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Help progressed to Brain Mets and fighting for the right treatment
Hi All, Been lurking on the stage 4 forum for some time. Now I need help. I live in the UK and attend UCLH where treatment seems to adopt a more cautious approach. Originally on Breast 09 trial but randomised and receive standard of care😢 6 rounds Doxetaxel and H & P. Over 2 years later and progression to Brain Mets. Upper…
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Important Stage IV Topics and Links for Stage IV Newbies
Here are some helpful resources if you've just been diagnosed with stage IV breast cancer, also known as metastatic or MBC. Join our free Virtual Support Groups for MBC! Do you have metastatic breast cancer (MBC; also called stage IV)? Register: Mondays at 2:00 PM EST, Tuesdays at 8:30 PM EST and Wednesdays at 4:00 PM EST…
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17 years out - Now possible brain mets?
Hi everyone, this site was such a tremendous source of support during my previous experience, but I have not been here in quite a while. I thought I put this part of my life away. I was diagnosed at 38 with TNBC, Stage 2 in 2008. Underwent lumpectomy, chemo and radiation. My port tried to kill me… got infected and put me…
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Should Doctors Regularly Screen for Breast Cancer Brain Metastases?
Should Doctors Regularly Screen for Breast Cancer Brain Metastases? Mar 5, 2025 Research suggests current screening guidelines for brain mets need updating. Read more…
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Gamma Knife Surgery for Brain Mets: What to Expect
We asked our awesome member, @illimae, to share her first-hand experience with receiving Gamma Knife surgery for brain metastases in order to help others feel more at ease with this intimidating treatment. We are grateful for Illimae's willingness to share and we hope you find this helpful! Gamma Knife for Brain Metastasis…
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Brain Mets Sisters
Starting this for a friend. Edited to explain that the friend was imbell who was feeling overwhelmed by wbr. She helped us all by starting this. Shes in peace now. See you in the clouds, imbell.
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Psychological reactions to aromatase inhibitors.
I'm sure this has been discussed on other pages but I want to start a thread specifically for this discussion. For the second time, I have had a severe neurological response to Aromatase inhibitors. The first time I was told there is nothing that would help so I quit taking the meds That was 6.5 years ago. I recently had a…
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Remembering Shannen Doherty: Her Breast Cancer Story
Remembering Shannen Doherty: Her Breast Cancer Story July 19, 2024 Through her podcast, social media, and openness with the media, Doherty offered the public an intimate look at her experience with breast cancer that spread to her brain. Read more…
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HER2-Positive Brain Mets Respond to Enhertu
HER2-Positive Brain Mets Respond to Enhertu September 12, 2014 The targeted therapy Enhertu (chemical name: fam-trastuzumab-deruxtecan-nxki) helped control areas of metastatic HER2-positive breast cancer in the brain, according to results from the DESTINY-Breast12 study presented on Sept. 13 at ESMO 2024. Read more…
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Tukysa Plus Kadcyla Better Than Kadcyla Alone for Metastatic Breast Cancer
Tukysa Plus Kadcyla Better Than Kadcyla Alone for Metastatic Breast Cancer Dec 7, 2023 Adding Tukysa to Kadcyla improved outcomes for metastatic HER2-positive disease. Read more…
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Is anyone taking TUKYSA ?
I have been taking this drug for about 4 months now. I was started at 600 mg but had to drop to 300 mg daily due to serious diarrhea.It is supposed to be able to cross the blood/brain barrier and stop MBC from getting into your brain. I had 4 brain Mets removed in 9/2020 with radiation. Does anyone else take this and what…
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Wife Just Learned Of Brain Metastases
Married to the Love of my life since April 13, 1985. Our marriage like many has had it’s extreme highs and lows but after 38 years we are still together. The day before Thanksgiving 2020 we were caught totally off guard with the news that she had breast cancer and they were waiting on final results but almost positive it…
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Just diagnosed with metastatic breast cancer (MBC), Stage IV? Start here.
Here are some helpful resources if you've just been diagnosed with stage IV breast cancer, also known as metastatic or MBC. Join our Zoom Meetups for MBC! Anyone with MBC, register here: Mondays 2-3:30 pm ET Tuesdays 8:30 pm ET Wednesdays 4-5:30 pm ET Younger With MBC, register here: Thursdays, bi-weekly at 1:00 PM ET…