Faslodex Girls Thread
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I have had to take several breaks from Kisqali when taking antibiotics, most recently for two months. Never had to stop the injections. The decision to give the injections is based upon your labs. Did the nurse comment on them? Can you see them on mychart? I have no medical background, but I would think it has something to do with liver or kidney numbers. Can you call MO?
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@irishlove - I have nothing I can relay about your situation, but just want you to know I'm thinking of you and hope all turns out well. (I just went for my shots last week and they were stopped due to progression. I think yours has more to do with the UTI and antibiotics which I wouldn't know anything medical about.) Hug.
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Irishlove. I would check with my oncologist. I have had ibrance stoped for various reasons but never the hormone med.
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Hi all and thank you for the caring responses. Actually I asked the nurse and front desk and all they could tell me was doctor notes said no shots till Feb. I'm not signed up for portal (well I was but somehow I can no longer access it) so no answer. Well I guess it'll remain a mystery till next month.
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Irishlove. I just read your original diagnosis. The wors micropapillary caught my attention. When I was diagnosed in 2015 they made a big deal out of that type of cancer. Nothing they said was correct. I was told it had a high rater of return and it probably would be back in a year or two in my breast. It was 7.5 years before it returned in the pleura of my lung. Did the drs think it was a concern for you?
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I imagine the doctor just wants you to take a break for awhile due to the UTI and antibiotics, i.e. doesn't want you too overloaded with drugs; giving you some time to tackle the infection properly. (Just a guess on my part, but seems reasonable.)
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To all of my fellow injectees who suffer along with me each month - Wish I could faint until it was over and then have someone wake me and send me on my way!
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I encountered a nurse once at my clinic who strongly resembles the one in the cartoon. She wasn't a regular, but just helping out for the day. She had a forceful demeanor and I thought she looked like she could beat me up, so I was initially nervous. She turned out to be really nice, though😊. I can't remember though, if she gave me my shots. It would have gone fine if she did. You stirred a memory, Eleanora.
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Being relaxed after passing out is not such a bad thing. Sometimes it is really hard to relax. This month wasn't so bad. Last month I felt edgy on shot day and the shots hurt more.
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Gee ladies, I'm sorry to hear you don't like getting those shots. I was on faslodex for 8 years and it really only hurt 1 or 2 times. I far preferred the shots to taking pills everyday. Side effects with the femara was too much. None with the faslodex. I'm actually on anastrozole now with the same bad side effects and hoping to go back to the faslodex soon.
I hope you all can relax your butt cheeks for pain free and long effective treatments.
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Gailmary. The shots really aren't that bad. The discomfort is momentary. I just don't like shots. I will take the shot over the side effects from anastrozol/letrozole. Whennit comes to side effect fulvesterant is so much easier. It was because of side effects and quality of life that I am on the shots.
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How lucky you were that the shots weren't painful. Reading the comments on this thread makes me think you're in the minority. I've been on faslodex injections for almost 4 years - always during the injection and sometimes longer if the painful lumps take a while to dissolve. I have picked up various "tips" from the nurses who do the injections and the most recent one is really helpful during the injection itself: once the needle is in, ask the nurse to lightly tap around the injection site.
How are you doing with your new treatment? Are you still on faslodex as well as Xeloda? Hope the fatigue is improving. Switched to a new primary care and she's wonderful. I also have fatigue even though I believe that I get enough sleep. Suggested a sleep study to see if the quality of my sleep is poor. That won't be scheduled until next month, but I will let you know if they have useful recommendations.
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galmary: You mentioned you were on faslidex for 8 years ? That is super, why you had to move to anastrozole ? And now back to Faslodex ? I am on Faslodex for 4 years and NED so far..
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Because I got Triple negative breast cancer and addressed them both with chemotherapy. When that was done went back to anastrozole but it interferes with falling asleep. Lifelong insomnia is greatly worse. More aches and pains too.
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Happy Valentine's Day to all of you !
I am on year 7 of faslodex shots and have not experienced pain or lumps from the injections .One time it may have hit a nerve but it wasn't painful for long . I think I've had over 80 of these shots (160 if you count 2 per visit !) . I feel like those of us who don't experience side effects don't post about it, if that makes sense . Not sure of the % of patients that experience pain / lumps from the injections but I am sorry for those who experience pain from this injection . I think they should allow patients to try and oral serd if the shots cause pain. Currently , I think you need to have acquired a mutation to take the oral version .
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Aprilgirl, I love your tag line. It helps to remember it’s all part of the dance. I feel calm inside afterwards
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During my routine follow up today my MO mentioned that 2 oral Serds are launched ? No name was discussed as I am doing good on Faslodex. Anyone has any update on oral serf ? Thanks
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Medicare approved me restarting faslodex. 1st loading shots next Wednesday.
I liked the new Onc fine. Another Locum (temporary) that makes my 6th since 2008 with first dx. My concern is always if they are up to date. Glad he brought up my bones. I haven't had a dexa scan since 2017 cause I was on xgeva thn developed sore jaws. Anyone else on Xgeva? For how long? What are your dexa scans saying?
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I like foslodex better than aromatase inhibitors. Except that they require shots. I do glute exercises before and after. I have very few side effects.
Glad you like your current onco. I am on my 7th. My last one I liked but she retired. My new one is am very impressed by. She is strictly breast cancer and keeps up to date.
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Glad that you like the new MO. I've been on Xgeva since 2022. Last fall changed frequency to every 8 weeks instead of every 4. My 2024 DEXA showed that I had improved from osteoporosis to osteopenia. My next scan will be summer, 2026, as Medicare only allows one every two years.
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