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I am so mad
I hate being here but here I am. Diagnosed stage IV to liver (20+ lesions), lung, spine, pelvis, skull (so I am not long for this world). I have no symptoms. It was caught during a routine MRI for my ongoing bulging disk issues. I have had other radiology over the past 7 months and there was nothing in these places. I had…
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Recently diagnosed with metastatic recurrence seeking insight
Well, after ten years, I was diagnosed with bone mets in March. I had unbelievable pain in my hip and was incorrectly diagnosed with bursitis. Fast forward six months and with some persistence in requesting scans, they discovered that my femur was fractured and I had been walking on it for at least six months then they…
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Recurrence after 12 years (even with BMX)
I was diagnosed and treated for ILC Stage 2b 12 years ago. Had BMX and took Tamox and AI for about 6 years. I was told 1-2% chance of recurrence in chest wall, etc. Low and behold, a lump under my arm on original BC side. Biopsy confirmed not a lymph node but ILC tumor. Surgeon planning to remove tumor and potentially do…
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Kisqali
Anyone taking Kisqali for Advanced Stage Metastatic Cancer. If so how how long did it take for you to know if it was working for you? I have Mets to my liver and spine, likely in lungs too. I just want to feel better.
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Oncologist webinar for patients about ESR1...
I came across this and thought it might be helpful to some as it has a Q&A with an oncologist and is just for patients. It is about ESR1 mutations and what treatments are available that target it. Here is the info: https://us02web.zoom.us/webinar/register/3716946173479/WN_I7tieDjBTzmi7n67dP3Nwg
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Anyone have a Recurrence in Mastectomy breast?
Has anyone had a recurrence of breast cancer after a mastectomy? Many of us are finding areas of concern, in the form of a lump, after having a mastectomy. I had two lumps in my left mastectomy breast with DIEP reconstruction, but after being tested twice with US, at 6 month interval, they were diagnosed as fat necrosis.…
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Mets to Liver
I have recently been diagnosed to mets to my liver. I am scared and have problems eating
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Unilateral vs Bilateral Mastectomy and Recovery
Hi, I was diagnosed in June of 2017 at age 42 with DCIS in my right breast. It was high grade and estrogen and progesterone negative. I do not have a history of breast cancer in my family or the BRCA genes. I had a lumpectomy and 7 weeks of radiation. I was just diagnosed last month with a local recurrence. I’ve met with…
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Clavicle lymph nodes and axilla after DCIS 9 years ago
Back in October I felt a lump above my clavicle, after a biopsy and MRI I was told DCIS from 9 years ago has spread to Supraclavicular and axilla and pec region. There was a 1 % of this happening after the lumpectomy and 30 rounds of radiation 9 years ago. I just finished 4 rounds of Adriamycin and 4 rounds of Taxol. The…
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Enlarged axillary lymph nodes suggestive of BC recurrence found UPDATE - it's cancer again
Hi, y'all — I guess the diagnosis is not official yet but it seems to be a foregone conclusion. I am almost 9 years out from left breast cancer diagnosis. Did the mastectomies, 9 weeks of Taxol (all I could tolerate); did 18 Herceptin treatments; 4 months of Arimidex; 3 years of Exemestane; 8 months of Tamoxifen —- all…
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Reoccurrence following reconstruction with implants
October is Breast Cancer Awareness month and cancer decided to make me acutely aware of what month it is. I received my biopsy results last night. Original diagnosed 6/3/2016, now 10/13/2022. It has been a while since I had my implants checked. My oncologist called and asked me to make an appt. Had to wait almost 3 months…
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Tomorrows the Day
Tomorrow I find out how bad this is. I already know it's bad by the level of pain I'm having and how quickly it's moving. I know for sure there's a LOT of bone mets. It started in one rib, now the other side, my hip joint, multiple other areas. I am SO angry. I'm waiting for the damn to burst, because mostly I've been numb…
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Failed SLN mapping prior to surgery - whats next?
Hello! Today prior to my lumpectomy, I underwent lymphoscintigraphy to locate the sentinel nodes for a SNB. Unfortunately, most likely due to my previous mastectomy in the same breast, the procedure failed to identify a drainage pattern to a nodal basin. As a result, no nodes were removed. Wondering if anyone else has…
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Radiation Side Effects?
Hi Ladies! I was recently diagnosed with a recurrence and am having a lumpectomy in less than 2 wks. The current plan is to have 6 wks of radiation treatments following surgery/recovery. I'm not overly concerned; however my tumor is on the left side, right next to my sternum. I can't help but to wonder, what if the…
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Any local recurrence (within few yrs) early stage despite AI?
I am curious whether there are many local recurrences of early stage BC even though a person has followed all treatment recommendations (lumpectomy or mastectomy, and endocrine therapy (aromatase inhibitor, etc). I opted not to do the AI as was told that rad therapy was most important and AI would only add 3% protection,…
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Reoccurrence after bilateral mastectomy
In June 2020, I was diagnosed with hormone negative, her2+ IDC breast cancer. I received TCHP before a lumpectomy, followed by radiation and 12 cycles of Herceptin. In August, 2021 I was considered in remission. Then in January 2022, I was diagnosed with IDC, triple negative, inflammatory breast cancer. I had chemotherapy…
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recurrence after mastectomy
I was diagnosed with a stage 2 hormone receptor positive tumor in Feburary 2020. I had a right side mastectomy and was supposed to take tamoxifen to prevent cancer in the other breast. I started taking it but stopped because I was afraid of the side effects and that I would have to switch from Fluoxetine to another…
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Daughter BC Mets Ovaries- Help
Help My step daughters BC has now been found in her ovaries. She meets with her MO this Friday. What should we be asking! She had a lumpectomy, 3 years later a bilateral mastectomy, ovary removed last week and Monday they called to say BC metastasized. Ugh. Thank you Yall have helped me over the years
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IDC in dermis — what stage does that mean?
Hi everyone—I'm posting on behalf of my wife. She recently had a recurrence of IDC in two places. The first tumor was not actually a recurrence but thought to be a residual from tissue not taken during her single mx. That first tumor had a mix of DCIS and IDC so our onc explained that it still is contained within the Brest…
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Staging tests being done tomorrow:(
A little over a week ago I went to my breast surgeon to have a lump checked under my arm. Same side as my previous cancer 7 years ago. After ultrasound and immediate biopsy it came back positive for IDC. ER+ PR- Her2 undetermined. The grade is 3 though which is why I am so nervous. I have a CT scan of chest abdomen and…
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Lymphoma
hello.. I am a 9 1/2 year breast cancer survivor. After an MRI, pet scan, liver biopsy (inconclusive) endoscopy, CT of abdomen I am going to have an endoscopic ultrasound biopsy of some swollen lymph nodes near my liver area. The uptake SUV was 7.2 in this area and my oncologist is concerned that it may be lymphoma. Still…
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I have a question for my mom
My mom just diagnosed with recurrence and we are waiting for the PET scan to see if it’s local or there is Mets the doctor is saying it’s unlikely to be Mets as the biopsy result shows ki67 is 10 % and The tumor size if 10mm my mom still worries and she is asking if they believe there is no Mets why they are doing a PET…
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Any advice, same breast 2 yrs later, small nodule near surface
So 2 yrs after my stage 1 left breast cancer treated with partial mastectomy and radiation daily for 3 weeks, to my surprise what seemed like a minor small nodule in same left breast, was just found cancerous. My Dr says surface ones like this tend to be aggressive, I am afraid to search the internet to confirm this. Just…
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Local Recurrence, high platelets, what does it mean
Hi Everyone, I really should be working but I'm waiting to hear from Dr.... So after reading some posts and feeling less alone, I thought I would reach out to see if anyone had any thoughts: I am almost 5 years out from initial dx- Lft Breast, IDC stage 1B HER2+, ER+ super weak, and PR-, micromastetic in sentinel node…
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5 years out and now liver mets
Hi all, After just over 5 years from my initial diagnosis, I received word today that my liver has "over a dozen" lesions. I haven't had a biopsy but I talked to my oncologist and she said they definitely appear metastatic to her. I feel fine but had scans because I'm taking part in a clinical trial where they looked for…
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22 Year DCIS Survivor-Just diagnosed with IDC
***Uodate*** I saw breast surgeon and oncologist Tuesday. Clinical stage is 1A which is great although I realize this could change. I'm going for genetic testing next week, waiting for MRI on both breasts, then surgery in mid June. Right now, I have to have mastectomy on left breast as I cannot have radiation again. I may…
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Should I sue?
-Started chemotherapy on 4/2021 -Finished 7/2021. MRI of chest showed everything is clear and was told by former oncologist that I am in remission. -Had a fall on August 2021: MRI showed lesions on my hips and a lump the size of an acorn on my sacrum. Bone biopsy results showed it is adenocarcinoma metatastasis with…
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Recurrence after 10 years
hello lovelies Well such terrible news. I had lobular ten years ago just about to celebrate getting to ten yearsthen due to back pain and tummy pain had pet/ct which shows ten bone Mets big one base of spine, Mets to chest wall, retroperitineal - GP thinks it will be stage 4. I'm seeing my oncologist in two days will let…
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HELP. I am so scared.
Just had 6 yr post diagnosis mammo and wound up having a biopsy that same day due to pleomorphic calcifications found near original site. Rad strongly suspects DCIS again. I am not doing well mentally. I am terrified of having a recurrence. It means that the original treatment didn't work. So how can I stop it now? Had…
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DCIS Recurrence diagnosed today
Here I go again - back on the research and reading train. Just re-diagnosed with DCIS Grade 3 ER- this time (last time was ER+). Nurse navigator seemed confused because it was different. Are recurrences usually the same? (2.5 years since first DCIS) Stinks to get it again - but I'm thankful it's just DCIS, at least for…