My mom just diagnosed with recurrence and we are waiting for the PET scan to see if it’s local or there is Mets the doctor is saying it’s unlikely to be Mets as the biopsy result shows ki67 is 10 % and The tumor size if 10mm my mom still worries and she is asking if they believe there is no Mets why they are doing a PET…
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Anyone with Rotter’s Nodes Metastases??
My surgical consult thinks my recent recurrence involves the Rotter’s Nodes and surrounding pectoral muscles . They are trying to come up with a plan to treat it locally but everyone seems to be scratching their heads about how to approach it. I am now being sent to a thoracic surgeon for a consult. Not instilling a lot of…
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Reoccurrence after 26 years
Hello to the community. I was only 43 at first diagnosis, IDC, Stage 1, Lumpectomy and radiation. At that time I was not given any medication because my doctor felt it would put me into early menopause and risk of uterine cancer. I am 69 and Recently diagnosed with IDC Stage 1, 3 spots in same breast. I have only met with…
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Likely bone metastases after 14 years, how much does a bone biopsy hurt?
My question; How much does a hip bone biopsy hurt after the fact and for roughly how many days? Background: BC #1 in 2007 5.5cm DCIS (I was refused mammogram as too young and told it was just normal lumpy breast for 4 years) BC#2 other side IDC 1cm and 4 smaller DCIS's found by mammogram. ER/pR pos Her2 neg, oncotype dx 2…
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Upset at myself
So I was just diagnosed with stage 4. When I turned 40 I want to get a mammogram because the skin was weird and never made appointment. Then I turned 41 got a mammogram and BOOM it’s in my bones which what the heck!! Maybe I’m naive but I had no clue that could happen on top of that it not being cureable. I’m having a hard…
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DCIS recurrence 4 years out from IDC
Hello all, I love all of you but really never wanted to revisit these boards!!! However, I need some sanity and most of you know the anxiety, worry and sick feeling in the pit of your stomach with a diagnosis - let alone a recurrence. Jan 2020 - diagnosed with IDC ER, PR+, HER2- Grade 2 - KI67<5% - 2 tumors and one lymph…
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The wait is agonizing
Hi all. My whole body and brain is so anxious, and I know so many of you understand. I found out 3 weeks ago that I have another recurrence, so this is my third diagnosis. You would think since I've already been through this initial stage twice now I would roll with it better, but it's so so hard to wait without knowing…
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Any local recurrence (within few yrs) early stage despite AI?
I am curious whether there are many local recurrences of early stage BC even though a person has followed all treatment recommendations (lumpectomy or mastectomy, and endocrine therapy (aromatase inhibitor, etc). I opted not to do the AI as was told that rad therapy was most important and AI would only add 3% protection,…
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Just diagnosed with bone Mets terrified. Please help
I everyone. I have been gone from the boards for some time. I was diagnose with stage 2 breast cancer in 2013. Last week had a stomachache went to ER they did abdominal scan. Everything fine but found lesion on pelvis. completely unrelated to why I went to ER. After additional scans came back consistent with metastasis.…
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Feeling a little overwhelmed, just told the cancer is back in my breast and has spread
Hi everyone, Whew..feeling emotional. Just learned my right breast has a large mass again, it has spread to the surface of the skin of that breast, and there two spots on the neck/cervical spine area. My head is spinning. I was originally diagnosed with invasive ductal carcinoma a year ago. Went through neoadjuvent chemo…
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Recently diagnosed with metastatic recurrence seeking insight
Well, after ten years, I was diagnosed with bone mets in March. I had unbelievable pain in my hip and was incorrectly diagnosed with bursitis. Fast forward six months and with some persistence in requesting scans, they discovered that my femur was fractured and I had been walking on it for at least six months then they…
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Tiny recurrence after mastectomy and radiation -- whats next?
Hi all. I had a left mastectomy 3 years ago followed by radiation due to close margins (<1mm) on the front, outer side, and back. I had very small breasts with three small IDC tumors in the left side and a scattering of DCIS, so I think close margins were unavoidable. I've been on tamoxifen for 2.5 years, starting as soon…
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Recurrence after nearly 6 years
Just processing this new diagnosis. Five and a half years out from mastectomy, Had Stage I lobular as well as a small ductal tumor in right breast. Lump in armpit, took me seemingly ages to get a biopsy, which I had yesterday. Lobular cancer again. On some level I knew it wasn't the "scar tissue" people kept telling me it…
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It's back. Need help and hope.
So the thing I've been frightened would happen for 12 years happened. Recurrence. I'm too afraid to look at my PET right now (every nerve in my body is telling me NO, so I will honor that, since I'm a quivering, heart pounding mess at present, medical PTSD on full red alert, catastrophic thinking roaring at supersonic…
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Enlarged axillary lymph nodes suggestive of BC recurrence found UPDATE - it's cancer again
Hi, y'all — I guess the diagnosis is not official yet but it seems to be a foregone conclusion. I am almost 9 years out from left breast cancer diagnosis. Did the mastectomies, 9 weeks of Taxol (all I could tolerate); did 18 Herceptin treatments; 4 months of Arimidex; 3 years of Exemestane; 8 months of Tamoxifen —- all…
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I am so mad
I hate being here but here I am. Diagnosed stage IV to liver (20+ lesions), lung, spine, pelvis, skull (so I am not long for this world). I have no symptoms. It was caught during a routine MRI for my ongoing bulging disk issues. I have had other radiology over the past 7 months and there was nothing in these places. I had…
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Oncologist webinar for patients about ESR1...
I came across this and thought it might be helpful to some as it has a Q&A with an oncologist and is just for patients. It is about ESR1 mutations and what treatments are available that target it. Here is the info: https://us02web.zoom.us/webinar/register/3716946173479/WN_I7tieDjBTzmi7n67dP3Nwg