Dealing with Lymphedema w/o surgery?
Hi community. I'm posting since I haven't found a similar case yet.
I opted out on surgery and chemo (too late), and it's been a good run for 7 years. The LE came on slowly to rt arm, dr diagnosed. Now its in both feet, then the left breast just swelled in size. No real noticeable discoloration. Has anyone else had LE without first having surgery/chemo?
I imagine my lymphs are just overworked and of course blocked by MBC. And, it's time. Yesterday I realized I had developed a serious allergic reaction to Dettol, and stopped using it. I instantly felt better; maybe that was causing some extra work for the lymphs. Thank you.
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I think you answered your own question when you surmised that the MBC spread could be causing blockages in your lymphatic system given the varied places LE has appeared. Lymphatic massage should help some whatever the cause. Licensed therapists who will also teach you self massage are the first choice but if none are available there are many good videos on how to do this yourself. Make sure to check the credentials of the person producing the video when you choose. I hope you can get some relief.
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I agree with @maggie15 - you might want to try this gal on YouTube. I checked with my OT rehab therapist ( I have Lymphedema in my right arm) and she says she’s good. my skin Mets invaded the lymphatic system under my arm and it caused lymphedema to develop. Since radiation alleviated the skin Mets, my arm swelling is almost gone. I do the massage, and plan to wear a sleeve, but I can ow go hours without anything and no new swelling. The lymph massage helps a lot.
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