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Sep 17, 2011 05:46AM
Ok, not sure how relevent what I have going on is to this forum, but I will lay it out from posting it over in DCIS, and you can take it for what it is worth! :)
Thanks to everyone for their positive comments, support and prayers. I can't tell you how much it means to me.... and I so believe in the power of prayer~! Thought I would just give you all an update taken from the notes the doctor gave me.
Meeting with oncologist today was hard. I had not really been informed yet about seriousness of my condition. Apparently my cancer is stage IV. Chance of cure not very good. But she did hold out slight chance... so will seize that and hold on to that... :-)
Essentially she said I have Matastatic Breast Cancer, stage IV, It appears to have only spread to the skin, and into some lymph nodes, so is limited (it was asked if I had the sentinel lymph node tested when I had my mastectomy. I did and it was negative for cancer). She also pointed out that there is not a test for cancer cells in the blood, so who knows, but hopefully the chemo would knock any out that are there. The cancer showed weakly for progesterone and estrogen receptors three years ago, but now shows negative. It is positive for Her-2-neu.
She prescribed multi-modality therapy, a mixture of chemo therapy, Carboplatin and Taxotere, and biologic therapy, Herceptin. Will repeat every three weeks, 4-6 treatments.
She was not positive regarding the chances of it being curable; but did say that if she did not consider it having a chance of being curable, she would not tell me that it did. I have to say, I didi appreciate her bluntness. Even if not curable, she did say it was likely I could have several years left, with treatment... just not several decades. :) I had an odd moment when were were driving home from the chemo. We passed an old home that looked like it had been pretty downright cool in its day. The windows and doors were all boarded up, and I simultaneously felt that I was that house... and that if I could do it, I wanted to fix it up and make it a great home again. It was an odd experience. I don't suppose I will ever have the chance to restore that old house back to her former glory, but I am holding out hope for restoring myself to my somewhat former glory..... LOL Hey! I will take what I can get!!!
So.... feeling ok now; very weepy at the slightest thing. I suppose that is allowed, under the circumstances. Got about 2-3 weeks left with hair; my daughter and her friends have requested to dye my hair some godawful color before it is shaved off. I have promised to do so.... LOL This is the chance to experiment... I may like purple roots that fade into aquamarine blue at the tips... Who knows? LOL And they are still holding out hopes that I will agree to buy a pink wig. Not sure, but I think I have my limits on that one. Regardless, going super short by the end of next week. You have to find what fun you can in all of this!~ And my good friend, Elena in Houston, is sending me one of her wigs she got when she went through this six years ago. She said to me, "I don't know why I thought I needed three wigs, but it was a buy 2, get one free.... so I have a great blonde wig I never wore, and I would love to send it to you!" LOL She is awesome! I met her when I lived in Houston in the mid eighties; she was my manager at my first job there, and although I didn't work for her very long, we bonded. She came to Utah and stayed with me in the early 90's on a skiing trip. She is such a bright, fun and positive person!
Friends and family here are taking it as well as can be expected. I am so fortunate to have a strong support network here at home. It may sound crazy, but I feel blessed. It seems like worst case scenario is a few more years with treatment. I can handle that. Best case would be a complete cure. I can really handle that! :)
THanks so much to you all.... if there is anyone who would like to talk to me in person, regarding any of this, feel free to call me. If I don't answer, leave a message and I will get back to you. Just can't promise how quickly that will happen!