See what others are discussing and join the conversation.
Join our weekly virtual support group for all who are planning or going through active treatment for early stage disease (I-III). If you've just been diagnosed and are planning surgery, chemo, or radiation, join our weekly Zoom Meetups. We have two meetings for you to register for: Register here: Tuesdays at 1:00 PM…
We know this community is so important, so we’ve made it even easier for you to connect with others. With this update, you can: ✅ Share more about yourself so others can get to know you ✅ Find members with similar experiences using profile searches ✅ Get personalized support and resources from our community team How to…
Using the information you and others share, you can find others based on: 📍Location (ex: lives in Philadelphia, Pennsylvania) 🌍Demographic (ex. is Black or African-American) 🧬Diagnosis (ex: diagnosed in the last year with stage II, ER+, PR+, HER2- breast cancer) 💊Treatment (ex: has been treated with a unilateral…
Were you diagnosed with breast cancer at age 45 or younger? Or are you caring for someone who was? Navigating this experience can be lonely — it can sometimes feel like no one gets it. What do you wish others knew about having breast cancer at a young age? What do you wish you had known? Your answers may help others. Click…
At Breastcancer.org, we often hear how much nurses mean to people going through breast cancer. It’s the nurse who often explains the diagnosis and treatments to you in simple language, helps manage your side effects, offers you reassurance, and connects you with the care you need. Nurses are also a source of emotional…
Hello, I'm Jamie, senior editor at Breastcancer.org and host of The Breastcancer.org Podcast. I'd like to make sure the podcast is answering questions that Community members have. Are there topics you'd like to see covered? Experts you think I should talk to? Do you want to share your story? Questions you want answered?…
Getting diagnosed with breast cancer can be scary. If you had a chance to share with a newbie one piece of advice to get them through, what would it be? Choose from the options below or add your own in the discussion to give new folks a sense of calm and understanding.
Researchers at Mass General Brigham, Dana-Farber, and Harvard Medical School are exploring how AI chatbots can make clinical trial consent easier to understand. They’re inviting adult cancer patients across the U.S. to join a virtual focus group and share their ideas. Participants will receive a $100 gift card. Spots are…
Reoccurrence of EST+ HER2- breast cancer. Results from PET FES shows cancer in all three levels of Axillary lymph nodes. Are there any options beside surgery? I worry about Lyphodema.
After 7 years past double mastectomy without issue (no other treatment at that time), I was recently diagnosed with a new breast cancer occurrence, a 1-2 cm lump in my breast skin. After two surgeries and three lymph nodes removed, all testing positive for same breast cancer (ER+, PR+, HER2-), I'm told I will have to do a…
Hi community. I'm posting since I haven't found a similar case yet. I opted out on surgery and chemo (too late), and it's been a good run for 7 years. The LE came on slowly to rt arm, dr diagnosed. Now its in both feet, then the left breast just swelled in size. No real noticeable discoloration. Has anyone else had LE…
Hi I'm back. I was here many years ago. I used to talk to Benny and others and I did some modeling for lymphedema's sleeves. I'm in huge trouble now. I have terrible osteoporosis and I need blood drives desperately yet I have injuries on my feet and bilateral lymphedema and I'm in a wheelchair. Where else can we get a…
My arm did not swell up but my breast did by a lot after my lymph nodes were removed. It has been over 4 months now and my effected breast is twice the size of my other breast. My oncologist said oh well it will just be like that forever but she never even looked at it. I am in Canada but I heard not all oncologists are…
Hello, I was supposed to have LYMPHA (bypass) during my double mastectomy/ALND in 2023. The surgeon at that time could not find any good vessels to make the connection in the axilla. So, I wear a sleeve 8 hours every day and do regular manual lymph drainage to manage mild lymphedema and keep it from progressing. I've also…
Hi, All — I'm 11 years out from diagnosis and Lx/Mx. I have had issues with LE off and on since, but not much in the last 4 years or so. I wore a more substantial bra on Sunday. I usually only wear it for a few hours and then take it off, but I wore it all day. When I took it off on Sunday night, my cancer-side…
https://www.youtube.com/watch?v=mY6QkFngqIQ
Hi all! This evening(some two hours ago) I was bitten by a mosquito on the arm with axillary clearance, on the mastectomy side. I`m freaking out about lymphedema now. I washed it with soap and I`m keeping ice on it. Any advice on what to do, please? How big is the risk now?
This is my first post in this group as I know I have IDC. I had my lumpectomy and SLNB yesterday. I was at hospital early as they put a wire in, they injected the lymph nodes with nuclear something, had a gamma scan, had an MRI and ultrasound. I was supposed to have the IDC and another suspicious area removed (that was…
Hi! Has anyone else been sent to PT to stave off lymphedema after having lymph nodes removed? My surgery was a month ago and I have no symptoms. I just don’t want to waste more time and money if I don’t need to. Thank you for any insight!
The main Breastcancer.org site offers helpful information in the extensive Lymphedema section, including: Lymphedema Signs and Symptoms Reducing Risk of Lymphedema and Lymphedema Flare-Ups Lymphedema Treatments Finding a Lymphedema Therapist There are also great tips and practical advice on the following discussion board…
It looks like you're new here. Sign in or register to get started.
These posts are awaiting responses - can you help?