Meet others who are just facing the diagnosis of a recurrence of breast cancer or metastatic (advanced) disease. You are NOT alone.
Hello, My original diagnosis in June 2022 was Stage IB (T2N1mi) ER-93% PR-70% HER2 - (2+ by IHC 1.0 by FISH ) Ki-67-80% I did lumpectomy and breast reduction, 4 rounds of TC, and anastrozole switched to fulvestrant due to side effects. In April of 2025, my CA27-29 spiked and imaging was ordered. Signaterra negative for…
Three weeks ago I thought I might have a retinal tear when I woke up one morning with bright flashes in my eye. But my optometrist saw something different. Long story short he referred me to an ocular oncologist and she diagnosed me with breast cancer eye metastasis after almost 9 years NED. It's a rare location (only…
Hello All. I was diagnosed with stage 3 BC 16 years ago and had mastectomy, chemo and radiation. Have been in survivorship program for 15 years. Persistent cough took me to Er last week - CT showed multiple lesions in my lung and liver - dr thinks it is metastatic spread to organs. Had a liver biopsy yesterday. Awaiting…
originally diagnosed IDC grade 2 , stage 3A HR+ with Allred score 8/8 and HER2- at the age of 46, 10 years back . Surgery, chemo and radiation therapy done as part of treatment followed by 5 years of tamoxifen followed by 5 years of letrozole and Zolenic acid. Now got bone pain few months back. When done pet scan and MRI…
I'm not sure whether to post here or in the Stage IV forum. I had a PET Scan on Monday. I was called in by the nuclear medicine doctor and told there were mets in my femur, which were causing the pain I have been having. I then received the written report confirming a large met in the femur with fracture risk and spots…
10-14-2025 Hello to all. It's been confirmed to me yesterday that the breast cancer first found in 2019 has caused a large pleural effusion in my right lung that's been developing over the last four months.Can't say I'm surprised, but will speak more of it in the Metastatic Breast Cancer ONLY forum group. I will be joining…
Help! Thought it was gone forever, after having DCIS in 2017. Had a single side mastectomy with recon. In June this year, I saw a big lump on my chest. I went to the docs twice - saw a paramedic and a nurse. even though I explained my history, they were both convinced it was a fatty lipoma. I insisted I get seen, they said…
I was recently diagnosed with her2 negative metastatic breast cancer stage 4 that is not in breast but now in bronchial, bone , abdomen , pelvis. I have been coughing a full year. Had breast cancer stage 1b in 2020. So recurrence. Wonderful Pulmonologist was one that finally found what was wrong through lung biopsy ! Went…
Hello , My name is Jill and I will be starting Xeloda next week. I was on Ibrance/Letrozole for 16 months and it has stopped working. I am curious about the new meds and wanted to talk to you ladies about a few things. I have not met with the Onc Pharmacy yet to discuss the drug and ask various questions so I figured I…
I had a Signatera Test last week and it came back positive also with out of range CA 25-27. I had already had a clear Breast MRI a month ago. The Signatera Test shows circulating tumor cells in my blood. This means I am now Metastatic and I am in shock. I'm only 3 years out of chemo/rads/hormone therapy with 2b and 1…
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