Oct 19, 2021 07:10PM 4sparky wrote:
Thanks for sharing that quote Alice, it’s so true.
Posted on: Oct 5, 2021 03:48PM
Posted on: Oct 5, 2021 03:48PM
4sparky wrote:
I have been reading on this site for some time now but haven't really participated much, not really sure why other than maybe trying to protect myself a little as I don't have a lot of support and have been trying my best to get through all this on my own (telling myself I have to be strong not only for myself but for others in my life). I was diagnosed one year ago today and in the beginning I had a great peace about everything but as I get closer to the end of active treatment I am finding I am struggling more and more and my anxiety is getting the best of me more than I would like. I recently went through a scare with a new found lump (not cancerous) and I am still receiving targeted therapy for another month or so but I am dreading having my time at the clinic with my medical team come to an abrupt end. Having been at the clinic every week to three weeks for the past year has been my most consistent human contact over the past year/year and a half due to my diagnosis and covid. I have really restricted contact with others since they just don't seem to understand the importance of keeping as healthy as possible as I go through treatment. I don't want to get even a cold as I know the anxiety it brings when I am sitting in the waiting room and someone coughs, cancer brings about enough anxiety on it's own. I am feeling like without my constant appointments I am going to be left with little to no support and it's taking a lot out of me and I am starting to think I may be a bit depressed. I am hesitant to try depression meds due to side effects when I tried them in the past but don't like where my head is/has been going lately. I have regular sessions with my counselor and am very honest with how I am feeling which is good but she is not/has not been a cancer patient so she can't fully understand how I feel. I am grateful for everyone on this site that is so open with how they are doing and for those who share the reality that is life with cancer. Thanks for being here and for the support you have provided. I know I am not alone in my loneliness and and will continue to read those posts that help me find a space where I feel I fit in and am understood. Any suggestions on how to deal with the loneliness would be appreciated, it's hard to come up with things to keep myself entertained/focused when all I see is how much the people in my life have let me down over the course of this diagnosis.
Oct 19, 2021 07:10PM 4sparky wrote:
Thanks for sharing that quote Alice, it’s so true.
Oct 20, 2021 06:47PM btwnstars wrote:
4sparky, I can identify with the loneliness and strange feelings at end of treatment. A lot of it is probably also covid related and how heightened we have to be being immunocompromised.
This thread has some great suggestions already. I am starting with a support group thru a local organization soon. I know my cancer center had them too and right now they all meet on zoom, so maybe you can look into that?
I totally understand the thing too with everyone else thinking your “done”! I am trying to just let it go and forgive them for not understanding totally. And just deal with it on my own & of course here. Even ppl who have been so great and supportive thru this, they just can’t relate or get it. And that’s ok, I would rather they never know.
I have also found being on this site and helping others with my info or experience is a way to connect.
Just want you to know you are def not alone
Oct 23, 2021 04:40PM 4sparky wrote:
BtwnStars,
I am with you in hoping those in my life never fully understand or get where I am coming from because then they too would be walking in our shoes of this thing called breast cancer. I had seen it from the daughter/caregiver perspective with my Mother so had a good amount of knowledge going into my own diagnosis but there are things you just don't understand until you are the patient. I am trying to find grace for myself and others as I do believe everyone is doing there best. I am very hard on myself so when I get really emotional/scared/anxious I expect I should handle things better than I have been for the past few months.
I have looked into support groups in my area but have yet to find any that are breast cancer specific but I won't give up looking. I also am excited to think I can become a mentor at my cancer center to help others as they go through this process.
Grateful to be feeling a bit stronger the last few days.
Thank you for your response and support.
Dec 2, 2021 06:17PM DanielleSeverance wrote:
This community is amazing! I'm more reader, than writer, but some posts and some tips are incredible. Some post feel like they are writing about me and not them. We are sharing same problems so we think similar. Thanks for your post and I hope you're doing better 4sparky!
Dec 2, 2021 09:28PM 4sparky wrote:
Hi Danielle,
I am doing much better, thank you. I decided about a month and a half ago to give an antidepressant a try and it has helped tremendously. I am still cautious with it for fear of experiencing similar side effects to what I experienced in the past. All on my health care team are aware of what happened in the past and I can go to any one of them for support if/when I need it even though I don’t see them all so frequently anymore. I have and will continue seeing my counselor regularly and have accepted that although active treatment has concluded my cancer team is still there for me any time I need them, I just need to reach out to them.
I don’t know where you are at with your diagnosis/treatment but I would definitely encourage you to keep reading as there are so many extraordinary women and caregivers on this site who have great things to share. I too am more of a reader than a writer but have found the few times I have posted I have received great responses and care from all.
Wishing you well! Wishing all well!
4sparky